I Have Systemic Mastocytosis

A Systemic Mastocytosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Systemic Mastocytosis. You're not alone. 5 People


    i got really sick after a normal surgery in 2008 , most of the drs who saw me thought it was "all in my head" luckily my mom works at a hospitol, one day she was talking to a dr about me, he wanted to see me, after 2 months of tests (a total of a year after i got sick) i was...
    dumpsterdaisy dumpsterdaisy
    26-30, F
    Apr 18, 2012

    Newly Diagnosed Mastocytosis-systemic

    Hi All, I have been ill for months....without relief....few answers....multiple hospitalizations. No one could figure out what was happening. However, I went to an extremely wonderful and compassionate gastro doc who worked with me. made appropriate referrals and yesterday based...
    Sephardigirl61 Sephardigirl61
    61-65, F
    Jan 24, 2013
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