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I Have Tardive Dyskinesia

A Tardive Dyskinesia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tardive Dyskinesia. You're not alone. 52 People

    Need Some Info, Mother Has Dystonia

    Thanks for opening my post. My mother was diagnosed several months ago with tardive dystonia. She was quite upset about the diagnosis, especially from the doctor that gave her his prognosis... she didn't like him very much thus didn't like what he had to say even more so. She...
    teatime2006 teatime2006 26-30 2 Responses Jul 1, 2013

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    I'm Not Alone With Td

    I've had TD 4 years, Neurontin is another rotten drug. It only took two pills to ruin my nervous system. There are so many drugs that say in fine print, "may cause tremors". ******* isn't tremors, it's a catastrophe!! I think we should make the AMA pay for our suffering...
    Boshie Boshie 61-65, F 3 Responses Jul 24, 2012

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    I was very recently diagnosed with TD.

    I was put on medication for OCD and my symptoms started about 3 months later. Bit I attributed them to getting old them to a severe cold them flu them pneumonia. It started with a mild twitch into face to a slight pull in my neck, to a strong pull, now I have a strong pull and...
    photofan75 photofan75 36-40, F 2 Responses Apr 6

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    Cant Stand The Painandthey

     hi i have tardive dyskinesia, my dr gave me gedon for depression i was taking it for almost a year when the symptoms began happening, i ve stopped the drug but the symptoms are still here i am having a really hard time with it sometimes i cant even get out of bed, i feel...
    Mufasa83 Mufasa83 26-30, F 3 Responses Dec 17, 2009

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    I'm Looking For Answers

    I currently went off of Geodon and I'm experiencing muscle spasms all over my body, eye spasms, etc. Will these symptoms get worse? I'd like to hear from people currently suffering from this disease. My psychiatrist doesn't know if it is TD yet because he says it is so rare yet...
    allthingsarepossiblewithgod allthingsarepossiblewithgod 31-35 7 Responses Apr 4, 2012

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    Mistaken Beginning

    on aug 24/12, i fell down a flight of stairs at a subway station.in rehab for 10 weeks, they noticed my shaky legs, burning crotch and total insomnia. the y referred me to neurologist for diagnosis.Two neurlogists could not explain the fall but i have td 100%.they said it was my...
    mervdoc mervdoc 66-70 2 Responses May 15, 2012

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    Array Of Antipsychotics

    I have been prescribed abilify, Latuda, and risperidone. Been on antipsychotics for roughly 1 year. About a month ago I noticed small twitches in my lip. It has now progressed to the left side of my face tightening and my jaw clenching. Along with puckering and licking of the...
    Jdmorrison94 Jdmorrison94 16-17 2 Responses Jun 2, 2012

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    I Have Tardive Dyskinesia And Feel Hopeless

    I was on Geodon for a year and a half. At about ayear i started having a small nod to my head, like I was saying yes to something but there was nothing. It got worse when i was trying to sleep so I complained to my Psychitrist ande she put me on a side effect med i forgot the...
    akacrazylady akacrazylady 41-45, F 2 Responses Aug 1, 2012

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    Will I Get TD?

    I've recently switched to risperidone after about 4 years of taking zyprexa. I took five mg of zyprexa once a day and am now taking 2 mg of risperidone. I have noticed over the past few months or so, that at night while i'm lying in bed, there is a sensation in my mouth, a need...
    mmfurgs mmfurgs 36-40 2 Responses May 25, 2013

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    Worried

    I am an artist that is worried that my days of painting could be over if the tremors and pain continue. No one seems to know if it is TD or parkinsons because there are no test to differentiate the two. I have been on abilify and seroquel for 10 years.  I guess it's caught...
    colorist colorist 51-55 1 Response Oct 22, 2008

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    I've been on Risperidone 2mg

    since 2000 and got involuntary movement of the mouth in 2011 which got worse so had to reduce my dose to 1mg. (At its worse I was borderline suicidal as my face/jaw ached and everybody was passing comment. I cried!) I then started to have mouth opening when I was eating while on...
    hotlips1 hotlips1 46-50, F 1 Response Feb 12

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    Tiny Dancer

    Hi, you can call me Tiny Dancer, that is what my daughter says TD stands for. I am a 53 year old female who developed TD in April 2010. I've been on anti-pyschotics for 30 years.  I have been on all kinds of drugs, to help my bi-polar. The use of these drugs caused my TD. I also...
    cindymcmahan11 cindymcmahan11 51-55 3 Responses Dec 20, 2010

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    I Have Tardive Dyskinesia From Taking Metoclopramide

    I am new here, I was told I have Tardive Dyskinesia from taking Metoclopramide, I took it for over 8 years, 4 times a day at 10 mg's, I now have developed sever symptoms, I also suffer from depression and diabetes, needless to say, this has me really down, i hardly leave the...
    Paul1954 Paul1954 56-60 5 Responses Nov 2, 2012

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    Seeking People Who Can Empathise, And Who Understand.

    This is my first time looking for support groups for tardive, I was diagnosed in may after months of thinking I was cracking up, amongst the symptoms my lips and tongue were constantly movin and I was grimacing and my speech has been impaired. My doctor at first said it was...
    Millap Millap 36-40, M 5 Responses Oct 11, 2012

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    This Is A Question For Tardive Dyskinesia Victims

    Have any of your doctors ever called you psychogenic? That means that you are doing these movements on purpose and not because of an adverse reaction to a drug? During my first appointment with a movement disorder specialist, she conducted a very thorough exam and even asked if I...
    Boshie Boshie 61-65, F 4 Responses Apr 14, 2013

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    Scared

    i have been worried since the doc said Tardive Dyskinesia. my issues are uncontrollable eye movement (raising of the eyebrows or lowering). Mouth movement corners of the mouth turn down. clenching of the jaw sucking my tongue. my hand have a slight shake to them. uncontrollable...
    charmed88101 charmed88101 31-35, F 6 Responses Jun 8, 2011

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    Metoclopramide

    I took metoclopramide for over eight years and was never warned of its side effects. I am experiencing TD symptoms and have been to numerous neurologists. I am being told it is a psychogenic disorder and need counciling. Reluctantly I have been to counciling and am told their is...
    dave1364 dave1364 46-50, M 3 Responses Sep 12, 2013

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    I Thought I Was A Freak

    I didn't understand what was happening to me--the convulsive-like movements and the horrible pain which no one around me can fathom. I became even more depressed and reclusive, feeling like a freak and very much alone.
    Jokmare Jokmare 56-60, F 3 Responses May 6, 2013

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    Public Awareness Campaign On Drugs That Cause Td

    Hello I am doing research for a consumer awareness campaign whose mission is to show the reality of Tardive Dyskinesia and other movement disorders that can result from the use of certain medications. As part of our campaign we will be launching a website that will provide...
    ManuZe ManuZe 36-40, M 6 Responses Mar 16, 2010

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    Neurology Appointments By The New Justin Nudder

    I gave myself a new nom de plume since I seem to be doing nutty things. I had to fill out a bunch of medical forms, but the important one was out of alignment, and I wanted to make a copy. I decided after many tries that they must not want patients to be able to make their...
    Boshie Boshie 61-65, F Aug 23, 2012

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    Am I Worried Well, Again? Pls Tell Me How You First Had Symptoms?

    I have been on neuroleptics for 20 years or so I have Schizophrenia, i'm 38 and Autistic, married, currently being a housewife and daughter and sister and friend - that's about it... I go to yoga at the moment but have been worried about my mental stability I have had severe...
    greentigress greentigress 36-40, F 4 Responses Nov 23, 2012

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    Lori Dena Brown-a Journey To Save Her Life.

    Short Summary I enjoy writing and also publishing books. Mostly I write stories that have no specific relation to any particular place in time. Poe is one of my favorite poets, and as of late I find myself living what could be a Poe epic. I will be writing a book detailing the...
    msixon msixon 41-45, M 1 Response Nov 17, 2012

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    I think I have TD, I took Reglan

    for four years on an as needed basis. In october 2013 I got something like twitches in my legs that I cannot control. And I begin to feel restless so I think I might have tardive akathisia as well.
    yasi2010 yasi2010 26-30, F 1 Response Apr 26

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    Tardive Dyskinesia

    I got TD from Zoloft. Can you believe it!! I took it for 13 years on and off and never had any symptoms. Went off zoloft with no problems for a year and started to have panic attacks again. I started the Zoloft which ended me up in the ER twice in one week. The doctors still keep...
    lazylizard lazylizard 46-50, F 3 Responses Nov 27, 2013

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    Anyone use any of these treatments

    for Oral Tradive Dyskensia (from medications) and they worked?  Medication: Aricept bachlophen mirapex requipe vimpat zofran Baaclofen Botox benzodiazepines clondine tetrabenazine oxypertine Valproate (depakato progabide propnol amantaine posteroventriacal pallidotomy...
    lazylizard lazylizard 46-50, F 2 Responses Dec 20, 2013

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    Going Crazy

    I am about to hit my one year anniversary of symptoms of tardive dyskinesia. First in September I tried taking nothing, but the symptoms and my suicidal & homicidal thinking coupled with severe depression along with the maddening symptoms of TD remained. By December, I was...
    aclkona aclkona 36-40, F 1 Response Jul 23, 2012

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    Botox Injections In The Eyes?

    Today my Neurologist suggested that we get some botox injecgtions in the eye lids all the way around. The reason is cause they Dyskinesia cause my eyes to shut and sometimes squeeze shut tight. They stay that way for second or minutes sometimes up to half hours several times a...
    akacrazylady akacrazylady 41-45, F 10 Responses Aug 31, 2012

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    Cant Stand The Painandthey

     hi i have tardive dyskinesia, my dr gave me gedon for depression i was taking it for almost a year when the symptoms began happening, i ve stopped the drug but the symptoms are still here i am having a really hard time with it sometimes i cant even get out of bed, i feel...
    Mufasa83 Mufasa83 26-30, F 4 Responses Dec 17, 2009

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    Three Days And Counting

    It has been three days since I have had a serious TD attack. You know the ones that make your whole body shake from head to toe. Or just your hands, arms and head and last sometimes for hours? Three days is my record in 6 months. Yay for me. I hate to jynx it or call it too...
    akacrazylady akacrazylady 41-45, F 3 Responses Aug 26, 2012

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    Clenching Agony

    I was on perphenazine for years for schizoaffective disorder .. I began to develop many of the symtoms of TD. The pain became so excruciating I was at a point of rather dying then living one more day with muscle spasms, tics the works ..I started drinking heavily to dull the pain...
    gdolen gdolen 31-35 1 Response Dec 27, 2012

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    Related Experiences

    Hi guys, I'm back and I've got a question. Do any of you lift weights? I am looking for some input. I have been lifting lately and so far the gains have been slow. I have lost a...
    Medic8or Medic8or 22-25 2 hrs ago

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    My life has been roller coaster in every sense. Coming from middle class family in India, I was diagnosed for Acute lymphoblastic leukemia (ALL) at 14 yrs which took me 5 months of...
    smilealllife smilealllife 31-35, M 46 mins ago

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    dear my EP associates, if you have added me to your circle, the only reason I havent added back is because we have not talked. if you wish to have me add you back, please talk. i...
    TheAmazingSpiderJoe TheAmazingSpiderJoe 18-21, M 1 hr ago

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    I was always taught to fear and hate people opposite of my race. I could never understand why I would want to hate another fellow human being when some of our living conditions...
    AquariusLife AquariusLife 26-30, F 2 hrs ago

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    I just have to say thank you to my mum for backing into my car this afternoon. Now I have to call the repair guy. Thanks Mom!!!! * these aren't our cars, just a photo I found...
    AquariusLife AquariusLife 26-30, F 2 Responses 2 hrs ago

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    I have spoken to a lot of people this Very early morning! 🌘 I have gotten great compliments💁, great advice 😇and met many wonderful people👫👭👫👭👫👭
    Fashionlover03 Fashionlover03 13-15, F 2 hrs ago

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    Recently my sister came out as a trans to the whole family. This has been very tough on us. I'm not against it, but I am having a hard time calling her a "he". I still cannot see...
    Thundrcrackr Thundrcrackr 18-21, F 2 Responses 2 hrs ago

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    I always have had drama, and always will have drama. The relationship between my dad and me has gotten a lot worse, I don't feel like talking to him ever after remembering all the...
    hebrokemyheart99 hebrokemyheart99 13-15, F 3 Responses 1 hr ago

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    So many have left.... I just feel like whenever I get too close they just drift away. It always happens.
    oneandonly24 oneandonly24 16-17, F 1 Response 3 hrs ago

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    She is great. I have a girl crush on Felicia Day. <3 Umph.
    DarkwingGoslyn DarkwingGoslyn 31-35 2 hrs ago

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    I'm still in recovery and I relapsed a few times already about a week ago I think. Sometimes I want to be fully recovered and other times I never want to end my ednos. School is...
    XxbixtchybellaxX XxbixtchybellaxX 13-15, F 2 hrs ago

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    I'm crushing on this really gorgeous girl a grade below me. We've hung out w/ friends in the mornings before school but that's pretty much it. Talked to her some through twitter's...
    LordSynth620 LordSynth620 16-17, M 2 hrs ago

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    laura ******* prepon. that is all i have to say
    grottymuffin grottymuffin 13-15, F 1 hr ago

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    Demi Lovato, Ariana Grande, Justin Bieber, Josh Hutcherson, Jennifer Lawrence, and so much more bc I have no life
    osnapitzama osnapitzama 16-17, F 2 Responses 1 hr ago

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    Anybody who has POTS have photophobia (sensitivity to light)? Mine is really bad and worsening. I don't know if it's another symptom of POTS or should I get checked out
    december789 december789 16-17, F 1 Response 1 hr ago

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    I've a essay due later...and I am afraid that again I find myself agitated by its format. We are being forced to draw 6 goddamned lengthy quotes from incredibly biased articles in...
    Ewoo Ewoo 16-17 1 hr ago

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    Im only 15 and have been: Australia New zealand Usa (florida, new york and LA) Ibiza😍 Spain France Germany Turkey Brazil My favourite was ibiza and idk why
    grac3bxo grac3bxo 13-15, F 2 Responses 1 hr ago

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    Have to go on antidepressants to help.
    LittleBeelzebub LittleBeelzebub 18-21, F 3 Responses 1 hr ago

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    Has anyone else had this where they jump to rage like in an instant? I have and I can't figure it out. It will be all little things. They all annoy the **** out of me sometimes...
    darkhorsek darkhorsek 26-30, F 1 hr ago

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    Sometimes guys just cant get what others women can, like little nuances that only occur between a woman and her friend. I mean, its not like you can eyeball a hot guy and then tell...
    MissusBrightside MissusBrightside 31-35, F 28 mins ago

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