Post

I Have Tardive Dyskinesia

A Tardive Dyskinesia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tardive Dyskinesia. You're not alone. 51 People

    Public Awareness Campaign On Drugs That Cause Td

    Hello I am doing research for a consumer awareness campaign whose mission is to show the reality of Tardive Dyskinesia and other movement disorders that can result from the use of certain medications. As part of our campaign we will be launching a website that will provide...
    ManuZe ManuZe 36-40, M 6 Responses Mar 16, 2010

    Your Response

    Cancel

    Neurology Appointments By The New Justin Nudder

    I gave myself a new nom de plume since I seem to be doing nutty things. I had to fill out a bunch of medical forms, but the important one was out of alignment, and I wanted to make a copy. I decided after many tries that they must not want patients to be able to make their...
    Boshie Boshie 61-65, F Aug 23, 2012

    Your Response

    Cancel

    Cant Stand The Painandthey

     hi i have tardive dyskinesia, my dr gave me gedon for depression i was taking it for almost a year when the symptoms began happening, i ve stopped the drug but the symptoms are still here i am having a really hard time with it sometimes i cant even get out of bed, i feel...
    Mufasa83 Mufasa83 26-30, F 4 Responses Dec 17, 2009

    Your Response

    Cancel

    Going Crazy

    I am about to hit my one year anniversary of symptoms of tardive dyskinesia. First in September I tried taking nothing, but the symptoms and my suicidal & homicidal thinking coupled with severe depression along with the maddening symptoms of TD remained. By December, I was...
    aclkona aclkona 36-40, F 1 Response Jul 23, 2012

    Your Response

    Cancel

    Tiny Dancer

    Hi, you can call me Tiny Dancer, that is what my daughter says TD stands for. I am a 53 year old female who developed TD in April 2010. I've been on anti-pyschotics for 30 years.  I have been on all kinds of drugs, to help my bi-polar. The use of these drugs caused my TD. I also...
    cindymcmahan11 cindymcmahan11 51-55 3 Responses Dec 20, 2010

    Your Response

    Cancel

    Metoclopramide

    I took metoclopramide for over eight years and was never warned of its side effects. I am experiencing TD symptoms and have been to numerous neurologists. I am being told it is a psychogenic disorder and need counciling. Reluctantly I have been to counciling and am told their is...
    dave1364 dave1364 46-50, M 2 Responses Sep 12, 2013

    Your Response

    Cancel

    Anyone use any of these treatments

    for Oral Tradive Dyskensia (from medications) and they worked?  Medication: Aricept bachlophen mirapex requipe vimpat zofran Baaclofen Botox benzodiazepines clondine tetrabenazine oxypertine Valproate (depakato progabide propnol amantaine posteroventriacal pallidotomy...
    lazylizard lazylizard 46-50, F 2 Responses Dec 20, 2013

    Your Response

    Cancel

    Mistaken Beginning

    on aug 24/12, i fell down a flight of stairs at a subway station.in rehab for 10 weeks, they noticed my shaky legs, burning crotch and total insomnia. the y referred me to neurologist for diagnosis.Two neurlogists could not explain the fall but i have td 100%.they said it was my...
    mervdoc mervdoc 66-70 2 Responses May 15, 2012

    Your Response

    Cancel

    I Have Tardive Dyskinesia And Feel Hopeless

    I was on Geodon for a year and a half. At about ayear i started having a small nod to my head, like I was saying yes to something but there was nothing. It got worse when i was trying to sleep so I complained to my Psychitrist ande she put me on a side effect med i forgot the...
    akacrazylady akacrazylady 41-45, F 2 Responses Aug 1, 2012

    Your Response

    Cancel

    Clenching Agony

    I was on perphenazine for years for schizoaffective disorder .. I began to develop many of the symtoms of TD. The pain became so excruciating I was at a point of rather dying then living one more day with muscle spasms, tics the works ..I started drinking heavily to dull the pain...
    gdolen gdolen 31-35 1 Response Dec 27, 2012

    Your Response

    Cancel

    Three Days And Counting

    It has been three days since I have had a serious TD attack. You know the ones that make your whole body shake from head to toe. Or just your hands, arms and head and last sometimes for hours? Three days is my record in 6 months. Yay for me. I hate to jynx it or call it too...
    akacrazylady akacrazylady 41-45, F 3 Responses Aug 26, 2012

    Your Response

    Cancel

    Lori Dena Brown-a Journey To Save Her Life.

    Short Summary I enjoy writing and also publishing books. Mostly I write stories that have no specific relation to any particular place in time. Poe is one of my favorite poets, and as of late I find myself living what could be a Poe epic. I will be writing a book detailing the...
    msixon msixon 41-45, M 1 Response Nov 17, 2012

    Your Response

    Cancel

    Scared

    i have been worried since the doc said Tardive Dyskinesia. my issues are uncontrollable eye movement (raising of the eyebrows or lowering). Mouth movement corners of the mouth turn down. clenching of the jaw sucking my tongue. my hand have a slight shake to them. uncontrollable...
    charmed88101 charmed88101 31-35, F 6 Responses Jun 8, 2011

    Your Response

    Cancel

    I was very recently diagnosed with TD.

    I was put on medication for OCD and my symptoms started about 3 months later. Bit I attributed them to getting old them to a severe cold them flu them pneumonia. It started with a mild twitch into face to a slight pull in my neck, to a strong pull, now I have a strong pull and...
    photofan75 photofan75 36-40, F 1 Response Apr 6

    Your Response

    Cancel

    I Thought I Was A Freak

    I didn't understand what was happening to me--the convulsive-like movements and the horrible pain which no one around me can fathom. I became even more depressed and reclusive, feeling like a freak and very much alone.
    Jokmare Jokmare 56-60, F 3 Responses May 6, 2013

    Your Response

    Cancel

    Am I Worried Well, Again? Pls Tell Me How You First Had Symptoms?

    I have been on neuroleptics for 20 years or so I have Schizophrenia, i'm 38 and Autistic, married, currently being a housewife and daughter and sister and friend - that's about it... I go to yoga at the moment but have been worried about my mental stability I have had severe...
    greentigress greentigress 36-40, F 3 Responses Nov 23, 2012

    Your Response

    Cancel

    I've been on Risperidone 2mg

    since 2000 and got involuntary movement of the mouth in 2011 which got worse so had to reduce my dose to 1mg. (At its worse I was borderline suicidal as my face/jaw ached and everybody was passing comment. I cried!) I then started to have mouth opening when I was eating while on...
    hotlips1 hotlips1 46-50, F 1 Response Feb 12

    Your Response

    Cancel

    This Is A Question For Tardive Dyskinesia Victims

    Have any of your doctors ever called you psychogenic? That means that you are doing these movements on purpose and not because of an adverse reaction to a drug? During my first appointment with a movement disorder specialist, she conducted a very thorough exam and even asked if I...
    Boshie Boshie 61-65, F 4 Responses Apr 14, 2013

    Your Response

    Cancel

    Worried

    I am an artist that is worried that my days of painting could be over if the tremors and pain continue. No one seems to know if it is TD or parkinsons because there are no test to differentiate the two. I have been on abilify and seroquel for 10 years.  I guess it's caught...
    colorist colorist 51-55 1 Response Oct 22, 2008

    Your Response

    Cancel

    Seeking People Who Can Empathise, And Who Understand.

    This is my first time looking for support groups for tardive, I was diagnosed in may after months of thinking I was cracking up, amongst the symptoms my lips and tongue were constantly movin and I was grimacing and my speech has been impaired. My doctor at first said it was...
    Millap Millap 36-40, M 6 Responses Oct 11, 2012

    Your Response

    Cancel

    Array Of Antipsychotics

    I have been prescribed abilify, Latuda, and risperidone. Been on antipsychotics for roughly 1 year. About a month ago I noticed small twitches in my lip. It has now progressed to the left side of my face tightening and my jaw clenching. Along with puckering and licking of the...
    Jdmorrison94 Jdmorrison94 16-17 2 Responses Jun 2, 2012

    Your Response

    Cancel

    I'm Not Alone With Td

    I've had TD 4 years, Neurontin is another rotten drug. It only took two pills to ruin my nervous system. There are so many drugs that say in fine print, "may cause tremors". ******* isn't tremors, it's a catastrophe!! I think we should make the AMA pay for our suffering...
    Boshie Boshie 61-65, F 3 Responses Jul 24, 2012

    Your Response

    Cancel

    I Have Tardive Dyskinesia From Taking Metoclopramide

    I am new here, I was told I have Tardive Dyskinesia from taking Metoclopramide, I took it for over 8 years, 4 times a day at 10 mg's, I now have developed sever symptoms, I also suffer from depression and diabetes, needless to say, this has me really down, i hardly leave the...
    Paul1954 Paul1954 56-60 5 Responses Nov 2, 2012

    Your Response

    Cancel

    I'm Looking For Answers

    I currently went off of Geodon and I'm experiencing muscle spasms all over my body, eye spasms, etc. Will these symptoms get worse? I'd like to hear from people currently suffering from this disease. My psychiatrist doesn't know if it is TD yet because he says it is so rare yet...
    allthingsarepossiblewithgod allthingsarepossiblewithgod 31-35 7 Responses Apr 4, 2012

    Your Response

    Cancel

    Need Some Info, Mother Has Dystonia

    Thanks for opening my post. My mother was diagnosed several months ago with tardive dystonia. She was quite upset about the diagnosis, especially from the doctor that gave her his prognosis... she didn't like him very much thus didn't like what he had to say even more so. She...
    teatime2006 teatime2006 26-30 2 Responses Jul 1, 2013

    Your Response

    Cancel

    Tardive Dyskinesia

    I got TD from Zoloft. Can you believe it!! I took it for 13 years on and off and never had any symptoms. Went off zoloft with no problems for a year and started to have panic attacks again. I started the Zoloft which ended me up in the ER twice in one week. The doctors still keep...
    lazylizard lazylizard 46-50, F 2 Responses Nov 27, 2013

    Your Response

    Cancel

    Will I Get TD?

    I've recently switched to risperidone after about 4 years of taking zyprexa. I took five mg of zyprexa once a day and am now taking 2 mg of risperidone. I have noticed over the past few months or so, that at night while i'm lying in bed, there is a sensation in my mouth, a need...
    mmfurgs mmfurgs 36-40 2 Responses May 25, 2013

    Your Response

    Cancel

    Cant Stand The Painandthey

     hi i have tardive dyskinesia, my dr gave me gedon for depression i was taking it for almost a year when the symptoms began happening, i ve stopped the drug but the symptoms are still here i am having a really hard time with it sometimes i cant even get out of bed, i feel...
    Mufasa83 Mufasa83 26-30, F 3 Responses Dec 17, 2009

    Your Response

    Cancel

    Botox Injections In The Eyes?

    Today my Neurologist suggested that we get some botox injecgtions in the eye lids all the way around. The reason is cause they Dyskinesia cause my eyes to shut and sometimes squeeze shut tight. They stay that way for second or minutes sometimes up to half hours several times a...
    akacrazylady akacrazylady 41-45, F 10 Responses Aug 31, 2012

    Your Response

    Cancel

    Related Experiences

    i was diagnosed of hep b in 2009 while i was in the university.. i constantly felt sick in the year 2006, when and how i had it i dont know. since 2011 i have been having series of...
    nanacquah nanacquah 26-30, M 1 Response 15 hrs ago

    Your Response

    Cancel
    I'm not in anyway socially, financially, or mentally deprived. I live with an average family. Thinking I have nothing to complain because some were even less fortunate than me...
    DreamerCost DreamerCost 16-17, M 8 hrs ago

    Your Response

    Cancel
    The truth is: I dont like my boyfriend. We have known each other for 5 years and yet I havent caught one inch of feelings for him. I was forced into this relationship because he...
    AnimeFan90210 AnimeFan90210 18-21, F 1 Response 19 hrs ago

    Your Response

    Cancel
    So apparently I have what's considered a "big butt". I have a 94cm hips and People at my school, especially the guys, tell me I have a nice a$$ and some girls tell me that they...
    kalaniesmommy143 kalaniesmommy143 13-15, F 2 Responses 11 hrs ago

    Your Response

    Cancel
    I've had a crush on him since summer. We're just friends though. I was with his former best friend for a little. and he dated a girl that used to be my friend. And she almost dated...
    cemarie128 cemarie128 18-21, F 1 Response 3 hrs ago

    Your Response

    Cancel
    Hi all, well so new to this site, I thought I'd just get this off my chest and see where it takes me. I'm a 48 yr old guy from Brisbane Australia and I have a few tales to tell...
    grayarea66 grayarea66 46-50, M 3 hrs ago

    Your Response

    Cancel
    I can't deny it anymore. Even though I've been involved with my current girlfriend for 7 years I have to admit I have a huge crush on a co-worker. I can't take my eyes off her when...
    Dreamer19845 Dreamer19845 26-30, M 2 Responses 1 hr ago

    Your Response

    Cancel
    I was one of those lucky kids who got to have a cousin as a bestfriend and it actually wasn't one of those "we're only friends because we're cousins", but we actually just had so...
    landhoee landhoee 18-21, M 50 mins ago

    Your Response

    Cancel
    I saw my best friend take suicide in front of me. He was 16 and handsome. Suicide doesn't kill someone, its sadness. Being judged Feeling like you have no one Suicide is being...
    ILYBlackVeilBrides ILYBlackVeilBrides 13-15, F 11 hrs ago

    Your Response

    Cancel
    I have the weirdest dreams ever that I have to write about them because they are so interesting. I have written a lot that I'm almost finished with my journal. -SG
    StRiKiNgEEk StRiKiNgEEk 18-21, F 1 Response 5 hrs ago

    Your Response

    Cancel
    This is crazy to me. But here's goes my first official boyfriend in HS... Omg I was head over heals and we were perfect for each other... Flash forward to home coming his junior yr...
    thegirlWHOwait3d thegirlWHOwait3d 31-35, F 2 hrs ago

    Your Response

    Cancel
    Since I was born I have had hazel eyes with a brown slash through the right eye. Whenever I met someone new they would say "you have something in your eye" and I would have to...
    nvboom nvboom 16-17, F 32 mins ago

    Your Response

    Cancel
    I was at my aunt house and they had cook fried chicken macaroni ribs and other stuff like that and my belly was hanging out they whole time when we finished we were about to leave...
    Fatjigglybelly00 Fatjigglybelly00 13-15, F 4 Responses 17 hrs ago

    Your Response

    Cancel
    I have a difficult time working because of my social phobia and anxiety. I have a great personality friendly kind and funny but my anxiety holds me back from so much. I figured i...
    tb2985 tb2985 26-30, F 3 Responses 17 hrs ago

    Your Response

    Cancel
    Hello, I just had a nightmare. I am typing this as I just woke up. So I can remember most of the details. I went to my old school for lunch, I did not have a reason but I did...
    Toastland Toastland 13-15, T 1 Response 15 hrs ago

    Your Response

    Cancel
    Theories I have, yes. But I will not type them under this subject. I will say that if anything, I'd rather fade into non-existence, I don't want to feel after I die. All I'll have...
    GrimAndInUtterDismay GrimAndInUtterDismay 13-15, F 14 hrs ago

    Your Response

    Cancel
    I was in the 6th grade the last time I went to a youth camp. After that I wen to a public school for the 7th grade. A public school where students are smart. That time, my faith in...
    smferanil smferanil 13-15, M 1 Response 13 hrs ago

    Your Response

    Cancel
    I am so happy to have Friends who really care about me and who I really care about them too I love to have friends and if you want to be my friend come on and be my friend and talk...
    JadelynThompson2121 JadelynThompson2121 13-15, F 11 hrs ago

    Your Response

    Cancel
    I have one friend and I am so blessed to have her. She's the sister I never had 👯💁👑
    Shygirl917 Shygirl917 18-21, F 11 hrs ago

    Your Response

    Cancel
    We all have a choice in life. We just have to make sure we make the right one.
    deviness deviness 13-15, F 9 hrs ago

    Your Response

    Cancel
    After over 20 years and 3 doctors later, they finally figured out which autoimmune disease I have. I'm lucky that I am in remission right now but it has affected my kidneys. I have...
    Booksaremypassion Booksaremypassion 41-45, F 1 Response 7 hrs ago

    Your Response

    Cancel
    I'm new here and I just really wanna let this out, and maybe get some advice. So, my mom and I are extremely close, she is my bestfriend. I live with my mom and my dad lives in...
    xoxocs xoxocs 16-17, F 7 hrs ago

    Your Response

    Cancel
    That's the one flaw I think I have. I won't get into details, but I have this rage inside that stays with me all the time. I just control it, like Bruce Banner. I'm always angry...
    BobFrost BobFrost 36-40, M 7 hrs ago

    Your Response

    Cancel
    I have a confession to make. I am having an affair. Yes, it's true. I have two lovers. One is the undeniably successful, practical, reasonable, and ever-attractive science...
    shannonymous shannonymous 18-21, F 3 Responses 4 hrs ago

    Your Response

    Cancel