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I Have Tardive Dyskinesia

A Tardive Dyskinesia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tardive Dyskinesia. You're not alone. 51 People

    I Have Tardive Dyskinesia From Taking Metoclopramide

    I am new here, I was told I have Tardive Dyskinesia from taking Metoclopramide, I took it for over 8 years, 4 times a day at 10 mg's, I now have developed sever symptoms, I also suffer from depression and diabetes, needless to say, this has me really down, i hardly leave the...
    Paul1954 Paul1954 56-60 5 Responses Nov 2, 2012

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    Tardive Dyskinesia

    I got TD from Zoloft. Can you believe it!! I took it for 13 years on and off and never had any symptoms. Went off zoloft with no problems for a year and started to have panic attacks again. I started the Zoloft which ended me up in the ER twice in one week. The doctors still keep...
    lazylizard lazylizard 46-50, F 2 Responses Nov 27, 2013

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    Going Crazy

    I am about to hit my one year anniversary of symptoms of tardive dyskinesia. First in September I tried taking nothing, but the symptoms and my suicidal & homicidal thinking coupled with severe depression along with the maddening symptoms of TD remained. By December, I was...
    aclkona aclkona 36-40, F 1 Response Jul 23, 2012

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    Scared

    i have been worried since the doc said Tardive Dyskinesia. my issues are uncontrollable eye movement (raising of the eyebrows or lowering). Mouth movement corners of the mouth turn down. clenching of the jaw sucking my tongue. my hand have a slight shake to them. uncontrollable...
    charmed88101 charmed88101 31-35, F 6 Responses Jun 8, 2011

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    I'm Looking For Answers

    I currently went off of Geodon and I'm experiencing muscle spasms all over my body, eye spasms, etc. Will these symptoms get worse? I'd like to hear from people currently suffering from this disease. My psychiatrist doesn't know if it is TD yet because he says it is so rare yet...
    allthingsarepossiblewithgod allthingsarepossiblewithgod 31-35 7 Responses Apr 4, 2012

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    Array Of Antipsychotics

    I have been prescribed abilify, Latuda, and risperidone. Been on antipsychotics for roughly 1 year. About a month ago I noticed small twitches in my lip. It has now progressed to the left side of my face tightening and my jaw clenching. Along with puckering and licking of the...
    Jdmorrison94 Jdmorrison94 16-17 2 Responses Jun 2, 2012

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    Worried

    I am an artist that is worried that my days of painting could be over if the tremors and pain continue. No one seems to know if it is TD or parkinsons because there are no test to differentiate the two. I have been on abilify and seroquel for 10 years.  I guess it's caught...
    colorist colorist 51-55 1 Response Oct 22, 2008

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    Mistaken Beginning

    on aug 24/12, i fell down a flight of stairs at a subway station.in rehab for 10 weeks, they noticed my shaky legs, burning crotch and total insomnia. the y referred me to neurologist for diagnosis.Two neurlogists could not explain the fall but i have td 100%.they said it was my...
    mervdoc mervdoc 66-70 2 Responses May 15, 2012

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    Neurology Appointments By The New Justin Nudder

    I gave myself a new nom de plume since I seem to be doing nutty things. I had to fill out a bunch of medical forms, but the important one was out of alignment, and I wanted to make a copy. I decided after many tries that they must not want patients to be able to make their...
    Boshie Boshie 61-65, F Aug 23, 2012

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    I Have Tardive Dyskinesia And Feel Hopeless

    I was on Geodon for a year and a half. At about ayear i started having a small nod to my head, like I was saying yes to something but there was nothing. It got worse when i was trying to sleep so I complained to my Psychitrist ande she put me on a side effect med i forgot the...
    akacrazylady akacrazylady 41-45, F 2 Responses Aug 1, 2012

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    Tiny Dancer

    Hi, you can call me Tiny Dancer, that is what my daughter says TD stands for. I am a 53 year old female who developed TD in April 2010. I've been on anti-pyschotics for 30 years.  I have been on all kinds of drugs, to help my bi-polar. The use of these drugs caused my TD. I also...
    cindymcmahan11 cindymcmahan11 51-55 3 Responses Dec 20, 2010

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    Will I Get TD?

    I've recently switched to risperidone after about 4 years of taking zyprexa. I took five mg of zyprexa once a day and am now taking 2 mg of risperidone. I have noticed over the past few months or so, that at night while i'm lying in bed, there is a sensation in my mouth, a need...
    mmfurgs mmfurgs 36-40 2 Responses May 25, 2013

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    Seeking People Who Can Empathise, And Who Understand.

    This is my first time looking for support groups for tardive, I was diagnosed in may after months of thinking I was cracking up, amongst the symptoms my lips and tongue were constantly movin and I was grimacing and my speech has been impaired. My doctor at first said it was...
    Millap Millap 36-40, M 6 Responses Oct 11, 2012

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    I've been on Risperidone 2mg

    since 2000 and got involuntary movement of the mouth in 2011 which got worse so had to reduce my dose to 1mg. (At its worse I was borderline suicidal as my face/jaw ached and everybody was passing comment. I cried!) I then started to have mouth opening when I was eating while on...
    hotlips1 hotlips1 46-50, F 1 Response Feb 12

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    Cant Stand The Painandthey

     hi i have tardive dyskinesia, my dr gave me gedon for depression i was taking it for almost a year when the symptoms began happening, i ve stopped the drug but the symptoms are still here i am having a really hard time with it sometimes i cant even get out of bed, i feel...
    Mufasa83 Mufasa83 26-30, F 4 Responses Dec 17, 2009

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    Public Awareness Campaign On Drugs That Cause Td

    Hello I am doing research for a consumer awareness campaign whose mission is to show the reality of Tardive Dyskinesia and other movement disorders that can result from the use of certain medications. As part of our campaign we will be launching a website that will provide...
    ManuZe ManuZe 36-40, M 6 Responses Mar 16, 2010

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    Botox Injections In The Eyes?

    Today my Neurologist suggested that we get some botox injecgtions in the eye lids all the way around. The reason is cause they Dyskinesia cause my eyes to shut and sometimes squeeze shut tight. They stay that way for second or minutes sometimes up to half hours several times a...
    akacrazylady akacrazylady 41-45, F 10 Responses Aug 31, 2012

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    This Is A Question For Tardive Dyskinesia Victims

    Have any of your doctors ever called you psychogenic? That means that you are doing these movements on purpose and not because of an adverse reaction to a drug? During my first appointment with a movement disorder specialist, she conducted a very thorough exam and even asked if I...
    Boshie Boshie 61-65, F 4 Responses Apr 14, 2013

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    I Thought I Was A Freak

    I didn't understand what was happening to me--the convulsive-like movements and the horrible pain which no one around me can fathom. I became even more depressed and reclusive, feeling like a freak and very much alone.
    Jokmare Jokmare 56-60, F 3 Responses May 6, 2013

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    Anyone use any of these treatments

    for Oral Tradive Dyskensia (from medications) and they worked?  Medication: Aricept bachlophen mirapex requipe vimpat zofran Baaclofen Botox benzodiazepines clondine tetrabenazine oxypertine Valproate (depakato progabide propnol amantaine posteroventriacal pallidotomy...
    lazylizard lazylizard 46-50, F 2 Responses Dec 20, 2013

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    Clenching Agony

    I was on perphenazine for years for schizoaffective disorder .. I began to develop many of the symtoms of TD. The pain became so excruciating I was at a point of rather dying then living one more day with muscle spasms, tics the works ..I started drinking heavily to dull the pain...
    gdolen gdolen 31-35 1 Response Dec 27, 2012

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    I'm Not Alone With Td

    I've had TD 4 years, Neurontin is another rotten drug. It only took two pills to ruin my nervous system. There are so many drugs that say in fine print, "may cause tremors". ******* isn't tremors, it's a catastrophe!! I think we should make the AMA pay for our suffering...
    Boshie Boshie 61-65, F 3 Responses Jul 24, 2012

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    Cant Stand The Painandthey

     hi i have tardive dyskinesia, my dr gave me gedon for depression i was taking it for almost a year when the symptoms began happening, i ve stopped the drug but the symptoms are still here i am having a really hard time with it sometimes i cant even get out of bed, i feel...
    Mufasa83 Mufasa83 26-30, F 3 Responses Dec 17, 2009

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    Am I Worried Well, Again? Pls Tell Me How You First Had Symptoms?

    I have been on neuroleptics for 20 years or so I have Schizophrenia, i'm 38 and Autistic, married, currently being a housewife and daughter and sister and friend - that's about it... I go to yoga at the moment but have been worried about my mental stability I have had severe...
    greentigress greentigress 36-40, F 3 Responses Nov 23, 2012

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    I was very recently diagnosed with TD.

    I was put on medication for OCD and my symptoms started about 3 months later. Bit I attributed them to getting old them to a severe cold them flu them pneumonia. It started with a mild twitch into face to a slight pull in my neck, to a strong pull, now I have a strong pull and...
    photofan75 photofan75 36-40, F 2 Responses Apr 6

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    Need Some Info, Mother Has Dystonia

    Thanks for opening my post. My mother was diagnosed several months ago with tardive dystonia. She was quite upset about the diagnosis, especially from the doctor that gave her his prognosis... she didn't like him very much thus didn't like what he had to say even more so. She...
    teatime2006 teatime2006 26-30 2 Responses Jul 1, 2013

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    Lori Dena Brown-a Journey To Save Her Life.

    Short Summary I enjoy writing and also publishing books. Mostly I write stories that have no specific relation to any particular place in time. Poe is one of my favorite poets, and as of late I find myself living what could be a Poe epic. I will be writing a book detailing the...
    msixon msixon 41-45, M 1 Response Nov 17, 2012

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    Three Days And Counting

    It has been three days since I have had a serious TD attack. You know the ones that make your whole body shake from head to toe. Or just your hands, arms and head and last sometimes for hours? Three days is my record in 6 months. Yay for me. I hate to jynx it or call it too...
    akacrazylady akacrazylady 41-45, F 3 Responses Aug 26, 2012

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    Metoclopramide

    I took metoclopramide for over eight years and was never warned of its side effects. I am experiencing TD symptoms and have been to numerous neurologists. I am being told it is a psychogenic disorder and need counciling. Reluctantly I have been to counciling and am told their is...
    dave1364 dave1364 46-50, M 2 Responses Sep 12, 2013

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    Related Experiences

    I have taken three classes with one professor. Initially, he was just a teacher to me. Gradually, he became so much more. He is funny, intelligent, and down to earth - as well as...
    queenvm queenvm 22-25, F 8 hrs ago

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    After losing such a close friend it has become more evident that the stigma that comes with someone being mentally ill needs to be removed. Depression, anxiety, panic attacks etc...
    kiara95 kiara95 18-21, F 5 hrs ago

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    I do believe that dreams have meaning and give us hints and clues to what awaits in front of us. I get different kinds of dreams from Prophetic, Progressive, Epic, Recurring, False...
    Merarim Merarim 22-25, F 1 Response 1 hr ago

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    So before I wrote about how I was the kind of person who would push people away that I care for. I have learned how to stop doing that, however it did take losing someone I love...
    beachbumgirl1 beachbumgirl1 26-30, F 46 mins ago

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    I just love them. Everyone with their own personalities. It is nice to have a common space and the occasional inbox. Everyone in my circle is a LOVER in the sense of caring for...
    breathingeasy breathingeasy 41-45, M 8 hrs ago

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    It doesnt just end there... I have an interest in women who are big in various ways. If they have huge boobs, its incredibly attractive. Watching them grow bigger? Even more...
    chemicals14 chemicals14 22-25, M 8 hrs ago

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    Learning to love my body has got to be the hardest task I have ever tried! Years of been told you are fat, years of been told you are horrible have taken their toll! I've cried a...
    Sandyshaw13 Sandyshaw13 36-40, F 1 Response 8 hrs ago

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    I battle GAD every time something new happens in my life. Am I only suppose to live in a confined space where nothing new happens? But I find that I do live there in my little...
    lozza568 lozza568 22-25 1 Response 7 hrs ago

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    My eyes change colours all the time and I never know what to say when people ask what colour they are. But on the bright side I always get told I have beautiful or gorgeous eyes!
    TayBearXoXo TayBearXoXo 13-15, F 5 hrs ago

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    Actually I have no friends right now. But when I did have friends it used to be more guys than girls. Not because girls suck or anything(no pun intended)but because of my own...
    nekerd nekerd 18-21, F 1 Response 4 hrs ago

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    I found out i had HPV less then a month ago. I'm a single mother but I'm still so young. 22. I feel like i managed to ruin my whole life. My ex had told me how i got it and it's...
    Jackie1991 Jackie1991 22-25, F 2 hrs ago

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    Up to now I had not dressed head to toe as a woman. I've work skirts and the occasional dress, make-up but not the full thing. I had to know if this is something I'd like, how good...
    meganb1 meganb1 36-40, T 2 hrs ago

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    i was surgeres for an hernaited disk in march 2012 but i have still have cold or frozen feet
    steack2 steack2 41-45, M 2 hrs ago

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    I have ocd, if something isn't in the right spot or facing the right way it drives me nuts. Oh well :-)
    sweetlikesuga sweetlikesuga 26-30, F 1 Response 9 hrs ago

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    Bills, bills, and more bills. Why haven't these people figured out I dont want them! Ahhhhhh!
    danii92 danii92 18-21, F 9 hrs ago

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    THIS IS A REAL AND LEGITMATE FORM OF ABUSE. I struggle with the fact that not only was my ex emotionally abusive, but so was my own father. I can legitimately say that I am...
    cemarie128 cemarie128 18-21, F 2 Responses 8 hrs ago

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    It's hard to explain. I am sick of being used as fwb. I don't wanna b ****** with no more. But I also miss that attention. Just receiving any form of attention from a guy. I feel...
    the808heartbreak the808heartbreak 18-21, F 2 Responses 7 hrs ago

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    After a testy relationship with a mentally unstable woman, of which many lies were spit from her very mouth to my face, I had to leave her. I had a daughter who was tiny, and she...
    brainbroodling brainbroodling 26-30, M 1 Response 7 hrs ago

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    Hi, my fish have got white spot. I've don't tank clean n turned up heater, done salt, anything else to do before medication?? Cheers
    MostlyHorny MostlyHorny 36-40, M 1 Response 7 hrs ago

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    Well, it saves you money that you would have used buying lip balm, every little helps..
    NTC123 NTC123 13-15, F 1 Response 6 hrs ago

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    I have a crush on my drug dealer. He's a super friendly and ******* interesting guy and I love to be around him... Only thing is he has a girlfriend and that's shady.
    ksnaps ksnaps 22-25, F 4 hrs ago

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    Iv had it for a while now, i used to have a i phone 3 but i was fishing with my brother and it fell outta my pocket into the lake and it was about 50 degreese outside and i had to...
    RavenHearts RavenHearts 16-17, F 1 Response 3 hrs ago

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    Indeed I have! The first was in February 1979 in the fridgid state of North Dakota. The second was in July 1991 in Mexico. Magnificent, awesome, incredible. Stars become visible...
    CinnamonSusan CinnamonSusan 41-45, M 3 hrs ago

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    It's hereditary.. I remember the doctor telling me when I was kid, "Only five percent of people never outgrow a stutter. So you should be okay." I found out later that the chances...
    adorea adorea 70+, F 3 hrs ago

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    Life will have it's ups and downs, be happy with the ups and deal with or turn the downs into ups.
    KawaiiBoy KawaiiBoy 18-21, M 3 hrs ago