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I Have Tardive Dyskinesia

A Tardive Dyskinesia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tardive Dyskinesia. You're not alone. 56 People

    Public Awareness Campaign On Drugs That Cause Td

    Hello I am doing research for a consumer awareness campaign whose mission is to show the reality of Tardive Dyskinesia and other movement disorders that can result from the use of certain medications. As part of our campaign we will be launching a website that will provide...
    ManuZe ManuZe 36-40, M 7 Responses Mar 16, 2010

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    I think I have TD, I took Reglan

    for four years on an as needed basis. In october 2013 I got something like twitches in my legs that I cannot control. And I begin to feel restless so I think I might have tardive akathisia as well.
    yasi2010 yasi2010 26-30, F 1 Response Apr 26

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    Need Some Info, Mother Has Dystonia

    Thanks for opening my post. My mother was diagnosed several months ago with tardive dystonia. She was quite upset about the diagnosis, especially from the doctor that gave her his prognosis... she didn't like him very much thus didn't like what he had to say even more so. She...
    teatime2006 teatime2006 26-30 2 Responses Jul 1, 2013

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    Will I Get TD?

    I've recently switched to risperidone after about 4 years of taking zyprexa. I took five mg of zyprexa once a day and am now taking 2 mg of risperidone. I have noticed over the past few months or so, that at night while i'm lying in bed, there is a sensation in my mouth, a need...
    mmfurgs mmfurgs 36-40 3 Responses May 25, 2013

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    I was very recently diagnosed with TD.

    I was put on medication for OCD and my symptoms started about 3 months later. Bit I attributed them to getting old them to a severe cold them flu them pneumonia. It started with a mild twitch into face to a slight pull in my neck, to a strong pull, now I have a strong pull and...
    photofan75 photofan75 36-40, F 4 Responses Apr 6

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    Cant Stand The Painandthey

     hi i have tardive dyskinesia, my dr gave me gedon for depression i was taking it for almost a year when the symptoms began happening, i ve stopped the drug but the symptoms are still here i am having a really hard time with it sometimes i cant even get out of bed, i feel...
    Mufasa83 Mufasa83 26-30, F 5 Responses Dec 17, 2009

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    I Have Tardive Dyskinesia And Feel Hopeless

    I was on Geodon for a year and a half. At about ayear i started having a small nod to my head, like I was saying yes to something but there was nothing. It got worse when i was trying to sleep so I complained to my Psychitrist ande she put me on a side effect med i forgot the...
    akacrazylady akacrazylady 41-45, F 3 Responses Aug 1, 2012

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    I've been on Risperidone 2mg

    since 2000 and got involuntary movement of the mouth in 2011 which got worse so had to reduce my dose to 1mg. (At its worse I was borderline suicidal as my face/jaw ached and everybody was passing comment. I cried!) I then started to have mouth opening when I was eating while on...
    hotlips1 hotlips1 46-50, F 2 Responses Feb 12

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    Three Days And Counting

    It has been three days since I have had a serious TD attack. You know the ones that make your whole body shake from head to toe. Or just your hands, arms and head and last sometimes for hours? Three days is my record in 6 months. Yay for me. I hate to jynx it or call it too...
    akacrazylady akacrazylady 41-45, F 3 Responses Aug 26, 2012

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    Clenching Agony

    I was on perphenazine for years for schizoaffective disorder .. I began to develop many of the symtoms of TD. The pain became so excruciating I was at a point of rather dying then living one more day with muscle spasms, tics the works ..I started drinking heavily to dull the pain...
    gdolen gdolen 31-35 3 Responses Dec 27, 2012

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    Tiny Dancer

    Hi, you can call me Tiny Dancer, that is what my daughter says TD stands for. I am a 53 year old female who developed TD in April 2010. I've been on anti-pyschotics for 30 years.  I have been on all kinds of drugs, to help my bi-polar. The use of these drugs caused my TD. I also...
    cindymcmahan11 cindymcmahan11 51-55 4 Responses Dec 20, 2010

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    Worried

    I am an artist that is worried that my days of painting could be over if the tremors and pain continue. No one seems to know if it is TD or parkinsons because there are no test to differentiate the two. I have been on abilify and seroquel for 10 years.  I guess it's caught...
    colorist colorist 51-55 1 Response Oct 22, 2008

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    Metoclopramide

    I took metoclopramide for over eight years and was never warned of its side effects. I am experiencing TD symptoms and have been to numerous neurologists. I am being told it is a psychogenic disorder and need counciling. Reluctantly I have been to counciling and am told their is...
    dave1364 dave1364 46-50, M 4 Responses Sep 12, 2013

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    Array Of Antipsychotics

    I have been prescribed abilify, Latuda, and risperidone. Been on antipsychotics for roughly 1 year. About a month ago I noticed small twitches in my lip. It has now progressed to the left side of my face tightening and my jaw clenching. Along with puckering and licking of the...
    Jdmorrison94 Jdmorrison94 16-17 4 Responses Jun 2, 2012

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    I was fighting depression at the time of my

    symptoms started. First was the chomping of my tongue, then weeks later my voice changed drastically. I couldn't formulate words, pronounce words and got to the point that only air was all that anyone could hear. Since this came on so fast and the lack of answers didn't come...
    euptlp euptlp 31-35, F Aug 19

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    I Thought I Was A Freak

    I didn't understand what was happening to me--the convulsive-like movements and the horrible pain which no one around me can fathom. I became even more depressed and reclusive, feeling like a freak and very much alone.
    Jokmare Jokmare 56-60, F 3 Responses May 6, 2013

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    Scared

    i have been worried since the doc said Tardive Dyskinesia. my issues are uncontrollable eye movement (raising of the eyebrows or lowering). Mouth movement corners of the mouth turn down. clenching of the jaw sucking my tongue. my hand have a slight shake to them. uncontrollable...
    charmed88101 charmed88101 31-35, F 6 Responses Jun 8, 2011

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    Lori Dena Brown-a Journey To Save Her Life.

    Short Summary I enjoy writing and also publishing books. Mostly I write stories that have no specific relation to any particular place in time. Poe is one of my favorite poets, and as of late I find myself living what could be a Poe epic. I will be writing a book detailing the...
    msixon msixon 41-45, M 1 Response Nov 17, 2012

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    Seeking People Who Can Empathise, And Who Understand.

    This is my first time looking for support groups for tardive, I was diagnosed in may after months of thinking I was cracking up, amongst the symptoms my lips and tongue were constantly movin and I was grimacing and my speech has been impaired. My doctor at first said it was...
    Millap Millap 36-40, M 6 Responses Oct 11, 2012

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    Anyone use any of these treatments

    for Oral Tradive Dyskensia (from medications) and they worked?  Medication: Aricept bachlophen mirapex requipe vimpat zofran Baaclofen Botox benzodiazepines clondine tetrabenazine oxypertine Valproate (depakato progabide propnol amantaine posteroventriacal pallidotomy...
    lazylizard lazylizard 46-50, F 3 Responses Dec 20, 2013

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    Botox Injections In The Eyes?

    Today my Neurologist suggested that we get some botox injecgtions in the eye lids all the way around. The reason is cause they Dyskinesia cause my eyes to shut and sometimes squeeze shut tight. They stay that way for second or minutes sometimes up to half hours several times a...
    akacrazylady akacrazylady 41-45, F 11 Responses Aug 31, 2012

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    I'm Not Alone With Td

    I've had TD 4 years, Neurontin is another rotten drug. It only took two pills to ruin my nervous system. There are so many drugs that say in fine print, "may cause tremors". ******* isn't tremors, it's a catastrophe!! I think we should make the AMA pay for our suffering...
    Boshie Boshie 61-65, F 3 Responses Jul 24, 2012

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    I have a very mild case of Tardive Dyskinesia

    from taking the anti-psychotic Saphris. It is only uncontrolled tongue movements and an insatiable desire to chew my tongue. My eye also twitches a bit. They prescribed Parkinson's type medications for me, but I decided to take a different route. I have a friend with Parkinson...
    tdsufferer tdsufferer 41-45, F 1 Response Aug 13

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    I'm Looking For Answers

    I currently went off of Geodon and I'm experiencing muscle spasms all over my body, eye spasms, etc. Will these symptoms get worse? I'd like to hear from people currently suffering from this disease. My psychiatrist doesn't know if it is TD yet because he says it is so rare yet...
    allthingsarepossiblewithgod allthingsarepossiblewithgod 31-35 7 Responses Apr 4, 2012

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    I Have Tardive Dyskinesia From Taking Metoclopramide

    I am new here, I was told I have Tardive Dyskinesia from taking Metoclopramide, I took it for over 8 years, 4 times a day at 10 mg's, I now have developed sever symptoms, I also suffer from depression and diabetes, needless to say, this has me really down, i hardly leave the...
    Paul1954 Paul1954 56-60 5 Responses Nov 2, 2012

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    This Is A Question For Tardive Dyskinesia Victims

    Have any of your doctors ever called you psychogenic? That means that you are doing these movements on purpose and not because of an adverse reaction to a drug? During my first appointment with a movement disorder specialist, she conducted a very thorough exam and even asked if I...
    Boshie Boshie 61-65, F 4 Responses Apr 14, 2013

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    Mistaken Beginning

    on aug 24/12, i fell down a flight of stairs at a subway station.in rehab for 10 weeks, they noticed my shaky legs, burning crotch and total insomnia. the y referred me to neurologist for diagnosis.Two neurlogists could not explain the fall but i have td 100%.they said it was my...
    mervdoc mervdoc 66-70 3 Responses May 15, 2012

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    Going Crazy

    I am about to hit my one year anniversary of symptoms of tardive dyskinesia. First in September I tried taking nothing, but the symptoms and my suicidal & homicidal thinking coupled with severe depression along with the maddening symptoms of TD remained. By December, I was...
    aclkona aclkona 36-40, F 1 Response Jul 23, 2012

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    Cant Stand The Painandthey

     hi i have tardive dyskinesia, my dr gave me gedon for depression i was taking it for almost a year when the symptoms began happening, i ve stopped the drug but the symptoms are still here i am having a really hard time with it sometimes i cant even get out of bed, i feel...
    Mufasa83 Mufasa83 26-30, F 3 Responses Dec 17, 2009

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    Tardive Dyskinesia

    I got TD from Zoloft. Can you believe it!! I took it for 13 years on and off and never had any symptoms. Went off zoloft with no problems for a year and started to have panic attacks again. I started the Zoloft which ended me up in the ER twice in one week. The doctors still keep...
    lazylizard lazylizard 46-50, F 3 Responses Nov 27, 2013

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    Am I Worried Well, Again? Pls Tell Me How You First Had Symptoms?

    I have been on neuroleptics for 20 years or so I have Schizophrenia, i'm 38 and Autistic, married, currently being a housewife and daughter and sister and friend - that's about it... I go to yoga at the moment but have been worried about my mental stability I have had severe...
    greentigress greentigress 36-40, F 6 Responses Nov 23, 2012

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    Related Experiences

    I'm 19 and I first started pulling my eyelashes when I was in 8th grade. At first it wasn't too bad. I would stand in the mirror and pull my eyelashes but was able to stop once...
    alisonw23 alisonw23 18-21, F 3 Responses 20 hrs ago

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    Lately I have been feeling really fed up and depressed. I feel that both family and friends hate me being happy or having a life of my own. My parents are both really ill and have...
    galaxy3 galaxy3 36-40, F 1 Response 18 hrs ago

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    How many of us look into the mirror and hate what you see? Wait a second. Did you create yourself? No, you didn't. I made myself feel bad for years because of my appearance and I...
    ladybug96 ladybug96 16-17, F 2 Responses 13 hrs ago

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    Crystal Skulls, The Lost City of Atlantis and Your Higher Self Author Deanna Jaxine Stinson, Paranormal Researcher Halo Paranormal Investigations - HPI International https://www...
    PaulDaleRoberts PaulDaleRoberts 51-55, M 9 hrs ago

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    I'm 42 and covered in tattoos. I have only been getting tattoos for 3 years, and I'm completely covered. I'll get right into it. I have both my sides completely done. From my...
    treppy42 treppy42 41-45, F 4 Responses 7 hrs ago

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    I met a guy online 2 years ago, and I never really believed that I could meet someone on the internet and be so close to them, even though I never met them but it happened to me...
    Kayroxyoursox Kayroxyoursox 26-30, F 2 Responses 7 hrs ago

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    It all started at the beginning of May of my first year in college. Me and a friend from my dorm had a mutual friend who had posted links of the site “Ask.fm” on his Facebook...
    MattRogue MattRogue 18-21, M 5 hrs ago

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    Well, I've given a lot to this world. I've listened, I've observed, and I've fed back where I can to those who need to hear it. I haven't reached a tremendously wide audience, but...
    cloudsoflife cloudsoflife 26-30, M 4 hrs ago

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    This is what one of my BFF who's a guy asked me to think about so if you're a woman and is in love and is thinking about running away to be with someone here's my message to you...
    Concerto Concerto 22-25, F 2 Responses 2 hrs ago

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    I have lots of scars... Let's talk about those that aren't self made, shall we? Okay, I have a huge scar in the back of my head from when I was pushed off a bed and hit my head on...
    ColourfulDreams ColourfulDreams 13-15, F 1 Response 20 hrs ago

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    Yes, it is very true that I have not only natural beasts but they are enormous too. My breasts have never been filled with any silicon and are very natural to look at and touch as...
    singlepregnantmom singlepregnantmom 36-40, F 3 Responses 19 hrs ago

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    My Dad more than my Mam. I'm no alowed to do anything,i can't wear make up,i can't stay out late,i can't have a boyfriend.The list just goes on & on.I'm 14 & i just want to do...
    smackedagain smackedagain 13-15, F 8 Responses 17 hrs ago

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    So, in learning to trust again I have learned that I have become someone that isn't trustworthy. It seems like and easy fix...just start being honest, but it isn't. When you're...
    seesaw69 seesaw69 26-30 1 Response 15 hrs ago

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    So...if there exists a country that WASN'T established by having killed off and segregated the previous inhabitants, or who DIDN'T send explorers and settlers off to invade and...
    bijouxbroussard bijouxbroussard 46-50, F 2 Responses 10 hrs ago

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    And I don't really care. I honestly feel like people who are waking up every morning feeling sick, because they were hoping their diagnosis was just some terrible nightmare may be...
    LameGames LameGames 18-21, F 7 hrs ago

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    Hey everyone, my name is Melody and I have been living with my marine boyfriend for about 9 months now. We dated years ago in highschool and reconnected this past year and things...
    melodygerrish melodygerrish 18-21, F 1 Response 5 hrs ago

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    Duh who doesn't have a birthday you may forget it or not have a party but you still have a birthday
    livelovehopefree livelovehopefree 13-15, F 1 Response 5 hrs ago

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    I would rather have no friends than to have a fake friend! I just said those very words to my son today when I came home from work. I have a work-related gal-friend in my life, who...
    miryam57 miryam57 56-60, F 4 hrs ago

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    I've been cheated on :( I've been together with my common law spouse for 15 years. We have 2 amazing kids. A boy who is 12 and a girl who is 11 going on 18! I found out last...
    YOLO73 YOLO73 41-45, F 2 Responses 52 mins ago

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    Hi I have Dextrocardia Situs Inversus Totalis. I am 29yrs old and from London UK and I found out about my condition when I was 11. I went in to hospital to have my appendix removed...