I Have Tarlov Cysts

A Tarlov Cysts anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tarlov Cysts. You're not alone. 23 People

    My Symptoms

    I was diagnosed with multiple tarlov cysts about 2001, the largest one being 3/4 inch in diameter, (which to me seems quite big), though the consultant I sure didn't seem to think so.   I was also diagnosed with osteoarthritis of the spine, including my neck about the same time...
    gilbertchurch gilbertchurch
    66-70
    1 Response Jul 5, 2011

    I have pain all the time.

    MRI found the cysts yet my Doctor and insurance company said that isn't what is causing my pain. Legs and feet get so large that I can't put shoes on. My Doctor refuses to understand this pain is real and P.T. hasn't helped.I can't hold a normal job. Forget lifting at times I...
    Ladymajsticrain Ladymajsticrain
    41-45, F
    1 Response Mar 17

    Finally A Real Mri Diagnosis

    I am now a 71 yr. old female, mostly in excellent health , youthful and very active. For more than twenty years, I have been going to urologists and GYN doctors for UTI 's with non bacterial symptoms, lower pelvic pain and burning with intercourse , jabbing muscle pain around...
    lillie61 lillie61
    70+, F
    2 Responses Dec 12, 2012

    No Hope To Some Hope To Recovery!

    My wife just had surgery for Tarlov Cyst Disease. Don't let just any doctor operate. There is a high failure rate with this surgery. Dr. Feigenbaum at the Tarlov Cyst Institute has a proven procedure that my wife experienced. Wonderful experience and already much of the pain...
    markim53 markim53
    61-65, M
    Nov 12, 2013

    Tarlov Cyst Journey

    My wife had surgery for Tarlov Cysts two weeks ago. But before I go there I will give a little back round of our journey. It started thinking my wife had a herniated disc. After the pain got worse we got a MRI. The MRI showed that the pain my wife was experiencing was from 6...
    markim53 markim53
    61-65, M
    Nov 12, 2013

    Many Years Undiagnosed, Until I Became My Own Advocate.

    For the last 12 years I have suffered with very strange symptoms. One time I could not walk without shuffling my feet. I could not pick my feet up. I had numbing and tingling from time to time in my legs. I was having bladder problems. I would end up in the emergency room doubled...
    Vivianne Vivianne
    61-65, F
    1 Response Nov 12, 2012

    My Road To Recovery

    I was in a rear-end car accident on October 10,2009 that caused considerable lower back pain continuing down both legs.I also had numbness and tingling in both legs along with unexplainable bladder and bowel symptoms.Local doctors were only concerned with my neck and "classic...
    phml phml
    51-55, F
    4 Responses Apr 15, 2010
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