I Have Temporal Arteritis

A Temporal Arteritis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Temporal Arteritis. You're not alone. 104 People

    Just Diagnosed With Polymyalgia Rheumatica And Ta At Age 45

    I was just diagnosed yesterday with PMR and it was spot on. I went to a RA doctor for terrible shoulder, lower back and hip pain thinking I had RA. It all came on in a matter of days a few months ago after building a brick wall by my pool. I kept thinking it would go away and it...
    smittyjf smittyjf
    41-45
    2 Responses Jan 15, 2013

    A family member is recently diagnosed with this.

    I am most concerned about the blindness possibility though there has not been any visual loss or disturbance - we are a month into high dose prednisone
    jane3838 jane3838
    41-45, F
    1 Response Dec 22, 2013

    Temporal (Giant Cell) Arteritis

    I was hit withTemporal Arteritis 4 months ago but can't get any estimate of when life returns to normal. I had 90 sed rate, 70mgs of prednisone. Double vision disappeared immediately and headaches and declaudation, etc, soon after. I was told that the only certain diagnosis...
    dtravers dtravers
    70+, M
    1 Response May 1, 2013

    Please Help

    I'm new to all this, but here goes. I’m a female, age 65. Eight weeks ago I started getting pain in my left temple about 75% and in my right temple 25%. Went to my regular Doctor, blood work was done and something in my blood work (so sorry I forgot the name was a bit up like...
    mememania mememania
    61-65, F
    2 Responses Nov 22, 2012

    Temporal Arteritis Aged 34? Symptoms From My Teens?

    Im a 34 yr old male and have periodically had the 'earthquake' and 'tremor' headaches on my right temple since my teens. I was told by my GP then that i was stressed and clenching my jaw causing a muscle spasm. I started getting visual disturbances from my late 20's but thought...
    balticregions balticregions
    31-35
    Jan 8, 2012

    My First Post

    Hello, I had pain so bad in my right temple and eye that I couldn't ease. Eventually I went to my Dr. A quick examination then an urgent blood test showed inflammation. Long story short I'm being treated for TA. with steroids. Hopefully to prevent eye damage etc., It's only my...
    callyme callyme
    66-70, F
    1 Response Jul 18, 2013

    Dealing With TA, PMR, And Now Cushing'S Syndrome Since Age 44

    My story begins in February 2004 when I had just turned 44 years old. I began getting lightning bolt pains shooting across the right side of my head, stemming from the temporal area. They were so painful I would fall to my knees. They were sporadic at the time so I tossed it up...
    kat19atpa kat19atpa
    56-60, F
    1 Response May 21, 2013

    I was just diagnosed with temporal arteritis.

    I had a physical examination and had my sed rate checked. I am very used to having migraines but nothing quite like this. It's like when the headache does sort of subside I still have pressure over my right temple. I'm a male and only 34 years old. This is pretty scary to me...
    mbk1980 mbk1980
    36-40, M
    1 Response May 13, 2014

    I was diagnosed 3 years ago

    after being given strong antibiotics for a bad sinus infection. Apparently the antibiotics triggered something. I was on Prednisone for about 9 months and developed a whole array of complications from that. While my ESR numbers continue to be elevated, I have done pretty well...
    tanyamac tanyamac
    46-50, F
    2 Responses Apr 10, 2014

    Temporal Arteritis Just Diagnosed

    So glad to find this site I have just been diagnosed with temporal arteritis and would like some information on treatment and prognosis
    Kye73r Kye73r
    36-40
    1 Response May 30, 2012

    31 Years Old And Jsut Digagnosed With Temporal Arteritis

    Hello to all. I am so glad to have found this site and hopefully can help someone.  I am a 31 year old woman, I ahve 3 small children adn live an normal daily life. I ahe never had any health issues in my life. Suddenly one day I started to experience tooth pain and headaches...
    carebear1212 carebear1212
    31-35, F
    6 Responses Feb 4, 2012

    Miss Diagnosed

    I have temporal arteritis and my symptoms began more than a year ago. During the first 6 months I saw 5 different doctors and only one of them took me seriously enough to begin treating me for what he thought was a type of neurolgia. A biopsy diagnosed my condition and by then...
    Roid Roid
    56-60, F
    4 Responses Aug 31, 2011

    I was finally diagnosed with TA/GCA by my eye

    doctor. I was misdiagnosed by 4 different doctors. I finally googled my symtoms and landed on TA/GCA, took that print out to my doctor who threw it away and said I had a ear infection. For a month and a half I suffered through horrible headaches, lock jaw, weekness, fatigue...
    debleo56 debleo56
    56-60, F
    2 Responses Apr 5, 2014

    Twice Blessed;

    I awoke in March/92 with a terrible headache,nausea, dizziness, & diarrhea. I was diagnosed with TA, which was confirmed by biopsy of my left temple.I began a regimen of 60 mg. of prednisone to control the headaches, and to prevent blindness.For two years I gained weight, lost...
    surrytish surrytish
    70+
    Jul 22, 2011

    Ta Experiences

    I was diagnosed last December with temporal arteritis after three months of intensive pain in my head and neck which was attributed to muscle strain caused by the severe cervical arthritis I have has since my 50s. A physical therapist noticed the odd swellings in both my...
    cellolady cellolady
    70+
    2 Responses Oct 8, 2012

    Just Diagnosed With Temperal Arteritis And Probably Polymyalgia Rhematica

    Hi there, Wondering if any one here can tell me if their diagnoses was missed by their health care provider. This is my story. I am a 60 yr. old relatively fit female. I've had pain and tenderness on my left temple for at least 7 months. We went on a trip last April that...
    taffyb002 taffyb002
    61-65, F
    2 Responses Sep 14, 2013

    How Much Should We Slow Down??

    As an upandatit person I was thoroughly shocked when TA hit me! I had a very speedy diagnosis as a doctor shares my office and the swelling in my temporal area and other symptoms were caught on the second day. But I didn't have time to find out about or assimilate the possible...
    upandatit upandatit
    56-60, F
    2 Responses Jul 7, 2012

    Possible Temporal Arteritis

    I'm a 45 yr old female and for the past four months have had severe headaches, fatigue, muscle aches, joint pain, tender scalp, swollen right temporal artery, agitation, and blurred vision. My GP says I'm too young to have TA but I have read cases of people younger than me who...
    meebsterette meebsterette
    46-50
    2 Responses Jun 28, 2013

    Giant-cell Arteritis: An Exciting Journey

    Started my GCA January 2009.  My story is told in great detail here:    http://frontal-lobe.info/gca/gca.html        It is updated  to June 2012.  (I am 91 and in good health.)    My 45-page book is made available there, free or from Amazon..    I hope you...
    deleted deleted
    26-30
    2 Responses May 15, 2010

    Temporal Arteritis And Prednisone...

    I was diagnosed with temporal arteritis two years ago.  I had a headache that would not go away, went to the Dr. and my sed rate was 96.  He immediately put me on prednisone, thank God.  The headaches went away in a day.  This was the beginning of a new...
    raiderguard raiderguard
    66-70, F
    26 Responses Mar 8, 2010

    Lost Hearing In Left Ear Permanent

    Three weeks ago i was told i have temporal 80% sure. head ache jaw pain and gum and mouth. the big thing is i lost my hearing in my left ear for ever. I have never felt like this in my whole life. Seven doctors later who are not still sure whats up. This week i am going...
    linoman126 linoman126
    70+
    Sep 19, 2010

    I have just been re-diagnosed with Temporal

    Arteritis for the third time now. I have had repeated episodes of Polymyalgia since 2000- and also have sjogrens syndrome. Two years ago I had anti-biotic treatment for Sinusitis - which seemed to be the trigger to my first episode of TA. Every time I am just coming off the...
    Cathquill Cathquill
    56-60, F
    Jun 12, 2015

    I was diagnosed in 2009 at the age of 59 with

    Temporal Arteritis and have been fighting it ever since. I was on Prednisone for 2 continuous years after initial diagnosis. Since then the longest I have been off steroids is for a period of 6 months. TA keeps reoccuring so I have to go back on the steroids. I have had...
    phales1950 phales1950
    66-70, F
    Feb 4

    Temporal Arteritis And Eye Sight

    I would like to know if anyone has had their sight return after losing it to temporal arteritis, I have a brown spot in the middle of my right eye, also did you experience high blood pressure I was wondering if they both go together!!! I am gradually weaning off 60mg of...
    sadekeys sadekeys
    61-65
    Nov 2, 2012

    One Man's Gca Story

    I can do no better than post my entire GCA story for everyone. I have done this at: http://frontal-lobe.info/gca/gca.html or just go to http://frontal-lobe.info There you will also find a 42 page book (free) that has much information from my experience and my extensive...
    deleted deleted
    26-30
    Sep 30, 2012

    I was diagnosed in 2010 with TA.

    It lasted a short time of about 6 months with SED rates coming down quickly and I was off Prednisone in a matter of weeks. I was so happy. Several months later it was back with double vision this time. 80 mgs of Prednisone, biopsy, the whole works, every possible doctor...
    heatherlinklater heatherlinklater
    66-70, F
    1 Response Jan 12, 2014

    I have had temporal arteritis

    since 2009. I have been on steroids for over 6 years now and am wondering if any of you have had this disease as long as I have had it. I caught a cold in 2009 and that seemed to trigger the disease. I believe it is caused by a virus. It is such a painful illness. I have...
    deleted deleted
    26-30
    Apr 4

    I Have Temporal Arteritis Too

    I started out with jaw pain 16 months ago at age 70 and was diagnosed when my eyesight became fuzzy. The next day I woke up with blindness in one eye (All of lower half and part of outside peripheral vision). I was put on 1000mg of prednisone and have been trying to work my way...
    tiredintexas tiredintexas
    70+
    5 Responses Jul 19, 2010

    Could I Have Temporal Arteritis?

    I'm 24 years old, and healthy! Minus the fact i have severe panic disorder and Health anxiety! For the last week now I've been having these headaches that are everywhere, which doesn't really bother me considering I've had an exam from both my Primary Doctor and my optometrist...
    xocnagem xocnagem
    22-25, F
    3 Responses Dec 16, 2012

    It Will Get Better

    My mom suffered with this for a year. Almost a year on Prednisone, the worst drug with side effects ever. I would like to tell everyone what we did to get her well... thanks to a year of research and trying anything and everything. Besides the Prednisone, she drinks mangosteen...
    naturallybydesign naturallybydesign
    41-45, F
    1 Response Feb 25, 2011

    Could I Have Temporal Arteritis

    Hello everyone, I apologize in advance for this long story, but I figured I should list how everything has come about so you can better help me understand. It started out in June 2012, I started feeling kind of a fullness in my left ear. I went to check and I could tell...
    jmoore88 jmoore88
    26-30, M
    1 Response Sep 4, 2013

    My Ta/gca Journey

    I was diagnosed with TA in October 2010 after experiencing survey pain and swelling in the area of my left temple. I also have rheumatoid arthritis (RA) and several other autoimmune conditions. Backing up to the prior year (2009) and to share additional history, in November...
    peanut1234 peanut1234
    61-65, F
    Jan 1, 2011

    Just Starting.....

    Went to get eyes dialated to find out why I get really bad headache in my left temple that hits like a train and is gone is just a minute or so. Couldn't dialate because I have "narrow angle" which would cause intense pain if dialated. So referred to Opthamolgist. Who informed...
    idacajun idacajun
    56-60
    Aug 7, 2012

    I am only 24 years old

    and I have temporal arteritis. and it keeps coming back. this started when I was 16 or 17 i think. :( it keeps coming over the years. it will stop and if my eyes get stressed, It starts again :( now i am experiencing it. if I look in the left side without my heads moving to the...
    jennypie09 jennypie09
    26-30, F
    2 Responses Jul 17, 2014

    I Have Giant Cell For Over 10 Years.

    I was in my early 30's when I was diag. with "Temporal Artritis/Giant Cell."  Was a single mother of two children working two jobs and dealing with this issue.  My "SED" rate at that time was 250+ had a massive headaches (HA). I have had lost of sight, jaw pain (TMJ) as well...
    dove33 dove33
    46-50
    2 Responses Sep 13, 2011

    Been Since Nov 2009

    I was sick a year ago and thought it was sinus problems. I had many classic signs, weight lose, fever at night pain in the face and jaw...Everyone said it was stress...I also lost some vision in one eye and the glasses wouldn't correct it......My sed rate reached 140!!!!!! while...
    t1201 t1201
    56-60
    1 Response Feb 4, 2011

    I Too Have Temporal Arteritis

    I am a 64 year old woman and was diagnosed with temporal arteritis on June 17, 2009. The doctors first thought my head and neck pain was an unusally bad side effect to the Reclast I had five days before. After a couple of weeks of agony I was finally given a SED rate test. Then I...
    cranbrypro cranbrypro
    61-65
    1 Response Aug 13, 2010

    My Temporal Arhtritis Journey Experience

    Just  to share with someone who may have the same health condition. Perhaps my symptoms are not the  most terrible ones however they are enough annoying... My TA is disturbing my vision - just 25% of the patients of TA have this kind of outcome and as far as I can see I am...
    spiins spiins
    56-60, F
    1 Response Aug 5, 2013

    Very Young To Have It

    I am 29 years old and doctors are 99% sure I have temporal arteritis. It all started 2 weeks ago when I suddenly got a terrible fever over 103 f or 41 degrees c. I had to be rushed to hospital as I had severe chronic sinusitis. My sinuses are clear but I am not well. I have...
    S2098263 S2098263
    26-30
    3 Responses Oct 26, 2012

    What If The Biopsy Is Negative?

    I'm in the middle of testing for suspected TA, but my biopsy came back negative. I've already lost the vision in my right eye, and the Prednisone is depressing everything in my system right now. Someone with experience with TA please give me some advise as I revisit my doctor...
    Deeg Deeg
    51-55, F
    5 Responses May 12, 2010

    Sed Rate Rising

    I was diagnosed with Polymyalgia Rhematica in Sept 2009.  Was on 20 mg of Predisone until Feb 2010, was then diagnosed with Temperal Arteritis also.  I was then put on 60 mg per day of Predisone.  Still having problems the spec added 10mg per week of...
    Judyd Judyd
    61-65, F
    3 Responses May 3, 2010

    Temporal Arterits

    My headache began January 2, 2013. It's now the middle of April and although the headache is controlled my life seems anything but. I am 53 and the doctors in the states keep telling me I'm too young for t/a. All the symptoms are there; that horrible, nasty headache, neck...
    steddygirl steddygirl
    56-60
    3 Responses Apr 14, 2013

    Now What

    I am 61 and have recently been diagnosed with this illness. My whole life turned upside down within the space of a few days. The speed and the intensity of immediate medical intevention is a bit alarming. I still have the headache (in varying degrees) but my biggest fear is...
    wickedstepmum wickedstepmum
    61-65
    10 Responses Aug 11, 2009

    Long Journey To Diagnosis

    I began having a series of health problems in 2008 including pain in my left hip joint which made it difficult to walk unaided.  My doctor took  Xrays and said that it looked as if I would probably need a hip replacement.  Since I had a trip planned to visit my son...
    oklaM oklaM
    70+
    1 Response Sep 27, 2010

    My Mother Has Been Diagnosed With Temporal Arteritis

    My mother was diagnosed with temporal arteritis about 3 years ago, a short time after having an operation to have a hip replacemen, she had her hip replaced with a metal on metal chromium cobalt hip, they were supposed to be the next best thing in hip replacement, anyway she...
    MOrgles MOrgles
    46-50
    Aug 24, 2012

    My Struggle With Temporal Arteritis

    I was diagnosed with temporal arteritis April 2010. I began having fevers, jaw pain, body aches, and fatigue a few months earlier. I had back surgery and thought I would feel better and all the symptoms would go away with a little rest. (wrong) The terrible headaches started and...
    Resick Resick
    56-60
    1 Response Nov 25, 2012
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