I Have Thalassemia Minor

A Thalassemia Minor anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Thalassemia Minor. You're not alone. 148 People

    Hello, I am Chinese, 16 yrs old,

    I wear glasses (I think I am legally blind xD) and I have Thalassemia Minor Beta. My Symptoms * Continuous stabbing pain in my joints, bones and my chest (around my heart) * Headaches (I also get it when the sun hits my head) * Dizziness * Throwing up (mainly around morning...
    ChueLove ChueLove
    18-21, F
    1 Response Feb 10, 2015

    I Also Have Thalassemia Minor

    At 15, my doctor prescribed iron supplements and when my anemia worsened, he sent me for further tests. I found out that I had the disorder and was told not to take iron. I also found out that this disorder is very common in the Mediterranean region (I was born in Southern...
    Thalassemia Thalassemia
    61-65, F
    1 Response Aug 26, 2013

    My Symptoms

    I've read a bunch of people's post and I can relate.The shortness of breathe, tiredness, dizzy spells, headaches often and have a yellowish color to my skin. I love to hangout with my friends but lately it feels like I can't keep up. Alcohol is the worse, I can have a hangover...
    93meghan18 93meghan18
    22-25, F
    2 Responses Aug 18, 2013

    I have always known that I have thalassemia

    minor (it was clarified as an adult as Beta Thalassemia Trait), my mother also has it, so I was tested at a young age. I've always had a problem with exercise. My mom always told me that it's just what happens to us, and that we have to "work" up to aerobic exercise. Luckily, I...
    BirdysKnits BirdysKnits
    36-40, F
    1 Response May 27, 2014

    I realized I have beta thalassemia trait very

    late in life, when I was in my forties. My experience during childhood and a large part of my adulthood has been very frustrating. The fatigue, the frustratingly deficient cognitive function, difficulty recovering from infections. Being labeled with many demeaning tags even now...
    saskin08 saskin08
    51-55, M
    1 Response Mar 1, 2014

    I was diagnosed with beta thalassemia minor

    when i was about 9 or 10 years old. I inherited it from my mom. Before I was diagnosed (when I was 8), I always experience migraine & couldn't focus in class. The adults around me had also commented that I looked pale. I didn't know what was wrong with me until my mom brought me...
    zellkrism zellkrism
    26-30, F
    Feb 15, 2014

    I didn't know I had the Thal trait it

    until recently, and was active enough my whole childhood - got plenty of fresh air and sunshine, and rarely ate junk food. With what I know now about thal trait, that wholesome childhood probably made a difference in my experiencing few symptoms. I was an avid biker. I couldn...
    tutorreach tutorreach
    41-45, F
    1 Response Jan 27, 2015

    Another rough night i cant sleep been dizzy

    everything is just spinning... I wish theres cure for this im tired of feeling sick all the time
    pekidachmama pekidachmama
    31-35, F
    Sep 9, 2015

    Living With Beta Thalassemia Minor

    Hello everyone. My name is Kay and I have beta-thal trait. When I was 18 I went off to college and learned that I had beta-thalassemia trait. As I had never heard this before, I thought I was dying and did as much research as I could at the time as this pre-internet. At that...
    drhoosh drhoosh
    31-35, F
    37 Responses Apr 18, 2010

    Is Beta Thalassemia Minor A Limiter?

    I am a 36, female. I am a high level, sponsored endurance athlete. I have always had weird 'things' happen throughout the years when my level of training and intensity increased. Recently, and accidentally, I was diagnosed with beta thalassemia minor. There seems to be little...
    tetonkb tetonkb
    36-40
    6 Responses Sep 2, 2013

    Treatment That Works Very Well For Me And May Help You Too

    I have minor and my symptoms have included the following: 1. fatigue 2. dizziness, fainting spells/nausea 3. tingling/numbness in hands and feet 4. dark circles under eyes 5. constipation/diareaha 6. When pregnant my hemoglobin red count dropped to a 4 , needless to say I could...
    emily122 emily122
    31-35
    2 Responses Jan 18, 2013

    By The Way, Has Anyone Told You....?

    When I was 35 I had my second child. While in the hospital one of the nurses says to me "by the way has anyone ever told you that you have an anemia called thallesemia minor? I told her no but I've always suffered with anemia off and on my whole life. She told me that its...
    Stormystrom Stormystrom
    41-45, F
    Jun 10, 2013

    I Have Thalassemia Minor

    I am a 34 year old mother of four two adopted and two biological when I was younger starting in third grade I would have severe migraines I mean I couldn't even fuctionn I would have these migranes twice a month for a year and the next year have none then the next year I would be...
    rwilcher79 rwilcher79
    36-40, F
    Sep 10, 2013

    I have BTM.My age 44.

    But i have never felt any problem except fatigue(sometimes) . Even I had climbed mount fuji and few of the mountains. Never bothered about BTM. I do regular Yoga and sometimes walk as exercise . Now I will start Folic acid tablets(200 mcg) as per doctors recommendation. It has...
    Ramkul Ramkul
    46-50, M
    1 Response Feb 23, 2014

    A long time ago I was diagnosed with beta

    thalassemia minor. But I was little and no one explained it to me very well. This blood disorder is the minor form, so not a lot happens with it. But I've noticed a few things here and there. But yeah. I have it... And if I ever get married to someone who has it we can give 1/4...
    TubaAtheist TubaAtheist
    18-21, F
    Mar 23, 2014

    Should we create a report out of the symptoms

    announced in this chat group? I am a doctor, and also a Beta-Thalassemia Minor career, my children have it too, As a patient myself I have come to believe that urgent research is needed by health care professionals and that this condition is not as harmless as the medical...
    KenKalant KenKalant
    51-55, M
    1 Response Jan 5, 2016

    I just found out last week I have alpha

    thalassemia minor. I was tested many years ago but the doctor I had then didn't care to give me the results. She only kept badgering on about how I couldn't have any symptoms eventhough I was having severe fatigue and cognitive difficulties. I didn't have the energy to fight...
    Oluchio Oluchio
    36-40, F
    Oct 25, 2015

    I was diagnosed with Thalassemia

    when I was pregnant but they didn't specifically indicate if what kind. They just wanna make sure that my baby's dad(my partner that time) wont have the same disorder. I have been wondering all my life why do I always feel the fatigue and shortness of breath despite the fact...
    mabuhayka mabuhayka
    31-35, F
    1 Response May 23, 2015

    Dear All - I have beta thalassemia minor (BTM).

    Two of my daughters have BTM too, they are tall with thin bones. To figure out what is really going on with us, my 16-year-old daughter has created a nice high school project on this topic and needs people with BTM to answer a simple 5-minute survey with easy multiple choice...
    KenKalant KenKalant
    51-55, M
    1 Response Jan 18, 2016

    My symptoms started showing up around 29,

    after a viral infection carried by mosquitoes. I am now 36. My blood results were not really significant. My generalist denies me having thalasssemia altogether. A hematologist told me I might have alpha thalessemia trait like 3 years ago. I now get joint pains, short breathe...
    ZaRose ZaRose
    36-40, F
    Mar 7, 2016

    My Daughter Has Thalassemia

    Hi everyone, i am new here. When my daughter was 1 year old and routine blood work was performed, they found something wrong.  We did a few more tests on her, and also both myself and my husband.  About a month later they told us she has the trait of Thalassemia. ...
    BrownEyez0806 BrownEyez0806
    26-30
    15 Responses Oct 25, 2010

    Looking For Help With Thalassemia Minor. Docs Have Been Useless.

    I am now 37 years of age and still dealing with the traits of Thalassemia Minor. I can't seem to ever get my Hemoglobin count above a 10. I can honestly say that every doctor - including the hematologist I have seen - has been ignorant to this condition. At 34 years of age I...
    vampire13 vampire13
    36-40, F
    7 Responses Feb 1, 2012

    Life With Beta Thalassemia Trait

    I, as well as most of my family has beta thalassemia trait.  I have read the stories on this site.  This condition is not really a big deal but you must look for a physician that understands the condition.  I have never found the condition to impact my life, other...
    Italianheritage Italianheritage
    41-45, F
    5 Responses Oct 31, 2009

    30+ Male Living With Thal Minor And Anxiety/panic

    I wasn't diagnosed until my 20's and for the most part I often forget that I have it. I was diagnosed by my doctor after he found the iron anomoly in my regular bloodwork. We did some additional testing and he came up with his diagnosis. So far mild anemia seems to be my only...
    jer33 jer33
    36-40
    4 Responses Jul 8, 2010

    Epiphany At 50.

    I am 50 years old and an RN.   I have known about my (beta thalassemia minor) diagnosis since I was 16  years old.  My (GP) general practioner at the time, was a very savy physician and diagnosed me.  I remember him telling me "Don't let any doctor prescribe iron for you...
    pjbrn pjbrn
    46-50, F
    6 Responses Jun 14, 2012

    A Doctor With Beta Thallasemia

    I have beta thal verified twice by lab tests. I am Chinese and have always been athletic. My parents noticed that I loved eating meat as a kid. Even now I still do, but I mostly eat vegetables because I know it is good for me. But it really makers me wonder if I should just...
    fannibal fannibal
    26-30
    6 Responses Oct 27, 2012

    They Say Its Not Serious, So Why Dont I Bleed?

    I have what i have been told is thalassemia minor. I also have 2 children with the disease. Every doctor i have visited and every web site Ive seen has said its not serious and treatment is not necessary, so why is it that when I'm about to get my period i cant get out of bed? I...
    cathyraiders cathyraiders
    26-30
    5 Responses Mar 10, 2009

    Foods For Thal Minor

    i diagnosed with thal minor few months a go.Now i'm 24 years old.Many people say that I'm pale.I feel little tired sometimes.but not very often.My mother and her brother also have thise blood disorder.I'm a vegeterian.I like to no being a vegeterian will worse my disease and I'd...
    bethony bethony
    22-25
    1 Response Mar 1, 2011

    Looking For More Infomration On Thalassemia

    I am in my late 30s and have Beta Thalassemia minor. Most of my teen and adult life it has only affected me by making me moderately more tired that the average person, I get dizzy more easily than most people, I am more susceptible to cold, and I require more sleep than most...
    ThalGal ThalGal
    36-40, F
    4 Responses Jan 19, 2010

    My Story Of Having Thalassemia Minor

    I have known since I was a child that I have thalassemia minor because my father has it so I was tested. I was told that my only concern would be when I had children I would need to have the father tested. And that Iron would kill me.When I was about 12 I started have severe...
    Lambrou Lambrou
    31-35
    1 Response Apr 2, 2012

    Thalassemia Minor And Want To Know About Treatment

    I found out that I had anemia when I was hospitalized from food poisoning at the age of 17. My hemoglobin count was 10.4. Since then the highest count has been 10.6. When I was going to college, I then diagnosed with Thalassemia Minor. I took iron but it made me feel like a race...
    55joyfulone 55joyfulone
    51-55, F
    1 Response Jan 9, 2012

    Daughter With Thal Trait B

    HiMy daughter was tested as a baby and confirmed to have thal b trait as does her dad and half of her greek side of the family.  As a brit in greece everyone there just think of thal as being the normal thing and never explain symptoms.  My daughter is now 7 and has complained...
    greekinuk greekinuk
    36-40
    2 Responses Jan 13, 2011

    Naps Naps And More Naps

    I'm 16. I remember being chronically tired through middle school, I complained all the time. My freshman year of highschool I was formally diagnosed with thallassemia minor, which didn't come as much of a shock. My mother has it and so does my grandmother, along with a...
    GoDrownAFish GoDrownAFish
    18-21
    4 Responses Oct 14, 2009

    Thalassemia Is Not Easy

    I was diagnosed in 2004 after four days worth of transfussions.  I was told to plan my funeral.  It's nice that some do not have it bad as other's but it has been my experiance that, it's a hard life to live.  I get weak ALL the time, I get severe headaches, I've...
    ViGa1225 ViGa1225
    26-30, F
    Mar 5, 2010

    Btm

    Hi I have know that I have had btm ever since I was a child, every once a year i would have trouble with fatigue and my mum would buy me lucusade and energy drink which would perk me up. Well I had a turn when I was in my 30ties I fainted at work, found that my red blood count...
    maleeric maleeric
    41-45, M
    2 Responses Feb 27, 2012

    Tired...always...

    As a kid, I always had a tough time concentrating in school, also, I would get bloody noses all the time. I tried playing sports, but would always fatigue, not knowing of my blood condition. When I was 16, a Dr. Finally realized what I had. It wasn't until college that I really...
    Ml2az Ml2az
    41-45, M
    Oct 7, 2012

    A Young Adult With Beta Thalassamia

    I discovered I have beta thalasemmia when I did a blood test for my outbreak of rashes when I was 17. Years passed, I never really find out more about the illness. Yesterday i met a friend for lunch and she told me that I always looked tired and it upset her that it seems like I...
    vellehope vellehope
    26-30, F
    1 Response Mar 4, 2013

    Found It At 18

    I had no idea what was wrong with me, except that I am the middle child out of 5 kids and am the only one with thalassemia. What drove my family nuts was I was always sick as a kid, much shorter then even my baby sister, Today I am 32 years old, my baby sister is 28. I am 4'9 1/2...
    ducky81 ducky81
    36-40, F
    2 Responses Apr 20, 2013

    Life Is Normal....

     I have thalassemia minor so does my father my elder brother and his 2 kids . So its pretty common. I live in Pakistan [ south Asian origin] , i live a pretty normal life except my weight is almost constant for the last 15 years or so. [ 130 lbs ]. otherwise i have no...
    tariq65 tariq65
    41-45, M
    Sep 20, 2009

    Beta Thalassemia Minor

    I've been diagnosed with beta.Thalassemia minor 5 years ago when i was pregnant with my son. Since then i was on iron pills. My new doctor told me recently that my beta Thalassemia Minor is not causing my symptoms. Im not anemic and i dont need iron pills. I've been takin iron...
    queenbr queenbr
    22-25, F
    1 Response Jan 3, 2013

    I Might Have Thalassemia Minor, Should I Get Tested?

    I don't totally understand what the deal is, but my mom said that I was born mildly anemic and the doctor guessed I had Thalassemia, but didn't do anything about it. I am not of Meditteranean descent as far as I know. I've noticed that I am often tired, but I never thought I was...
    rach144 rach144
    22-25
    1 Response Apr 19, 2013

    Just Discovered I Have Thelesemia

    I'm 35 years old and I just discovered I have Thel. I have often wondered why I get exhausted and infections easily. I bout with depression as well. I am still undergoing some tests to determine what kind of Thel I have. Is it true that the life expectancy is shorter?
    Handsome2013 Handsome2013
    36-40, M
    2 Responses Apr 8, 2013

    I Just Got My Diagnose

    I am a 17 yearold girl , I am always tired and I have some kind of weird pain all over my body. ( I live in the netherlands where there are only 200 people with thalassemia ) After two years of all kinds of tests they finally found out what is wrong with me. I have thalassemia...
    lamalex lamalex
    18-21
    3 Responses Sep 11, 2013

    Me.Too

    I have BTM too... I'm 17 and today was our school blood drive. You can donate blood with minor but not major. They went to check my iron levels and they were so low, the machine wouldn't read them. To donate they must be at atleast 12.5, but it only reads as low as 7.0. So my...
    emilyann13 emilyann13
    22-25, F
    4 Responses Apr 23, 2013

    My 7 Year Old Son Has Thalassemia Trait. We Discovered This Due To Symptoms He Had For Some Time. My Sons School Suggested Blood Tests

    for about a year he was just not him self i put it down to to much home work and after school activities as well as loosing grandma. the school suggested he have blood tests done as i had been to the dr's on several occassions. He complained about a pain in his heart but the dr...
    misa73 misa73
    41-45
    1 Response Jul 17, 2013

    Where Did I Inherit It From?

    Hello Friends, I have Thal. also.  I am very confused about how I inherited it!  I am a 46 year old African American female, who has inherited a problem which is common among Eastern Mediterrean persons.  This has really sparked my interest in my family history!
    GWENNA GWENNA
    46-50, F
    2 Responses Oct 24, 2009

    A Diet To Help People With Thal Feel Better

    Please check out my blog post on Crazy Sexy Life and let me know if I can help you with your diet. I have beta thal major and my life has improved dramatically and want to help others do the same: http://crazysexylife.com/2012/can-a-raw-vegan-lifestyle-affect-the-health-of-ones...
    beancurd541 beancurd541
    31-35
    Sep 5, 2012

    Funnyman But Sad

    I am now 48 years old and was only diagnosed with Thal Minor 3 years ago. After leaving school I played football to a professional standard but never was able to maintain fitness for more than half a game. Always considered myself very fit during school and my younger years but...
    ssalty321 ssalty321
    46-50, M
    Nov 15, 2012

    Help For Treatment

    financial help requers for my baby's thalassemia operation.pls tell me if there is charity foundations who make financial help for Thalassemia treatment.Sahyadri Hospital pune told the total exp.is abt 40 lack.pls send suggetions to collect the fund.
    vila123 vila123
    31-35
    Sep 24, 2012

    I am a 43 year-old female of Central Mexican

    and Irish heritage. I was diagnosed with BTM at 19 while on Amphoteracin-B treatment for a fungal infection in my sinuses. Ampho-B eats up your red blood cells and in 1/4 the time expected, mine were gone. I was found to have an HGB of 3. Yikes! And still driving and going to...
    AZDawn AZDawn
    41-45, F
    Feb 4, 2016

    I was diagnosed with thalassemia alpha recently

    after a year of battling fatigue, palpitations and shortness of breath. I lost my job while on short term disability. My hematologist advised that I take iron supplements and that thalassemia does not have any symptoms. They is very frustrating to me. I've battled fatigue for...
    Tabby0925 Tabby0925
    46-50, F
    1 Response Aug 20, 2015

    Other Ailments-are They Linked?

    The group I I was diagnosed at 17, my daughter born with an enlarged liver was diagnosed at 3 months. I also have fibromyalgia. hidradentis suprevia or Verneuil's disease, and narcolepsy, I have often wondered if they are all somehow related any one expereince these weird...
    AYSWARD AYSWARD
    41-45, F
    Nov 6, 2013

    I am 50 years old with beta thalassemia minor.

    There are many who have this condition. Medical literature suggests that beta thal minor is without symptoms, but many of us with this condition do not believe so. We need to run a world-wide survey to collect simple data about such symptoms as fatiuability, low energy, sleep...
    KenKalant KenKalant
    51-55, M
    Jan 12, 2016

    I am 22 years old and have known

    since birth that I was a "carrier" for a genetic blood disease called Thalassemia. My parents told me from an early age that I was not sick but if I was not careful about who I had children with our children would die. This was not the best way to explain thing and I still don't...
    dgoodspeed dgoodspeed
    22-25, F
    1 Response Jan 30, 2016

    I ALMOST DIED WHEN I WAS PREGNANT

    for my daughter my blood count dropped down to a 4 the DRS did nothing for me one dr told my mom I might not live but thank I did. its now 23 yrs later my whole life I suffer with pains if I sit too long esp. if its really damp out through out my body I get pains even in my...
    florencemartine florencemartine
    41-45, F
    Aug 29, 2015

    I was diagnosed when i was 9 years old.

    Both of my parents have this. Not like the others i am very endurent to sports. My problem is not being able to put weight on no matter what i eat. 1.73 m height with max 53 kilos. Almost 40 now, if anybody else in same situation lets find a way to put some weight on. Any help...
    ardaprod ardaprod
    41-45, M
    Aug 5, 2014
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