I Have Thiamine Responsive Megaloblastic Anemia Syndrome

A Thiamine Responsive Megaloblastic Anemia Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Thiamine Responsive Megaloblastic Anemia Syndrome. You're not alone.

    Not One But Two!

    I have 2 children with thiamine responsive megablastic anemia also known as Roger syndrome. My daughter is 8 years of age she is severally partially sighted due to the stroke she suffered at the tender age of 7 months this also is an effect of the syndrome. She is also deaf...
    samina72 samina72
    36-40
    Aug 6, 2012
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