I Have Thygeson's Superficial Punctate Keratitis

Thygeson's Superficial Punctate Keratitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Thygeson's Superficial Punctate Keratitis. You're not alone. 144 People

    Hi all im so happy that i found this app with

    all these people sharing their storys with the same problem. I life in switzerland and it first startet about 2 years ago. Then it reoccured every once a month. I did not know what it was. Until it started occuring more frequently. Since 3 months now i have it almost everyday! I...
    Sonnenanbeterin Sonnenanbeterin
    26-30, F
    Mar 21, 2015

    Thygeson's Duration

    I have had Thygeson's for five years now.   I don't have the sensitivity to light.  My outbreaks seem to last for a month or so.  I can usually go 3-6 months between flare-ups. Has anyone else had this for five years or more?  My doctor...
    scollins73 scollins73
    36-40, M
    4 Responses Jan 29, 2010

    I Have Thygeson's Superficial Punctate Keratitis

    I have had TSPK since about 1997. Like many of you it took a long time to arrive at the correct diagnosis. I have only been treated with steroids on and off over the years in times of flare-ups. I have found that wearing dark glasses or tinted glasses does help particularly...
    bianca1 bianca1
    46-50, F
    1 Response Feb 19, 2010

    Could I Have Been Misdiagnosed?

    Wow so glad to have found you. I was diagnosed last week. I have been dealing with it for about 3 weeks and I am concerned that I've been misdiagnosed with TSPK. The steroids did nothing for me except when I had to wake up at night to go to the bathroom a couple of times...
    ssmith68 ssmith68
    46-50, F
    2 Responses Apr 28, 2013

    I'Ve Had Thygesons Since I'Ve Been 17

    It is so nice to find the group, and to read similar stories of what I have been going through. I have been dealing with this damn disease, and it just frustrates me to no end. I have it in both eyes but never at the same time, it jumps from one eye to the other. I have extreme...
    SarahSEarp SarahSEarp
    36-40, F
    1 Response Jun 22, 2013

    I understand that TSPK is thought to be an

    auto-immune disease and also have read that many sufferers of TSPK also suffer from other auto-immune diseases such as Coeliac and Crohn's disease. I have had TSPK for around a year but have suffered with symptoms very similar to Crohn's disease for a lot longer. I have been...
    may93 may93
    22-25, F
    1 Response Mar 12, 2014


    I am a 40yr old female that has been struggling with this awful disease for at least 20yrs. I do take the steriod drops(vexol) for years off and on when I need to. My flare ups are worsens due to allergy season or when my immune sysyem is down.I also find that when I am stressed...
    karijonkman karijonkman
    7 Responses Sep 27, 2010

    Tpsk Nightmare

    I have been dealing with Thygesons for 11 years it is so painful and my vision is going now from all the steroid use! I wish there was a cure but there isn't I have tried everything and don't know what else I can do but try to deal with the feeling of rocks under my eyelids!
    Annajeanb1 Annajeanb1
    26-30, F
    1 Response Oct 17, 2012

    Living With Thygeson's Keratitus

    It has been very useful reading the posts on Thygeson's so I thought I'd share my experience of living with the condition in the hope that I might be able to help other people who are suffering with it aswell. I have had Thygeson's for about 4 years now. For the first 2 years I...
    Muso5552 Muso5552
    31-35, F
    Apr 21, 2012

    The Years...

    I am a 23 year old female who has struggled with TSPK for many years, ( I think since 12, but not properly diagnosed until  age...16 , 17 ish?)  They have always had me on steriods. My eyes clear up USUALLY right away (within a day or so) but if I taper off the...
    LovinChrist LovinChrist
    22-25, F
    23 Responses Mar 17, 2010

    Can It Be Allergies?

    I have TSPK.  I am 39 and have been suffering now for 7 years.  In the beginning the pain was unbearable.  My opthamologist had me on steroids.  I would gradually wean off of them and the symptoms would come back.  For two years I went through this and then saw a cornea...
    JennOgo JennOgo
    36-40, F
    3 Responses Aug 2, 2011


    Literally thought I was the only one. I've had it since I was five and I'm now 24 with a daughter of my own. All my childhood pictures show me straining to open my eyes and turning away from the light. It's tough going through flare-ups. Especially when you have things to do and...
    naomiherrera naomiherrera
    26-30, F
    2 Responses May 23, 2013

    Not Me But My Kids

    i have 4 kids and two so far have Thygesons..one is 12 now and was born with it.. my mom said to me one day " he never opens his eyes unless its late in the day and the lights are low". we gave him tylonal and it helped with the pain..he had his head in pillows for years even if...
    snotlickpoet snotlickpoet
    1 Response Oct 2, 2010

    Newly Diagnosed Tspk

    Hello Everyone, I am a 26 year old female recently diagnosed with TSPK (just last Tuesday). I was sick with a cold about a month ago and thought that the congestion was contributing to my eye blurriness and discomfort so I didn't think much of it. I also noticed that my left eye...
    kennedy49 kennedy49
    1 Response Nov 14, 2010

    I Have Thygesons Keratitis

    Hello! I'm Parker and I have had thygesons since the age of 7. I'm 14 now and it has been a stressful ride these pass years. The doctors have put me on steroids and that's the only thing that seems to help but I can't stay on them forever or I could go blind. When I have the...
    Parkerhemphill Parkerhemphill
    18-21, F
    2 Responses May 16, 2013

    Tspk Warning Please Read

    Hi all, I have suffered from talk for over a year now my case is extreme not a day has gone by where l haven't had a flare up. Recently l have been waking up in the middle of the night in excruciating pain it's taking over my life. On Friday l went to the eye doctor as my...
    Tspklondon Tspklondon
    26-30, F
    1 Response Aug 26, 2013

    How it's going? I have been suffering

    Queratitis TSPK for 15 years. It's really annoying and I'm pretty upset. The only treatment that really works is corticoides FML but it increases the eye pressure. Recently I've read about contact lenses bandage and in my last visit to the doctor I suggested him to experiment...
    davor79 davor79
    36-40, M
    Jul 23, 2015

    Red Eyes

    Hi, i think ive had this eye disease since i was around 13yrs old i am now 24 and was diagnosed properly just a few months ago. Ive had bouts of itchy, scratchy, red inflamed and extremely light sensitive eyes for years. I thought that perhaps becuase my eyes are a...
    Tygrrrsons Tygrrrsons
    22-25, F
    3 Responses Nov 16, 2010

    I have tspk for almost 3 years now

    and been telling to use fml steroid 4 times a day with cyclosporine , everytime when we try to stop steroid. I got flare up and the bad pain, feel like something in my eyes and hurt so badly which i have wet eyes all the time. Its really annoying and make me so unhappy. recently...
    naassa naassa
    26-30, F
    1 Response Mar 28, 2015

    I have a 6 year old son

    who has TSP! I hate it. It affects his daily living. It makes going to school difficult. We have tried everything from eye drops to steroids. Please help. Let me know what you have found that works. Living with this is frustrating.
    danielsamy28 danielsamy28
    41-45, F
    Dec 16, 2015

    I Have Thygeson'S.

    Hello! I'm Alix. I'm 23 and the last 4 weeks are the first time I have EVER had trouble with my eyes. I just found out yesterday what had been causing me weeks of excruciating eye pain. I had never heard of Thygeson's until the opthamologist said he thought it probably was...
    ralixy ralixy
    26-30, F
    May 4, 2013

    Post-viral Tspk

    Hello everyone! I've been reading postings concerning TSPK for several months and finally decided to post my own. In September 2012 I had a conjunctivites in my right eye, was treated with Tobradex(anti-bacterial&steroids). Conjunctivitis has gone, but I was diagnosed with TSPK...
    kenvelu kenvelu
    Apr 18, 2013

    36 Year Old Recently Diagnosed

    I was diagnosed with conjunctivitis at first, too the antibiotic and no relief. Then I went to see an ophthalmologist and was diagnosed. He gave me anti inflammatory drops and cleaned my eye. I originally thought I had something stuck inside. I am seeing and feeling a lot better...
    Nikkimarq Nikkimarq
    41-45, F
    3 Responses Jun 2, 2013

    I Wish This Would Go Away

    i was diagnosed with tspk when i was in the 3rd grade i think but i have had since i can remember im 22 now and its the worst feeling to know how bad it hurts and nobody else know your pain and you think that they dont believe how much pain your in. some days its the worst and...
    raelynn raelynn
    2 Responses May 12, 2011

    I was diagnosed with thygeson's SPK

    when I was 11. I''m 36 now and was accustomed to daily painful blinding flare-ups when using steroid drops. My eye glands do not produce lubricant for my tears anymore, one of the long term effects of drops that makes my condition worse now. 2x daily oral dosing of 3 mg...
    captainbrendo captainbrendo
    36-40, M
    Jul 13, 2014

    Hi everybody :-), At the beginning I was told

    I have TSPK. That was two years ago. There were symptoms as the same as for TSPK. A cornea specialist in Lucern CH told me today, two years later now that I don't have TSPK. He put band-ade lenses into my eyes to separate my lids from my cornea. It helped! I can live again and...
    Sonnenanbeterin Sonnenanbeterin
    26-30, F
    1 Response May 20, 2015

    I Have Thygesons For 20+ Years

    I have had Thygesons since high school, and though at times it has been a struggle, it becomes something that you learn to live with. I currently have a flare up, which used to be a big deal, but I have learned how to feel the symptoms coming on, and start treatment with the...
    rebeccaannewelsch rebeccaannewelsch
    1 Response Aug 3, 2010

    TSPK Since March 2013

    Hey everyone, Here is my story.... In March 2013 I noticed quite a painful burning sensation in my left eye. I went to the optometrist thinking my eyes were dry as they have been before. She diagnosed me right away with what she was pretty sure was TSPK. I went on steroid...
    Findacuretspk Findacuretspk
    26-30, F
    Nov 13, 2013

    Am In the Midst of An Outbreak of Tspk

     I have TSPK. It is an irritation. It used to be disabling - made me so sensitive to light that I could not leave the house. I could not get a doctor to give me repeat prescription of the steroid eye drops that made it manageable, so just had to grin and bear it...
    mrfresh mrfresh
    31-35, M
    34 Responses Sep 2, 2009

    Thygeson's And Other Issues...

    Hello alli was recently diagnosed with thygesons..over the last 2 yrs i have struggled with my eyes waking up every morning with sticky burning sensation, have been to the optomotrest many times only to be told i have 'dry eyes' and was prescribed eye drops over and over again..i...
    Sonialago Sonialago
    2 Responses Aug 29, 2011

    Another Thygesens - Sufferer!

    Hi everyone. I battled with outbreaks of horrendous eye discomfort, photofobia, tearing etc etc for a number of years on and off from the age of 18. I got told I had various viral infections but no-one seemed to really know what was wrong. I got prescribed various eye drops and...
    shiggsy shiggsy
    2 Responses Oct 23, 2012

    about 3 years ago i was diagnosed with tspk.

    .. i went to the eye doctor thinking i had pink eye really bad, but knew it was something else. my eyes were completely bloodshot (i constantly got asked if i was high) , i was getting headaches like no other and i was super sensitive to light. they gave me the steroid eye drop...
    Nebraskagirl21 Nebraskagirl21
    26-30, F
    Jan 8, 2015

    I was diagnosed with thygeson's 20 years ago.

    I'll be 27 this year. I knew it was rare and of course it keeps flaring up. I'm really feeling down about it today. It's the first time I've had a flare up since my daughter was born and to not be able to care for her when this happens sucks. My boyfriend has had to do almost...
    Beccafelds Beccafelds
    26-30, F
    2 Responses Mar 10, 2014

    The Familiar Thygeson's Keratitis!!

    Hi my name is Rebecca, When i was 4 i was diagnosed with a corneal disease.( thygeson's keratitis) i am now 16. It has been the worst thing i have ever dealt with. I've tried several different steroids and anti-viral medicines and nothing has helped. After many many years of...
    CrazyRasins CrazyRasins
    18-21, F
    2 Responses Nov 15, 2012

    Guys, there are many options!

    ! The other solution would be a "Autologous blood serum therapy". That would be instead of laser surgery... Please don't give up and try everything out!
    Sonnenanbeterin Sonnenanbeterin
    26-30, F
    Aug 15, 2015

    I have thygesons keratitis.

    I am a 25 year old female. I had my first flare up a year ago whilst studying at Uni. I had never had it before however I have always been really sensitive to light. I originally thought it was hay fever as it was around summer time. I had to travel on the tube with sunglasses...
    GeeGee1203 GeeGee1203
    26-30, F
    3 Responses May 5, 2014

    I have been diagnosed with TSPK recently

    but have been suffering for a long time, on reading other peoples experiences with it my eyes seem to be really bad, Its terrible, I cant leave the house on bright days even with sunglasses, I have to have the curtains pulled in the house during the day, my vision is extremely...
    ThygesonsSufferer ThygesonsSufferer
    26-30, M
    2 Responses Apr 25, 2014

    I have had this for 17 years

    now no cure !!! Ive done steirod drops ointments .pictures . i still have red burning light sensitive eyes its takes me out for like 5days at a time I have to hibernate in the dark ... .I've gotten fired from jobs ..I go to the doctor and they treat me like a ginny pic and...
    Siy35 Siy35
    Jan 6, 2016

    Just recently I was told by a cornea specialist

    that he thinks I have tspk. Go back to see him next week. After painful hours of reading about this "disease" especially here on this group. I know in my gut that I have tspk. This past month and half of my first flare up has been awful!!! :-( I have some better days than...
    smilebrite smilebrite
    46-50, F
    Sep 24, 2014

    I've been dealing with this

    for about six years now.. Has actually gotten me into the field of optometry, and has shown me my passion for eyes. God is good!
    CaseyLanier CaseyLanier
    18-21, F
    1 Response Jul 18, 2014


    I first realized I had TSPK when I was on vacation at the beach. I had been asleep on the beach, and when I woke up I thought sand was in my eye. When I wasn't able to wash the sand out I thought it had somehow gotten lodged under my cornea because I could see something on my...
    SiennaMorel SiennaMorel
    26-30, F
    4 Responses May 3, 2010


    I have been dealing with thygeson's spk for about a year now. I am so pissed because I have to wear glasses because of the thygesons, and I would love to know what causes it. However, it seems all the doctors have no interest in finding a cure, or anything. I wish I could...
    jamesbyrondean jamesbyrondean
    4 Responses Jul 28, 2010

    2 years ago my now 16 year ago daughter came

    home from summer camp with what looked like a nasty case of pink eye. Took her to her general doctor and got the antibiotic drops. I think they improved but then she went on a mission trip to NY where it was very hot and humid and had another flare up and was told by an eye...
    Sharmal72 Sharmal72
    41-45, F
    Dec 12, 2015

    Hi people Finally, I found the solution

    for my problem! Try out "lipiflow thermal pulsation"! That was the therapy that has opened my eye lid glands. Unfortunately, it's expensive USD 1'500.- but the way I can live again! My eyes aren't dry anymore so they don't inflame anymore. It's worth trying it. I hope, you'll...
    Sonnenanbeterin Sonnenanbeterin
    26-30, F
    Aug 15, 2015

    My Tspk Journey

    Hi everyone, I have some good news that I hope might help, but first a little background information. I know that this condition can have some characteristics that are different for each individual and that some of you have found success with certain treatments and others find...
    shamu1 shamu1
    31-35, M
    3 Responses Aug 13, 2012

    Nobody Knows!!

    I first noticed that when i woke up in the mornings I could barely open my eyes, they hurt too much and it was meaning I'd be late for college and put off to a bad start every day. I went to the opticians and i was told to stop using everything incase it was an allergy but...
    tangerinedreammachine tangerinedreammachine
    22-25, F
    7 Responses Dec 10, 2009

    Fed Up!!

    Hi everyone, Its the first time I have posted on here or joined any type of support group relating to my TK, although I now feel it may be at least somewhat helpful listening to other stories and sharing my own experience. I am 23 next week and have suffered with this...
    AAM1990 AAM1990
    26-30, F
    3 Responses Aug 30, 2013

    Laser eye surgery in under a month l have no

    option but to try this l have a severe case of this disease and have to be taken off all of my steroids due to health risk/problems occurring. Please tell me if you have tried laser? l am terrified as l know this has gone wrong in the past and people have gone blind.... If...
    Tspklondon Tspklondon
    26-30, F
    1 Response Sep 6, 2014

    First Fibro, Now Tspk

    Hello TSPK people...I am now one of you...I was diagnosed just 3 days ago.. I finally found an Ophthalmologist  who knows her stuff.. I had been going to one for years that had an assembly line type clinic and He never spent more than 5 minutes with you and was always...
    hinkywil429 hinkywil429
    5 Responses Nov 14, 2010

    This is the 1st time I have been on here!

    I had a problem with my eyes back in July 2009. Was diagnosed with Iritis. But then when it flared up a few weeks later the Dr said it was Thygeson's. Since July 2009 I had a flare up every 8 - 10 wks without fail. That was until Jan 2013 when I was diagnosed with Ankylosing...
    sallymidwife sallymidwife
    41-45, F
    1 Response Jan 24, 2014

    I Have Thygeson's :(

    I was diagnosed with Thygeson's Superficial Keratitis last month.  I was having wicked blurry vision and just thought I needed glasses as I am now 42 and just thought my eyes were changing.  Imagine my shock when he diagnosed me!!  He put me on Steroid drops and they worked...
    dkcarr90 dkcarr90
    41-45, F
    3 Responses Nov 10, 2011

    So Here's What I've Discovered Recently Thought I'd Share Just In Case It Might Help You!

    naomiherrera naomiherrera
    26-30, F
    1 Response Sep 26, 2013

    I Have Tspk .. Oh Well...

    I'm Zak from NSW , Australia , and have never had any eye troubles in my life until now . A week ago I've got a red eye ,went to GP and he said it was eye infection and prescribe antibiotics drops , a week later my eye didn't get any better but worse ,friend told me go to...
    zak29 zak29
    36-40, M
    May 30, 2013
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