I Have Tietze Syndrome

A Tietze Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tietze Syndrome. You're not alone. 39 People

    Unknown Struggle

    For more than six months I have been experiencing rib pain. Over time it has increased in intensity. I wake up hurting, hurt all day, then try to get sleep to no avail. I cannot bear even wearing a bra for an hour without wanting to rip it off. I have been ill for 8yrs and have...
    robotgirl1111 robotgirl1111
    31-35, F
    1 Response Oct 2, 2012

    I Found Relief!

    I can totally sympathize with every person on here. About a year ago, I started having extreme chest pains. After having a full cardio workup and having nothing turn up, dr. diagnosed me with Tietze's Syndrome and put me on steroids. They didn't work, but the pain was tolerable...
    marciatalt marciatalt
    1 Response Oct 16, 2012

    Need Help.

    It began when I was twelve or thirteen. I had always had pain in my sternum, but as an abused child, never really thought twice about it. Then one christmas my brother hugged me and I couldn't walk for two days. My mother called me dramatic and they ignored it. As the years went...
    DimitriaCollins DimitriaCollins
    22-25, F
    Aug 30, 2012


    It started about two months ago I thought I was having and Heart attack but it wasn't and they sent me home. Last week it started again but this time it was worst then before, they ran every test you can think of until one doctor came in my room and told me that I have Tietze...
    roxyb45 roxyb45
    Sep 24, 2010

    Costo Here

    I am a 61 yo male and have had 5 stents and damage to my rib cage during the mid 80's which is I believe the cause of my condition today. I live with pain and since this past Dec., trying to eliminate this ongoing pain. There is no doubt what I live with but would like to...
    meewet1 meewet1
    56-60, M
    Mar 5, 2011

    Just Diagnosed

    Hi Everyone! I am a 29 year old girl & have just been diagnosed with Tietze's Syndrome. About a month ago, I was walking up my back stairs carrying my laundry basket. I had surgery on my right leg in March & have had a mild case of Foot Drop ever since. Anyhow, I ended up...
    Charleyjb Charleyjb
    26-30, F
    2 Responses Jun 18, 2012

    Had Some Awesome News!

    Hey there, just found out Tietze Syndrome is not a reuma thing but just inflammation and that it can actually dissapear after a period of time (unknown how long though) I still have it but before today I thought it was permanent, damn I'm so happy!
    Junkard Junkard
    22-25, M
    5 Responses Dec 3, 2012

    I Have Tietzes

    I have had Tietzes for 18 months now. I woke up one morning and I couldn't move. I have no other health conditions. My blood work is great, nothing outside of normal. I use to be very active and I had very healthy eating habits. I work in a hospital. Initially I saw my family...
    LennyTurner LennyTurner
    1 Response Dec 30, 2012

    Confused Not Sure Of Diagnosis

    4weeks on Sunday I was looking out of the window into the garden when WHAM it felt like a wrecking ball had hit me in the chest. To cut a long story short I spent the Tues-Weds of that week in and of hospital having tests. They ruled out heart conditions, clots, infection, breaks...
    Alchemist79 Alchemist79
    1 Response May 16, 2013

    I was wondering if there was anyone out there

    that could help me out. I have been going to the doctor for more than a year trying to get a diagnosis. Many doctors, many tests! When I mention that tietze is the only thing that seems to fall in with everything that is happening to me, they do nothing. Is there anyone out...
    LoveMinPins LoveMinPins
    51-55, F
    2 Responses Jul 4, 2015

    Costochondritis Vs Tietze Syndrome

    I made a trip to the ER back in 2002 for chest pain and was given a diagnosis of costochondritis. While I agreed with Dx I haven't read anything to support why it rears its ugly head every now and again..its been 8 yrs..all the literature I have read states that it...
    nurseratchet1975 nurseratchet1975
    31-35, F
    1 Response Jun 19, 2010

    10 Year Battle

    I am 25 years old and have suffered with Tietze Syndrome for about 10 years. It started around 2001, when I ended up with a spontaneous pneumothorax (a collapsed lung). I had a chest tube for four days. Not long after that I started suffering chest wall pain. Over the years I...
    aspenice aspenice
    22-25, F
    2 Responses Oct 17, 2011

    Tietzes Syndrome Cure

    Have suffered for years like most of you on this forum i wont bore you with the details e.r, codiene, steriod shots etc... What i have found what works for me is calcium orotate, yes it is expensive and you have to take every day but it has given me my life back and compared to...
    amethyzt amethyzt
    2 Responses Dec 15, 2010

    My 9yr Old Has Tietze Syndrome

    Hello today i took my 9yr old to the docs and he was diagnosed with tietze syndrome and prescribed orbis for kids, i would just like to know (been worried as i am alot) is there anything else i can do to relieave the pain when it comes, it breaks my heart to see him double over...
    beckycollier1 beckycollier1
    31-35, F
    Mar 5, 2012


    It's been a tough year for me, right now I am having teitze pain as type this in my iPhone. My left side and arm are always affected sometimes my right side too. I lost my first baby then a few days after the d and c I started lifting moving large furnitures, that might I'm...
    DJINN905 DJINN905
    26-30, F
    Jan 29, 2013

    I am not sure if I am diagnosed

    or not. My dr said I have tietze but he never did any real test on me. But the problems I am having are the same as with tietze, so that's who he 'diagnosed' me. Even though I am not fully sure I have tietze, I am happy that I have an answer for my problems. How and did any of...
    zerudahima zerudahima
    26-30, F
    2 Responses Sep 4, 2014

    Dealing With Tietze

    Same as everyone else. You people are the first ones that I have ever talked to, that knew what I was going through. I am now 30 years old. I have dealt with Tietze for a few years now, but never knew what it was. It has come and gone but lately it has been sticking around more...
    Kayaklife Kayaklife
    31-35, M
    3 Responses Mar 4, 2012

    Tietze Pain

    I have tietze syndrome and have just sufferred almost a month of terrible pain. I am keen to talk to others who understand this as I do not know anyone with the condition. I have only realised in the last week what is wrong with me, having had several bouts in the past...
    skoosh skoosh
    5 Responses Dec 9, 2008

    Tietze Sundrome

    i have suffered from tietze's for almost a year now. without going into detail, it can be very lonely and very hard for other people around you to understand. it puts a hold on so many things. i have started my own blog about my condition and the ways in which i deal with it...
    charpixielotte charpixielotte
    1 Response Jan 12, 2011
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