I Have Transverse Myelitis

Personal Stories, Advice, and Support 42 People

    The Slow Marching Of An Invisible, Inevitable Force

    I am 16. I was my school's star shooter on our soccer team. I was treasurer of my school's student council. I volunteered at my local library, organizing the shelves and reading lists for younger kids -- I loved to read and wanted to share that passion with others. I was polite...
    Cacoethes97 Cacoethes97
    4 Responses Jul 24, 2013

    A sinus infection...really?

    !? All of this from a dang sinus infection, that I was on antibiotics for. It started with a burning in my thighs and mid back, burning so bad I thought I might have shingles, but there was no rash. Then the tingly-numbness feeling started in my feet and worked its way up over...
    rachelgunn14 rachelgunn14
    26-30, F
    Jun 13, 2015

    New Way Of Life

    My name is Annalee. October 4, 2011 at the age of 52 my life forever changed. I was an LPN working fulltime in a nursing home. Walked out the door that morning to go to work and by that night was unable to feel anything or move from the waist down. Started with severe lower...
    thumper5946 thumper5946
    3 Responses Jan 2, 2013

    I Was 9 Years Old .

    It was about 3 years ago , and i thought i was just sick , I was over a friends house . and All of a sudden from my chest down i was numb couldnt walk at all!
    albswagg albswagg
    Aug 5, 2012

    Marissa's Story

    My name is Marissa, I live in Rhode Island. I was diagnosed with TM in April of 2012 I could not urinate or walk my whole body was numb and in pain a chunk of my spine was affected I recently went to Maryland for Johns Hopkins and I was told that the myelin is repairing itself...
    marissamelaniexo marissamelaniexo
    16-17, F
    4 Responses Sep 18, 2012

    Walking To Wheeling In 6 Hours...

    it was late june of 2010 and i had woken up with severe back pain. i have a 1.5 year old son and figured that i must have pulled a muscle while playing with him. i had no idea that it was far more serious then this. for months prior to the onset of this back pain, i had been...
    alxmiller alxmiller
    1 Response Jul 14, 2010

    In Three Days I Went From Walking To Rolling.

    I was normal at one time. I grew up an active kid, I was what my grandmother called "graceful" or accident prone as i see it. I was an ill child, I was in the hospital a lot not just from broken bones but I had many emergency room visits where the doctors sent us home because...
    inmyownprison inmyownprison
    26-30, F
    Feb 6, 2010

    15 Mins Is All It Took

    It was March 31st Everything's completely fine, but then I got a cramp in my hand, then both hands, not just cramps, cramps so intense that my fingers curled in! Then my left hand went numb, a stroke I thought, so I made my boyfriend take me to the hospital, which is only 7-8 min...
    gimpygirl2012 gimpygirl2012
    41-45, F
    2 Responses Jan 11, 2013

    My World Turned Upside Down.

    I had been dragging my toes and my feet felt numb, I thought I may have had a bit of cyatica, which I had had on and off since I had my children. Then one night I had a fall just out of the blue and I thought it was my knee as I had trouble with my knees since I was a  teenager...
    crossy44 crossy44
    Mar 24, 2012

    Looking to find people to connect with

    that has Transverse Mylitis.
    JrParks JrParks
    31-35, M
    2 Responses Apr 13, 2014

    Sex: Male Age: 50 Height: 6' 2" Weight: 220

    lbs Date of incident: 8/17/2012 No health issues and never been overnight in a hospital before this event. It is a scary feeling to suddenly become unable to walk. Those of us that have normal body function often take our physical abilities for granted. The symptoms started...
    ransonhand ransonhand
    51-55, M
    2 Responses Dec 17, 2013
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