A Treacher Collins Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Treacher Collins Syndrome. You're not alone.
I am 37 & i have TCS.Once i hit my teen years I had complete facial reconstruction surgeries (Jaw & Cheekbones). I have the BAHA hearing along with prostethic ears.
I also have a 12 yr daughter who was not affected by TCS.
The thing that truly surprises Alot of people about me...