I Have Treacher Collins Syndrome

A Treacher Collins Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Treacher Collins Syndrome. You're not alone. 3 People

    My Brief Bio

    I am 37 & i have TCS.Once i hit my teen years I had complete facial reconstruction surgeries (Jaw & Cheekbones). I have the BAHA hearing along with prostethic ears. I also have a 12 yr daughter who was not affected by TCS. The thing that truly surprises Alot of people about me...
    amcglasson amcglasson
    36-40, F
    3 Responses Jul 28, 2012

    To be exact, this is the story.

    Doctors say I have symptoms of many but the closest one they could come up with is this because of me being born with no outer ears. Big neck. I have heavy breathing and s slant eye.
    deleted deleted
    26-30
    1 Response Oct 3, 2014
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