I Have Trichoepithelioma Multiple Familial

A Trichoepithelioma Multiple Familial anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Trichoepithelioma Multiple Familial. You're not alone. 14 People

    Wanting To Hide

    I have trichoepithelioma and have known now for 2-4 years. I joined the military when I was 21 in 2009. I've always thought I had acne because at first they seemed to disappear and come back. They started to grow from under my nose and have recently progressed to bumps all over...
    Showbo Showbo
    26-30, M
    1 Response Sep 19, 2013

    Hi I've had TE since I was five year old,

    my mum used to call them milk spots, which I thought was cool at the time as I loved milk and it took away any stigma I might have developed at an early age. I hit puberty and they increased around the bridge of the nose and eye brow and start appearing along the nostrils too...
    thinkeruk thinkeruk
    36-40, F
    May 15, 2014

    I started getting these bumps on my nose

    when I was 5 years old and kids would tease me and call me ugly. they said the blind people could read my face and that I had herpes. it hurt so much that I tried killing myself in my younger teen years twice I almost did but The Lord didn't want it that way I guess. I went...
    13michellea 13michellea
    Mar 30, 2015

    Do You See My Beauty? Or Just My Face?

    I have Trichoepithelioma. They started growing at a young age. I thought it was some kind of acne. I started seeing doctors to determine if it was the same thing my mother had. It was and I was horrified. I started looking at pictures online, and totally freaked myself out. I...
    HiddenFeline HiddenFeline
    36-40, F
    3 Responses Sep 11, 2013

    Desire Smooth, Clear, No Flaws Skin.

    I have trichoepithelioma, i was told it can be treated with dermabrasion or laser, but it comes right back. It is an awful and painful experience, with those of usĀ  who has this dreadful disease.People stare,laugh, and frown at me when I go in public. I am call ugly, a thing...
    Gaines54 Gaines54
    7 Responses May 17, 2012

    Brook Spiegler Syndrome

    I have multiple familial trichoepitherlioma as a symptom of Brooke spiegler syndrome. Both my father and older brother suffer from varying degrees of the disease, unfortunately for me it seems to express to a greater degree in women. After being told I had active acne for 15 or...
    Mea31 Mea31
    31-35, F
    4 Responses Oct 23, 2013
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