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I Have Trichorhinophalangeal Syndrome Type 1

A Trichorhinophalangeal Syndrome Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Trichorhinophalangeal Syndrome Type 1. You're not alone. 4 People

    My Grandson Was Stolen...........

    In days gone by women married, had children and stayed at home and raised them while the men went off to work and made money to take care of the families needs.  It's only been in my generation that things changed.  My parents were dead set that I was not going to college...
    blutoo blutoo 51-55, F Mar 3, 2012

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    Hi I'm Chelsea. I was diagnosed with Duane Syndrome (Type 1) at a very early age as the first few weeks I was born were scary for my mom because she's told me about my left eye...
    lovelymoon11 lovelymoon11 18-21, F Apr 18

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    I'm only 24 and I'm having severe back pain. Has anyone with Larsen Syndrome had back pain that was diagnosed and treated? What can I do? From what I can tell my problem might...
    Coiraingeal Coiraingeal 22-25, F Apr 16

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    i wasnt going to write a story about this.... but i will just to share y story with people and hopefully i can maybe try to help people who have it too...
    Slothislife Slothislife 18-21, M 12 Responses Apr 21

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    I am in love with the man who sexually abused me for 3 years. it started when I was 13. I got extremely close to him. I looked up to him and I could tell him anything. He was my...
    jessical95 jessical95 18-21, F a week ago

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    I invite everyone that has Poland Syndrome to visit my group on Facebook it is a closed group, I look forward to seeing you all there.
    Gene47 Gene47 46-50, M 1 Response 4 days ago

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    Hi! I'm 17 years old, and I was diagnosed with Turner's syndrome when I was a baby. At school, a lot of people don't understand me, and so I don't have a lot of friends and often...
    musiclover48 musiclover48 16-17, F 1 Response 4 days ago

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    I have Asperger's and I thought meeting other people with aspergers would help me cope but it hasn't . It's like I can't even relate with those people because we're too alike , if...
    JoshRobin JoshRobin 18-21, M 2 Responses Apr 5

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    I just read how a lot of ppl love the smell of wet cement, when it rains. It arouses my pica. When I smell it I gotta have that smell in my mouth...dirt, drywall, and chalk.
    yummytummy610 yummytummy610 41-45, F 1 Response Apr 5

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    I have asperges, I hate it people always Judge me because I'm so quiet :(
    wisey86 wisey86 22-25, M Apr 21

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    first of all I found all if this by chance and I almost started to cry. I was diagnosed with PS when I was born (thank you Cali hospitals) my right hand was small and webbed and I...
    Everrisingmoon Everrisingmoon 18-21, F 1 Response 4 days ago

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    I've been diagnosed since I was 17 so just over a year ago yay I have a tendency to make social blunders and meltdown at the smallest things I am also a somewhat rare female Aspie
    Robinwing Robinwing 13-15 1 Response 3 days ago

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    Does anyone else suffer with blood pooling in their abdomen as a result of their POTS? If so what do you do to help it?
    justhollyjayne justhollyjayne 16-17, F Apr 12

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    I crave soap! I remember biting a bar of Irish Spring Sport when I was about twelve, but I really started craving it when I was pregnant in 2006. I would put a bar in water to get...
    somommy617 somommy617 26-30 1 Response Apr 25

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    first of all I found this by chance and I almost started crying. I was diagnosed with PS when I was born. my right hand was small and webbed with the middle digits missing and my...
    Everrisingmoon Everrisingmoon 18-21, F 1 Response 4 days ago

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    I am a 33 yr old female with a PhD and have been constantly lightheaded for months. My symptoms last all day/every day and include feeling faint, tremors/skakiness, shortness of...
    healthproject healthproject 31-35, F 6 days ago

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    Just when I think I have experienced every type of love imaginable the Universe throws me a curve ball. My first love of course was for my Parents and extended family, some more...
    bowchickawowow bowchickawowow 41-45, F Apr 6

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    I have two. The first I had done in my early 20's and is three interconnected rings symbolizing a friendship with two very dear friends. The second was done in my 30's and is a...
    pinkstarburst pinkstarburst 41-45, F 2 Responses Apr 22

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
    FoxFan64 FoxFan64 13-15, M 1 Response 2 hrs ago

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    I'm 16 years old and I have severe eczema that constantly goes and comes. I know there's no cure for it but I need something that will at least make it calm down and not keep...
    idontknow86 idontknow86 16-17, F 8 hrs ago

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    I have a crush on this girl, her names lauren. I told my best friend and he told her A few days later. And he asked her out and she said yes. I didn't know she knew until a couple...
    sammy34567 sammy34567 31-35, M 7 hrs ago

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    I have a best friend, we first met at the tio Cruz concert. From then on we became friends and one thing led to another and we became close. We got into an accident and from then...
    zulff92 zulff92 22-25, M 10 hrs ago

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    Yes most of there are. This is why I have turned my back on religion.
    sroonaka616 sroonaka616 18-21 13 hrs ago

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    I was asleep one night last year and the Holy Spirit gave me a vision. I'd prayed that night for God to lead me on what to do next in terms of serving Him. The vision happened...
    filled777 filled777 36-40, M 2 Responses 7 hrs ago

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    I invite you all to come over to my Poland Syndrome Suppport (USA) Facebook page, this is a closed group and we are very open and willing to lend advise.
    Gene47 Gene47 46-50, M 4 days ago

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    I invite you all to come over to my Facebook group page, Poland Syndrome Support (USA).
    Gene47 Gene47 46-50, M 4 days ago

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    I'm currently in the process of analyzing some videos for my psychology class. The videos are the videos of dysfunctional families with young children that keep screaming for...
    RichardAndon RichardAndon 22-25, M 1 Response Apr 11

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    So, I went to see my doctor today and he suggested that I might have Asperger's syndrome. I don't really know much about it, so was hoping someone on here could enlighten me...
    Ambernonymous Ambernonymous 18-21, F 1 Response Apr 17

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    I have Alice In Wonderland Syndrome, I didn't know I had it until a few years ago. when I was a kid things would get big and sometimes everything just speeded up everything around...
    KValentine17 KValentine17 22-25, M 1 Response Apr 23

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    I've been diagnosed with SMA syndrome for a year. I started experiencing symptoms at 16. I was an incredibly stressed student. I was constantly studying and taking AP classes. When...
    jfletcher jfletcher 22-25, F Apr 26

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    I found this image about this anime "Parasite" or "Parasyte", I think it's called both ways, I just end watching the anime and I remember thinking about the parasites like Asperger...
    SusAssasins SusAssasins 16-17, F Apr 26

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    Personality Characteristics Type A • Presence of mind, serious, patient, calm & cool; • Coherent character, can be relied on & trusted, but stuborn; • Plan everything out...
    walkingwarrior walkingwarrior 26-30, F 2 Responses Apr 13

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    I have aspergers and I thought meeting other people who have it would help me cope but it hasn't . It's like I can't even relate to those people who have it because were too alike...
    JoshRobin JoshRobin 18-21, M 2 Responses Apr 5

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    I have been diagnosed with pots for almost 2 years now. I'm 13 and going into 8th grade next year. My school is getting super stressful, I went for half a day last week and today I...
    luluhamilton luluhamilton 13-15, F Apr 6

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    Yes, another malady. Actually I've had it since age 20 when I injured my elbow pitching. I loved to pitch and was asked to walk on to the UW Madison team back in 1975. I'll...
    steverick steverick 56-60, M Apr 7

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    Soooo....does anyone know the female equivalent of "small **** syndrome?" I'm asking for a friend who ran out of insults. lol
    HeyyMrsCarter HeyyMrsCarter 22-25, F 2 Responses Apr 11

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    I'm Jennifer. 28 years old, from CT, USA and I was born with total Athyrosis. .. no Thyroid at all. I've yet to meet anyone with this condition and frankly, growing up, it had...
    Genesis478 Genesis478 26-30, F 1 Response Apr 12

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    I am starting to branch out. To be honest, it doesn't have to be over night, but very gradual. I used to think remaining silent and unnoticed would be better for me, but then you...
    LeaderOfThePack LeaderOfThePack 13-15, M 2 Responses Apr 13

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    I have this but I have periods of denial which mess me up mentally because admitting to having such a disabling disease is so difficult. I go to college because my parents forced...
    fallenstar23 fallenstar23 22-25, F 1 Response Apr 16

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    I have a potential narcissist mother who I rent a property from. She convinced me to rent from her when I was working and I stupidly agreed. Things took a turn for the worse in my...
    deleted deleted 26-30 Apr 17

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    Ever since I have been diagnosed with Aspergers my parents have always said no i dont. However, they really dont know the half of it. I know i have it mild but i still have it and...
    internationalkoala internationalkoala 18-21, F 7 Responses Apr 17

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