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I Have Trichorhinophalangeal Syndrome Type 1

A Trichorhinophalangeal Syndrome Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Trichorhinophalangeal Syndrome Type 1. You're not alone. 4 People

    My Grandson Was Stolen...........

    In days gone by women married, had children and stayed at home and raised them while the men went off to work and made money to take care of the families needs.  It's only been in my generation that things changed.  My parents were dead set that I was not going to college...
    blutoo blutoo 51-55, F Mar 3, 2012

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    I have been tired like crazy! Can barely stand without passing out. Just another part of living with pots I guess.
    Tealltoennis Tealltoennis 16-17, F 1 hr ago

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    INFJ all the way. Looking to meet similar likeminded people who think like me and are the same as me, I mean, as I am. Or did I mean who have similar experiences? Wait, is this an...
    mrknows mrknows 31-35 3 hrs ago

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    So my situation is different than most. I had a healthy childhood, I did sports and watched what I ate. There is a strong history of type 2 diabetes in my family so I was always...
    Mekkaku Mekkaku 22-25, M 1 Response 4 hrs ago

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    Hate the empty nest. Use to have sons friends Ina bs out...so quite here. On a good note ...grocery bill has gone way down.
    sharipie sharipie 51-55, F 2 Responses 5 hrs ago

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    To anyway whose looking for some type of motivation or to brighten their day, I suggest a book by Alexandra Elle "Words of a Wanderer." I had a **** day today and I read a little...
    Shelbaayyy Shelbaayyy 18-21, F 5 hrs ago

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    INTP. A dyslexic, possibly on the autistic spectrum. Course, if you are familiar with Rationals at all, you know the debate that we are all autistic lol. But point being, my...
    ames8 ames8 31-35, F 7 hrs ago

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    31 years old just diagnose with pots. I wouldn't care if I had gotten it a the age of 20-30 because that age your are just figuring things out. Im at the age where I should be...
    jazmintl jazmintl 31-35, F 1 Response 10 hrs ago

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    ab blood type. Supposedly personality wise, we have split personalities. Any other rarities out there?
    theprettysideofugly theprettysideofugly 18-21, F 3 Responses 11 hrs ago

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    Hi everyone, I am an A Level anthropology student, and over the summer I have to conduct an investigation for part of the course. My chosen topic is synesthesia, because I have it...
    emiliadsc emiliadsc 16-17, F 14 hrs ago

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    Im 25 years old and 100% have this, not that I have been formally diagnosed. I only found out about pica about two years ago but it explains everything. I seem to have cross over...
    terriberri15 terriberri15 22-25, F 19 hrs ago

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    Im 25 years old and 100% have this, not that I have been formally diagnosed. I only found out about pica about two years ago but it explains everything. I seem to have cross over...
    terriberri15 terriberri15 22-25, F 19 hrs ago

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    Quiet and mystical, yet very inspiring and tireless idealist.(“The Advocate”) The INFJ personality type is very rare, making up less than one percent of the population, but...
    MarieLucie MarieLucie 22-25, F 2 Responses 2 days ago

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    Hi I am Cindy I have schizoeffective bipolar type and I'm suffering a lot I feel high to low and see a boy I am very in love with I was at a mental hospital recently and it was...
    amicrazyornot amicrazyornot 13-15, F 1 Response 4 days ago

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    ENTJ ENTJ From Wikipedia, the free encyclopedia This article is about the Myers-Briggs personality type. For the Socionics ENTJ, see Logical Intuitive Extrovert. ENTJ...
    StarAngels StarAngels 46-50, F 6 Responses 4 days ago

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    Im 16 and I struggle with Poland syndrome just as much as everyone else. I was fortunate in my case as I am only missing my right peck and an arm muscle. Other than that, I have no...
    FreeWilly04 FreeWilly04 16-17, M 1 Response 4 days ago

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    Does anyone else have obsessions? I get obsessed with men, like my trainer. It can make life hard.
    janie94 janie94 18-21, F 5 days ago

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    I was diagnosed with Raynards in 1987 and then with CREST Syndrome in 1989. It was a scary time for me as my doctor called my whole family in and told them I has 3 to 4 years to...
    1990ppaul 1990ppaul 51-55 6 days ago

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    I found out in January, everything makes sense now. If only I could cope in a healthier way. I need more from my boyfriend, friends. I have no family. I'm all alone in a sea of...
    europaproxima europaproxima 22-25, F 1 Response 6 days ago

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    I know my blood type and when I think about it, it kind of says something about me personally. I am 0+, the universal donor. The "0" blood types are able to give to any other type...
    nekedguy nekedguy 46-50, M 2 Responses 6 days ago

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    I know a person can die from a broken heart (Broken Heart Syndrome ) and I wonder if a person can die from an empty heart?
    5catjenny 5catjenny 61-65, F 2 Responses a week ago

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    I think a good male friend of mine may have Klinefelter syndrome. He fits many of the symptoms mentioned online including he is tall, a bit socially awkward, very wide hips and...
    pennyjd pennyjd 36-40, F a week ago

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    FIRST I want to ask if any of you have had or thought about having surgery done to fix the webbed-neck and low hairline most of us are born with? I’m considering having it...
    CousinV CousinV 18-21, F Jun 21

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    Hi, I'm new to this. I've been eating toilet paper (obv clean) since I was around 10 years old. It started just odd sheet whilst in the bathroom, I didn't eat it consistently...
    Tiz1988 Tiz1988 26-30, F Jun 21

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    I was diagnosed almost 3 years ago. I tore my Achilles tendon in my left foot. I am now trying to start a benefit dinner. The theme is fire and ice. I was just wondering if anyone...
    CRPSsurviving CRPSsurviving 26-30, F Jun 20

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    Hi I love the dirt on mushrooms and root veg I love the smell of dirt and I can't help it I grind stones in my hands and shuffle my feet over them my hands get cut but it's so nice...
    Julieeilum11 Julieeilum11 51-55, F Jun 20

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    Hey everyone! Thank you so much for sharing your stories! I am doing a research project on the practice of pica during pregnancy, and would love to interview anyone who is...
    snowflakesintown snowflakesintown 18-21, F Jun 20

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    Asperger's Syndrome in high school was tough. I didn't have a lot of friends and I was alone a lot but still hung out with a few peers. I remember being in the vocal club and band...
    AspieGirl97 AspieGirl97 18-21, F 4 Responses Jun 18

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    hi, i am kiran and i have poland syndrome pretty fun say becoz recently i came to knw to that i'm suffering from it. All of my life till now i was wondering why is my right chest...
    kirankoundinya kirankoundinya 22-25, M Jun 17

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    Sometimes having Aspergers Syndrome sucks ****. I got diagnosed when I was a little girl. My dad said i was born with it. I guess I AM born learning disabled. Anyways, I didn't...
    ArtLover24 ArtLover24 22-25, F 1 Response Jun 16

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    I was diagnosed back in 2007 by my doctor.I have a hard time making friends and relationships last. They always leave me and i think i am not good enough.My anxiety is a daily...
    punkglampire punkglampire 22-25, F 4 Responses Jun 16

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    When I first got diagnosed with polycystic ovaries my first and instant reaction was to google the syndrome to find out as much as I could about disease I knew very little about...
    cocochanel92 cocochanel92 22-25, F 1 Response Jun 16

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    I probably have it too, based on the info I've studied. But I never got tested.
    GreenButtercup GreenButtercup 36-40, F Jun 16

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    I feel abnormal because I have Asperger's Syndrome which is high functioning autism. I dont have a whole LOT of friends because of it. I've been through depression, anxiety and so...
    AspieGirl97 AspieGirl97 18-21, F 9 Responses Jun 15

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    I probably have the most disgusting type of all: I eat boogers, and literally any bodily secretions except urine, feces, and menstrual blood. I used to be more omnivorous and ate...
    0902FRIENDs 0902FRIENDs 16-17, F Jun 15

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    Omg i have never heard that syndrome Vomiting is my phobia
    fauxlady fauxlady 22-25, F Jun 14

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    I will always wonder: Do people, "males", with klinefelter syndrome have male thoughts, female thoughts, or both? I can honestly say that I think differently to what I imagine most...
    KSPerson KSPerson 46-50, M 1 Response Jun 13

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    I wish everyone on this site wellness. I, too, have suffered from Piriformis Syndrome since October 2013. It took quite a few healthcare practitioners for me to get the proper...
    LennysMama LennysMama 31-35, F Jun 12

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    I have just been re-diagnosed with Temporal Arteritis for the third time now. I have had repeated episodes of Polymyalgia since 2000- and also have sjogrens syndrome. Two years ago...
    Cathquill Cathquill 56-60, F Jun 12

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    I was diagnosed at age 7. It was Type 1 ADHD so I have the inattentive type. I get bored easily. Insomnia is a *****. I can never get any sleep. I tend to daydream a lot. Having...
    deleted deleted 26-30 3 Responses Jun 11

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    Work with disabled children. Especially with Down Syndrome children they are the most sweetest kind-hearted children ever. I volunteered when I was in high school a couple of...
    deleted deleted 26-30 3 Responses Jun 11

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