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I Have Trichorhinophalangeal Syndrome Type 1

A Trichorhinophalangeal Syndrome Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Trichorhinophalangeal Syndrome Type 1. You're not alone. 4 People

    My Grandson Was Stolen...........

    In days gone by women married, had children and stayed at home and raised them while the men went off to work and made money to take care of the families needs.  It's only been in my generation that things changed.  My parents were dead set that I was not going to college...
    blutoo blutoo 51-55, F Mar 3, 2012

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    Related Experiences

    I'm beginning to think I have it. I've been craving nail polish lately. I love the smell of it. And now I want to taste it. I don't get why I suddenly got this craving, but it's...
    oathtoorder oathtoorder 18-21, F 3 hrs ago

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    Hello! I'm Kristina, I'm 18 years old. In February this year I was diagnosed Swyer syndrome. Although I'm trying to get used to require me to help people who know I'm going through...
    kika96 kika96 18-21, F 2 Responses Jul 8

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    4 months I had rotator cuff surgery with a full recovery expected. Needless to say after several phydical therapy tratments and pain meds I had little to no relief. Finally after...
    fancyface19 fancyface19 46-50, F Jul 22

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    I have been diagnosed with female Aspergers
    prettybum prettybum 18-21, F 1 Response Jul 7

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    I don't know if this Aspergers or not. I don't know if I'm over reacting or I what. I have a friend I used to live with. She had to go home and plans were made for me to go back...
    Sakaratte Sakaratte 26-30, M Jul 12

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    I've always had really bad craving for sponge. I never eat it because my friend went to the hospital for exactly the same reasons, but I can stop the urge to eat it by smelling the...
    meganbxiley meganbxiley 16-17, F 1 Response Jul 14

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    I was diagnosed when I was about 9, and it apparently makes it difficult for me to socialize. While it is true that I have an extreme difficulty, if not total inability, to make...
    Varof Varof 18-21, M 2 Responses Jul 20

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    Well I had my first unplanned trip to the hospital on Saturday. Basically the heart murmur I have had for awhile finally did something bad and I ended up being wheeled into an...
    MattsShadow MattsShadow 18-21, M Jul 21

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    This is a follow up for my story "what doesn't kill you makes you stronger" My name is grace. I am now 16 years old and I just got my correction surgery last week! I had a muscle...
    marinagrace marinagrace 13-15, F 1 Response Jul 22

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    It started with me getting these high pitch squeals. Like a surge up my spine and unless I concentrated hard, it would come out. Usually when I was most peaceful it would suddenly...
    Skywalker1979 Skywalker1979 31-35, M 1 Response Jul 22

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    I have had POTS as a definite diagnosis for two years now, however I have had it for many years. I am 18 now, an have recently graduated May 24, 2014. During my junior year of...
    TheForestChild TheForestChild 18-21, F 1 Response 3 days ago

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    Anybody who has POTS have photophobia (sensitivity to light)? Mine is really bad and worsening. I don't know if it's another symptom of POTS or should I get checked out
    december789 december789 16-17, F 2 Responses 2 days ago

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    Type II (that Ii in the title just bugs me) Yeah so I don't get crazy manic very often, just hypomanic from time to time, but when I do depression, oh I do it well. Deep deep...
    ThePeach ThePeach 26-30, F 1 Response Jul 14

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    Well, I've always had headache and back issues. We just kind of assumed it was genetic or something. Finally, about 4 months ago, my headaches became unbearable along with my back...
    jfernau jfernau 18-21, F Jul 20

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    okay, I've never told anyone about this and I'm only 15 for a few years I've had an excessive habit of eating graphite, rocks, baby power, sand and charcoal. I literally break...
    aarlert aarlert 13-15, F 1 Response Jul 7

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    LOL!! MUST READ!! Pica : is most common for 2-3 year olds but I'm 10 so I can't stop eating paper or my crazy loom bands! I've been biting my brothers arm sometimes I bit a little...
    bela5562 bela5562 13-15, F Jul 7

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    Www.potsisthepits.com I promise my blog will inspire And enlighten those with pots!
    cassidybute cassidybute 18-21, F Jul 11

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    Hello, My dad was recently diagnosed with melas. My family and I are struggling to support him and ourselves. Is there anyone out there (particularly in Australia) that wants to...
    hellokat33 hellokat33 18-21, F Jul 14

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    It's bad, real bad I think. It started two years ago when I walked home from school with my friend and we passed a construction sight with piles of dirt and rocks. There was this...
    BlackPaint0000 BlackPaint0000 16-17, F 1 Response Jul 16

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    Do males with AS find confrontation from their girlfriends extremely challenging? Do you stop talking to her for weeks even if you suspect you are wrong?
    pingpinky pingpinky 31-35, F 2 Responses 5 days ago

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    OPEN COPPER,HER NAME IS -NIGHT NIGHT- LARGE SHARON,FULL GARDEN,CARTER CO. KENTUCKY,CALL:JOHN 1-606-474-4770,PENNIES PICKED, PRAISE FOLDINGUNFOLDING,I NEED MY S'MORES MADE WELL,OR...
    JEM404 JEM404 41-45, M 1 Response 4 days ago

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    i too crave a lot for slate pencils . is thr any remedy to get rid of this?
    CuteCat21 CuteCat21 18-21, F 2 days ago

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    I have asbergers syndrome and I always feel like a outcast.I was bullied in middle school,because I had no friends.I had to get diagnosed 2 times,because teachers didn't believe...
    AuroraSunny AuroraSunny 16-17, F Jul 19

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    I have so many types of friends. I accept anyone. no matter who you are or what you do. i try to look past peoples pasts. whats in the past is not important anymore. At school i...
    cloakedgarden cloakedgarden 13-15, F Jul 5

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    I haven't been on here in some time. Been a bit busy I'd say with life and figuring out things even more so than I expected. I think it's good to witness and experience life to...
    flibsley flibsley 31-35, M 1 Response Jul 9

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    I have a rare type morphea profunda it has caused a 4 cm by 4 cm atrophy on my left hip. I was just diagnosed am a little frightned the doctors are running a lot of blood work to...
    saunders24 saunders24 22-25, F Jul 22

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    If you're older than like...20, please don't type like this. You know better, you know how to spell. It doesn't kill you to add 2 more letters to "u" or "y." Just because you're on...
    AjLeePunk AjLeePunk 22-25, F 46 mins ago

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    yes i do accept all body types...
    kinkprime kinkprime 22-25, M 20 hrs ago

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    I'm the type of person to get jealous when I see someone I like hang out with someone I hate.
    jacedrew jacedrew 16-17, M 8 hrs ago

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    I am 12 Years Old (nearly 13!) and I have had Grade 3/4 degenerative Spondylolisthesis since birth. I have been to many hospital and GP appointments, and only now have the doctors...
    SpondyNightmare SpondyNightmare 13-15 1 Response 15 hrs ago

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    I have EDS and chronic joint pain. I also have Tendonitis. I wonder if my Tendonitis has anything to do with my EDS.
    elenanicole elenanicole 16-17, F Jul 11

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    I am 17 years old and was diagnosed with Herpes Type 1 in the genital area. Prior to this, my boyfriend was diagnosed with folliculitis on his face from wrestling and we were told...
    mimile96 mimile96 16-17, F 1 Response 15 hrs ago

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    Well, he's much younger than me and moved to my place since he lives in the countryside and dropped school really early. He works, but for sure I pay all the bills and etc. We've...
    melmuara melmuara 31-35, F 1 Response 8 hrs ago

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    I was diagnosed with GAD 11 years ago, at 13 years old. I didn't even know what that meant. From a young age I've always taken responsibility for my younger brother and sister...
    Myeiaddiction Myeiaddiction 22-25, F 1 Response 6 hrs ago

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    My daughter is a little over one year old. ( I don't like talking in months)She has Down Syndrome. I don't treat her differently from my other kids. Her needs are a little...
    Kryzta Kryzta 26-30, F 1 Response Jul 8

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    My husband has Asperger's Syndrome. I am having a difficult time with our marriage. We have been married two years. He is a good provider and has good traits, such as being...
    Solfeggio Solfeggio 36-40, F 4 Responses Jul 11

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    Barth syndromeFewer than 200 living males are known worldwide with this disease. Symptoms vary largely between patients, from life threatening to non-existant. No patient has all...
    Uncertain153 Uncertain153 26-30, M 1 Response Jul 24

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    There's bad days, then there's days like this. Today was horrible. Rest in peace sweet angel your sleeping up in heaven as I type this. I hope God or whatever higher power is...
    Jess7787 Jess7787 26-30, F 23 hrs ago

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    I'm not the type of person who smokes everyday but I honestly smoked before it felt good :)
    AlexMafia15 AlexMafia15 13-15, M 22 hrs ago

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    Huawei is one of the few vendors who are able to provide wide coverage, multi-band, and end-to-end solutions. Especially in the 4G LTE, Huawei has became global leader in the...
    yeiltutank yeiltutank 22-25 3 hrs ago

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    My husband and I were in a motorcycle wreck in Feb. (2 days after our wedding in India). I'm interested in getting to know other people dealing with Compartment Syndrome, in hopes...
    JenniferLakhlani JenniferLakhlani 36-40, F Jul 13

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    Over a year ago I was diagnosed with Postural Orthostatic Tachycardia Syndrome. I've battled high school with this non curable disease, but I now I graduated and it is time for me...
    heyycutie16 heyycutie16 18-21, F 3 Responses Jul 13

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    I learned only a few years ago that I have Asperger's Syndrome and am clumsy as well as frequently speak very wierdly sometimes, and am socially awkward. I am also narrow minded in...
    Fenrirfenn Fenrirfenn 18-21, M 4 Responses Jul 3

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    In 2011 I gave birth healthy beautiful baby. She was perfect and I loved her from the first time I saw her beautiful curly mop on her head and that chubby little face. As a mother...
    SweetAlibis SweetAlibis 26-30, F Jul 8

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    I have Russell silver syndrome. It has given me health problems,I am way under the average weight for a normal 15yr old, I am 4'9 and will no longer grow.
    EvaJL EvaJL 13-15, F Jul 13

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    I've just found out today I have Carpal Tunnel Syndrome .. it's hard for me to participate in Color Guard ..and soon I feel like I would have to stop ..bc the pain is crucial
    lynn1497 lynn1497 16-17, F Jul 24