I Have Trichorhinophalangeal Syndrome Type 1

A Trichorhinophalangeal Syndrome Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Trichorhinophalangeal Syndrome Type 1. You're not alone. 4 People

    My Grandson Was Stolen...........

    In days gone by women married, had children and stayed at home and raised them while the men went off to work and made money to take care of the families needs.  It's only been in my generation that things changed.  My parents were dead set that I was not going to college...
    blutoo blutoo
    51-55, F
    Mar 3, 2012

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    I am brave and fearless I am adventurous I am protective I am am a very sad at times I don't trust easily I don't judge people I am nice unless you hurt someone I care...
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    boldtimer boldtimer
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    SoothingSoozie SoothingSoozie
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    Vette601 Vette601
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    BadMomKira BadMomKira
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    Never have i ever had a girlfriend, been kissed, went on a date, or hold hands with a female ever in my whole existence. I was always like the deep, strict, quiet and much slightly...
    Knickster24 Knickster24
    22-25, M
    4 Responses Apr 19
    I'm an educated female who is a Trap Queen on the inside! After having to act a certain way at my job and in front of my husband she's in hibernation. Although when all alone or...
    1kallaway 1kallaway
    41-45, F
    1 Response Apr 19
    i love my parents to death and im not a prone to depression type or struggling type or anything at all its just I NEED REASONS yes if my mom says no to something I can't hold my...
    123swimmergirl123 123swimmergirl123
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    On the 7th of may I will be 31 years old, and can still say that I am a virgin. I am a proud Christian, believing in Jesus wholeheartedly, and believe that it is important for a...
    jojoSaint jojoSaint
    26-30, M
    1 Response Apr 18
    I am 19 years old and I have a crush on a guy who is 16. Although three years doesn't seem horrible, I know I cannot tell anyone that I am attracted to a sophomore in high school...
    chasingsunsets chasingsunsets
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    Hey.. My name is Thomas and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very...
    tommymac70 tommymac70
    41-45, M
    Apr 17
    My symptoms of WPW started about the time that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I...
    adrienleigh adrienleigh
    13-15, F
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    Hi, I was just diagnosed with SMA Syndrome after 10 years of my stomach being sick and multiple hospitalizations for being unable to eat or drink. I currently have a j tube after...
    jaclynleigh6 jaclynleigh6
    22-25, F
    Apr 17
    I am a 23 year old female who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We...
    uocgreece uocgreece
    22-25, F
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    Our life in two paragraph . The things we dream of doing . The things we dream of having and accomplishing. The goals and thoughts we think about , the type of life we desired...
    Stephenrko Stephenrko
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    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    From my grandmother. "There are two types of girls... the ones that do things and the ones that get caught. Try your best to be the one not to get caught if your going to do things...
    AdonisahRepealed AdonisahRepealed
    16-17, F
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    Trauma creates one of four types of people: victims, rescuers, or perps - and if you're really lucky and really strong and very willing and brave, survivors. Allison Anders
    deleted deleted
    26-30
    4 Responses Apr 15
    Something that has been weighing heavy on my heart in this age old fight for equality. I am curious as to how you guys feel about my feels. If you disagree, do so objectively, and...
    Dreambrother Dreambrother
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    ExpressingLife ExpressingLife
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    4 Responses Apr 14
    Hi my name is Sherrie and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children...
    Sherrie50 Sherrie50
    56-60
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    Monstermaster13 Monstermaster13
    22-25, M
    Apr 12
    And I will again just by be alive, I am a sinner and that is for me to confess and not you to profess. I pray. I will pray with you. l do not pray for you do not think that you...
    DirtyRead DirtyRead
    36-40, M
    Apr 12
    #8 I'm a little back on my schedule on ep. But I got my hands on like too many things. Aaah. But I'm back. So, yeah. Random as things are happening, earlier today, I saw a...
    Abi936 Abi936
    22-25, M
    2 Responses Apr 12
    I suppose this is where I can speak freely, not revealing my identity. Honestly, writing about my life, a stupid, sob story, I feel skeptical about it. Not knowing if anyone cares...
    Aselfconsciousturtle Aselfconsciousturtle
    13-15, F
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    Lincoln98 Lincoln98
    16-17, M
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    Marie107 Marie107
    22-25, F
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    Stephenrko Stephenrko
    36-40, M
    Apr 10
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    NorwegianBelle NorwegianBelle
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    PetiteChica PetiteChica
    18-21, F
    2 Responses Apr 9
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    TheGirlYouNeverKnew TheGirlYouNeverKnew
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    deleted deleted
    26-30
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    anniechan anniechan
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    Jmacaroon Jmacaroon
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    deleted deleted
    26-30
    Apr 6
    So my last post was banned because of what I can only imagine was seen to be as inappropriate language. However in brief and in more appropriate language I would just like to...
    GeorgieZ GeorgieZ
    26-30, F
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    LITVET LITVET
    41-45, F
    1 Response Apr 5
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    deleted deleted
    26-30
    Apr 5
    The tilde. The squiggly. The ~ symbol. Seeing this symbol makes me feel the rage of Adolf Hitler after overdosing on f'ucking PCP. I just can't express my hatred over this symbol...
    jasonBK1 jasonBK1
    18-21, M
    3 Responses Apr 4
    I might not be the type of girl who has sex with u, but I WILL let you borrow my panties for an hour so you can tell ur friends u got laid. ;)
    ERMAHGERD1 ERMAHGERD1
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    CopperCoil CopperCoil
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    faiquzaki faiquzaki
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    linkinparkiridescent linkinparkiridescent
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    GreenButtercup GreenButtercup
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    I have Borderline Personality Disorder.
    dontcrossmyborderline dontcrossmyborderline
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    deleted deleted
    26-30
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