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I Have Trichorhinophalangeal Syndrome Type 1

A Trichorhinophalangeal Syndrome Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Trichorhinophalangeal Syndrome Type 1. You're not alone. 4 People

    My Grandson Was Stolen...........

    In days gone by women married, had children and stayed at home and raised them while the men went off to work and made money to take care of the families needs.  It's only been in my generation that things changed.  My parents were dead set that I was not going to college...
    blutoo blutoo 51-55, F Mar 3, 2012

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    Hi im single gay n proud lol im new to this and i kust wanna look for a guy quite like me not exact but my type i like guys my age im 13 i dont care if ur brave or weak or muscular...
    Gaylover01 Gaylover01 13-15, M 1 Response 24 mins ago

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    It has been a comfort, being a member of this EP group, there are so many people in a similar boat and sharing a similar pain it is truly comforting. Emotions are such a...
    RaiseYourWhat RaiseYourWhat 26-30, F 48 mins ago

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    I'm a 13 year old girl. and I have Brown Syndrome. As much as I try to ignore it. it prohibits me from doing more than people would think. I can't play staring games with my...
    Jay3421 Jay3421 13-15, F 2 hrs ago

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    please join gitelman/bartter buddies on fb. we have a great support system
    lilmomma1411 lilmomma1411 26-30 5 hrs ago

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    hey everyone. I have a group on fb called gitelman/bartter buddies. please join. we support eachother and learn from others.
    lilmomma1411 lilmomma1411 26-30 5 hrs ago

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    Dentures could soon be a thing of the past thanks to the development of a new type of dental implant. Although there was nothing wrong with the previous dental implants technology...
    NimitaD NimitaD 26-30, F 8 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    earthlingcc11 earthlingcc11 26-30, F 10 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    earthlingcc11 earthlingcc11 26-30, F 10 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    earthlingcc11 earthlingcc11 26-30, F 10 hrs ago

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    Just because I have Aspergers doesn't mean there's anything wrong with me, my final grades in high school were average and I'm considered to be one of the smartest people in my...
    BriarRose96 BriarRose96 18-21, F 1 Response 2 days ago

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    I've always been much better than most men at multitasking, I wonder whether that is due to the Klinefelter Syndrome?
    KSPerson KSPerson 46-50, M 1 Response 2 days ago

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    how is it with someone with aspergers syndrome? I have it. I had one serious relationship. I wonder if its very miserable being with me. since she cheated and my other short...
    kittyanthony kittyanthony 22-25, M 1 Response 3 days ago

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    I was just recently diagnosed with fap - gardeners syndrome .. It's very scary at 17 having to deal with this , and since it is as rare as it is I have no one to share it with or...
    Escapeyourthoughts32 Escapeyourthoughts32 18-21 2 Responses 4 days ago

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    My mother has never liked me. I don't know why. She was mentally, emotionally, & physically abusive. It got worse after one of her boyfriends tried to molest me. She even went so...
    Tenanye Tenanye 36-40, F 2 Responses 5 days ago

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    I am a 32-year-old male. I got sick with the stomach flu at age 12 and was left with rumination syndrome, or something close. Within a couple of weeks of getting sick, I...
    nthgmvs nthgmvs 31-35, M 5 days ago

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    Hi im 16 and i've had rumination syndrome for 2 years now. When it first started happening for what i can remember it was only tiny bits that would come back up after i ate and...
    brookechambers2 brookechambers2 16-17, F a week ago

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    Need to vent: Other than my younger brother's wedding the beginning of July, I've been NC with my NM and older GC brother and his wife since Sept. 1, 2014. I just went cold turkey...
    zeeva70 zeeva70 41-45, F a week ago

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    According to Wikipedia, I sport "The pecto-sterno-infraclavicular pattern (of chest hair), in which the breast, sternum and medial end of the clavicle is covered with terminal hair...
    deleted deleted 26-30 a week ago

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    Does anybody have a GOOD experience with their Aspergers partner? For a while I thought I might've been attracted to somebody with the disorder, but everything on here sounds so...
    deleted deleted 26-30 3 Responses Aug 22

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    I'm proud to have it. My councillor told me I '10x the women any bully will ever be' and I know that's a good thing. I'm a minority, one of a small percentage effected by this...
    Randompi Randompi 13-15, F Aug 20

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    Has anyone ever been to POTS Treatment Center in Dallas, TX? We have been saving up for me to go there and I was wondering if it helps at all.
    TavynKeylee TavynKeylee 13-15 Aug 18

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    hey there I am going though the 3rd stroke in 3 years now loss of vision in left eye. right eye going slowly. don't really know what to do I am taking a vitamin cocktail...
    bclogger75 bclogger75 36-40, M Aug 17

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    I have had CRPS for 5 years. I am a flight attendant and had a passenger fall on me. I first noticed weakness in my legs and a shooting pain down my legs and severe low back pain...
    dedelocken dedelocken 51-55, F Aug 17

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    My mother is making me take a social skills class. I don't think I need it, but at least I'll meet some fellow aspies.
    beautifulmaggie beautifulmaggie 16-17, F 1 Response Aug 17

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    My first experience with DMT WAS ******* INTENSE! I can’t even fathom what happened! I arranged some music on my pc then lied down on my bed. 20 minutes in and I felt my body...
    SoulCoffee SoulCoffee 26-30, M 2 Responses Aug 17

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    Syndrome from The Incredibles is what happens when you don't outgrow your emo phase.
    mattinsula mattinsula 16-17, M 1 Response Aug 16

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    I do I have asperger syndrome
    Pedro1202 Pedro1202 18-21, M Aug 15

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    Cvs cyclic vomiting syndrome is something I have and it sucks so much! Is there a way to add this is the category??
    deleted deleted 26-30 1 Response Aug 14

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    Within the last year, I have been diagnosed with PS. Unlike some of the stories I've glimpsed on here, it primarily is my dominant right hand. My hand was always small and...
    HypoplasticHand HypoplasticHand 18-21, F 1 Response Aug 14

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    I have only known I have had pots for about 7 months now. I will be a sophomore in high school. I really wanted to letter in volleyball but I don't see that happening. :( I have...
    99lynn 99lynn 13-15, F 2 Responses Aug 14

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    After 15 months FINALLY I have an answer. My symptoms were severe leg edema that turned into pitting edema swollen arms swollen hands and fingers with the curvature of my fingers...
    wandawoof2015 wandawoof2015 51-55, F 2 Responses Aug 13

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    My 1 year old son was diagnosed last month with Williams Syndrome. It is a genetic disorder caused by a deletion of 26 genes on the long arm of chromosome 7. We found out after he...
    cthuluwhovian cthuluwhovian 22-25, F Aug 13

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    looking for anyone that has sapho. sure need someone who understands this
    Kimslack1 Kimslack1 46-50, F Aug 12

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    Researchers at Brigham and Women's Hospital are seeking healthy, non-smoking women between 18 and 42 years of age for a research study investigating the metabolism of an FDA...
    abaybay23 abaybay23 22-25, F 1 Response Aug 12

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    Hi I'm not new, have been on here for a while but am just writing a little about our experience and fears thus far. Our son is just about 3 and was diagnosed with vanishing testes...
    Mamarnb Mamarnb 36-40, F Aug 11

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    I contracted GBS in Jan 2013. Was in ICU and rehab. It has been a tough journey. I have recovered tremendously, but not fully. Experiencing alot of muscle contrations which I...
    fierozasmith fierozasmith 41-45, F Aug 11

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    Why doesn't insurance companies cover any procedures that have to do with tmj? Tmj is extremely painful. This needs to change!!
    stephanie504 stephanie504 31-35, F Aug 10

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    I was diagnosed with HES about three months ago. Started on 40 mg a day of prednisone and started feeling much better after about a week. Stayed on 40 mg for a month then dropped...
    kpsue kpsue 56-60, F Aug 10

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    I was diagnosed with DeQuarvains Syndrome mths ago after a terrible 18 mths of pain a mth after my toddlers birth. I had an apt to schedule surgery and my Dr canceled worried it...
    slyfirefly slyfirefly 26-30, F Aug 10