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I Have Trichorhinophalangeal Syndrome Type 1

A Trichorhinophalangeal Syndrome Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Trichorhinophalangeal Syndrome Type 1. You're not alone. 4 People

    My Grandson Was Stolen...........

    In days gone by women married, had children and stayed at home and raised them while the men went off to work and made money to take care of the families needs.  It's only been in my generation that things changed.  My parents were dead set that I was not going to college...
    blutoo blutoo 51-55, F Mar 3, 2012

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    Related Experiences

    1. Crying (really early like within two first weeks - I can recall at least 3 guys doing this) 2. Saying "I love you" after a few dates 3. Talking about your financial fitness...
    Abayoumi Abayoumi 26-30, F 2 hrs ago

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    I haven't been on here in a while and have decided to post. I have a few minutes so why not right? RIGHT! It's been one helluva ride this year to say the least. I've...
    flibsley flibsley 31-35, M 3 hrs ago

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    Turns out pregnancy induced insomnia is not a myth. Also doesn't help that I work nights (10 pm-7 am). Needless to say my sleep schedule is way off. Right now, as I type this, I am...
    LoneLostDreamer042 LoneLostDreamer042 26-30, F 3 Responses 10 hrs ago

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    Recently I have been staying at my parents' place, partly because the return payment for my still-active student loan has increased dramatically and there are too many things I can...
    Jugemu Jugemu 31-35, M 2 days ago

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    I started eating chalk when I was about 7 years old I've gone on and off for use mostly due to accessibility about 9 years ago I started buying it on a regular basis usually...
    Chalkgirlwa Chalkgirlwa 31-35, F 2 days ago

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    I have klinefelters syndrome abd always desire to become wife or something! Finally i accepted my feeling and to be femboy or sissy in 40 age!
    Widehip Widehip 36-40, M 2 Responses 3 days ago

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    I was diagnosed with Aspergers Syndrome around 5 years ago. since I was diagnosed I've began to understand myself better. I actually see it as a blessing because I have became very...
    waterboy99 waterboy99 16-17, M 3 Responses 4 days ago

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    NOTE: I already wrote this and posted it a while ago but I wanted to edit it, and EP's edit feature is bunk right now, so I deleted and posted againOk, y'all ready for another rant...
    BlueMetalChick BlueMetalChick 18-21, F 5 Responses 4 days ago

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    I've eaten my hair, large quantities of my own blood, and skin until I have balding patches, and scarred skin.. I'm sick of the stupid "oh! You like BLOOD? That means you're a...
    mainVine mainVine 13-15, T 5 days ago

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    My boyfriend is at fort benning Georgia and I got a letter stating... " The following items are considered as contraband? Please do not send? Any type of food Civilian reading...
    swimmonkey swimmonkey 18-21, F 1 Response 6 days ago

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    My boyfriend is at fort benning Georgia and I got a letter stating... " The following items are considered as contraband? Please do not send? Any type of food Civilian reading...
    swimmonkey swimmonkey 18-21, F 6 days ago

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    My boyfriend is at fort benning Georgia and I got a letter stating... " The following items are considered as contraband? Please do not send? Any type of food Civilian reading...
    swimmonkey swimmonkey 18-21, F 6 days ago

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    I was diagnosed with PTS almost 3 years ago after undergoing surgery to remove a bone spur. I still don’t have full use of my arm and still suffer pain, but have learned what...
    PDG1 PDG1 46-50 a week ago

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    Recently diagnosed with horners and holmes syndrome.. after over 10 years and going to many drs about me not sweating I finally found out why.. and this added to my many other...
    baidal88 baidal88 36-40, M 1 Response Jul 27

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    me having Aspergers since i was 4 has really sucked. it makes me seem like a horrible person but in reality i just don't know what's appropriate or how to act or what to say in...
    izzzy098 izzzy098 13-15, F Jul 25

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    Young Adonis Once, I was drop-dead gorgeous. I remember vividly visiting a woman’s magazine on business. As I walked through the editorial pool, a young Adonis unaware, a...
    anthonyseverus anthonyseverus 56-60, M Jul 24

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    Young Adonis Once, I was drop-dead gorgeous. I remember vividly visiting a woman’s magazine on business. As I walked through the editorial pool, a young Adonis unaware, a...
    anthonyseverus anthonyseverus 56-60, M Jul 24

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    They yell at you that you're not normal. That you always **** things up. You leave to your room, crying. You overhear them in the other room: What did we do wrong? How could we not...
    EurydiceKallos EurydiceKallos 18-21, F 8 Responses Jul 23

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    I was just wondering if any fellow potsies have any careers advice? I unfortunately had to stop mainstream school (as many of us have had to) as well as home education so...
    justhollyjayne justhollyjayne 16-17, F Jul 22

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    She just vanished.... She and I had had a relationship for about a month and a week, when she suddenly started being more and more distant. She stopped communicating on days that...
    GeorgeRashnikov GeorgeRashnikov 18-21, M Jul 21

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    so i found out i have polycystic ovary syndrome a few days ago and it sucks since me and my husband have been trying and now reading about it is making me even more down about it...
    sweety7268 sweety7268 22-25, F Jul 21

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    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M Jul 20

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    I was a normal teen and in July of 2010 I passed out and was unresponsive for 45 minutes they called Ems and they took me to the we and my heart rate was 270 and my blood pressure...
    pots2011 pots2011 18-21, F Jul 19

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    I have a child that may have Pendred's syndrome. This is a rare recessive gene, passed down by parents causing deafness in one or both ears. My daughter has deafness in one ear...
    arebella arebella 41-45, F Jul 18

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    My heart rate increases dramatically when I eat wheat/gluten products. Does that happen to anyone else? I have not been diagnosed with POTS, but will start testing soon. I gave...
    shama7890 shama7890 41-45, F Jul 16

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    I had my gallbladder removed on April 27th after months of feeling nauseas and my doc thinking it could have been related to my gallbladder having issues. It's a good thing that...
    tgleiker tgleiker 36-40, F 1 Response Jul 15

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    what helps me a lot is to have everything in its place. If I misplace it, God forbid. If you are not my twin, and you move it, it's really bad. Anyone else feel like this?
    PJBelle PJBelle 46-50, F 2 Responses Jul 15

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    Why I can't do **** right?! Sometimes I do things I don't realize I'm doing. Like if I'm very slow and whatever, someone pushes me very hard or even get pissed off at me for being...
    BigGirlWithLove BigGirlWithLove 22-25, F 9 Responses Jul 15

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    Hi, I'm 13 and I have grown up knowing fully that I have Marfan syndrome, my mum and my brother also the syndrome and I inherited it, my whole life my mum has been open to talk...
    KitKatAngel KitKatAngel 18-21, F Jul 14

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    I am 31 and im a plumber I was just diagnosed last week been suffering for about 6 years people always made me feel like I was crazy for saying how I feel all the time my fiance of...
    johnhazzy johnhazzy 31-35, M Jul 13

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    Do my pets actually like me or do they just suffer from Stockholm syndrome?
    ZER0RPHEUS ZER0RPHEUS 18-21, F 2 Responses Jul 13

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    One week I was Lindy Hopping and the next I couldn't bend my knees. I thought I had Lyme Disease. My inflammatory markers—CRP & Sed--were up. I had mild pain in the soft tissue...
    RatherBeDancing RatherBeDancing 66-70, F Jul 13

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    I am addicted to chewing on cardboard. My favorite type is the subscription inserts in magazines, but when I get boxes in the mail from online shopping, I'll rip those apart and...
    dixiedaisy77 dixiedaisy77 31-35, F Jul 13

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    I battle CRPS...Complex Regional Pain Syndrome. Most of my friends here know that I battle it often. But tonight, it's a new symptom of electrical shock sensation. Perfect...
    TheCunylinguist TheCunylinguist 41-45, F 3 Responses Jul 12

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    I was diagnosed with slight autism at age 5 and tbh its still very difficult to be able to deal with social interaction. I feel like sometimes like why did I have to be given this...
    aaronpayne aaronpayne 22-25, M 1 Response Jul 12

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    I chip at and lick ivory spring soap. It started with the smell. now I avoid using this type of soap to shower in order to minimize my desire to eat it.
    curvy66 curvy66 31-35, F Jul 12

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    If someone would have told me that I'd feel this way (when my children left home) I don't know if I would have chosen to be a mother again. I am the mother of 3 boys-19, 12, & 8. I...
    melanies923 melanies923 36-40, F Jul 12

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    Hello everyone :) I have two sons, 21 years old, and (almost) 23 years old! My youngest son has asperger's syndrome :) he also has a full time job and drives.. and lives at home...
    mudflap73 mudflap73 41-45, F 1 Response Jul 12

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    I admit sometimes I do get violent, I told it's quite an erroneous thing to do unless I have been physically harmed by the person I have struck. Sometimes I don't know what to do...
    thedimone thedimone 13-15, F Jul 11

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    How HIV Children Are Injured And Kill By The Actions Of The City Of Salinas, Ca. The Salinas Valley is one of the largest agricultural centers in the USA and the city of...
    marcthegiantkiller marcthegiantkiller 56-60, M Jul 11

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