I Have Trimethylaminuria

A Trimethylaminuria anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Trimethylaminuria. You're not alone. 72 People

    I Have Trimethylaminuria

    WHEN I WAS 5 YEARS OLD I STARTED KINDERGARTEN AND WHEN PLAY TIME WAS OVER WE HAD MILK AND COOKIES, OH THE MILK HURT MY STOMACH SO BAD. I KNEW THEN I COULDNT DRINK MILK. WELL AS LIFE PROGRESSED I NOTICED THAT AROUND ME TEACHERS MADE COMMENT ABOUT SOMEONE PASSING GAS, THEN SECOND...
    kemetian kemetian
    41-45
    9 Responses Jul 29, 2010

    Tmau

    This has only been a problem for me for the past 10 years. I think I've had it all my life, but because I fasted so much when I was younger (for weight control) it helped mitigate the odor. Now, that I've got healthier eating habits, this condition is ruining my life. I have...
    Saber3604 Saber3604
    46-50
    10 Responses May 8, 2011

    Just had lunch now smell like dog ****.

    Life sucks. Thank god I work in a laundrymat. Been in poverty my whole life. Divorced. Just figured out that I smell like hell and it is getting worse I think. Can't drink the problem away. Just started learning about this.
    poopootmau poopootmau
    46-50, F
    3 Responses Jan 22, 2015

    Trimethylaminuria?

    Hi...I'm an 18 year old girl and it seems that i've been dealing with this 'Trimethylaminura' problem for as long as i can remember... I've only just discovered what it is! Becasue of it I have felt so self-concious when out in public because i know that no matter where i go...
    deleted deleted
    26-30
    9 Responses Jan 26, 2012

    Hi Everyone, I have a idea

    that will help everyone, I'm not sure if there's already a Fund for this, but we all should definitely create a fund to find the cure for this, and attract attention towards this matter. Apparently, money is a great attractor for people, and I'm sure Like me people that have...
    AshleyRock1019 AshleyRock1019
    18-21
    3 Responses May 8, 2015

    Help Needed!

    I feel so helpless. How am I supposed to receive any kind of a help when I feel so ashamed of having Tmau that I haven't even told my family and to my boyfriend about it? How can I tell them about having Tmau?
    usefuljivota usefuljivota
    18-21, F
    3 Responses May 27, 2013

    Wow So This Is Me

    wow al i can really say now is wow... well this is my story well when this problem was first started it was when i was about 13 years old it was at scool really when i discovered th boy next to me was whispering something about at first i just ignored it as it was really...
    maryyus12 maryyus12
    13-15
    7 Responses May 29, 2011

    Smelly Me

    I was born with TMAU. I am now 33. I never had a boyfriend. I did have one best friend growing up but we parted when boys came in the picture. The only time I went out was to go to work. I spent my whole life as a hermit. It gets really lonely. I do have a good relationship with...
    debbiem92704 debbiem92704
    31-35, F
    4 Responses Sep 22, 2013

    I am 34 years old and think I have TMAU.

    I have been getting weird reactions from people for about 10 years. When I am around people they rub their noses, make rude comments, and avoid me all together. the thing is, I can't smell anything. It is so hard to try and live a normal life when I am constantly worried...
    shanda216 shanda216
    36-40, F
    5 Responses Dec 11, 2013

    It began for me at the age of 24 my birthday is

    the end of the month and I will be 39. Sometimes people say I smell like fish, and sometimes it smells like Fecal matter. I can only smell a strong ammonia sent when I sweat. I just need someone to talk to because my family doesen't understand, people where I live hate me. Thank...
    heartbroken420 heartbroken420
    36-40, F
    2 Responses Sep 19, 2015

    I don't know what it is like to feel normal

    anymore. The pain of being humiliated is to much some days. I try to explain to people that it is a disorder and not bad hygiene. That doesn't stop the pain though of the crude remarks and always being the stinky one.. Please find a cure for this. There are days I won't even...
    marylou1967 marylou1967
    46-50, F
    Apr 6

    Embarrassed

    2 days ago October 2012, I was at my office when everyone from maintenance came by to clock out in my computer, they all surrounded me making comments to each other very low but I could still hear them. All waiting for me to get up and leave so they can clock out. I was so...
    deleted deleted
    26-30
    3 Responses Oct 7, 2012

    So Sad

    After having smelled on and off for years, going to doctors after doctors, having had tonstilectomy and still smell I was fortunate to stumble upon a site about trimethylanuria, but unfortunately it cannot be tested nor get the right medication in my country. I've tried this...
    Melancola Melancola
    31-35
    8 Responses Oct 19, 2012

    I went though this in my high school days.

    ...I fought a lot 3 four times a year for three years that fourth year know one said a thing until my graduation a couple guys were pulling my hair making fun of the smell. When we were walking across the stage grabbed my diploma sat back down waited for the guys to back and I...
    Jaielightning Jaielightning
    26-30, M
    Feb 24

    I have been dealing with an odor

    for as long as i can remember. And frankly im so tired of this mess, I tired of the looks im tired of people holding their noses. I have just started a new job that pays me more to support my children. And now i have to deal with people talking about me behind my back. People...
    arienep arienep
    36-40, F
    Mar 11

    Omg can someone please come up with a cure geez

    luiuzz anything masking is fine too just do I can't enjoy.my life cause of this I stay in the house like sleeping beuty or something I need to go
    deleted deleted
    26-30
    Dec 24, 2015

    Does It Qualify As A Disability

    I have suffered malodour for years moved from doctor to another therapy to another super products name them it is very hurting when people see you are a lesser person due to a problem one has no control over. It's sad when everyone one you try to talk to pretend not to know what...
    Sherryl16 Sherryl16
    36-40, F
    2 Responses Jan 11, 2013

    Its been about 3 years

    for me now with TMAU. No one around knows that I can't help it . I wash 3-5 times a day. I force myself to stop eatting for weeks until I get so weak , I have too. I just wanna end it all most days but I don't. I wouldn't wish TMAU on my worst enemy. I don't want any body else...
    Unweather67823 Unweather67823
    22-25, F
    3 Responses Sep 2, 2015
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