I Have Turner Syndrome

A Turner Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Turner Syndrome. You're not alone. 47 People

    Helping Hand

    Hey everyone. I don't have Turner Syndrome or any Disease of disorder, but i support all of them. I can't stand what people have to go through, i wish there was more i can do. It makes me cry just hearing peoples stories and always makes my think twice life, my life. Im always...
    Fighter4ever Fighter4ever
    2 Responses Nov 6, 2011

    Hi I am a 20 year old girl in the uk.

    I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me (except with my height) and the doctors are useless - I've not had TS check up in 7 years. Lately I've been in a bit of a downward...
    MissLisac MissLisac
    22-25, F
    4 Responses Feb 27, 2015
    Atale Atale
    18-21, F
    1 Response Mar 4, 2015

    Turner Syndrome

    Hi my name is Mystique'a Miller-Naatz I live in Texas and I'm 17 years old and I was diagnosed with Turner Syndrome when I was 4 years old. I would love to talk to others who also have Turner Syndrome. If anyone would like to talk I'm here. :-)
    Tiquea Tiquea
    16-17, F
    1 Response Apr 6, 2012

    Do You Think That I Could Have Turner's Syndrome

    I am 23 and here are some pictures of me:I have been told that I look typical for someone with Turner'shttp://s645.photobucket.com/albums/uu179/sarahdaniels600/?action=view¤t=me.jpghttp://s645.photobucket.com/albums/uu179/sarahdaniels600/?action=view¤t=Photo1332...
    UltimaDarkPrincess UltimaDarkPrincess
    22-25, F
    2 Responses Jan 27, 2011

    I'm Sydnee age 11 I have turner syndrome

    and hope to make friends with people who also have turner syndrome.
    sydneemorrill sydneemorrill
    13-15, F
    Jan 12

    Turners Syndrome Journey

    My name is Tahlia and I live in California. I was diagnosed when I was 16 years old. I am lucky in that I grew to 5' tall and that's a normal height for the women in my family. More than anything I want to be a mother. My diagnosis means that this will be a difficult journey...
    Ravenjewl Ravenjewl
    Sep 16, 2013

    I remember this one particular play at school.

    .. I "won" the role of Can Can dancer - they wanted a line of us to perform the Can Can on the stage for some reason. I know I was not particularly dancing with joy to find out that I had the role and even in junior school, I kicked up a debate on it. I knew I'd suck at this...
    LoneSouls LoneSouls
    31-35, F
    Jan 3, 2015

    Eva's Ts Experience So Far

    Hi i am a 19 year old girl from the netherlands. (my english sucks, hope you all understand my long story though) I was diagnosed with turner syndrome when i was almost 17. It was and it is still very difficult for me to except that i can't have kids when I want to start a family...
    Evachocolatepudding Evachocolatepudding
    18-21, F
    2 Responses Oct 17, 2012

    I was diagnosed with TS at birth.

    Slowly, I think I am learning to accept myself as I am. When I was younger I spent a lot of time wishing I could be different: taller, thinner, prettier. This was a waste of my energy.
    curlysue1981 curlysue1981
    31-35, F
    1 Response Dec 4, 2015

    i have turner syndrome im 18 years of age

    and live in Ireland i go to the hostipla every six months
    leslietravers leslietravers
    18-21, F
    Aug 5, 2015

    Im Me!!!!

    Hi team,I have been diagnosed since I was about 17 and am now going on 30 this year..I guess I have never really looked into my condition..or what it means for me or even what others maybe going through that I am too who have Turners.I guess I have come to a point in my life...
    chadette chadette
    3 Responses Apr 18, 2012

    I found out when I was 18

    that I have Turner Syndrome. I have recently started really thinking about the impact on my life and really need someone to talk to
    crteach crteach
    31-35, F
    1 Response Oct 15, 2014

    Nervous About The Future

      I was diagnosed with Turner's syndrome when I was 16. I have been very lucky in many ways as I have had excellent medical care since then. I have had growth hormone injections and am now on HRT. It seems to run fairly smoothly and the side effects have been mostly minimal...
    jennilou jennilou
    26-30, F
    1 Response Aug 18, 2012

    I don't understand why they are subjecting me

    to this? They first suggested Turner Syndrome to me 2 years ago and referred me for yet more bloodwork on my hormones - the laugh of it being that I've already had the exact same tests done twice to date... and each time, they have come back to be normal. If I had normal level...
    LoneSouls LoneSouls
    31-35, F
    Feb 4

    Who I Am

    I was diagnosed with Turner syndrome at birth and spent a significant amount of time as a child going to doctor's appointments. At school, I was teased for being short, I recall 'mini girl' being a favourite taunt. Around age 10, I began growth hormone therapy and today I'm about...
    LostGirl1981 LostGirl1981
    31-35, F
    1 Response Jan 13, 2013

    Turner'S And Uti

    I also have turner's and it's not that bad. I have my career and my friends, i am very sociable. Actually, i have suffered more because of some doctors and some people than form my condition. I have suffered from reccurent uti and it took me years to find the solution, so i would...
    adianne adianne
    Mar 16, 2013

    My Story

    i found out that i have turner syndrome when i was 14 years old
    MHandEBfan4life MHandEBfan4life
    18-21, F
    5 Responses Mar 22, 2010

    I was 3 months when I was diagnosed

    since I was 2 in took growth hormones but im hoping to find a new friend who also has turnersyndrome
    sydneemorrill sydneemorrill
    13-15, F
    1 Response Jan 12

    i first found out i have turner syndrome

    when i was a babe my ma discovered i was on injection to help my growth i attend hospital evey six months but they have me in a adults hostiple now that im 18 years of age i find it hard to live with this condition as theres alot of affects about it
    Atale Atale
    18-21, F
    Mar 4, 2015

    when i was eight, i was diagnosed with a

    condition named turner syndrome. there were so many life changes, like having to get a shot every night before bed and going to the doctor more. I still get a shot every night but i know that in a couple of years i will be five feet and will not have to get it anymore.
    rachelrubin01 rachelrubin01
    13-15, F
    2 Responses Apr 18, 2014

    I Wish That Me And My Mom Had Known Before I Was 17

    hey everyone my name is lee ann and i am 29 single white 5'1 245lbs brown hair and brown eyes all my life well until i turned 17 i was picked on for being different than others. i would do and say weird things i was short and fat. My mother would take me to doctors and shrinks...
    leeann66 leeann66
    26-30, F
    2 Responses Oct 12, 2012

    its hard living with this condition im an

    eighteen year old girl living in Ireland i was a babe when my mother found out i didnt know anything about it i was in hostiple most of the time and they found out i had it i found out that i will not be able to have children ect which hurt me really bad im so un confident about...
    Atale Atale
    18-21, F
    5 Responses Mar 4, 2015

    I Have Turner Syndrome

    I found out I had Turner's Syndrome when I was born. They took me away from my parents as soon as I was diagnosed for tests.  When I was born they thought that I would be mentally handicapped but that isn't true.  I do have a learning disability.  I don't really have health...
    catgherinesargefield catgherinesargefield
    31-35, F
    4 Responses Jun 5, 2011

    Ever Wonder

    So I knew I had this before I was nine, and I definitely struggled with self esteem as I couldn't fathom not being a mom and felt so alien and unworthy even in college. who would want me, I would wonder. I am naturally quiet and sensitive and soo hated not being normal, used to...
    kdub1 kdub1
    2 Responses Oct 18, 2012

    I am 14 years, living with turner syndrome has

    been difficult for me ever since i moved to highschool. I am 5'0" in height and I always feel different to people in my grade. I am introvert, quiet, shy but i can be talkative when i'm with my close friends. I feel like there's no one there for me to talk to, my family is...
    winnyyang winnyyang
    16-17, F
    1 Response Jan 15, 2014

    It's coming up to 2 years

    since it was suggested that I have Turner Syndrome... and one thing that I'm really struggling with is gender identity. Obviously, I have all the girly parts, but I've never really been a girly girl, even as a child and since I'm now showing more masculine features with the...
    LoneSouls LoneSouls
    31-35, F
    Dec 31, 2014

    Introducing Me....

    Hi, I'm Tasha, I'm 29 from the UK, I found out I had turners syndrome when I was 11, I did have growth hormone replacement but unlucky for me I was allergic to it and it made me really ill. Other than that I've only had the minor nigglely things associated with the syndrome ie...
    Tasha29 Tasha29
    3 Responses Apr 5, 2012

    FIRST I want to ask if any of you have had

    or thought about having surgery done to fix the webbed-neck and low hairline most of us are born with? I’m considering having it done and am curious about it. Any feedback would be greatly appreciated! So here is a little about me…. My name is Venezia. I was born...
    CousinV CousinV
    22-25, F
    2 Responses Jun 21, 2015

    Sad And Lonely

    Hi to all! I want to share my story! I am 38 and I am diagnosed with Turner Syndrom since I was 5. Because of this, my life has become a reall mess. In fact I don't have health problems, but my problem is psychological. I am very depressed because I can't become a mother, and as...
    lindaerlinda2011 lindaerlinda2011
    19 Responses Aug 30, 2011

    Hi my name is Sherrie

    and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children. There was definately fear when i found out that i couldnt have kids but i know we have the kids that God wanted us to have...
    Sherrie50 Sherrie50
    Apr 13

    Hi! I'm 17 years old,

    and I was diagnosed with Turner's syndrome when I was a baby. At school, a lot of people don't understand me, and so I don't have a lot of friends and often feel lonely. Any advice? :)
    musiclover48 musiclover48
    18-21, F
    2 Responses May 1, 2015

    My Daughter

    I personally do not have Turner's Syndrome. However, my daughter, does have this syndrome. I found out when I was 20 weeks pregnant that she has it. I was terrified. First of all, I had NEVER heard of it before and the dr. I had was very mean and heartless. He basically told me...
    jenii911 jenii911
    18-21, F
    11 Responses Apr 22, 2010
More Stories