I Have Turner Syndrome

A Turner Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Turner Syndrome. You're not alone. 47 People

    Im Me!!!!

    Hi team,I have been diagnosed since I was about 17 and am now going on 30 this year..I guess I have never really looked into my condition..or what it means for me or even what others maybe going through that I am too who have Turners.I guess I have come to a point in my life...
    chadette chadette
    26-30
    3 Responses Apr 18, 2012

    I don't understand why they are subjecting me

    to this? They first suggested Turner Syndrome to me 2 years ago and referred me for yet more bloodwork on my hormones - the laugh of it being that I've already had the exact same tests done twice to date... and each time, they have come back to be normal. If I had normal level...
    LoneSouls LoneSouls
    31-35, F
    Feb 4, 2016

    Helping Hand

    Hey everyone. I don't have Turner Syndrome or any Disease of disorder, but i support all of them. I can't stand what people have to go through, i wish there was more i can do. It makes me cry just hearing peoples stories and always makes my think twice life, my life. Im always...
    Fighter4ever Fighter4ever
    18-21
    2 Responses Nov 6, 2011

    I was 3 months when I was diagnosed

    since I was 2 in took growth hormones but im hoping to find a new friend who also has turnersyndrome
    sydneemorrill sydneemorrill
    16-17, F
    1 Response Jan 12, 2016

    i first found out i have turner syndrome

    when i was a babe my ma discovered i was on injection to help my growth i attend hospital evey six months but they have me in a adults hostiple now that im 18 years of age i find it hard to live with this condition as theres alot of affects about it
    Atale Atale
    18-21, F
    Mar 4, 2015

    Hi I am a 20 year old girl in the uk.

    I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me (except with my height) and the doctors are useless - I've not had TS check up in 7 years. Lately I've been in a bit of a downward...
    MissLisac MissLisac
    22-25, F
    4 Responses Feb 27, 2015
    Atale Atale
    18-21, F
    1 Response Mar 4, 2015

    Who I Am

    I was diagnosed with Turner syndrome at birth and spent a significant amount of time as a child going to doctor's appointments. At school, I was teased for being short, I recall 'mini girl' being a favourite taunt. Around age 10, I began growth hormone therapy and today I'm about...
    LostGirl1981 LostGirl1981
    31-35, F
    1 Response Jan 13, 2013

    Sad And Lonely

    Hi to all! I want to share my story! I am 38 and I am diagnosed with Turner Syndrom since I was 5. Because of this, my life has become a reall mess. In fact I don't have health problems, but my problem is psychological. I am very depressed because I can't become a mother, and as...
    lindaerlinda2011 lindaerlinda2011
    36-40
    19 Responses Aug 30, 2011

    I'm Sydnee age 11 I have turner syndrome

    and hope to make friends with people who also have turner syndrome.
    sydneemorrill sydneemorrill
    16-17, F
    Jan 12, 2016

    I remember this one particular play at school.

    .. I "won" the role of Can Can dancer - they wanted a line of us to perform the Can Can on the stage for some reason. I know I was not particularly dancing with joy to find out that I had the role and even in junior school, I kicked up a debate on it. I knew I'd suck at this...
    LoneSouls LoneSouls
    31-35, F
    Jan 3, 2015

    i have turner syndrome im 18 years of age

    and live in Ireland i go to the hostipla every six months
    leslietravers leslietravers
    18-21, F
    Aug 5, 2015

    It's coming up to 2 years

    since it was suggested that I have Turner Syndrome... and one thing that I'm really struggling with is gender identity. Obviously, I have all the girly parts, but I've never really been a girly girl, even as a child and since I'm now showing more masculine features with the...
    LoneSouls LoneSouls
    31-35, F
    Dec 31, 2014

    Turner Syndrome

    Hi my name is Mystique'a Miller-Naatz I live in Texas and I'm 17 years old and I was diagnosed with Turner Syndrome when I was 4 years old. I would love to talk to others who also have Turner Syndrome. If anyone would like to talk I'm here. :-)
    Tiquea Tiquea
    18-21, F
    1 Response Apr 6, 2012

    I found out when I was 18

    that I have Turner Syndrome. I have recently started really thinking about the impact on my life and really need someone to talk to
    crteach crteach
    31-35, F
    1 Response Oct 15, 2014

    Ever Wonder

    So I knew I had this before I was nine, and I definitely struggled with self esteem as I couldn't fathom not being a mom and felt so alien and unworthy even in college. who would want me, I would wonder. I am naturally quiet and sensitive and soo hated not being normal, used to...
    kdub1 kdub1
    41-45
    2 Responses Oct 18, 2012

    I am 14 years, living with turner syndrome has

    been difficult for me ever since i moved to highschool. I am 5'0" in height and I always feel different to people in my grade. I am introvert, quiet, shy but i can be talkative when i'm with my close friends. I feel like there's no one there for me to talk to, my family is...
    winnyyang winnyyang
    18-21, F
    1 Response Jan 15, 2014

    Turner'S And Uti

    I also have turner's and it's not that bad. I have my career and my friends, i am very sociable. Actually, i have suffered more because of some doctors and some people than form my condition. I have suffered from reccurent uti and it took me years to find the solution, so i would...
    adianne adianne
    31-35
    Mar 16, 2013

    I Have Turner Syndrome

    I found out I had Turner's Syndrome when I was born. They took me away from my parents as soon as I was diagnosed for tests.  When I was born they thought that I would be mentally handicapped but that isn't true.  I do have a learning disability.  I don't really have health...
    catgherinesargefield catgherinesargefield
    31-35, F
    4 Responses Jun 5, 2011

    Hi! I'm 17 years old,

    and I was diagnosed with Turner's syndrome when I was a baby. At school, a lot of people don't understand me, and so I don't have a lot of friends and often feel lonely. Any advice? :)
    musiclover48 musiclover48
    18-21, F
    2 Responses May 1, 2015

    Do You Think That I Could Have Turner's Syndrome

    I am 23 and here are some pictures of me:I have been told that I look typical for someone with Turner'shttp://s645.photobucket.com/albums/uu179/sarahdaniels600/?action=view¤t=me.jpghttp://s645.photobucket.com/albums/uu179/sarahdaniels600/?action=view¤t=Photo1332...
    UltimaDarkPrincess UltimaDarkPrincess
    22-25, F
    2 Responses Jan 27, 2011

    My Story

    i found out that i have turner syndrome when i was 14 years old
    MHandEBfan4life MHandEBfan4life
    18-21, F
    5 Responses Mar 22, 2010

    Nervous About The Future

      I was diagnosed with Turner's syndrome when I was 16. I have been very lucky in many ways as I have had excellent medical care since then. I have had growth hormone injections and am now on HRT. It seems to run fairly smoothly and the side effects have been mostly minimal...
    jennilou jennilou
    26-30, F
    1 Response Aug 18, 2012

    Introducing Me....

    Hi, I'm Tasha, I'm 29 from the UK, I found out I had turners syndrome when I was 11, I did have growth hormone replacement but unlucky for me I was allergic to it and it made me really ill. Other than that I've only had the minor nigglely things associated with the syndrome ie...
    Tasha29 Tasha29
    26-30
    3 Responses Apr 5, 2012

    I Wish That Me And My Mom Had Known Before I Was 17

    hey everyone my name is lee ann and i am 29 single white 5'1 245lbs brown hair and brown eyes all my life well until i turned 17 i was picked on for being different than others. i would do and say weird things i was short and fat. My mother would take me to doctors and shrinks...
    leeann66 leeann66
    26-30, F
    2 Responses Oct 12, 2012

    I was diagnosed with TS at birth.

    Slowly, I think I am learning to accept myself as I am. When I was younger I spent a lot of time wishing I could be different: taller, thinner, prettier. This was a waste of my energy.
    curlysue1981 curlysue1981
    36-40, F
    1 Response Dec 4, 2015

    its hard living with this condition im an

    eighteen year old girl living in Ireland i was a babe when my mother found out i didnt know anything about it i was in hostiple most of the time and they found out i had it i found out that i will not be able to have children ect which hurt me really bad im so un confident about...
    Atale Atale
    18-21, F
    5 Responses Mar 4, 2015

    Eva's Ts Experience So Far

    Hi i am a 19 year old girl from the netherlands. (my english sucks, hope you all understand my long story though) I was diagnosed with turner syndrome when i was almost 17. It was and it is still very difficult for me to except that i can't have kids when I want to start a family...
    Evachocolatepudding Evachocolatepudding
    18-21, F
    2 Responses Oct 17, 2012

    Hi my name is Sherrie

    and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children. There was definately fear when i found out that i couldnt have kids but i know we have the kids that God wanted us to have...
    Sherrie50 Sherrie50
    56-60
    Apr 13, 2016

    when i was eight, i was diagnosed with a

    condition named turner syndrome. there were so many life changes, like having to get a shot every night before bed and going to the doctor more. I still get a shot every night but i know that in a couple of years i will be five feet and will not have to get it anymore.
    rachelrubin01 rachelrubin01
    16-17, F
    2 Responses Apr 18, 2014

    My Daughter

    I personally do not have Turner's Syndrome. However, my daughter, does have this syndrome. I found out when I was 20 weeks pregnant that she has it. I was terrified. First of all, I had NEVER heard of it before and the dr. I had was very mean and heartless. He basically told me...
    jenii911 jenii911
    18-21, F
    11 Responses Apr 22, 2010

    FIRST I want to ask if any of you have had

    or thought about having surgery done to fix the webbed-neck and low hairline most of us are born with? I’m considering having it done and am curious about it. Any feedback would be greatly appreciated! So here is a little about me…. My name is Venezia. I was born...
    CousinV CousinV
    22-25, F
    2 Responses Jun 21, 2015

    Turners Syndrome Journey

    My name is Tahlia and I live in California. I was diagnosed when I was 16 years old. I am lucky in that I grew to 5' tall and that's a normal height for the women in my family. More than anything I want to be a mother. My diagnosis means that this will be a difficult journey...
    Ravenjewl Ravenjewl
    36-40
    Sep 16, 2013
More Stories