I Have Tylosis

A Tylosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tylosis. You're not alone. 23 People

    Born With Tylosis

    I am a 75 year old man who has lived with this condition all my life. I would like to be in touch with anyone else with tylosis as I have never met anyone who has it!
    jel75 jel75
    7 Responses May 29, 2011

    I Have Tylosis

    I have tylosis my mum has it two of my sisters have it. I have a brother and sister who don't. I have two sons and one has it. One of my sisters who has it all three of her children do, two boys and one girl. My other sister has one son who does have it. It's a horrible...
    ladychubbs ladychubbs
    41-45, F
    2 Responses Jul 3, 2013

    I Have Tylosis

    I have Tylosis and am hoping that some of you that also have it come back online and make contact. I have had this amazing difference since birth as have my Mum, Brother and daughter. We have all lived so far thinking that we would never have any discussions with anyone else that...
    starcruiser2002 starcruiser2002
    4 Responses Nov 7, 2013
    starcruiser2002 starcruiser2002
    1 Response Jun 23, 2014

    I've Got The Pain In The Backside Tylosis!

    I'm 36 years old and was born with it. My nan, dad and younger brother have it but my older brother and sister don't. Growing up was tough. Nasty comments, recoiling people and harsh questions were common. But worst of all is the tender feet and hands in the evening. If i have to...
    Gibbs76 Gibbs76
    4 Responses Apr 19, 2012

    Rare Hands & Feet.

    I was also born with this condition, and have passed it onto two sons and one grand-daughter. One of my older brothers might have had a mild form of it. I too found it difficult in childhood, always being told off for dirty hands etc. I have never met any other family with...
    Starcrusersmum Starcrusersmum
    70+, F
    1 Response Nov 7, 2013


    I also have thick, hard yellow skin on my hands and feet and have had the skin condition since birth. My dad has it also but not as severely. Apart from my dad there is no history of the skin condition in my family; luckily my brother escaped. At birth the doctors have told my...
    1emmer 1emmer
    2 Responses Apr 27, 2012

    Yes I Have It

    yes i have it ... ive had it since i was a child im 35 now i first had the yellow feet  and wen time has gone on i get alot of tummy problems which i sometime have problems getting under control .
    emmaw63 emmaw63
    2 Responses Nov 22, 2010

    16 Year Old With Tylosis

    My Dad has tylosis, he blamed himself for passing it on to me. It scares me off the option of having children to be honest, because, even though differences in people are now more broadly accepted, kids made my life difficult. I think because my Dad had it, I grew up strong...
    Tigerstripes1 Tigerstripes1
    16-17, F
    3 Responses Nov 25, 2012

    Hi guys . My name is Mia I'm 22 from London .

    I was born with a rare skin condition on the palms of my hands and soles of my feel it is called tylosis . Up until today I didn't even know anyone else had it and would absolutely love to meet someone else like me . I've passed it on to my daughter and don't seem to be able to...
    MiaSosseh MiaSosseh
    22-25, F
    1 Response Nov 8, 2015

    Rare skin condition !

    I was born with tylosis. I am now 23 and have never met anyone with same hands / feet as me .. Pleaseeeee anyone with condition willing to meet please message me 🖐🏽
    MiaSosseh MiaSosseh
    22-25, F
    Feb 13

    Hi all. My husband has tylosis.

    He inherited from his dad although his brother doesnt have it. Anyway, we have recently had a baby girl and 5 months later it seems she may have it too. She has really hard, yellow skin on her hands and feet and a red band around the sides. Her hands and feet go bright white in...
    effyhoney effyhoney
    31-35, F
    4 Responses Aug 5, 2014


    I have had the condition for over 17 years. If it was not for Dr Abadie at New Cross Hospital I might have never found out what my condition was. I to have never met anyone else with my illness. It has only been through interacting with people over websites like this one why I...
    id221178 id221178
    31-35, F
    4 Responses Feb 25, 2012

    I Have Tylosis

    A total of 9 members of my family have tylosis. It has been passed on through 4 generations.
    countrygyrl countrygyrl
    61-65, F
    6 Responses Aug 10, 2011
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