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I Have Ulcerative Colitis

Personal Stories, Advice, and Support 432 People

    I want to know if anyone has tried helminth

    therapy. Years ago there was a study at the University of Iowa in which 6 refractory patients were cured using suis helminth eggs. One if them went from being bedridden to jigging 5 miles a day. 100% were cured. The National Institute of Health is still studying this treatment...
    syntheticrhyme syntheticrhyme 46-50, F 2 Responses Mar 13

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    So I'm 17 years old and I'm schedule

    for a laparoscopic colectomy next month.. I'm really nervous about it even though everything I've read about the surgery says it has great results.. I'm worried about the scars and wether or not ol feel comfortable with my body after (shallow I know) also, I've read about people...
    scottc29 scottc29 16-17, M 1 Response Feb 12

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    18 Years and Thriving

    I was properly diagnosed with UC when I was 15 years old... but I expressed symptoms as early as age four. I regulate my symptoms and general discomfort with careful diet, a low-stress lifestyle, and sense of humor.
    bookofchange bookofchange 31-35, F 3 Responses Sep 22, 2007

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    You Can't Spell Sucks Without Uc

     It was a little over a year ago.  I had visited a friend that lived near a bunch of orchards and bought some apple butter from a road side stand.  I ate some the next morning and was sick in a few hours.  I thought it was the stomach flew so I just took a few...
    jwjwjwjwjw jwjwjwjwjw 21-25, F 1 Response Mar 22, 2008

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    Ulcerative Colitis

    I am living with ulcerive colitis, i was diagnosed with colitis, last year after i had given up smoking, but i have always had a bowel problem,as long as i can remember, i gave up smoking 15 years ago too and i had the runs with blood and mucus there, but the doctor said i had...
    rustydy rustydy 51-55, F 2 Responses Mar 27, 2008

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    DO YOU HAVE ULCERATIVE COLITIS ?

    GET PAID $750 TO $1,400 & $20 FOR GAS (VENTURA COUNTY) We are looking for volunteers (18 years of age or older) from all over the area to participate in our Ulcerative Colitis Clinical Trial. Study drugs, Examinations, and Procedures will be provided at no cost. You will be a...
    letsrockourboat letsrockourboat 41-45, M Feb 5

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    Tapioca (cassava) Flour As a Treatment For Ulcerative Colitis

    I read a few weeks ago about a gentleman on another website treating his ulcerative colitis with tapioca flour (also known as cassava root). He said all he did was mix a few teaspoons of the flour with lukewarm water, some sugar and some salt (the latter two for taste), and his...
    uceric uceric 36-40, M 8 Responses Jun 7, 2007

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    I Was Hospitalised 7 Weeks Ago And Almost Lost My Colon. I Never Had A Problem Until I Had Campylobactor Food Poisoning And An Infection In The Intestine Lining. I Have Been Very Very Lucky Indeed. Lucky To Have Survived :)

    I can not complain about the way I have been treated. I was put on Prednisolone. 40mg daily and tapered off by 5mg on a weekly basis. I am currently on 15mg and feel a whole lot better and find the unpleasant side affects were only when I was on 30mg, 25mg and 20mg. Sweating...
    deleted deleted 26-30 Apr 16, 2013

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    There Is Hope- 20 Years Remission

    I have recently had a UC flare up after 20 years in remission.  I want you to know that there is hope.   You can be symptom free.    I got UC when I was 13 years old.  UC is a thief that robs you of your youth, and any dream of normal carefree teenage years you could...
    jennsheen jennsheen 31-35 2 Responses Mar 23, 2011

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    Feeling So Down

    My name is Sasha i am 22 years old. I was diagnosed with UC in 2009. I had to deal with dropping out of my first year of college in order to get better. I was in remission for a long time and recently have been experiencing the ugly side of UC. I have so many procedures and...
    SashaShmurak SashaShmurak 22-25, F 4 Responses Apr 3, 2013

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    Uc

    I was diganosed with uc when i was 17. Its been a battle but now i eat healthier and drink my meds ontime. Its not eash dealing with this
    deleted deleted 26-30 Sep 27, 2013

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    6 Years With Colitis

    I was diagnosed 6 years ago at the age of 14, 3 weeks after my nan passed away. being a teenager is hard anyway with everything that happens in school but with colitis as well I found it a lot harder. I did get some bulling due to the weight I gained while on the dreaded steroids...
    riahearne riahearne 18-21, F Jun 11, 2013

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    After being diagnosed with ulcerative colitis

    last year my life has changed quite a bit. I was hospitalized three times last year for my colitis and a blood clot in my head due to my colitis. I almost died. That was a huge wake up call and I am now a single mother (I left the relationship) and have eliminated things in my...
    sbell08 sbell08 26-30, F 4 Responses Jun 11

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    Support The Cause!!!!

    Hey guys.   I don't know if you guys have heard but there are ways to spread awareness about this IBD. There is a walk for it that helps spread awareness and raises money to help try to find a cure and to do more research. Its called Take the Steps. IF you are looking for...
    nwong1 nwong1 18-21, F Apr 1, 2011

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    I'm writing in hopes to help others with UC.

    I was diagnosed 15 years ago, and the last 3.5 years I have been med free w/ no flares. Today I had my 4th colonoscopy which confirmed no colitis. 3.5 years ago I changed my diet, long story short I am now Primal in my eating. The book, "The Primal Blue Print" by Mark Sisson...
    number4cured number4cured 41-45, M 2 Responses Feb 12

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    Life, Wife, And UC

    Hey! I'm Natalie. thirtyeightfive.com I was diagnosed with UC about four years ago, right after I graduated from college. After a week of unprecedented, violent GI symptoms, I had a scope and found out I had a pretty serious case of a disease I had never heard of! Over the...
    natkbridges natkbridges 26-30 1 Response Jun 21, 2013

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    Immovable object. Unstoppable Force.

    Hi, my name is Forrest. I was never lucky enough to just break any bones or sprain an ankle when I was younger.  I am 16 years now old and feel like I  should be at least 40 with all of the medications they've pumped into me so far in an attempt to dent the thing that...
    ARKAngel7 ARKAngel7 16-17, M 3 Responses Feb 25, 2011

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    A Positive Outlook...my Uc Journey

    I was 18 years old when I started having symptoms from my distressed bowel. Initially my family doctor thought I must just have some small tears to cause the bleeding in my stool but as the time went on and more symptoms developed, I was recommended to see a Gastroenterologist...
    cwithersp cwithersp 26-30 1 Response Oct 12, 2012

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    My Colitus

    Hi I'm Ian I was diagnosed with ulcerative colitus of the lower bowel and sigmoid colon in dec 2011. I was Ill all that year I lost 2 stone and felt like my life was over. Until I went to a&e and they put me straight on steroids and slowly I got better. I spent 2 weeks in...
    Iansmith1981 Iansmith1981 31-35, M 1 Response Sep 4, 2012

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    12 Year Old

    Hi my son has been living with uc for two years he was rushed into hospital with servere pain and poo like water he also lost over a stone in weight in just two weeks and was dismissed by local doctors as having a bug . When in hospital I was made to feel like an over protective...
    Robbiesmum Robbiesmum 41-45, F 2 Responses Apr 29, 2013

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    Want To Know More About Ulcerative Colitis

    I was recently diagnosed with UC and given Lialda and got samples which said once daily then a couple weeks later i called the dr about the med and he said i need to take it 4 times a day well the side effects of it the headache and still being neaseaed were not going away and...
    Tinkfinn9 Tinkfinn9 26-30, F 2 Responses Aug 16, 2013

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    Pills, Pills, Pills

    When you look down at the 8 pills in your hand. It's not a party, it just bedtime for someone with inflammatory bowel disease!
    Ohmystarrynights Ohmystarrynights 22-25, F 1 Response Oct 6, 2013

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    Ulcertive Colitis And Colostomy Story

    I was 14 when I got diagnosed with UC I didn't think much of it at the time, doc just put me on some pills and I was good for a few months. In 2011 the symptoms came back and my colon was badly inflamed so I went back to the doctor who put me on prendezone (steroids), but after...
    anonymus01 anonymus01 16-17, M Oct 12, 2013

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    I Have UC And Would Like Support From People Who Have The Same...

    I was bleeding for two years before I was able to get insurance and find out why I was dropping so much blood. went to the doctor and off course they tried Humaria first (dont know if spelled right). They tried steroids and nothing worked. I was sent to a gastro specialist and...
    jenipo2004 jenipo2004 36-40, F 1 Response Jul 22, 2013

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    Long Remission Over (S/D/F)

    I battled a few years, about 4 GIs and 2 stints in the hospital. Finally got well and went med-free for about 8 years. God bless that last doc. Felt very fortunate but still lived in fear, knowing it could come back anytime. Well it has. New doc prescribed asacol and canasa...
    timw9 timw9 41-45, M Nov 16, 2013

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    Diagnosed 2 Years Ago, Healing With Hollistic Remedies

    www.facebook.com/curecolitis I'm just starting this page to collect all useful information I found related to Ulcerative Colitis and how to design your own healing process. We have all different bodies and minds. There's a compilation of exercises I practice which have been...
    karenalbors karenalbors 26-30 2 Responses Jul 3, 2013

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    Just Diagnosed And Miserable And Alone

    Hi .. my name is kellie and I feel like I was just given a death sentence and my gi dr really could care less as im dwindling aaway here til my appt in july . Ive been in er.. iv hd ivs ... ive been admitted for night and sent home with no real direction. Ive pretty much givin...
    blueyes868 blueyes868 41-45, F 7 Responses Jun 8, 2013

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    I have ulcerative Colitis,

    I have suffered with it for 32 years, and it has not gotten any better, I am and have been taking Azulfidine, and it did help for a while but not any more. I get so worn out from the pain and all the trips to the bath room that i don't do much else any more. I was diagnosed...
    cawgarcia cawgarcia 56-60, F 2 Responses Dec 22, 2013

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    My stress is messing with my body tonight.

    I feel like garbage :/ ....
    DaniCatEyes DaniCatEyes 18-21, F 1 Response Dec 6, 2013

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    Controlling Uc

    I have IBS with UC and control them both with yogurt. No special brand (activia makes things worse- too many bacteria), but I eat yogurt every day and keeps them in check. I recommend yogurt to everyone with a bowel disorder. I hope that everyone else has some luck with their...
    kasey kasey 22-25, F 2 Responses Oct 8, 2007

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    UC Is Back After 10 Yr Remission

    at 15 i was diagnosed with UC one year later it went into remission i am now 25 and its back - its been 3 weeks now. the medication i used to take was rediculous form suppositories, granules i had to eat with every meal, colofac, alavoc, and yellow tablets ( cant remember name...
    leighsmith7 leighsmith7 21-25, F 6 Responses Nov 27, 2007

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    50yr. Old. U.C. For 30 Yrs. Under Control With Lialda And Mercaptopurine. Also Have Fibromyalgia, Which Is More Of An Issue. I Do Have Small Flares Here And There.

    Hi, I was wondering if anyone experiences hip, groin, leg muscle achey type pain. Almost feels like my hips are being push apart, as funny as that sounds. I also have hip joint pain. when I sit down, it does get better. BUT I cant spend all my time sitting! lol . thanx lori
    lorimoco lorimoco 46-50, F 1 Response Nov 30, 2013

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    Mesalamine Options

    Everyone may know this already, but my husband and I didn't so I thought I would share our experience... My husband has UC and was dealing with it for 2 years. We went to a GI in our town and to the mayo clinic.  We tried Asacol, Asacol enimas, and prednisone. None of these...
    pentasafan pentasafan 31-35 1 Response Jan 21, 2009

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    In October of 2012 I was diagnosed with

    Ulcerative Colitis. For the entire month I had watery diarrhea that first caused a UTI. I went to numerous doctors for one to stay I had a stomach bug and others to say all the blood was coming from hemroids. I finally checked into the closest University Hospital where they took...
    dtierney09 dtierney09 22-25, F Dec 5, 2013

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    DO YOU HAVE ULCERATIVE COLITIS ?

    GET PAID $750 TO $1,400 & $20 FOR GAS (VENTURA COUNTY) We are looking for volunteers (18 years of age or older) from all over the area to participate in our Ulcerative Colitis Clinical Trial. Study drugs, Examinations, and Procedures will be provided at no cost. You will be a...
    letsrockourboat letsrockourboat 41-45, M Feb 5

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    I'm a 17 year old girl

    and have Ulcerative Colitis. It used to be a joke that I would "poop" so often. My parents would make jokes about how we would have to rush home or wait at a restaurant for me to go to the bathroom because it wouldn't b long before I had to....you know... This was happening...
    sb97 sb97 16-17, F 2 Responses Jun 29

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    Curing Colitis With Surgery

    I'm 17 and have suffered with colitis for around 2 years now. Was admitted to hospital for a week had IV drips, excruciating pain, blood and ended up going 15 times a day and night at one point. Was discharged and on very high dose of steroids and gained a lot of weight and was...
    Jaffaking123 Jaffaking123 18-21, F 1 Response Nov 16, 2013

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    Uc Newbie! Lots Of Questions!

    Okay, so, I guess I'll start out by telling my story. Sorry about the length but it's been a crazy year. I'm 21 years old, always been healthy, don't smoke, drink, or do drugs. In August of this year, I started having horrible cramps and diarrhea. Sometimes there was blood in the...
    IHateColons IHateColons 18-21 1 Response Dec 13, 2011

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    I'm Free From Ulcerative Colitis

    I have Ulcerative Colitis since 1999. From 1999-2005, my UC is up and down. But most of the time it was down. Until 2005, my wife give me a traditional recipe of CASSAVA Flour. This recipe is not dangerous and no side effect at all. Most important there is no chemical ingredient...
    NavE NavE 31-35, M 4 Responses Apr 16, 2008

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    Colitis Was Just The Beginning Of My Nightmare..

    Hi! I'm a 20 year old female diagnosed with Ulcerative Colitis, Celiac Disease, IBS, Gastritis and Gastroparesis. I also have PMDD and an anxiety disorder. So this is my story, there's plot twists and everything! About a year ago, I had a throat infection, my third for the winter...
    pegasus02 pegasus02 18-21, F 5 Responses Feb 3, 2013

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    21 -Years Old - No Meds - UPDATED!

    hey guys, so i was diagnosed in 2009, i was getting symptoms straight after my 17th birthday. lots of blood and diareah, more blood than anything. i ignored it, didnt tell anyone as i was so embarrased to what people may think of me, i thought it would go away in a couple of days...
    SamiyaK SamiyaK 22-25, F 9 Responses Apr 23, 2013

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    The Link Between Colitis and Emotion

    I've struggled on and off with ulcerative colitis for 4 years now, having been hospitalized for it twice, losing so much blood at one point that I had to have two transfusions.  There are so many different theories about what causes it, what can treat it, etc.  Over the...
    oceanblvd oceanblvd 22-25, F 4 Responses Jun 12, 2008

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    Uc And Lactose-intolerance

    My entire life I have been Lactose-intolerant. When I was 9, it was so bad that I had my first colonoscopy, awake, and fully aware of the situation. They found I had UC, and it has been on my profile since, but nothing was ever done about it.  Shortly after, I went through a...
    Schmusebarchen Schmusebarchen 16-17, F 1 Response Apr 26, 2012

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    I Have Ulcerative Colitis

    So I have had ulcerative colitis since 2003 and I am 18. At the beginning I was just well on the restroom for quite awhile. Then I had horrible stomach pains that would make me vomit. Some time after I started bleeding. I went a year in a half with tons of blood coming out of me...
    askash101 askash101 18-21, F Oct 28, 2013

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    Im 26 And Have Had Uc For 8 Years Now. My Input To Live Without Pain.

    So I was diagnosed with Ulcerative Colitis when I was 18. I know how hard it can be to live with the pain and everything else that comes along with it. For the first few years that I suffered with this disease I had it about as bad as it can be. No option for surgery, a lot of...
    KeithAB KeithAB 26-30, M Apr 12, 2012

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    Living With UC And As A Recovering Alcoholic

    My name is Steve and I have been living with UC for the last eleven years of my life. During the ten years of those eleven years, my life was also spiraling out of control due to my alcoholism. I didn't know how to handle life on life's terms. One of the burdens that sent me...
    shovels7 shovels7 26-30, M 1 Response Jul 17, 2013

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    Gina's Story of Total Colon Removal

    GINA'S SUCCESS STORY OF LIVING WITHOUT A COLON   I was a typical teenager that only wanted to live off hamburger, hot dogs, french fries, Suzie Q's, sunflower seeds and Bologna sandwiches. By the time I was 12 I was having constipation problems enough that I would take an...
    ginajones777 ginajones777 41-45 21 Responses Jul 25, 2008

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    Full Of Sh*T

    This disease gives the saying "you're full of sh*t" a whole new meaning. I was diagnosed with UC after a trip to Bermuda one year ago. When I returned, I stared having blood in my stool, and when I went to the doctor, they decided to give me test after test to determine why I...
    justyouandthelights justyouandthelights 16-17, F 2 Responses Jul 25, 2013

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    12 Years Of Colitis

    Hey all! I've had colitis for 12 years now and have tried many options - basic mesalamines, steroids, even herbal supplements (fish oils, Chinese medicine, homeopathy.)Unfortunately, none of those really worked for me. I then tried a supplement out of India which helped with my...
    ColitisCompound ColitisCompound 22-25 3 Responses Feb 26, 2013

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    How I Got Here Today

    I was diagnosed with UC in Dec of 2010, letting myself bleed a lot for over 3 weeks before I finally decided it wasn't just "on the toilet paper" and I needed to get this looked at. (I was embarrassed, I am one of those girls who likes to think I don't poop, well not so much...
    sleepyniki sleepyniki 41-45, F 2 Responses Oct 19, 2013

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    Asacol

    How many of you have been on asacol? I was just put on it after my insurance dropped my lialda. So far it makes me feel ill, and I read it is not good for ur body. Do you take it everyday or just when you have flare ups? I haven't been able to talk to my doctor because he just...
    deleted deleted 26-30 13 Responses Oct 10, 2009

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    Need help and advice: My bf has been suffering

    from rectal bleed for the past 8 weeks. Along with the bleeding hebos suffering from server hunger. No matter what or how much he eats he never feels full. He has several spouts of watery stools with blood. This usually happens shortly after he eats. We've has many test done...
    lover4life33 lover4life33 31-35, F 1 Response Mar 15

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    Related Experiences

    I was fifteen, and last fall, my sister got incredibly sick. She had always been sick with ulcerative colitis, and it had never affected me. This time was different. Every three...
    kmviolinist kmviolinist 22-25, F 1 Response Aug 10

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