I Have Ulcerative Colitis

Personal Stories, Advice, and Support 472 People

    Mesalamine Options

    Everyone may know this already, but my husband and I didn't so I thought I would share our experience... My husband has UC and was dealing with it for 2 years. We went to a GI in our town and to the mayo clinic.  We tried Asacol, Asacol enimas, and prednisone. None of these...
    pentasafan pentasafan
    31-35
    1 Response Jan 21, 2009

    I was diagnosed with IBS in my early 20s,

    I'm now 32. A year ago I was hospitalized set real times in a three month period. I had a colonoscopy and an endoscopy and was told that I had full blown colitis and they found ulcers in my stomach and intestines but i was told that it was neither Chrons or Ulcerative Colitis...
    sonja82 sonja82
    31-35, F
    1 Response Oct 1, 2014

    The Link Between Colitis and Emotion

    I've struggled on and off with ulcerative colitis for 4 years now, having been hospitalized for it twice, losing so much blood at one point that I had to have two transfusions.  There are so many different theories about what causes it, what can treat it, etc.  Over the...
    oceanblvd oceanblvd
    22-25, F
    4 Responses Jun 12, 2008

    Immovable object. Unstoppable Force.

    Hi, my name is Forrest. I was never lucky enough to just break any bones or sprain an ankle when I was younger.  I am 16 years now old and feel like I  should be at least 40 with all of the medications they've pumped into me so far in an attempt to dent the thing that...
    ARKAngel7 ARKAngel7
    16-17, M
    3 Responses Feb 25, 2011

    I have ulcerative Colitis,

    I have suffered with it for 32 years, and it has not gotten any better, I am and have been taking Azulfidine, and it did help for a while but not any more. I get so worn out from the pain and all the trips to the bath room that i don't do much else any more. I was diagnosed...
    cawgarcia cawgarcia
    56-60, F
    2 Responses Dec 22, 2013

    My Journey to Health Hello!

    I did not accept my “lifetime” diagnosis of ulcerative colitis as permanent and searched for its solution. It is almost a year now since I have taken any medication, I do not have any troubles and feel great. I wrote down my entire story with the experience and knowledge I...
    1980Martin 1980Martin
    36-40, M
    2 Responses Nov 17, 2015

    Gina's Story of Total Colon Removal

    GINA'S SUCCESS STORY OF LIVING WITHOUT A COLON   I was a typical teenager that only wanted to live off hamburger, hot dogs, french fries, Suzie Q's, sunflower seeds and Bologna sandwiches. By the time I was 12 I was having constipation problems enough that I would take an...
    ginajones777 ginajones777
    41-45
    23 Responses Jul 25, 2008

    There Is Hope- 20 Years Remission

    I have recently had a UC flare up after 20 years in remission.  I want you to know that there is hope.   You can be symptom free.    I got UC when I was 13 years old.  UC is a thief that robs you of your youth, and any dream of normal carefree teenage years you could...
    jennsheen jennsheen
    31-35
    2 Responses Mar 23, 2011

    i was just diagnosed with ulcerative colitis

    last month. i'm new everything and i understand some days it's hard on others. if anyone needs someone to talk to feel free to message me. some days i think about this disease and i get a little depressed knowing this is a lifelong disease.
    blankcanvas03 blankcanvas03
    22-25, F
    1 Response Aug 19, 2015

    I'm 15 and I was just diagnosed,

    and I have to take TEN PILLS A DAY. My problem is, some of them are literally the size of my fingernail and I physically can't swallow them. Does anyone have any advice for this?!
    MedusasDaughter MedusasDaughter
    13-15, F
    Feb 15

    UC Is Back After 10 Yr Remission

    at 15 i was diagnosed with UC one year later it went into remission i am now 25 and its back - its been 3 weeks now. the medication i used to take was rediculous form suppositories, granules i had to eat with every meal, colofac, alavoc, and yellow tablets ( cant remember name...
    leighsmith7 leighsmith7
    22-25, F
    6 Responses Nov 27, 2007

    I found what works for me!

    I was diagnosed with unspecified colitis last april. It's not a very severe form, but I was given a large dose of Mesalazine. I tried alternative medicine first and homeopathy, with no results. Then Mesalazine worked fine, but as soon as I finished the pills all my symptoms...
    LolaSparks LolaSparks
    22-25, F
    1 Response Dec 27, 2014

    Uc And Lactose-intolerance

    My entire life I have been Lactose-intolerant. When I was 9, it was so bad that I had my first colonoscopy, awake, and fully aware of the situation. They found I had UC, and it has been on my profile since, but nothing was ever done about it.  Shortly after, I went through a...
    Schmusebarchen Schmusebarchen
    16-17, F
    1 Response Apr 26, 2012

    I'm a 17 year old girl

    and have Ulcerative Colitis. It used to be a joke that I would "poop" so often. My parents would make jokes about how we would have to rush home or wait at a restaurant for me to go to the bathroom because it wouldn't b long before I had to....you know... This was happening...
    sb97 sb97
    18-21, F
    2 Responses Jun 29, 2014

    May 2014 had a sudden onset of ulcerative

    colitis, story short after one misdiagnosis(?) ,3 GI's comment of "Worst colon I've ever seen", 18 day stay in hospital, and 60 less pounds later. have been issue free for about 10 months. I am taking Lialda 5mg a day. Starting to see blood in stool, for couple weeks now. NOT...
    skinnyray skinnyray
    26-30, M
    1 Response Apr 30, 2015

    There are numerous older men in the world

    who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to find women for dating and companionship. The spokesperson reports that many older men have started finding perfect companions through their...
    annacc11 annacc11
    26-30, F
    Sep 18, 2015

    I want to know if anyone has tried helminth

    therapy. Years ago there was a study at the University of Iowa in which 6 refractory patients were cured using suis helminth eggs. One if them went from being bedridden to jigging 5 miles a day. 100% were cured. The National Institute of Health is still studying this treatment...
    syntheticrhyme syntheticrhyme
    46-50, F
    2 Responses Mar 13, 2014

    Asacol

    How many of you have been on asacol? I was just put on it after my insurance dropped my lialda. So far it makes me feel ill, and I read it is not good for ur body. Do you take it everyday or just when you have flare ups? I haven't been able to talk to my doctor because he just...
    deleted deleted
    26-30
    13 Responses Oct 10, 2009

    I'm writing in hopes to help others with UC.

    I was diagnosed 15 years ago, and the last 3.5 years I have been med free w/ no flares. Today I had my 4th colonoscopy which confirmed no colitis. 3.5 years ago I changed my diet, long story short I am now Primal in my eating. The book, "The Primal Blue Print" by Mark Sisson...
    number4cured number4cured
    41-45, M
    2 Responses Feb 12, 2014

    12 Years Of Colitis

    Hey all! I've had colitis for 12 years now and have tried many options - basic mesalamines, steroids, even herbal supplements (fish oils, Chinese medicine, homeopathy.)Unfortunately, none of those really worked for me. I then tried a supplement out of India which helped with my...
    ColitisCompound ColitisCompound
    26-30
    3 Responses Feb 26, 2013

    Ok whoever has this bull**it colitis.

    Can you tell me the diet I should be on? Didn't have a follow up with the doc and I need to know what ok can and cannot eat. Thanks..
    heavymetal99 heavymetal99
    31-35, M
    1 Response Feb 14, 2015

    I'm really tired having this diagnose I have to

    go to school and it's really complicated. I'm really depressed :C
    Ayumikichi Ayumikichi
    18-21, F
    1 Response Sep 17, 2014

    I have ulcerative colitis.

    Since 1993. I found a cure for me, so i thought i would share it with you all. I have been symptom free for years. I'm not a doctor. Your body's are to acidic like mine. I started taking baking soda aluminum free. Not baking powder. i mix 1/2 teaspoon in 8oz water. i drink it in...
    Washme1 Washme1
    51-55, M
    2 Responses Jun 9, 2015

    i was diagnosed when i was 9.

    it develooed after my parents divorced. now in my late 30s ive had numerous flare ups at least once a yr. they all seem to occur whenever I make a lifestyle change. ie i stop drinking alcohol i stop smoking i start exercising. sounds weird but the healthier i try to be the more...
    kelle0408mm kelle0408mm
    36-40, F
    1 Response Feb 9, 2015

    DO YOU HAVE ULCERATIVE COLITIS ?

    GET PAID $750 TO $1,400 & $20 FOR GAS (VENTURA COUNTY) We are looking for volunteers (18 years of age or older) from all over the area to participate in our Ulcerative Colitis Clinical Trial. Study drugs, Examinations, and Procedures will be provided at no cost. You will be a...
    letsrockourboat letsrockourboat
    41-45, M
    Feb 5, 2014

    A Positive Outlook...my Uc Journey

    I was 18 years old when I started having symptoms from my distressed bowel. Initially my family doctor thought I must just have some small tears to cause the bleeding in my stool but as the time went on and more symptoms developed, I was recommended to see a Gastroenterologist...
    cwithersp cwithersp
    26-30
    1 Response Oct 12, 2012

    Man this really really sucks!

    Pain, bleeding out the butt and tiredness😐anybody else have this? I was diagnosed last week and givin pills and it seemed to subside but right after pills were done. BAM! Right back to square one! Frustrating
    heavymetal99 heavymetal99
    31-35, M
    4 Responses Feb 9, 2015

    Hi so I'm 16. I've had UC

    for 7 years now and it's been a real struggle for me. I didn't really understand everything that was going on when I was diagnosed because I was so young so it was really scary. I was in the hospital for about 3 months and was tube fed for the majority of my time there. I had 2...
    KimWiz20 KimWiz20
    16-17, F
    1 Response May 30, 2015

    So I'm 17 years old and I'm schedule

    for a laparoscopic colectomy next month.. I'm really nervous about it even though everything I've read about the surgery says it has great results.. I'm worried about the scars and wether or not ol feel comfortable with my body after (shallow I know) also, I've read about people...
    scottc29 scottc29
    18-21, M
    1 Response Feb 12, 2014

    I just feel so alone.

    Like no one really understands. It makes me frustrated when people don't get it but at the same time I don't always give them the opportunity to. I wish I had someone I could talk to who also has UC. I just don't have anyone like that.
    KimWiz20 KimWiz20
    16-17, F
    2 Responses Aug 8, 2015

    Uc Newbie! Lots Of Questions!

    Okay, so, I guess I'll start out by telling my story. Sorry about the length but it's been a crazy year. I'm 21 years old, always been healthy, don't smoke, drink, or do drugs. In August of this year, I started having horrible cramps and diarrhea. Sometimes there was blood in the...
    IHateColons IHateColons
    18-21
    1 Response Dec 13, 2011

    I'm Free From Ulcerative Colitis

    I have Ulcerative Colitis since 1999. From 1999-2005, my UC is up and down. But most of the time it was down. Until 2005, my wife give me a traditional recipe of CASSAVA Flour. This recipe is not dangerous and no side effect at all. Most important there is no chemical ingredient...
    NavE NavE
    31-35, M
    4 Responses Apr 16, 2008

    Colitis Was Just The Beginning Of My Nightmare..

    Hi! I'm a 20 year old female diagnosed with Ulcerative Colitis, Celiac Disease, IBS, Gastritis and Gastroparesis. I also have PMDD and an anxiety disorder. So this is my story, there's plot twists and everything! About a year ago, I had a throat infection, my third for the winter...
    pegasus02 pegasus02
    18-21, F
    5 Responses Feb 3, 2013

    My stress is messing with my body tonight.

    I feel like garbage :/ ....
    DaniCatEyes DaniCatEyes
    22-25, F
    1 Response Dec 6, 2013

    You Can't Spell Sucks Without Uc

     It was a little over a year ago.  I had visited a friend that lived near a bunch of orchards and bought some apple butter from a road side stand.  I ate some the next morning and was sick in a few hours.  I thought it was the stomach flew so I just took a few...
    jwjwjwjwjw jwjwjwjwjw
    22-25, F
    1 Response Mar 22, 2008

    I found out about a month

    after my Dad died. I had been problems for months but no one really paid attention then one day my mom used the bathroom after me and a little was left there after I flushed the toilet, and she just said that's not how that is supposed to look, we have to see a GI. so I did got...
    WhirlwindR WhirlwindR
    22-25, M
    Apr 21

    Ulcertive Colitis And Colostomy Story

    I was 14 when I got diagnosed with UC I didn't think much of it at the time, doc just put me on some pills and I was good for a few months. In 2011 the symptoms came back and my colon was badly inflamed so I went back to the doctor who put me on prendezone (steroids), but after...
    anonymus01 anonymus01
    18-21, M
    1 Response Oct 12, 2013

    50yr. Old. U.C. For 30 Yrs. Under Control With Lialda And Mercaptopurine. Also Have Fibromyalgia, Which Is More Of An Issue. I Do Have Small Flares Here And There.

    Hi, I was wondering if anyone experiences hip, groin, leg muscle achey type pain. Almost feels like my hips are being push apart, as funny as that sounds. I also have hip joint pain. when I sit down, it does get better. BUT I cant spend all my time sitting! lol . thanx lori
    lorimoco lorimoco
    51-55, F
    1 Response Nov 30, 2013

    21 -Years Old - No Meds - UPDATED!

    hey guys, so i was diagnosed in 2009, i was getting symptoms straight after my 17th birthday. lots of blood and diareah, more blood than anything. i ignored it, didnt tell anyone as i was so embarrased to what people may think of me, i thought it would go away in a couple of days...
    SamiyaK SamiyaK
    22-25, F
    7 Responses Apr 23, 2013

    In October of 2012 I was diagnosed with

    Ulcerative Colitis. For the entire month I had watery diarrhea that first caused a UTI. I went to numerous doctors for one to stay I had a stomach bug and others to say all the blood was coming from hemroids. I finally checked into the closest University Hospital where they took...
    dtierney09 dtierney09
    22-25, F
    Dec 5, 2013

    Ulcerative Colitis

    I am living with ulcerive colitis, i was diagnosed with colitis, last year after i had given up smoking, but i have always had a bowel problem,as long as i can remember, i gave up smoking 15 years ago too and i had the runs with blood and mucus there, but the doctor said i had...
    rustydy rustydy
    51-55, F
    2 Responses Mar 27, 2008

    Living With UC And As A Recovering Alcoholic

    My name is Steve and I have been living with UC for the last eleven years of my life. During the ten years of those eleven years, my life was also spiraling out of control due to my alcoholism. I didn't know how to handle life on life's terms. One of the burdens that sent me...
    shovels7 shovels7
    26-30, M
    1 Response Jul 17, 2013

    There are numerous older men in the world

    who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to find women for dating and companionship. The spokesperson reports that many older men have started finding perfect companions through their...
    kyliecc11 kyliecc11
    26-30, F
    Jun 10, 2015

    Need help and advice: My bf has been suffering

    from rectal bleed for the past 8 weeks. Along with the bleeding hebos suffering from server hunger. No matter what or how much he eats he never feels full. He has several spouts of watery stools with blood. This usually happens shortly after he eats. We've has many test done...
    lover4life33 lover4life33
    36-40, F
    1 Response Mar 15, 2014

    Full Of Sh*T

    This disease gives the saying "you're full of sh*t" a whole new meaning. I was diagnosed with UC after a trip to Bermuda one year ago. When I returned, I stared having blood in my stool, and when I went to the doctor, they decided to give me test after test to determine why I...
    justyouandthelights justyouandthelights
    16-17, F
    2 Responses Jul 25, 2013

    18 Years and Thriving

    I was properly diagnosed with UC when I was 15 years old... but I expressed symptoms as early as age four. I regulate my symptoms and general discomfort with careful diet, a low-stress lifestyle, and sense of humor.
    bookofchange bookofchange
    31-35, F
    3 Responses Sep 22, 2007

    DO YOU HAVE ULCERATIVE COLITIS ?

    GET PAID $750 TO $1,400 & $20 FOR GAS (VENTURA COUNTY) We are looking for volunteers (18 years of age or older) from all over the area to participate in our Ulcerative Colitis Clinical Trial. Study drugs, Examinations, and Procedures will be provided at no cost. You will be a...
    letsrockourboat letsrockourboat
    41-45, M
    Feb 5, 2014

    I just got diagnosed two weeks ago with

    ulcerative colitis. I'm lucky I caught it early, my brother had a lot of complications when he was diagnosed with crohns disease. I'm 22 years old and I was beginning my first week of my last year in art school. I had the frequent diarrhea, red / black blood, and extreme...
    cmandel cmandel
    22-25, F
    Sep 14, 2014

    I was 13 when I started showing signs of UC,

    however wasn't diagnosed until I was 15. The endoscopy and colonoscopy was very scary at the time! It was a really hard time for me as it was really bad and I had that constant need to go to the toilet along with all the pains and vomiting. It's been a few years since I was...
    TansssIBDxUC12 TansssIBDxUC12
    18-21, F
    Oct 31, 2014

    Controlling Uc

    I have IBS with UC and control them both with yogurt. No special brand (activia makes things worse- too many bacteria), but I eat yogurt every day and keeps them in check. I recommend yogurt to everyone with a bowel disorder. I hope that everyone else has some luck with their...
    kasey kasey
    22-25, F
    2 Responses Oct 8, 2007

    I was told I had IBS about severn years go,

    my Dad may he RIP, paid for me to have private tests and hey presto, really sorry you have Chronic UC, also may have undertimined Crohns WTF don't go there! lol
    theenglishrose theenglishrose
    41-45, F
    1 Response Mar 1, 2015

    Feeling So Down

    My name is Sasha i am 22 years old. I was diagnosed with UC in 2009. I had to deal with dropping out of my first year of college in order to get better. I was in remission for a long time and recently have been experiencing the ugly side of UC. I have so many procedures and...
    SashaShmurak SashaShmurak
    22-25, F
    4 Responses Apr 3, 2013

    Tapioca (cassava) Flour As a Treatment For Ulcerative Colitis

    I read a few weeks ago about a gentleman on another website treating his ulcerative colitis with tapioca flour (also known as cassava root). He said all he did was mix a few teaspoons of the flour with lukewarm water, some sugar and some salt (the latter two for taste), and his...
    uceric uceric
    36-40, M
    8 Responses Jun 7, 2007
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