I Have Vasculitis, Autoimmune

A Vasculitis, Autoimmune anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Vasculitis, Autoimmune. You're not alone. 14 People

    When I Was 17, I Developed The Rarest Type Of The Vasculitis Family Of Rare Diseases...

    When I was 17, I was diagnosed with children's Primary Angiitis of the Central Nervous System (cPACNS), also known as primary central nervous system vasculitis (PCNSV). The term "primary" refers to the fact that there is no other underlying disease or additional disease that...
    Chelsey73 Chelsey73
    22-25, F
    Dec 24, 2011

    Cns Vasculitus

    Hi my daughter who is 11 was diagnosed with Cns vasculitus in aug 2012. She has been having chemo to try and get this under control. We are currently in hospital as she is having a relapse and has gone blind in 1 eye this morning, I'm looking for others who have this condition...
    Jessmam Jessmam
    41-45, F
    Nov 27, 2012

    Cns Vasculitisi

    I have been dealing with this disease for over 7 years, but I truly started fighting for a "normal" life. I was a teacher of 4th grade for about 11 years, but had to quit working. I now stay at home. In just this past year I have started being involve with kids at my church. I...
    mercypeace mercypeace
    1 Response Aug 16, 2012

    Anca Associated Vasculitis (?)

    Let me start by saying I live is a small, rural community of 6,000 in Wyoming a few miles from Montana. After being in crazy horrible pain I went to my GP, a recent graduate form medical school. By the grace of God she diagnosed me with probable vasculitis in 2 weeks. She...
    moosefire moosefire
    1 Response Aug 22, 2012

    Hello, New here....miserable

    and looking for advice, commiserators... anyone with similar symptoms... Any help, or relatable story would be so appreciated. I was recently diagnosed with Vasculitis based on a positive ANCA test and symptoms of arms and legs burning/tingling, joint pain and extreme fatigue...
    awildfly9 awildfly9
    36-40, F
    1 Response Jul 19, 2014

    My symptoms started when I was 16.

    I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just had migraines. My symptoms got worse over the years and I went to 7-8 different doctors who all said different things. Some said I had...
    eeeck eeeck
    Jul 21, 2014
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