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I Have Vestibular Migraine

Personal Stories, Advice, and Support 64 People

    New Diagnosis of Vestibular Migraines - I have been burdened with many of the same symptoms for 2 1/2 years now. It all started with awful dizziness, facial pressure and ear...
    vestdizzy vestdizzy 41-45 5 Responses Nov 30, 2008

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    New Diagnosis, Same Monster - So, I have vertigo AGAIN. This time the vertigo's been hanging around for a month so far. Today I just got a new diagnosis of vestibular migraines. I...
    DizzyNotLizzy DizzyNotLizzy 31-35 Oct 25, 2010

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    A Glimmer Of Hope, A Cure - Imagine this disease without the panic.. i think that's our cure. Eliminate the panic and the wrong foods and we should be able to function normally...
    SOPHDOG SOPHDOG 22-25, F 2 Responses Oct 1, 2013

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    Vestibular Migraines - I have this terrible condition . i have trouble relating it to a migraine .most days i am unbalanced .need to suport myself  against a wall .conatant...
    jano1953 jano1953 56-60 2 Responses Dec 16, 2010

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    The Start - In July I started this adventure. I was passed from Dr. to Dr. and put on different meds by all of them. Four months of being miserable and feeling drunk nonstop I...
    dizzycrazygirl dizzycrazygirl 36-40, F 1 Response Apr 18, 2013

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    I Thought I Was Dying - So, I was diagnosed back in April with Vestibular Migraine.  I was a lot like all of you, I went to countless doctors and had a million tests done and...
    bubs2051 bubs2051 26-30, F 2 Responses Feb 4, 2010

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    i KNOW i can help. I have had Vestibular Migraines for 4 years now and I have a step by step way to take back control of your life and go back to living. Now before i go any...
    SOPHDOG SOPHDOG 22-25, F Apr 3

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    My name is Donna and I'm 43 years old. I had ear surgery on my right ear in October 2013 to repair a perforated eardrum; I was only supposed to be off work for about a week and...
    dlsmith728 dlsmith728 41-45, F Apr 2

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    Lets Fight This Together! - Its been three years for me. Three years of not knowing, not understanding, and losing all trust in my body. This thing has made me afraid…this I...
    SOPHDOG SOPHDOG 22-25, F May 30, 2013

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    My Migrane Is Stopping Me From Living. - I'm 14 years old and suffering from vestibular migrane I got diagnosed just this week and I don't really know how to live with it it's hard...
    Allycat439 Allycat439 13-15 2 Responses Feb 11, 2013

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    It's Been A Long Journey - I'm so glad I found this site, thanks. My story is just starting to make sense to me, especially after reading more stories here. For a very long time...
    Mnisbett Mnisbett 46-50, M Nov 8, 2012

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    I Have Vestibular Migraines - Since this past May I have been very dizzy, lose my balance daily, walk like I am drunk, fall into walls.  After tests upon tests I finally was...
    Sherry2554 Sherry2554 51-55 8 Responses Dec 6, 2008

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    Is My Doctor Right Or Wrong ? - I have Silent Migraines my doctor try me on a med for a week did not work .I see wavy lines and sparling in vision 24/7 even when I close my eyes...
    kellner27 kellner27 18-21, F 2 Responses Apr 11, 2012

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    Trying To Sort It Out - I've always had migraines (I am 40. Uggh... )... but they were few and far between. Nothing that ever needed treatment. One morning in July I woke up with a...
    ReneeN ReneeN 36-40 2 Responses Oct 26, 2013

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    Story Changed: I Most Likely Don't Have Vestibular Migraine - I just came back from the neurologist and now the story has totally changed. He told me that most likely I don't have...
    ftw7771 ftw7771 22-25, F 1 Response Aug 13, 2012

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    Hope To Help Someone Out There...? - Hi I was sick some years ago with what I thought was the worst migraine. I was hospitalised for a week having lumbar punctures, MRI, blood...
    stoptherideiwannagetoff stoptherideiwannagetoff 41-45, F Nov 24, 2011

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    My Entire Life. - I'm about to turn fourteen. I've had vertigo spells for as long as I can remember, happening anywhere from school to hiking trips, and they lasted anywhere from...
    FoxHoodedRabbits FoxHoodedRabbits 13-15, F 1 Response Jun 25, 2013

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    This Is My Life - Migraine can have many unusual forms .....it is NOT just a headache and can be extremely debilitating making it nigh on impossible to lead a "...
    lostbird lostbird 51-55, F 13 Responses Jun 27, 2008

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    Extreme Motion Sensitivity - OFor many years i live in a state of floating.  When I wake up in the morning my head fills great pressure, this usually gets better.  I...
    ifloating ifloating 66-70, F 3 Responses Mar 16, 2010

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    Found You At Last! - So here I am. At last I know that there are really, really people out there who understand. It may sound a little over the top but I'm a bit teary with relief...
    jolouJo jolouJo 41-45 1 Response Jul 29, 2013

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    I'd Like to Blow It Off - I've never gotten migraines until a few years ago.  Mine get so bad, I'd like to blow my head off.  I guess I'll never make fun of my sister for...
    Neveah Neveah 16-17, F 1 Response Jun 27, 2008

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    Dizzy For Over 9 Years. - Hello to all my Dizzy fellows:I have been feeling dizzy and off balance for over 10 years and this is the first time I thought of joining a group in the...
    avayner avayner 36-40 6 Responses Jun 22, 2011

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    Living With Vestibuler Migranes - I was diagnosed with vestibuler migranes after years of ent appointments ,as kept having vertigo attaks along with constent dizzinesss all day...
    mgcjxxxx mgcjxxxx 31-35 2 Responses Jul 5, 2013

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    Vestibular Migraines - Slow Progress - I was diagnosed with vestibular migraines last year after 5 years of debilitating nausea, dizziness, vertigo etc. Am now working from home as...
    aimster aimster 26-30 Mar 6, 2011

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    Frustrated - Going back to a neurologist soon. My balance is acting up again and it feels like I'm walking on a boat. I don't even know if I have vestibular migraines anymore. I...
    ftw7771 ftw7771 22-25, F 1 Response Jul 16, 2012

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    I Don't Think They Know!!!!!!! - It's been 2yrs for me,it started after the Flu, I've been told Meniere’s Disease 2 yrs ago. 2 different things just in the last 2 wks from VM to...
    skipu2 skipu2 41-45 Sep 10, 2012

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    I Still Have Vestibular Migraine -  I still have vestibular migraine!!!!! 1o months later, I have tried Isoptin, Topamax, Sandomigran and put on 7kg and back on Topamax to...
    becmirosevic becmirosevic 26-30 14 Responses Dec 1, 2008

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    A Little Quote Of The Day For Those Of You Frustrated - Hello, My cousin and i were talking and she told me this quote it really resinated with me and i thought id share. We were...
    SOPHDOG SOPHDOG 22-25, F May 31, 2013

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    I Am Concerned I Will Never Feel Normal Again. - I experienced dizziness for 6 months in 2007 - I was unable to work during thIs time. Had MRI and full neurological tests. Was...
    Lkc051260 Lkc051260 46-50 2 Responses Jun 1, 2011

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    The War Against Myself, Locked In The Prison Of Me, When Will It End? - Hey, Its been about 4 years now, only about 6 months of finally knowing what i have. Im tired. My life is...
    SOPHDOG SOPHDOG 22-25, F 2 Responses Sep 17, 2013

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    I have Vestibular Migraines. -     My symptoms first started about a year ago. For me the feeling of being off balance is the most predominant symptom. I don't get many headaches...
    ftw7771 ftw7771 22-25, F 4 Responses Jun 30, 2012

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    ~ - Hi. I'm turning 13 in a few months. I've had vestibular migrane since.... Forever. I think I was born with it. I get dizzy spells that last a minimum of two hours, sometimes...
    SurviveTheStorm SurviveTheStorm 13-15, F Apr 3, 2012

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    A Second Opinion Is Worth Its Wieght In Gold. - June 2009 I began having feelings of vertigo but not real strong and really indescribable. Within a month they had become very...
    dizzycricket dizzycricket 46-50, M 1 Response Jun 18, 2012

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    They Just DONT Get It Nor TRY To Understand - I wanna start by getting deep and very truthful. I sometimes want to be everyone's superman if i can make it better for someone then...
    SOPHDOG SOPHDOG 22-25, F 1 Response Jul 16, 2013

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    Related Experiences

    Migraines have been plaguing my life for two years now. I was diagnosed with fibromyalgia and they soon started after that. I have ice pick headaches which have been bigger in...
    LouiseLondon LouiseLondon 31-35, F Mar 26

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    No official diagnosis yet but it most likely CD. I have had migraines for 3 years. About 3 months ago I 'passed out.' I really don't remember myself. Here is what I do remember...
    Ajokd Ajokd 36-40, F Mar 22

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    I have been getting migraine headaches since I was ten. They are hereditary. I tried so many type of medicines and eventually found a daily medication. My migraines are triggered...
    katiemaestacey katiemaestacey 18-21, F 2 Responses Mar 20

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    Hey kids....just found this site and thought I'd add my two cents...so to speak...I've had about 6 of these..sheesh....my first one had my wife call 911..thought I had a stroke...
    vgoode1 vgoode1 61-65 1 Response Mar 23

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    My neurologist technically gave up on me...she gave me a referral to the headache clinic at the university of Michigan. I go there on the 19th of June... But....in the mean time I...
    kiesterdee6 kiesterdee6 22-25, F Apr 7

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    My migraines started in 7th grade and it's junior year and they still persist. They aren't everyday anymore but now they are either barely there enough to annoy me(which is usually...
    kxCobra kxCobra 18-21, F 2 Responses Mar 24

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    ... The best times with migraines were the times when the pain drove me to vomiting to the point of pained dry heaving... At the same time,of course increasing the blood pressure...
    SShawnO SShawnO 41-45, M Mar 18

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    Along with normal migraines, I get a type of headache that is so rare, I might be the only person who has it. It perfectly mirrors the pain of having an eyelash in your eye...
    MovieJunkie MovieJunkie 13-15, F Mar 23

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    I've has migraines since I was 8 years old they're worst in the winter. They come and go everyday. Sometime light noise or smell will bring one on. Its still a little frustrating.
    beautifullywrittenambition beautifullywrittenambition 18-21, F 1 Response 2 days ago

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    It feels like my brain is coming out of my eyes and nothing can make noise around me. It sucks my first migraine was on 6th grade.
    792kiss 792kiss 13-15, F 2 days ago

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    Currently stuck in class with the start of the migraine I feel like the light is piercing my eyes and the sounds are tearing my eardrums and I feel like I may pass out if I can't...
    Acacia21 Acacia21 16-17, F 2 days ago

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    Blows my mind how cookie cutter migraines are; so very predictable; as I read each experience, I realize I could almost copy/paste to share my own. The warning blur... sensory...
    awakenalive79 awakenalive79 31-35, F 2 Responses Mar 21

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    I started having severe migraines at the end of 2008, but I was dealing with it. In June of 2009 I ended up at the hospital I couldn't take it anymore. They did blood work and an...
    rascal1974 rascal1974 36-40, F 2 Responses 4 hrs ago

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    Every day I wake up expecting to wake up with one, and if I don't have one then then i expect one all day long. I take all kinds of medication once i get one and a few before...
    helsingrise helsingrise 16-17, M 4 days ago

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    I'm 15 years old almost 16 getting ready to drive. I always had big dreams. I wanted to go to Stanford, I got straight A's, I always tried to be the best of the best. I know now...
    shybutkindd shybutkindd 13-15, F 3 Responses Mar 18

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    Hey I need help. it's URGENT! My doctor was concerned in the past because my last blood test my thyroid was on the line. Not bad not good but she was worried it was getting worse...
    shybutkindd shybutkindd 13-15, F 2 Responses Mar 23

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    Hey I need help. it's URGENT! My doctor was concerned in the past because my last blood test my thyroid was on the line. Not bad not good but she was worried it was getting worse...
    shybutkindd shybutkindd 13-15, F Mar 23