I Have Vestibular Migraine

Personal Stories, Advice, and Support 92 People

    I Have Vestibular Migraines

    Since this past May I have been very dizzy, lose my balance daily, walk like I am drunk, fall into walls.  After tests upon tests I finally was diagnosed with this Dec 04, 2008.  I can be sitting in the chair, out of the clear blue everything starts spinning, voices are...
    Sherry2554 Sherry2554
    9 Responses Dec 6, 2008

    I have recently been diagnosed with Vestibular

    Migraines. I have had trouble with my ears since puberty, cholesteatomas, Eustachian tube dysfunction, multiple surgeries, etc. In August 2013, I started with sinus pain / light sensitivity and was put on antibiotics to treat the "sinus infection" on & off over the next three...
    Outriggers Outriggers
    41-45, F
    Aug 8, 2014

    Hope To Help Someone Out There...?

    Hi I was sick some years ago with what I thought was the worst migraine. I was hospitalised for a week having lumbar punctures, MRI, blood work. I couldnt' walk to the toilet as I kept falling down and had to cling to the walls. Nothing was found in my test so I was sent home...
    stoptherideiwannagetoff stoptherideiwannagetoff
    41-45, F
    Nov 24, 2011

    Anyone out there have experience with Elavil

    as treatment. I am recently diagnosed and am on week 4 of Elavil with no results. I am a zombie.
    sstrack1 sstrack1
    61-65, F
    Jul 21, 2014

    I Thought I Was Dying

    So, I was diagnosed back in April with Vestibular Migraine.  I was a lot like all of you, I went to countless doctors and had a million tests done and was consistently frustred when each and every doctor would come back and say they found nothing.  I noticed that I do...
    bubs2051 bubs2051
    26-30, F
    2 Responses Feb 4, 2010

    The Start

    In July I started this adventure. I was passed from Dr. to Dr. and put on different meds by all of them. Four months of being miserable and feeling drunk nonstop I woke up and it was just gone. Just like it started just gone. I was sooo happy! I went back to work and other...
    dizzycrazygirl dizzycrazygirl
    36-40, F
    1 Response Apr 18, 2013

    A Glimmer Of Hope, A Cure

    Imagine this disease without the panic.. i think that's our cure. Eliminate the panic and the wrong foods and we should be able to function normally. (Read the book "Heal My Headache" to know exactly which foods to eliminate, THIS IS IMPORTANT foods are huge triggers) We have to...
    26-30, F
    2 Responses Oct 1, 2013

    The War Against Myself, Locked In The Prison Of Me, When Will It End?

    Hey, Its been about 4 years now, only about 6 months of finally knowing what i have. Im tired. My life is full of fighting myself. There are two people inside me. The person with Vestibular Migraines and the person without. The person dealing with it and the person trying to...
    26-30, F
    1 Response Sep 17, 2013

    New Diagnosis of Vestibular Migraines

    I have been burdened with many of the same symptoms for 2 1/2 years now. It all started with awful dizziness, facial pressure and ear pressure and pain that sent me to an ENT 2 yrs ago. I was put on antibiotics and a steroid(prendisone) for a possible infection. I didn't...
    vestdizzy vestdizzy
    5 Responses Nov 30, 2008

    Story Changed: I Most Likely Don't Have Vestibular Migraine

    I just came back from the neurologist and now the story has totally changed. He told me that most likely I don't have a vestibular problem because all the tests came back normal... I have no idea what could be making me dizzy, especially for this long. I guess some people just...
    ftw7771 ftw7771
    22-25, F
    Aug 13, 2012

    My inner ear problems began in 2009.

    It started with a head cold, whereby my right ear felt stopped up. In 2013 I had my first vertigo attack. Soon after, I was diagnosed with Meniere's Disease. The low salt diet prescribed did nothing to alleviate the many symptoms, i.e., dizziness, lack of balance, noises (right...
    MyMigraine MyMigraine
    61-65, M
    Apr 21, 2015

    This Is My Life

    Migraine can have many unusual forms .....it is NOT just a headache and can be extremely debilitating making it nigh on impossible to lead a "normal" life. Vestibular migraine affects the balance system and is characterised by episodes of vertigo and can last...
    lostbird lostbird
    51-55, F
    15 Responses Jun 27, 2008

    They Just DONT Get It Nor TRY To Understand

    I wanna start by getting deep and very truthful. I sometimes want to be everyone's superman if i can make it better for someone then that makes me happy. But i began to think of my last post, that was optimistic and hopeful and i thought of the people and the times that you just...
    26-30, F
    1 Response Jul 16, 2013

    Living With Vestibuler Migranes

    I was diagnosed with vestibuler migranes after years of ent appointments ,as kept having vertigo attaks along with constent dizzinesss all day every day.doctors put me on lycria 75mg but still not working and my condtions am getting worse,not being able to drive or walk very far...
    mgcjxxxx mgcjxxxx
    3 Responses Jul 5, 2013

    Lets Fight This Together!

    Its been three years for me. Three years of not knowing, not understanding, and losing all trust in my body. This thing has made me afraid…this I hate the most. Im constantly scared. Scared it will happen and I wont be able to run, I wont be able to concentrate, I’ll be...
    26-30, F
    May 30, 2013

    It's Been A Long Journey

    I'm so glad I found this site, thanks. My story is just starting to make sense to me, especially after reading more stories here. For a very long time, at least 20 years I've been dealing with these attacks that are very debilitating and come on with very little warning. I first...
    Mnisbett Mnisbett
    46-50, M
    Nov 8, 2012

    Dizzy For Over 9 Years.

    Hello to all my Dizzy fellows:I have been feeling dizzy and off balance for over 10 years and this is the first time I thought of joining a group in the hopes of finding advice and some kind of relief. My story started 9 years ago. I am unsure what caused the begining of my...
    avayner avayner
    11 Responses Jun 22, 2011

    Trying To Sort It Out

    I've always had migraines (I am 40. Uggh... )... but they were few and far between. Nothing that ever needed treatment. One morning in July I woke up with a horrendous vertigo attack that sent me to the ER. That was treated with the Epley Maneuver and I was fine in about a week...
    ReneeN ReneeN
    2 Responses Oct 26, 2013

    I discovered I have a vestibular disorder.

    I was diagnosed by a vestibular physiotherapist August 2015 ...I was having severe vertigo attacks with nausea vomiting and feeling like I was in a washing machine that was being dropped out of an aircraft. .....apparently it's a damaged nerve....the vestibular ocular reflex...
    deleted deleted
    2 Responses Jan 27, 2016

    Waking To A Migraine

    ~ Nothing but pain upon awakening Made worse by all the light Being forced upon me by the world, Oh how I wish it was still night. Open eyes drawing in What I do not wish to see, Voices turning me into something I do not wish to be. Attempts to move upward Fail more than...
    direfarewell direfarewell
    13-15, F
    Nov 18, 2012

    Vestibular Migraines

    I have this terrible condition . i have trouble relating it to a migraine .most days i am unbalanced .need to suport myself  against a wall .conatant earaches ;tinnitus never goes away .cannot sleep ,cant stand noise .stagger .i have had many tests and afte two years i got...
    jano1953 jano1953
    2 Responses Dec 16, 2010

    I was diagnosed more

    than a year and a half ago, but it's taken some courage to post what I went, and am currently still going, through. My symptoms include extreme mind-numbing dizziness, speech problems, facial tics, and confusion. I rarely get the migraine part of the "Vestibular Migraine", but...
    neededthehelp neededthehelp
    18-21, F
    1 Response Sep 11, 2015

    I just recently got answers about

    why I have migraines and so often dizziness and balance problems: Vestibular Migraines. The problem is, after five years, it just keeps getting worse! I like to volunteer and work and be active but it's getting dangerous to be by myself. I'm young and it sucks that people don't...
    zay194 zay194
    22-25, F
    3 Responses Oct 17, 2014

    hi everyone my names tracy

    and im not sure if i have vestibular migraine im waiting to see a neurologist in january. My symptoms started about 6 months ago i went to drive b to the supermarket and felt a wave of dizziness like i was going to pass out which led to me having a massive anxiety attack and i...
    hineora hineora
    31-35, F
    1 Response Dec 17, 2015

    Is My Doctor Right Or Wrong ?

    I have Silent Migraines my doctor try me on a med for a week did not work .I see wavy lines and sparling in vision 24/7 even when I close my eyes for about 2 years that never go away.My other doctor I had in the past say its only to last 20 min or so .I told my doctor about the...
    kellner27 kellner27
    18-21, F
    3 Responses Apr 11, 2012

    I Am Concerned I Will Never Feel Normal Again.

    I experienced dizziness for 6 months in 2007 - I was unable to work during thIs time. Had MRI and full neurological tests. Was diagnosed with vestibular migraine as everything else was ruled out. Was prescribed endep and one other drug then allegron - this was successful - Stayed...
    Lkc051260 Lkc051260
    2 Responses Jun 1, 2011

    My Entire Life.

    I'm about to turn fourteen. I've had vertigo spells for as long as I can remember, happening anywhere from school to hiking trips, and they lasted anywhere from a half hour to two and a half days. I couldn't go out late at night for fear of becoming sick. I'd wake up in the...
    FoxHoodedRabbits FoxHoodedRabbits
    18-21, F
    1 Response Jun 25, 2013

    A Little Quote Of The Day For Those Of You Frustrated

    Hello, My cousin and i were talking and she told me this quote it really resinated with me and i thought id share. We were talking about no one understand us. She is often ill as well. I know many of you feel the same way. Here is a little quote. Sit with it. Let m know what you...
    26-30, F
    1 Response May 31, 2013

    I'd Like to Blow It Off

    I've never gotten migraines until a few years ago.  Mine get so bad, I'd like to blow my head off.  I guess I'll never make fun of my sister for complaining about her headaches again!!!! See thats what happens.  These are so bad, I am unable to move, function...
    Neveah Neveah
    18-21, F
    1 Response Jun 27, 2008

    My Migrane Is Stopping Me From Living.

    I'm 14 years old and suffering from vestibular migrane I got diagnosed just this week and I don't really know how to live with it it's hard going to school everyday as I find it extremely difficult to concentrate in busy places eg: school it's hard to deal with and usually leaves...
    Allycat439 Allycat439
    4 Responses Feb 11, 2013

    Extreme Motion Sensitivity

    OFor many years i live in a state of floating.  When I wake up in the morning my head fills great pressure, this usually gets better.  I will continue to feel dizzy in a floaty way for days, months and even years.  When it lasts a long time I do get nauseous but...
    ifloating ifloating
    66-70, F
    3 Responses Mar 16, 2010

    i KNOW i can help. I have had Vestibular

    Migraines for 4 years now and I have a step by step way to take back control of your life and go back to living. Now before i go any further, please remember i know you may read this and it may come off that i think its easy to get through this, trust me, i know its not. I have...
    26-30, F
    1 Response Apr 3, 2014

    Vestibular Migraines - Slow Progress

    I was diagnosed with vestibular migraines last year after 5 years of debilitating nausea, dizziness, vertigo etc. Am now working from home as I could no longer stand travel to work due to motion sickness and time in office due to visual vertigo. Suffered terrible anxiety and...
    aimster aimster
    Mar 6, 2011

    New Diagnosis, Same Monster

    So, I have vertigo AGAIN. This time the vertigo's been hanging around for a month so far. Today I just got a new diagnosis of vestibular migraines. I hope and pray it's finally the right diagnosis and the right medication to help me. 2 years ago, I had vertigo for a month. 3...
    DizzyNotLizzy DizzyNotLizzy
    Oct 25, 2010

    My name is Donna and I'm 43 years old.

    I had ear surgery on my right ear in October 2013 to repair a perforated eardrum; I was only supposed to be off work for about a week and then I was supposed to be good to go. I went back to work for two and a half days and was taken from work by ambulance after suffering from...
    dlsmith728 dlsmith728
    46-50, F
    1 Response Apr 2, 2014

    I Still Have Vestibular Migraine

     I still have vestibular migraine!!!!! 1o months later, I have tried Isoptin, Topamax, Sandomigran and put on 7kg and back on Topamax to see if I can handle the side effects a bit better, and still no closer to seeing light at the end of the tunnel. I feel as though I ...
    becmirosevic becmirosevic
    14 Responses Dec 1, 2008

    I Don't Think They Know!!!!!!!

    It's been 2yrs for me,it started after the Flu, I've been told Meniere’s Disease 2 yrs ago. 2 different things just in the last 2 wks from VM to Vestibular Schwannoma,cause of the growth they see on the nerve on my left side inner ear. The ENT says it's not that bad the Neuro...
    skipu2 skipu2
    Sep 10, 2012

    A Second Opinion Is Worth Its Wieght In Gold.

    June 2009 I began having feelings of vertigo but not real strong and really indescribable. Within a month they had become very strong and had me propped on the end of my sofa with my head supported most of the time. My wife was attending tech.school so from 2pm until 9pm mon...
    dizzycricket dizzycricket
    46-50, M
    1 Response Jun 18, 2012

    Hi. My name is Cassie.

    I am 23 years old and I am always dizzy/off balance. It's becoming to be so stressful. I had my second kid 8 months ago. I started having problems 3 months after he was born. First with bad headaches and then they stopped. About 3 1/2 months ago I started to experience what I...
    Marteli3824 Marteli3824
    22-25, F
    4 Responses Sep 15, 2015

    Found You At Last!

    So here I am. At last I know that there are really, really people out there who understand. It may sound a little over the top but I'm a bit teary with relief. But I'm meant to be sharing my story so here goes.... I can clearly remember the day it started. I was in a large...
    jolouJo jolouJo
    1 Response Jul 29, 2013

    Hi. I am new to this site.

    I am a 50-year-old female. I started getting migraines around age 30. They became chronic after a few years and have been having them chronically, pretty much every week, sometimes more than once a week for the past 14 years or so. They have been somewhat better lately, with...
    KarenMac2 KarenMac2
    51-55, F
    1 Response Jul 21, 2015


    Going back to a neurologist soon. My balance is acting up again and it feels like I'm walking on a boat. I don't even know if I have vestibular migraines anymore. I wish there was a treatment.
    ftw7771 ftw7771
    22-25, F
    1 Response Jul 16, 2012

    I've had this condition

    for about 4 years and have coped with it but am somewhat worried it will never go away. Like a lot of you doctors didn't know what was happening with me until way later. I really like this site because I never met anyone especially in my age group with the affliction and It...
    DizzyPineapple DizzyPineapple
    18-21, F
    Jul 21, 2015

    I have Vestibular Migraines.

        My symptoms first started about a year ago. For me the feeling of being off balance is the most predominant symptom. I don't get many headaches. When I walk I feel like I am on a boat, merry go round, or uneven ground. Sometimes when I stand up from sitting I feel like I...
    ftw7771 ftw7771
    22-25, F
    6 Responses Jun 30, 2012
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