I Have Vocal Cord Dysfunction

Personal Stories, Advice, and Support 61 People

    I really understand where you are coming from.

    I was diagnosed with asthma when I came back from Iraq in 2011. Since then I have made multiple emergency rooms visits. About 2 weeks ago I was hospitalized and released. From there I was sent to Walter Reed hospital where they diagnosed me with VCD and gave me some breathing...
    ko1234 ko1234
    36-40, F
    1 Response Mar 2, 2014

    Struggling With Vcd

    this is one of the most hard to deal with illnesses, gasping for air about everyday like asthma but no inhalers work on this,instead you are taught stupid breathing exercises that don't work. getting really depressed and ready to give up. LOOKING for new treatments, if you know...
    cisco1968 cisco1968
    41-45, M
    10 Responses Aug 4, 2012

    I Just Wish Someone Would Understand !!!

    Hello my name is Mary i am 49 i have always been a very active person and love to walk a lot and was a very hard worker and loved my job that was until I was diagnosed Two years ago with VCD. The first year I was hospitalized five times for it . I had to give up my job which I...
    Meadows1964 Meadows1964
    51-55, F
    1 Response Aug 14, 2013

    I Have Vcd.

    My story began in high school marching band. My marching band spends two months in the summer practicing from 9-9 every day, traveling, competing, and having a great time. I play clarinet, and there is nothing I love more than making music. It was the summer before my sophomore...
    clarinetgirly clarinetgirly
    18-21, F
    1 Response Jan 10, 2013

    I'm 16 years old and have been suffering with

    Vocal Chord Dysfunction for almost 3 years. I was only diagnosed 4 months ago and prior to this all the doctors were telling me was that I had asthma. The two and a half years I spent not knowing what was wrong with me and having to go to appointment after appointment, even...
    aliken98 aliken98
    18-21, F
    2 Responses Feb 22, 2015

    Well I wouldn't say Dysfunction

    but I do have Nodules that have gotten bigger :/ 3 years ago, I couldn't feel them, not I feel them when I swallow and sing and high range going high has dropped but I still sing up to D7 so It's not realyl bad but they're gettin there
    RyRyOfAwesomeness RyRyOfAwesomeness
    18-21, M
    Dec 28, 2014

    VCD: Interferes With Life And Work

    I've struggled with recurring and chronic laryngitis for 6 years. Typically, the laryngitis lasts for about a week at a time. After countless visits to various doctors and specialists, and several different treatments, I was diagnosed with VCD in May. I was glad to finally...
    ImposedSilence ImposedSilence
    36-40, F
    Jun 16, 2013

    Going Thought The Tests

    I have been told I have asthma and also could have VCD I hace been admitted to hospital 18 times since October 2012 the last twice was a totaly different experiance I felt as thought I was chocking could not get air into my lungs. Going to have the test for VCD on Wednesday...
    Cazzey65 Cazzey65
    51-55, F
    May 7, 2013

    Today I was diagnosed with Vocal Cord

    Dysfunction. Vocal Cord dysfunction means that your vocal cords do not act normally. With VCD, instead your vocal cords opening up when you breathe in and out, your vocal cords close. This closing of your vocal cords makes it harder to get air into or out of your lungs. My...
    26-30, M
    2 Responses Sep 10, 2015

    The Worst Year Of My Life

    Hi! i am 13 years old. my name is Courtney. at the start of the 2011-2012 school year, i entered 7th grade in a new school, in a new town. i have eczema and psoriasis, so i was very self conscious and have trouble making new friends. the first day of school went ok. i went home...
    courtdog44 courtdog44
    1 Response Aug 27, 2012


    I was diagnosed with vcd 2 years ago. Has anybody ever thought of making t-shirts like they do for epilepsy or cancer.
    Cbearmaddie Cbearmaddie
    1 Response Apr 29, 2013

    Think I Have VCD

    Am a teacher - they added a classroom next to mine (I was at the end of the building) over a summer. I came back and bam my lungs were tight and was struggling with breathing etc. I assumed it was just asthma - had it as a kid and am allergic to cats. Was unable to be functional...
    mayconcuse mayconcuse
    41-45, F
    May 1, 2013

    For the past 5 months I have had difficulty

    breathing often when I exercise. It started playing field hockey and has continued all through basketball and into softball season. I am a very athletic, competitive and active person and I hate having to sit out or "take it easy". My parents suck at helping and I have felt so...
    amchutt120 amchutt120
    18-21, F
    1 Response Mar 1, 2015


    Back in hospital, hate it. Listening to nurses and docs go on like they know what vcd is, wen really they don't. They talking of doing a tracheostomy wen my doc who knows me at another hosp says no way. .caught in this wen can't be bothered I just wanna concentrate on my...
    ldreamer ldreamer
    Oct 11, 2013

    Vocal Cord Dysfunction

    I am not sure I have vocal cord dysfunction or if it is asthma or something else. All I know is that for more years then I care to remember I have had a problem with losing my voice. It usually occurs after a lot of coughing. Laughing, crying, talking a lot or in other words...
    ohiohillbilly ohiohillbilly
    61-65, F
    2 Responses Jun 16, 2012

    Suffering From VCD

    One day while i was a junior in high school, i started having a very hard time breathing. I tried an inhaler, and warm water, but they both made it worse. I quickly fell into a panic attack, and my grandmother (former EMT), came to my aid. From that day on, i struggled to breathe...
    Kitten1996 Kitten1996
    18-21, F
    Nov 22, 2013


    When I was younger, I had breathing problems. For years I just delt with it. Last year, they said I had asthma. After a couple of tests, I was diagnosted with VCD. I really dont know how to handle is, because luckly its mild.
    AllyApologize AllyApologize
    May 4, 2011

    Worst Time Struggling To Cope With It

    I am 16 years old and had asthma when I was little up until I was about 7 then it seemed to go but when I was about 12 I was rediagnosed with asthma and given a ventolin inhaler. I managed to control it just using that but then after a while it seemed to get worse so I got put on...
    bethcath bethcath
    Feb 26, 2013


    Back in hospital, hate it. Listening to nurses and docs go on like they know what vcd is, wen really they don't. They talking of doing a tracheostomy wen my doc who knows me at another hosp says no way. .caught in this wen can't be bothered I just wanna concentrate on my...
    ldreamer ldreamer
    Oct 11, 2013

    I am a singer and can no longer sing due to

    having Reineke's Edema. Without my music...I might as well be dead.
    Dachsundlady Dachsundlady
    41-45, F
    1 Response Jun 24, 2015

    Frustration And Embarrassment

    I accidentally wrote my experience in the wrong group:) "I love the ocean" So, I don't really feel like rewriting all the details, but I guess you can look at my stories to see it. The last 8 mos of my life I have been to the dr more then all of my life combined. I had gotten a...
    Supermomhschool Supermomhschool
    36-40, F
    2 Responses Sep 3, 2013


    I've played soccer for about 8 year's now and was doing great until last year when I first got diagnosed with excersise induced asthma. After almost giving up on playing socer, I went to an a lergist who informed me that Iinstead have vocal chord dysfunction. It's still a daily...
    1 Response Feb 9, 2013

    Finally Getting Sorted

    I am 16 and am finally getting sorted and trying to get my life back at last. Having been bouncing in and out of Blackpool hospital from May-July 2012 then October-December 2012 I got transferred to Preston hospital who are a specialist unit for VCD. I then got discharged and was...
    bethcath bethcath
    Jun 12, 2013

    Asthma Then Vcd

    About 8 years ago i was told by my doctor that i had asthma,that was after about a 4 emergency addmissions to hospital and lost count of how many times i went to my doctors surgery with breathlessness which was gradually getting worse. Finally a new doctor at the surgery...
    ldreamer ldreamer
    3 Responses Aug 24, 2009
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