I Have Von Hippel-lindau Syndrome

A Von Hippel-Lindau Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Von Hippel-Lindau Syndrome. You're not alone. 3 People

    Trying To Get To Know Other People With Vhl

    hi im laurie i have von hippel lindau syndrome, i had my first experience at 12 when i found out i had 3 tumours on my spinal cord, after my operation i had 2 tumours and a cyst, at the age of 18 i was rushed to hospital with pain in my head where they found i had 2 cysts at the...
    laurie88 laurie88
    22-25, F
    1 Response Jan 8, 2013
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