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I Have Vulvar Lichen Sclerosus

Vulvar Lichen Sclerosus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Vulvar Lichen Sclerosus. You're not alone. 288 People

    I Have Lichen Sclerosis And I'M Desperate For Some Relief! - Hello everyone, I'm 24 years old and have been battling lichen sclerosis for almost two years, it started after I had...
    KLP24 KLP24 22-25 1 Response May 28, 2013

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    Heal Vs. Cure /SECOND UPDATE! - As suspected, official positive Lichen Sclerosus diagnosis today (biopsy was done three months ago). I started the cortizone treatment before the...
    healinghere healinghere 36-40 1 Response Jun 10, 2013

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    Lichen Sclerous - I have lichens for five years.The doctor gave me cream but it gives me urinary tract infections.Does anyone else have this problem.
    maggie1244 maggie1244 61-65, F 1 Response Oct 2, 2013

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    Why It Is Sometimes Hard To Sit!! - It's not the most pleasant condition to have, I am 58 and have had LS for just over a year.  I tried to self medicate for a good 10 months...
    verityjane verityjane 56-60 2 Responses Sep 29, 2010

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    Ls - I was diagnosed a couple years ago at 20, although I've had the symptoms for years. Mine is not only vulvar, it is in that whole lower area, front and back. I never...
    nuserkanin nuserkanin 22-25 6 Responses Apr 22, 2011

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    Lichen Sclerosus Is Making Me Depressed - I found out that I have Lichen Sclerosus after the birth of my second son, which was almost five years ago.  I have been...
    Renee68 Renee68 41-45, F 12 Responses Oct 31, 2009

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    Misadventures In Misdiagnostics! - I was recently confirmed of having LS after 30 years of misdiagnosis as irritable bowel syndrome. I also got cancer (endometrial) and when the...
    sslo sslo 46-50 3 Responses Jul 7, 2011

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    What Is Happening? - Some brief history, I've struggled with vaginismus since I was 11 years old. At that time I could not even get the smallest tampon in. You can learn a lot...
    Brittany2013 Brittany2013 26-30, F Jun 10, 2013

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    Wow! Something Is Really Helping Me - I have had LS for 3 years now. I have used triamcinolone cream,testosterone cream, perrins blend, and emu oil(blue). The triamcinolone seemed...
    brandonna brandonna 31-35, F 4 Responses Sep 5, 2012

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    Help With Clobetasol Application - I need help with the clobetasol application. I can't do it, I can't hold the mirror, the flashlight and the cream at the same time I move the...
    irup irup 22-25 6 Responses May 20, 2011

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    So Sad... So So Sad - I found out I had LS in 2008. Sex was uncomfortable. I felt a spot that always felt raw. Got a biopsy done and it was stage 2 cancerous. It has gotten worse...
    Momma1978 Momma1978 31-35, F 2 Responses Jul 12, 2013

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    After Op - I had a bladder and bowel op in January and since then all hell let loose I kept going to surgeon and GP with no success with this aweful soreness and when I needed...
    SugarPlum69 SugarPlum69 66-70, F 1 Response Sep 15, 2013

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    Underwear - I borrowed my husband's silk boxers since I was unable to wear regular panties, then found on Amazon something called pettipants. They can be ordered in shorter or...
    mbwhite mbwhite 51-55, F 1 Response Aug 19, 2012

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    I am 58 and seeing someone but I wont get into a relationship because I know I cant have intercourse. How do I tell him?
    vloz vloz 56-60, F 1 Response Feb 25

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    :( - sadly i was diagnosed last year with LS. I have had it since I was little. I have lost 90% of my anatomy and im only 20. I constantly feel like there is no hope with this...
    kariinaxoo kariinaxoo 18-21, F 1 Response Oct 1, 2013

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    I Think I Might Be Getting It - I have had an itch ever since my sister went into hospital with mental illness in 1995 (I was still a virgin) and temperatures and pelvic...
    czaristacrystals czaristacrystals 36-40, F 3 Responses Mar 8, 2011

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    Odor With Lichen Sclorosis - Does anyone else suffer from a horrible cat urine smell and discharge coming from the vaginal area, even directly after a shower?
    kljeffers kljeffers 51-55 3 Responses Mar 18, 2013

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    Desperately Wanting My Life Back........ - Hi all. I first want to start by saying how extremely happy to have found this site as well as others. I have within the past two days...
    mslegz mslegz 36-40 2 Responses Nov 6, 2010

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    I'm not sure if anyone has tried it yet but, I've been using a cream called neogyn. Somewhat new to the market. Has been really helping me for months. My symptoms actually lessened...
    username2443 username2443 22-25, F 1 Response Dec 23, 2013

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    Complete Remission Achieved After 5 Years Of LS Hell - Hi. I've had LS for about 5 years. The past year was unbearable. The itching was so intense that I would claw at myself to...
    MedicalMom MedicalMom 41-45, F 4 Responses Feb 16, 2013

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    You Can Get Better.... - I have L.S....After being diagnosed with herpes, yeast infections, and chronic vaginitis, I finally saw a specialist. Once I found out it was L.S. and that...
    fourbygrace4 fourbygrace4 36-40 2 Responses Apr 3, 2013

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    16 And Scared :( - I was diagnosed with LS when I was about 7/8. I've had very bad experiences with slits and cuts in the lips and led to me ending up in hospital and not being...
    LozCarruvz LozCarruvz 16-17, F 1 Response Apr 4, 2013

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    Vls Kept At Bay With Mcarthurs Paw Paw Cream - Hi to all sufferers, I have VLS and this cream has been a godsend to me, mind I am in early stages but no itching and soreness...
    jaybeme jaybeme 51-55 1 Response Oct 22, 2013

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    Just One Thing After Another..... - I was diagnosed about two years ago.  At first I thought "Well, I know what the problem is. Let's fix it."  Yeah. I know the biopsies are...
    domesticqueen712 domesticqueen712 51-55 5 Responses Jun 3, 2011

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    All Well After A Life Time With Lichen Sclerosus - When I was 35 I had vulva laser surgery to remove the white plaque skin but as time past it would flare up again & again.  ...
    Carole63 Carole63 61-65, F 4 Responses Apr 11, 2010

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    Worried About This Disease..... Please Help Or Let Me Know What Will Happen ! - For the past 6 months to 1 year, I have had unusual vaginal symptoms - lots of itching and painful...
    HopefulAnnie HopefulAnnie 31-35 2 Responses Apr 27, 2010

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    Feeling Like Im Going To Scream! - I have been dealing with this problem off and on for over 8 years. I am 27. I have tried everything under the sun to help it without talking to...
    Miller0204 Miller0204 26-30, F 4 Responses Oct 1, 2013

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    I've had lichen sclerosus for about three years, and I've been using Emuaid for about a year now - it has helped, but no cure. I thought it was a yeast infection because it turned...
    lookingforacure lookingforacure 51-55 1 Response Feb 4

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    21 Yrs Old With Symptoms For Past 14 Years. - I apologize for this graphic description but I'm sick of "walking on eggsells" around this mess.  I'VE HAD ALL THE (SEVERE) SYMPTOMS...
    lovesflowers14 lovesflowers14 18-21, F 7 Responses Apr 25, 2011

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    Not Sure If I Have It, - but, my mother does and i hear it could be hereditary :( she was diagnosed when she was around 30, i believe. and im 19. im very paranoid that i will have...
    stefbuck stefbuck 18-21, F 1 Response Aug 8, 2010

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    Not Thrilled! - Recent tentative diagnosis of L/S by G/P. - waiting for an appt with Gynaecologist end of month = trying various treatments, such as Perrins cream, and coconut...
    Magsma Magsma 66-70, F 1 Response Apr 14, 2013

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    Perrins Cream - I have Lichen Sclerosus. I have not had a biopsy yet, Dr. referred me to gyn. so I assume that will be done then. I have researched this and found "perrins cream...
    MarlaMW MarlaMW 56-60, F 3 Responses Aug 30, 2013

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    Just Diagnosed - I was just diagnosed with this.  I am relieved to find out what was causing the "crazy itching" I was experiencing.  Hope to get it under...
    seabreeze32000 seabreeze32000 46-50, F 5 Responses Oct 19, 2009

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    Still In Shock.... - I couldn't imagine what was going on down there, the pain, itch, soreness.. All out of the blue, went to the gyno, say's it's herpes??? What? No way I...
    t00ts2 t00ts2 46-50 4 Responses Nov 13, 2010

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    Support Blog - I was six years old when I was diagnosed with lichen sclerosus. I had a feeling even then that it was something that would make me very strange. As a child, I had...
    mkc2013 mkc2013 22-25 2 Responses Jun 3, 2013

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    Finally Free Of This Problem - This is my first time on a chat line and I am not sure if I will do it again, but I was searching for a product to help me with this crazy annoying...
    ancientalternatives ancientalternatives 51-55, F 2 Responses Sep 4, 2013

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    It Can Get Bad! - I have been going to doctors for1 1/2 years. And I was finally diagnosed when I went to my ob/gyn doctor. I begged her not to touch me but she first looked and...
    Charlotte54 Charlotte54 56-60 1 Response Oct 28, 2013

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    Recent Diagnosis - Diagnosed with Vulvar LS in August, recovering from biopsy 1 1/2 weeks ago (ugh), and now think I am getting symptoms on my upper body.  Am interested in...
    angelannie43 angelannie43 46-50, F 9 Responses Oct 5, 2009

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    Hope Amid The Pain - not really sure if this is a story or a journey, but it began about two years ago. Unable to see, I can't describe what things look like on my inner thighs...
    ableingod ableingod 61-65 1 Response Sep 9, 2012

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    Healing Vs.Cure - I am healing slowly. I am 36 and had vulvar discomfort for over a year until I saw two important pearly white patches had appeared to either side of my vagina...
    deleted deleted 26-30 1 Response May 22, 2013

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    Dr Casabona - I was diagnosed with Ls 9 yrs ago. It was not very active until 1,5 yr ago. Then things went quickly very bad. It affects my self-confidence and as a single person, I...
    Masp Masp 41-45, F 3 Responses Apr 30, 2013

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    Not - Ive benn reading up on this and do not know if this is what i have but it sure sounds like it many visits to er,ob derm and still no answers. I never had any skin problems...
    seekinganswershelp seekinganswershelp 56-60 2 Responses Jun 19, 2013

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    I Have Lichen Scel. - Hi , I am Cammie,51 age, and was diagnosed this week,at the docters. I am still upset about it because it seems incurable and can have devastating effects. It...
    Cammie61 Cammie61 51-55, F 4 Responses Oct 2, 2012

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    Lichen Sclerosus Not Fun!!!! -  I have all the same  problems you ladies have. The itching is terrible, the burning, thinning of the skin. I go without panties alot...
    gagirl55 gagirl55 51-55, F 10 Responses Jun 24, 2010

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    Living With This - Since i was little i can always remember my vulva being extremely itchy. I have been trying to get into my obgyn to get this taken care of because it has...
    nw0309 nw0309 26-30, F 2 Responses Aug 16, 2013

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    Help For Lichen Sclerosus -   Please read if you have Lichen Sclerosus! I had terrible pain, sores, lesions, itching, clitoris shrinking and all of the most horrific...
    atooch atooch 46-50, F 12 Responses Dec 3, 2009

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    I've had lichen sclerosus for about three years, and I've been using Emuaid for about a year now - it has helped, but no cure. I thought it was a yeast infection because it turned...
    lookingforacure lookingforacure 51-55 Feb 4

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    My Ls Is Out Of Remission - I have probably had LS since about the age of 4 or 5. I did not get formerly diagnosed until I was about 33 or 34. My gyno diagnosed me but later...
    texfiend texfiend 41-45 1 Response Nov 26, 2011

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    29 Years Old And Just Diagnosed - I have just been diagnosed with Lichen Sclerosus. Having a disease that might cause you to never have a normal sex life again, really scares me...
    Tessa29 Tessa29 26-30 2 Responses May 27, 2013

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    Lichen Sclerosus - ive had lichen sclerosus for the past 10 months ...ive never even heard of this i was in shock didnt know where to turn to for help!! and after looking up to...
    susan3498 susan3498 41-45 1 Response Mar 20, 2013

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    Finaly Here - I was diagnosed over 10 yrs ago, I havent seen the doctor since. I even forgot the name of it. But after the yrs my symtoms promted me to look on line to find out...
    Moneub Moneub 41-45, F 1 Response Apr 2, 2013

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    Newly Diagnosed With L.S At 63! Going Crazy With The Stress - I had major surgery in May this year and had biopsies taken during it which confirmed my L.S. I am 63 years old! I was...
    mygirl9 mygirl9 61-65, F 2 Responses Sep 10, 2013