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I Have Williams Syndrome

A Williams Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Williams Syndrome. You're not alone. 4 People

    Life With Willams Syndrome

    I'v hade a hard time living with ws Becuse of the non excptence of those with a dissabilty or not I'm also a sexual assault suvivor but I love Jesus I'm a Christian and I'm loving and kind
    Ilovejustin1 Ilovejustin1 26-30, F 2 Responses Dec 17, 2012

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    Related Experiences

    I don't think I have pica syndrome or if it's just a nutrition deficiency but when I get a bath or something I sometimes have a chew on the sponge or something because I like the...
    lucymichelle lucymichelle 13-15, F 1 Response Sep 1

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    I have pica and I have done for as long as I can remember. Unlike most people who have the syndrome/disorder I have had cravings for a WIDE variety of things throughout my...
    Pandasaurusrex Pandasaurusrex 18-21 Sep 2

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    When I was 26 year old I found out I got Klinefelter Syndrome I get a hormone testosterone needle every 12 weeks for the rest of my life.
    blackcat055 blackcat055 41-45, M 6 days ago

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    Having Aspergers Syndrome is quite challenging for me. I have always felt like a ghost or a being living in another world in high school. Because of my particular interests, I have...
    loveVictorandDumas loveVictorandDumas 16-17, F 1 Response Aug 21

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    I'm 18 and every time I look at myself in my bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my...
    ardorzie ardorzie 18-21, F 1 Response Aug 22

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    In January I was finally diagnosed with POTS. For the past three years I have been being misdiagnosed with depression, migraines, and other stuff. It was really hard because my...
    babyhunnybunny babyhunnybunny 16-17, F 1 Response Aug 17

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    CAN I HAVE MORE RAT VENOM FOR MY MARTINI?
    JEM404 JEM404 41-45, M Aug 20

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    My name is Kate. I live in Oscar, Louisiana. I started experiencing symptoms in November of 2012 while pitching in a softball game. It all started with right shoulder pain. I was...
    Katedebetaz Katedebetaz 13-15, F 2 Responses Aug 24

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    Wow!!! For as long as I can remember I have had cravings for weird non-eatable objects. I remember exactly when it started, I was about three my Mom and Dad had this ugly, green...
    RedVinekiss RedVinekiss 31-35, F Sep 3

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    I am not sure if I am diagnosed or not. My dr said I have tietze but he never did any real test on me. But the problems I am having are the same as with tietze, so that's who he...
    zerudahima zerudahima 22-25, F 2 Responses Sep 4

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    Does anyone spike a fever when they have episodes?
    december789 december789 16-17, F Sep 5

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    I call my self an oddity. There are so many strange things about me i keep most of them hidden. Like my Pica. I told my mom once but we are mexican (she doesn't belive in Pica...
    mashuthanna mashuthanna 22-25, F a week ago

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    For many years I have "craved" really-hot radishes. I buy up to 6 bunches per week, and somewhat panic when I run out before shopping day. I only stopped for a short time...
    Omma41 Omma41 70+, F 6 days ago

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    I HATE being so logical, but logically it's necessary and appropriate for people to think logically. See my problem? I don't love. Relationships make zero sense to me, I don't have...
    pianochick5254 pianochick5254 18-21, F 2 days ago

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    IT IS MY EXPERIENCE THAT A FACILITY I ATTEND, "ATTENDED", "WON'T AGAIN", DO'ES NOT TREAT BIRTH DEFORMITY, YES, THIS STATE FACILITY WON'T TREAT A PERSON FOR BIRTH DEFORMITY TRAUMA...
    JEM404 JEM404 41-45, M Aug 20

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    Can anyone describe their chest pain with pots?
    cassidybute cassidybute 18-21, F 2 Responses Aug 22

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    Holy crap! Is this really on here? I've found my people.... Lol
    Keekeem Keekeem 31-35, F 1 Response Aug 28

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    My dad was recently diagnosed with MELAS. He is 48 years old. He has been in and out of the hospital due to seizures and what we thought were strokes. He suffers from hearing loss...
    ering08 ering08 22-25, F 1 Response Sep 1

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    I want to make a POTS group that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789 16-17, F 6 days ago

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    Just got compression stockings. Not feeling this at all, they're super tight
    december789 december789 16-17, F 1 Response 4 days ago

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    I've had it since I was 12. It's keeping me from performing everyday duties. Please pray for me.
    gratefulme gratefulme 22-25, F 20 hrs ago

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    I have gitelmans syndrome. Ya it's weird... Anyone else?
    Keekeem Keekeem 31-35, F 1 Response Aug 28

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    My first hint that something wasn't right was walking back to our cruise ship with my daughter. I was having a hard time walking and thought maybe it was sciatica. I barely made...
    NixEgirl NixEgirl 56-60 Sep 7

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    OK! I'M FINALLY GOING TO SAY IT! MY OBLIGATORY ROBIN WILLIAMS POST....AND HERE WE GO!.... No, I don't go with this who "Genie, you're free" crap. I don't. Suicide isn't freedom...
    TheWomanYouHate TheWomanYouHate 31-35, F 4 Responses Aug 18

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    I don't usually get emotional about celebrity deaths. I'm not typically starstruck, and I generally couldn't care less about the personal lives of celebrities. They're people just...
    livelaughlovedream3 livelaughlovedream3 41-45, F 3 Responses Aug 17

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    I just wonder how he could have taken such a step.While Robin Williams’ deep depression seems to have led to his suicide, a longtime friend of the late actor has offered another...
    restored87 restored87 46-50, F 2 Responses Aug 21

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    He was my childhood happiness and such a tragic they way he went. Rest In Peace Robin Williams🙏
    roselani2005 roselani2005 26-30, F 1 Response Aug 17

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    U were a great actor,comedian and friend to all. U just went with the flow of things and they all turns out funny as hell. And the world lost a great actor,comedian and friend but...
    Blackbelt4ever Blackbelt4ever 13-15, F Aug 18

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    Rest in peace robin Williams
    painfulwedgiegirl painfulwedgiegirl 13-15, F 2 Responses Aug 20

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    I can't believe Robin is actually gone. I was hoping it was just rumor :( my heart goes out to him and his family! Now he can be sure to make God laugh in Heaven. Love you Robin E...
    Kaymgraves1994 Kaymgraves1994 18-21, F 1 Response Aug 22

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    Robin Williams was one of my favorite comedians as a kid. Patch Adams means a lot to me, and shaped what I thought I wanted to be like when I was all grown up. Losing him feels...
    CaptainBenza CaptainBenza 18-21, M 1 Response Aug 23

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    I will always remember Robin Williams as Mork from Ork on Happy Days. Back in the 70s his style of manic adlibbing was sensational innovation. Amongst my favorite films are the...
    brianthesnail brianthesnail 46-50, M 1 Response Aug 23

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    I like a lot of music from movies ... and I mean A LOT! But for me, nothing can touch John Williams "Schindler's List Theme". This version features the talents of violinist Itzhak...
    StarLily71 StarLily71 41-45, F 2 Responses Aug 24

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    I tune in to wendy williams at 3:00pm just to hear the juicy gossip. How you doinnn???
    NightMagic367 NightMagic367 36-40, F Sep 5

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    I'm normally not into celebrities, celebrity gossip or usually even caring about them. I know a lot of that "news" is marketing to publicize new movies, albums and such. I...
    CrazyWaterSpring CrazyWaterSpring 51-55, M 3 Responses Aug 18

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    It goes to show. It didn't matter how much money you have. Anyone can still hurt on the inside than the outside. Rest in peace Robin Williams. You will be surly missed.
    Alex033 Alex033 18-21, M 2 Responses Sep 2

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    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response Aug 17

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    With help from my psychologist (who's very successful and specialized in autism, along with other things.) shed a light over a little something that I've been thinking about for a...
    MissClueless MissClueless 16-17, F 3 Responses 3 days ago

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    Just recently I began researching on middle child traits. I've found out that middle child syndrome is very real and it's not only me who suffers from it. Growing up, I have...
    123eat 123eat 22-25, F 1 Response Aug 24

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    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 4 Responses Aug 29

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    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 1 Response Sep 1

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    Hello my name is Mark Miller. I was diagnosed with Klinefelters Syndrome when I was 4 years old. My parents knew something was wrong when I could not speak words until I was 7...
    Mark7Miller Mark7Miller 18-21, M 1 Response Sep 3

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    I am 15 years old I have Russell Silver Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and...
    UNIJordanQUE UNIJordanQUE 13-15, F 2 Responses Sep 3

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    Hi my name is Jaime I am 29 years old and in 2006 I was diagnosed with a very rare kidney disease called Gittleman's Syndrome its so rare that not very many people in the United...
    GSwife1313 GSwife1313 26-30 Sep 4

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    This was the kind of guy I would have loved to have been friends with. You can tell from his interviews that he had an amazing personality. He really stood out from the crowd with...
    caddriss caddriss 36-40, F 2 Responses