I Have Williams Syndrome

A Williams Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Williams Syndrome. You're not alone. 4 People

    Life With Willams Syndrome

    I'v hade a hard time living with ws Becuse of the non excptence of those with a dissabilty or not I'm also a sexual assault suvivor but I love Jesus I'm a Christian and I'm loving and kind
    Ilovejustin1 Ilovejustin1
    26-30, F
    2 Responses Dec 17, 2012

    Related Experiences

    So here we are, Ep is about to close. It's been nice talking to some of you, finding out there was someone else with the same issues. I wish you all the best :)
    vanetuli vanetuli
    18-21, F
    Apr 21
    My attacks started 6yrs ago,woke up one morning and felt really sick,like a virus but it kept coming back every other day. I feel it was triggered by stress and a tender tum as I...
    SoothingSoozie SoothingSoozie
    41-45, F
    1 Response Apr 19
    My 3rd grader has struggled in school from Headstart up to this very point. I noticed delays in his speech right before two years old. I expressed my concerns to his pediatrician...
    Vette601 Vette601
    36-40, F
    Apr 19
    Well my story is a lot like some of yours, I started young on comet and sometimes dirt from my backyard... I like to eat things with gritty texture for most of my childhood and...
    BadMomKira BadMomKira
    22-25, F
    1 Response Apr 19
    Hey.. My name is Thomas and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very...
    tommymac70 tommymac70
    41-45, M
    Apr 17
    My symptoms of WPW started about the time that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I...
    adrienleigh adrienleigh
    13-15, F
    Apr 17
    Hi, I was just diagnosed with SMA Syndrome after 10 years of my stomach being sick and multiple hospitalizations for being unable to eat or drink. I currently have a j tube after...
    jaclynleigh6 jaclynleigh6
    22-25, F
    Apr 17
    I am a 23 year old female who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We...
    uocgreece uocgreece
    22-25, F
    Apr 17
    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    Hi my name is Sherrie and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children...
    Sherrie50 Sherrie50
    56-60
    Apr 13
    This is my story. It is long, but I hope you all can relate to it. A year ago I went on a catholic retreat called Kairos and I gave a speech on my ideals and how to find them and...
    cmom96 cmom96
    18-21, F
    Apr 9
    My boyfriend hasn't been diagnosed or anything, but I was watching a programme about Asberger's and something resonated with me. If he does have it, I'm sure it's only mild, but it...
    anniechan anniechan
    18-21, F
    2 Responses Apr 7
    I was born with PruneBelly Syndrome (lack of abdominal muscles) I had some corrective surgery at age three and the dr cut through and removed my navel, so I don't really remember...
    Jmacaroon Jmacaroon
    51-55, F
    Apr 7
    Looking for other survivors of S.S. for support, as I work thru this Big Bowl of ****. Am going thru integration therapy and deal with chronic PTSD as a result of the years of...
    Rhonda87 Rhonda87
    51-55, F
    1 Response Apr 6
    30 reasons i love my Aspie (or just a individual person wich i was lucky to met) This is my story, and Just mine. U dont need to relate. Because every person is different, with...
    deleted deleted
    26-30
    Apr 6
    There's this girl at school who tries so hard to be cool. Honestly it has become so pathetic and funny. I don't understand why you would make a fool of yourself to be seen a cool...
    LeahLovee LeahLovee
    70+, F
    2 Responses Apr 5
    I've never really been officially diagnosed, except with ADD, but I've been depressed/anxious/dissociating for as long as I can remember. I have spiritual beliefs but honestly the...
    strawberryletter22 strawberryletter22
    18-21, F
    Apr 5
    You can probably already guess that from my profile picture yes that's my real hair i don't like getting my hair cut never have never will as a result my hair has grown to that...
    SladeBolinLeaderofEp SladeBolinLeaderofEp
    18-21, M
    1 Response Apr 5
    I have too , it's amazing. Was trying to think of how to describe it but that's pretty close to how you feel !!
    karacumming karacumming
    41-45, F
    8 Responses Apr 5
    Hey guys! I finally have a YouTube channel :) So I tried out for The Voice this year and posted my audition tapes on my channel! It would mean a lot to me if you watched them and...
    ERMAHGERD1 ERMAHGERD1
    26-30, F
    4 Responses Apr 5
    I'm a small person-5' 1". I have a long hunger span and don't eat anything after dinner. I'm not a snacker either. As a result of being diagnosed with hypo, I have to eat every two...
    JAGInsberg JAGInsberg
    70+
    1 Response Apr 5
    Two and a half years ago my almost perfect vision became instantly blurry. It is not blurry in the sense that you might think of which makes it hard to explain to doctors. Doctors...
    doggielvr78 doggielvr78
    22-25, F
    Apr 5
    3 months in. I've had a lot of good days, I've had more bad. The more time that passes, the good days happen more frequently & the bad days happen less. I find I'm able to deal...
    kchristine7 kchristine7
    18-21, F
    2 Responses Apr 5
    A teleport. It will transport me everywhere I need to go! I even have an inventor who is going to build it for me...eventually.
    Hannah1100 Hannah1100
    13-15, F
    2 Responses Apr 5
    I find that I tend to have more projects in in progress rather than completed. I sort of feel idle when they are completed. Being idle always leads to other people asking you to...
    JessicaMarie35 JessicaMarie35
    36-40, T
    Apr 5
    I have nvld and it's hard to tell myself that I am smart. My whole life I was believed that I was stupid. I'm getting better with it though.
    rainybow17 rainybow17
    18-21, F
    Apr 5
    This is my last post on EP. I wish it didn't have to end. What am I going to do after the 21st when I no longer have the option of asking my questions to random people who care...
    Forestwolfpup Forestwolfpup
    16-17, F
    1 Response Apr 5
    I just turned sixteen and until about two months ago I had to wear a hairpiece because my pulling was so bad. Recently I have been doing very well with not pulling and my eyelashes...
    graceeliz330 graceeliz330
    16-17, F
    1 Response Apr 5
    i hate that i can't communicate effectively. i know that my husband gets frustrated to the point of disgust. i just assume not talk to anyone. i have chronic pain and fatigue to...
    LITVET LITVET
    41-45, F
    1 Response Apr 5
    I'm 28 years old, and I cannot express how much I hate having this. I feel like it's taking over my life. My friends say to think of other stuff, but as you all know it's almost...
    Rissa404 Rissa404
    26-30, F
    Apr 5
    Well after having failed relationships with men and woman. I started having a friends with benefits relationship with a lovely girl. We met in the club, got wasted , kissed and...
    Nicolej94 Nicolej94
    18-21, F
    3 Responses Apr 5
    Does this site have just pervs here?! Only joined a few minutes ago and I seemed to have caught one already!
    EmVitty EmVitty
    36-40, F
    13 Responses Apr 5
    I'm Dr Luwiss morris at DAVE GRAY HOSPITAL INDIA I have been given the opportunity by the management to advertised on the internet FOR KIDNEY SELLING WE SHALL OFFER YOU $220,000...
    kidney4 kidney4
    36-40, F
    4 Responses Apr 5
    well ladies the time is counting down till this thing is shutting down... I have met some wonderful people on here and heard alot of heart warming stories... I hope that you all...
    hisriderforlife hisriderforlife
    31-35, F
    1 Response Apr 5
    If you want something you never had, you have to do something you've never done!
    LittleMilwee LittleMilwee
    22-25, F
    Apr 5
    FTR I would like to point out isn't it strange how when Bruce Lee, Easy E, MJ and (maybe Elvis Presley too)?? Died a nurse or doctor was by their side? I know it's common but they...
    Sazzio Sazzio
    26-30, M
    1 Response Apr 5
    Part Three. My life story. June 2005 So much had happened in this short amount of time, and I couldn't figure out how to deal with it. My mom had finally taken the time to...
    pastelstars pastelstars
    18-21, F
    1 Response Apr 5
    By this point I just feel annoyed because I know he won't look at me the way I want to. The worst part is realizing you've been turning down good people or fun opportunities...
    sta23 sta23
    18-21, F
    Apr 5
    I'm walking on the tight rope. There's no safety net, only my demons below. If I fall, I don't break bones. Those demons; they catch me. I hover above the rocks on the bottom...
    Anonylyn Anonylyn
    22-25, F
    Apr 5
    You know I've almost died numerous times saving people's lives but one will stand out the most to me. it was one day in August I was walking home from a day of training as usual...
    SladeBolinLeaderofEp SladeBolinLeaderofEp
    18-21, M
    2 Responses Apr 5
    So, I bite my nails a lot. Like, a lot. And, because of that, I have hangnails, but these ones HURT. Like, bad!! How do I get rid of them??
    Kimberlybucklandz1093 Kimberlybucklandz1093
    13-15, F
    2 Responses Apr 5
    Part 2. The dream continued. Turns out the guy hadn't always been a loner. He used to paint beautiful Easter eggs and composed really great songs for church, before he became a...
    Hush92 Hush92
    18-21, F
    Apr 5
    This is a LONG one. Probably because it was a full length dream and then I woke up, fell back asleep and it continued. I'll be posting it in 2 parts. I feel it was extremely...
    Hush92 Hush92
    18-21, F
    Apr 5
    Looking for a Daddy Dom to have naughty chat with...
    AudrinaM AudrinaM
    26-30, F
    3 Responses Apr 5
    I don't even know where to start. I lived in Europe for almost 5 years and dated a few white guys.(I'm black). Living around white guys and guys of other races gave me a deeper...
    StoneAgeDrifter StoneAgeDrifter
    26-30, F
    4 Responses Apr 5
    Friends are themselves benefits to me. The ones I've had or do have are very nice to me. That's not a profound statement I guess, cause if they weren't friendly then they would be...
    9minute 9minute
    18-21, M
    2 Responses Apr 5
    I just found out that I have genital warts. Went to the doctors and she put some acid on it . I also did my blood test. She was like Don worry it is treatable. But I have been on...
    Dydy16 Dydy16
    22-25, F
    1 Response Apr 5
    Last night I dreamt that my mom had opened a cafe. The opening party had been a great success. After the party both my parents and me came home in a horse-ridden carriage. I told...
    Cierzo Cierzo
    41-45, M
    1 Response Apr 5
    Because I used to work @ a bar until 4 in the morning my sleep schedule is so messed up. I'm used to going to sleep @ 5am and waking up @ 12pm lol but now that I have a real career...
    meganlynngreene meganlynngreene
    18-21, F
    Apr 5
    Years ago, people from work and college kept constantly talking to me about seeing me in various places around town. It would usually be something offhanded like, "Hey, saw you at...
    deleted deleted
    26-30
    2 Responses Apr 5
    I have new Instagram account. Please add me. @i.travelbysansan
    IAMPINAY IAMPINAY
    22-25, F
    1 Response Apr 5
    Hi. I'm reaching out as I'm so alone & unhappy, I'm 46 I was a only child brought up by my dear mum & nan they were my only family . Two months ago they both died 2 days apart...
    katz123 katz123
    46-50, F
    2 Responses Apr 5
    hello, i'm 16th and i have an oily face which means i have acnes. i am so desperate of it. i cry sometimes. and yesterday i went to a doctor. i had an facial, chemical peeling and...
    redfloral redfloral
    16-17, F
    3 Responses Apr 5
    My legs are sore, but I refuse to let that stop me from enjoying my walks everyday. I'm only untied for a couple of hours a day, and I have to make sure I get the most out of it.
    ZenLioNESS719 ZenLioNESS719
    46-50, F
    5 Responses Apr 5
    #3 I'm not sleepy after all :P so I'll continue. Taking it from the previous post, I've got a totally different thought running my head. Uhm, I got off a very serious...
    Abi936 Abi936
    22-25, M
    2 Responses Apr 5
    #2 For the past few days, I'm seeing more posts on people living in sexless marriages. I am from a family where my parents have very less intimacy. I was born after like 8 years...
    Abi936 Abi936
    22-25, M
    Apr 5
    I HAVE RECEIVED MY OFFICIAL REPLY FROM EP ABOUT EXPERIENCE AGAIN!!!😳And what I learned is that Experience Again is NOT connected to EP in ANY way, so treat it in the same way...
    BSTisapain BSTisapain
    46-50, F
    2 Responses Apr 5
    my baby fever is at an all-time high and my relationship is at an all-time low... we work different shifts and never get to see each other, we started fighting more than normal. my...
    4lynlover 4lynlover
    22-25
    1 Response Apr 5
    WARNING: Bad language... Wowzers. I have had so many girls I know be b_i_t_c_h_e_s to me! NOTE>I will now refer to this word as BEP. 1. There was once this girl, Pouthorley, who...
    YassIknowHowYouFeel YassIknowHowYouFeel
    22-25
    1 Response Apr 5
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