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I Have Williams Syndrome

A Williams Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Williams Syndrome. You're not alone. 4 People

    Life With Willams Syndrome

    I'v hade a hard time living with ws Becuse of the non excptence of those with a dissabilty or not I'm also a sexual assault suvivor but I love Jesus I'm a Christian and I'm loving and kind
    Ilovejustin1 Ilovejustin1 26-30, F 2 Responses Dec 17, 2012

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    Related Experiences

    I got diagnosed when I was 3 and I have it in both eyes. Just a few months before that I had a brain tumor. I can not begin to image what kind of stress this put my parents under...
    macyl macyl 18-21, F Nov 30

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    I was diagnosed with Duane Syndrome in my right eye when I was just a baby, when my Dad noticed I couldn't move my eye. From a very early age I remember being in the hospital...
    baaraah baaraah 18-21, F Dec 5

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    I found out I had Duane Syndrome in both of my eyes when I was around 6 years old but it only started to seriously impact my life when I was 12. From what I remember my vision used...
    Ashleyc97 Ashleyc97 16-17, M a week ago

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    Hi there. Since I was born I have been diagnosed with marfan syndrome. Little did I know, being an infant, I was on the verge of having many issues in life. They may not have been...
    ChrisSFTY ChrisSFTY 18-21, M 4 days ago

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    Hi my name is Christina, I just found out I have pica. I have been licking cigarette ashes off of my finger. It started about 5 months ago while I was living with my ex. I was very...
    4cutiepies 4cutiepies 36-40, F Dec 11

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    Hi, I'm 43 and I think I have pica because I'm really addicted to eating ice and smelling washing powder. It's only one brand of washing powder I crave for(I'm not worried about...
    smurft smurft 41-45, F 3 days ago

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    Recently diagnosed. Diagnosis seems a bit pointless seeing as there's no cure but I suppose it will stop me wasting my time looking for a solution. I wonder what to do with a life...
    Dontcare8 Dontcare8 26-30, F 22 hrs ago

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    I'm eating ice again. Yey? hahah, just wanna get that out there. Wrong info before, it's bad for your teeth.
    gnarlyaf gnarlyaf 18-21 Nov 23

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    My wife( 36, a twin, living in NZ), has MELAS. Hearing loss declined between 2007-2012. Had first grand mal seizures in 2012, diagnosed with mitochondrial disease/MELAS. Sadly had...
    Richeste Richeste 36-40, M Nov 29

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    hello swyer sisters. i was diagnosed at age of 18. had my gonadectomy at age of 21. on cycloprogynova since diagnosed. i am now 28. trying for my baby. this is the 2nd trial of...
    ibelieveingodextremly ibelieveingodextremly 26-30, F 1 Response Dec 5

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    THERE COMES TO A POINT THAT YOU REALIZE THAT ANY OR ALL RESOURCES AFFORTED TO A PERSON WITH A DISABILITY IS A SCAM; LEGAL, MEDICAL SHOULD BE BOUND TO A LEGAL ETHIC STANDARD, SADLY...
    JEM404 JEM404 41-45, M Dec 11

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    Anyone eat cigarette ashes? I would really like to talk to someone who has the same problem!
    4cutiepies 4cutiepies 36-40, F a week ago

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    OVUS SUMPTUM PAR MIDA U TOLS
    JEM404 JEM404 41-45, M 6 days ago

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    I have a twin brother that survived Guillain-Barré Syndrome or GBS. He was diagnosed at the age of six and it took a year for him to get treatment and get over the disorder. GBS...
    tinytornado95 tinytornado95 18-21, F 1 Response Nov 26

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    I have Hypermobility Ehlers Danlos Syndrome (EDS). I also have Postural Orthostatic Tachycardia Syndrome/dysautonomia (POTS). Ehlers Danlos syndrome is a connective tissue...
    jahoz jahoz 41-45 5 days ago

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    I am well acquainted with how disruptive motherhood can be to a woman's personal and professional autonomy. I will not be waxing poetic about it either (today of all days). I too...
    Tannasheart Tannasheart 46-50, F 1 Response 2 days ago

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    Hey All, I'm a 28 year old female with what I think is CVS. Every few months I am awoken in the middle of the night with the worst stomach ache in the centre of my abdomen and I...
    starjj starjj 26-30, F 1 Response Dec 7

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    I was diagnosed with HAS a few days ago - The initial cause was that I am experiencing eye issues and saw an ophthalmologist who then referred me to a neurologist who made the...
    barbarasayshi barbarasayshi 41-45, F 1 Response 6 days ago

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    i think Asperger Syndrome is very similar to Obssesive Compulsive Personality Disorder...
    Hanahbee Hanahbee 31-35, F 2 Responses 3 days ago

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    Today's playlist is a bit of a Johnny Cash medley. Ain't No Grave The Beast in Me Hurt I See A Darkness Give My Love to Rose Rusty Cage On top of that, I also listened to: These...
    unluckE unluckE 31-35, M 1 Response Dec 9

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    And tonight, they're both in my room... We've listened to Satyaa & Pari and "meditated" on my bed, before turning to bollywood songs just for the fun of it. Of course we listened...
    Injoy1767 Injoy1767 46-50, F 2 Responses a week ago

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    I think. I'm no doctor, but I was reading the symptoms and I know I know that's no way tell tell if you have it. I'm emotionless, I don't make eye contact, I'm clumsy and awkward...
    TransmutedHeart TransmutedHeart 18-21, F Nov 21

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    So many people without it have no idea of the pain it brings along. Today, I'm meeting with the Lender for our new house, and I can't control the neck tics and I'm hurting on a 8...
    jeepers92 jeepers92 41-45, M 2 Responses Nov 22

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    This experience message is for anyone who currently suffers from Hidradenitis Suppurativa (HS). PLEASE read my entire post before commenting, I have an EXTREMELY IMPORTANT and...
    starlits0ul starlits0ul 26-30 Nov 23

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    After 4/5 years of being called lazy when I feel too weak to move, or that it is all in my head, I was finally diagnosed with POTS yesterday. My parents aren't dealing with it well...
    anon1995 anon1995 18-21, F Nov 23

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    So, when we get our dogs as puppies, we're technically kidnapping them in a way, right? Since they have no inkling as to what is happening, to them it's kidnapping I suppose. (Or...
    LiveForAnotherDay LiveForAnotherDay 13-15, F 2 Responses Nov 24

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    Hi, Im new to this site, and anything like this. I recently found out that my BF, and as of last month, Husband has AS. I am not a Doctor, but he has all the characteristics and...
    Metalmissys Metalmissys 46-50, F 1 Response Nov 24

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    I don't remember a day where I actually felt normal. Could run. Didn't have my parents yell at me for "not controlling my symptoms". People asking why my legs are all red and...
    HebBay HebBay 18-21, F 1 Response Nov 24

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    I think I have Aspergers, I love arts so much I think it's the only life where I want to be, I love seeing great murals an architect designs, I can get obsessed and lost when I...
    perennialsorrows perennialsorrows 31-35, F 4 Responses Nov 27

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    I can't meet people's gazes. I have single minded focus on certain things. I am clumsy (found a way to help that.) I usually end a conversation just because I can't continue it, I...
    Ditum Ditum 18-21, M Nov 28

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    It took the doctors almost 3 years to diagnose me. At first, they thought it was anxiety or depression. I was thrown around from hospital to hospital for about 2 1/2 years until a...
    Kristoe103095 Kristoe103095 18-21, F Nov 29

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    it was twenty four years ago when I had bouts of severe stomach pain. the kind of pain that would double you over. it was scary because I was pregnant at the time. I thought...
    regalshewolf regalshewolf 41-45, F 1 Response Dec 2

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    From the time that I was 7 years old, I have been medicated. I have been on 30+ drugs my entire life. First was Ritalin, that made me a walking zombie. From then on anti...
    sicknfaith83 sicknfaith83 31-35, F Dec 2

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    I thought I needed a good vent so here goes. Sorry if there is TMI. Every since I started my period when I was 11 I would be in excruciating pain, I would have to have time off...
    xxkerry1990xx xxkerry1990xx 22-25, F 1 Response Dec 2

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    A few years ago, I moved from the east coast of the United States to the southwest to go back to university after taking a year long break from school, and I didn't know a single...
    uglyhands uglyhands 22-25, F Dec 4

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    I was finally diagnosed as being on the spectrum on November 2nd, 2014. The test used was the Gilliam Asperger's Disorder Scale and it was a three hour test done over three visits...
    lyricalongings lyricalongings 31-35, F 1 Response Dec 7

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    The doctor finally told me I have it a year ago but so far no one believes it. Looking to meet others who would like to talk about it.
    keravon keravon 51-55, M 1 Response Dec 8

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    I've tried to use it to my advantage. I'm gifted with writing and I believe Aspergers along with an abusive home environment help to give me that as well as other skills. Being...
    KnaisGuy KnaisGuy 22-25, M 3 Responses Dec 8

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    I was diagnosed with F84.5 ...... Asperger's Syndrome is an interesting foot note on the diagnostic scale of what is know 'autism spectrum disorder' a lot of harm was done when...
    Homejames Homejames 51-55, M 1 Response Dec 8

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    So I have this nice blue budgie that has recently been widowed (his green husband died). I believe the cause of death was curmudgeonly budgie syndrome. Truth is he was always a...
    Tannasheart Tannasheart 46-50, F Dec 9

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    Six years ago I broke my left foot. Nothing major, 6 weeks in plaster and then it will be ok. The cast came off, the bone had healed but the top of my foot was hyper sensitive to...
    barefootshirtless barefootshirtless 41-45, M Dec 9

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    This **** is no joke. The pain is pretty severe. I plan on having surgery, but I have to wait till after Christmas.
    Xplictt Xplictt 22-25, M Dec 11

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    I've struggled all my life socially. I never made a single friend until I turned 14. I was always "that weird, quiet girl." People were cruel to me and I could never figure out why...
    SecretGaygent SecretGaygent 22-25, F 5 Responses 5 days ago

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    At 14 he is presenting with some ridged exhausting repetitive, perseverant, behaviours. This is the first time I have felt pretty out of my depth managing his pathology. I am...
    Tannasheart Tannasheart 46-50, F 2 days ago

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