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I Have Williams Syndrome

A Williams Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Williams Syndrome. You're not alone. 4 People

    Life With Willams Syndrome

    I'v hade a hard time living with ws Becuse of the non excptence of those with a dissabilty or not I'm also a sexual assault suvivor but I love Jesus I'm a Christian and I'm loving and kind
    Ilovejustin1 Ilovejustin1 26-30, F 2 Responses Dec 17, 2012

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    Related Experiences

    A description of my life can be broken down into 3 activities 1. Activities aimed at caring for my house and family 2. Activities that aimed keeping me entertained 3. Activities...
    colorbuff colorbuff 51-55, F 1 hr ago

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    I absolutely love children, and I have always wanted to be a mum but I may never be able to have children and it's all my own fault. When I was 13 I was diagnosed with anorexia...
    SarahJane3 SarahJane3 31-35, F 2 Responses 4 hrs ago

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    Hayley Williams is my spirit animal.
    LittleUnicorn LittleUnicorn 18-21 5 hrs ago

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    I tried explaining to my mom over the weekend why I don't want any kids. There are many reasons but all my mom says is "you are in a bad financial situation now, you will change...
    AwakenAndLost AwakenAndLost 26-30, F 5 hrs ago

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    My name is Tiffani and I am looking for another person with KSS for my brother, Keith. He is 42 now and was diagnosed at 24. He started showing signs in his late teens, first by...
    Tiffanimorgan Tiffanimorgan 18-21, F 5 hrs ago

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    When I walked back in, you looked surprised. I was surprised too but I didn't show it. I was surprised by myself, a year ago I never would have even been able to talk to you for...
    AmberTheShyGirl AmberTheShyGirl 18-21, F 7 hrs ago

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    i love hank williams music old country music is the best
    autism1011 autism1011 22-25, M 4 Responses 1 day ago

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    I'm 33yrs old, I was born with bi-lateral sprengels. Born to a family which didn't have much $, and having a deformity that's rare I went undiagnosed until a year ago. As a child...
    TrisCat TrisCat 31-35, F 1 Response 1 day ago

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    I came across this site reading everyone's stories feeling amazed about how I am not alone. I feel a little disappointed because everyone's stories are mostly or similarly the same...
    whyme96 whyme96 18-21, F 1 Response 3 days ago

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    Today, I was diagnosed with Duane Syndrome. After 17 long years of wandering what's wrong with me, and why my eyes are so different from other peoples', I finally have closure. I...
    katiebug7 katiebug7 16-17, F 4 days ago

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    Good evening! I have been diagnosed with Marfan Syndrome when I was three months old by an ophthalmologist in a hospital in Poland. I am now 6'2", after two cardiac surgeries and...
    sakrona sakrona 18-21, F 3 Responses 4 days ago

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    Just found out my 11 year old son has Asperger's syndrome. I have suspected for a while, and the reason it went undiagnosed for so long is because he is so academically gifted. In...
    SoShellyBye SoShellyBye 41-45, F 2 Responses 4 days ago

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    It's hard to really do anything.. When your a minor and have no family support... What's the point
    Norial Norial 13-15, F 1 Response 4 days ago

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    Getting old fears me. True. I am shocked that i am no longer a teenager, but why is it like only my age increases? I feel like my mentality when i was a teenager is the same as i...
    blitzkrieg7 blitzkrieg7 22-25, F 4 Responses 4 days ago

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    Robin Williams in a Denver Broncos cheerleader outfit!!!!  Lmao...
    Nightvale Nightvale 46-50, M 1 Response 4 days ago

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    Hi I am 17 and i was diagnosed January 2015 with POTS but we were almost certain for several months before. I am a junior in high school and I try not to let my condition keep me...
    mermaidmixi mermaidmixi 18-21, F 6 days ago

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    im in the early stages of carpal tunnel syndrome in my right hand. i dont wear a brace yet. i go through pain and numbness in my fingers. its kinda weird.
    noaht43 noaht43 41-45, T a week ago

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    Thick blood (also known as hypercoagulability, Antiphospholipids, and Hughes Syndrome) is a condition where the blood is more viscous (thicker and stickier) than normal. The...
    topcap2017 topcap2017 41-45, M 1 Response a week ago

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    "In many ways she's a lot like me, she don't give a damn about society." ...Hank Williams Jr.
    savoy2 savoy2 46-50, M 1 Response a week ago

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    So I have a question. For me, when I am about to faint, I become really incoherent. I forget what I am talking about, I say off the wall things, and I can barely walk straight. It...
    imstrongerthanyouthink imstrongerthanyouthink 18-21, F Feb 4

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    "If you mind your own business, you'll stay busy all the time." ...Hank Williams Jr.
    savoy2 savoy2 46-50, M Feb 4

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    I don't understand why they are subjecting me to this? They first suggested Turner Syndrome to me 2 years ago and referred me for yet more bloodwork on my hormones - the laugh of...
    LoneSouls LoneSouls 31-35, F Feb 4

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    i have several mental illnesses. i have been hospitalized many times and in rehabs. i take medication every day. i hate stigma and discrimination. it is wrong. i have...
    coffeeonice coffeeonice 31-35, F 1 Response Feb 3

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    Broken Heart Syndrome is real. SO happy I DiDN'T GET THAT! But I was HEARTBROKEN for MANY, MANY months. It took another guy to help me forget and keep me distracted but that dude...
    endlessl0ve endlessl0ve 26-30, F 2 Responses Feb 3

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    i'm 40 years old and have polands syndrome.i was always told that i just had a birth defect and that was it but finally a doctor diagnosed me.i was fine when i was younger but for...
    Brewdogg Brewdogg 36-40, M 1 Response Feb 1

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    Homeschooled my entire life I suck at Math Still don't have a driver's license (and haven't practice-driven since last summer) I missed out on pretty much everything cool in the 9...
    FluttershyLabeouf FluttershyLabeouf 18-21, M 1 Response Feb 1

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    I have the pais syndrome an intersex condition. I am a FTM/Libragender and I have bottom dysphoria and I am happy though that I'm intersex, though worried too.
    Yviroc Yviroc 22-25, T Jan 31

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    Does anyone else experience a great feeling of anxiety and impending constant doom from this? Like something is terribly wrong...does anyone else feel this horrific panic deep in...
    myreality1 myreality1 36-40, M Jan 30

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    My husband and I have been trying to get pregnant for the past year. Nothing. I have two beautiful twin daughters. Natural conception, first pregnancy. I finally went to see a...
    Butterflykiss707 Butterflykiss707 22-25, F Jan 30

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    Watching the Wendy Williams show from time to time. The audience reactions are very entertaining. They say ohhh, ahhh and make horrified, surprised faces. So funny! It's trash...
    CantatriceChauve CantatriceChauve 31-35, F Jan 29

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    Is there anyone out there who has scleroderma of their organs? I now have it in my esophagus and lungs. Is this a death certainty. All I read is no cure and short life span. 3-5...
    jojosig jojosig 46-50, F Jan 28

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    I have had scleroderma of the esophagus for @ years now. I have woken up on respirators more than once. Now I have been told its in my lungs. I have Lupus and CREST. I feel like I...
    jojosig jojosig 46-50, F Jan 28

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    He's most famous for the music of Star Wars and Harry Potter probably. But many of the best film scores ever were written by this guy. Superman, Shindler's List, Fiddler on the...
    BruceWained BruceWained 26-30, M Jan 27

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    New low: as some of my friends may know, I was violently abused, raped and borderline tortured my my stepmother and stepsister following my fathers passing, and I left when I was...
    Nihl Nihl 18-21, M 1 Response Jan 26

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    My 10yo son has a missing right pec muscle, but no other symptoms of Poland. He's very sporty and it has made no difference to what he can do, in fact he has developed a huge...
    TKDmum TKDmum 41-45, F Jan 26

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    I have had this for at least two years. Always had insomnia and higher than average need for sleep, but when I started drinking I began to sleep later to avoid the hangovers. Add...
    tophertime22 tophertime22 18-21, M Jan 25

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    My name is Kristen Phelan and I'm a casting director working with Watercooler Casting. We are currently in development of a new TV project that is looking to document and bring...
    thekp129 thekp129 41-45, F Jan 25

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    We are Young Country, We are All Kinds, Of Music and People, 'Cause We don't Draw No Lines, Our Hair Is Not Orange, We Don't Wear Chains and Spikes, But We know how to Have Fun...
    savoy2 savoy2 46-50, M 1 Response Jan 25

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    I was born with it. This disorder has really changed my life. All my symptoms of it: ----I tend to be socially anxious at times, not know what to say, I am not very good at...
    RainbowBlaze RainbowBlaze 13-15 2 Responses Jan 25

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