I Have Wolff-parkinson-white Syndrome

A Wolff-Parkinson-White Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Wolff-Parkinson-White Syndrome. You're not alone. 163 People

    I am. 45 years old, throughout my childhood,

    I would have dizzy spells and blackouts, doctors said I was making it up for attention. At 18, I had a serious attack, heart began racing extremely fast, turned really white with excessive sweating and shortness of breath as well as blacking out. I was rushed to the hospital...
    i1u4eel2 i1u4eel2
    46-50, M
    1 Response Sep 21, 2014

    Little Leo

    I don't have Wolff Parkinson White Syndrome but I gave birth 2 weeks ago to the most beautiful little boy Leo who does. Leo was born with a coarctation of the aorta that was discovered at a day old, he had surgery at 5 days old to correct it and during surgery he had an SVT, this...
    Leosmummy Leosmummy
    Aug 9, 2013

    My Experience/College Options

    I've had Wolff Parkinson White Syndrome for about 2 years now, and each year I've had a surgery to ablate it. I'm one of the rare cases where it was to close to my SV node, but we thought it might have been damaged enough to help me go on with less symptons- but my symptons seem...
    RobinFleming RobinFleming
    18-21, F
    Jul 27, 2013

    Heart Is Heavy

    my son is 9. March of this year he came to me and say his heart was beating too fast, and his chest and head hurt. I rushed him to the hospital. He was rushed to the back with 4 nurses. Doctor came in. Nurse said she needed a crash cart and they gave him something to slow his...
    lovelyred29 lovelyred29
    2 Responses Aug 4, 2013

    Finally An Explination.

    This all started back when I was in 7th grade. I was in gym, and after class I had bent over to pick up my equipment and felt this weird jumpstart flutter sensation in my chest. My heart was racing to the point of about 220 bpm. It was weird because it didn't hurt, but I felt...
    Doogie86 Doogie86
    31-35, M
    1 Response Oct 9, 2013

    Just Been Diagnosed And Had Surgery

    Hi everyone, I'd had a few dizzy spells followed by a rapid heartbeat a number of times over the years but they'd passed quite quickly so I never really bothered too much - however 2 weeks ago I had another episode where the rapid heart beat did not stop. I had been out running...
    Orbs Orbs
    41-45, M
    3 Responses Oct 5, 2013

    Living With Wpw Still...

    When I was born the first symptoms of what I guess can be considered wpw now started with an unusually high heart rate. I don't know what exactly the vital signs were, but I always remember my mother saying that I was monitored with a fast pulse. Other signs began showing at...
    ckeyz85 ckeyz85
    26-30, M
    1 Response Dec 29, 2012

    Started Having Palpitations At 12 But Wasn't Diagonsed Until 26

    This is really amazing that so many others have experienced the exact same symptons. I'm a 38 yeard old female w/ a 3 year old son. I remember I was 12 when I had my first heart palpitation episode. I ran track at the YMCA with my school and I remember my heart beating...
    nicety25 nicety25
    41-45, F
    Sep 27, 2013

    my name is Tracey I am 46,

    I was diagnosed with WPW 16 years ago while I was having surgery, I have had 3 heart ablations in 6 months, whilst I was having the last ablation I was actually awake during the procedure, I was told they were unsuccessful and there was also another issue, I now have tachycardia...
    motorbikes motorbikes
    46-50, F
    1 Response Mar 23, 2015

    Still Alive And Living With Wpw

    On a routine drs. visit I mentioned that I wondered if I might have mitro valve prolapse  as I had heard some patients with fibromyalgia often would have this condition (at this time I was in my late 40's).  Luckily my 2nd dr. took a proactive approach.  He scheduled a stress...
    faithinno1 faithinno1
    56-60, F
    2 Responses Jul 9, 2011

    Getting Tired Of The Wolff...

    I found out last year that I have wpw. I thought it was anxiety and depression. On the visit that I found out I had wpw, I told my doctor that my heart was beating so fast that I was scared I was having a heart attack. Then I was "wired" for the next 24 hours. Thats how he knew...
    texasrain222 texasrain222
    36-40, F
    7 Responses Jan 15, 2010

    My mom and I have WPW.

    She was diagnosed when she was in her 50's. She talked about having a racing heart with each of her pregnancies. After she was diagnosed with WPW, one of our friends, an MD, said that if her heart raced and she had a feeling of dread or foreboding; just go straight to the ER...
    milesdeb milesdeb
    Sep 3, 2014

    Just Diagnosed With WPW

    I have had this all my life but only found out it was WPW the other day. I am a 41 year old female. When I was a little girl I would announce to my parents that my heart was "doing that funny thing again." My mom took me to our family doc and he said I was hyperventilating. I...
    lonetwin lonetwin
    7 Responses Apr 13, 2013

    I was just diagnosed with WPW this past week.

    I'm 43 and I first experienced symptoms when playing high school football. At the time it was diagnosed as a PSVT, but no one noticed the WPW pattern on my EKG until last week. I haven't had a PSVT episode in a year or two and I hadn't been thinking about my condition much...
    denm denm
    46-50, M
    2 Responses Dec 28, 2013

    My Life With WPW Syndrome...Can I Fly?

    Hello, first of all sorry for my English - I'm from Poland. :) I understand what I read, worse with writing... ;) On the polish Internet forums I can't find any information... I am 27 years old and I have found to WPW syndrome. All the time I take medications: propafenonum 150...
    disilussion disilussion
    31-35, F
    1 Response Sep 1, 2013

    My WPW Story

    I can't remember when I had my 1st episode of WPW, I think it was when I was a teenager but wasn't until last year (28 years) that it was certified. I was doing some exercise at home (alone) and the palpitations started I thought I was going to die, it was the worst episode I...
    lolylababy lolylababy
    31-35, F
    Sep 29, 2013

    My Life In One Page

    Hi I'm a 15 year old female and I've been dealing with Wolff parkinson white since I was born but didn't get symptoms until I was 7. I've been to the hospital countless times I have near-syncope and paroxysmal tachycardia & will be on hospital homebound soon. My cardiologist...
    Kassi298 Kassi298
    18-21, F
    2 Responses Nov 14, 2013

    I am turning 20 at the end of this year.

    After going through loads of tests, I was diagnosed with WPW 6 months back; had dizzy spells almost everyday for the past 1 year. I went for the ablation surgery 2 weeks back and it wasn't a success (nor too much of a failure). Doctors discovered that my excess pathway is...
    Janadino Janadino
    18-21, M
    Mar 13, 2016

    Living With Wpw And Not Letting It Get The Best Of Me.

    I was diagnosed with Wolff Parkinson White Syndrome one month before my wedding, perfect timing. I had "episodes" since i was in my teens, but they were short and usually reverted by holding my breath. As i got older the episodes increased in length and severity, and eventually...
    CharleneBD CharleneBD
    2 Responses Oct 12, 2012


    I believe I started having symptoms when I was seven but it wasn't discovered until 2012 when I was walking in the hall with a whole bunch of book to my class and had symptoms that lasted an hour and so far I have had multiple episodes and usually all day long without having an...
    Kassi298 Kassi298
    18-21, F
    3 Responses Nov 14, 2013


    I was diagnosed with WPW back in May 2012, when I was 18. I had been symptomatic all my life, but all tests were normal when they would be done. They couldn't figure it out. I just got lucky enough to have an issue with it while the doctor was checking my heart, and he noticed...
    Jessileanne Jessileanne
    May 17, 2013

    My symptoms of WPW started about the time

    that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I was going to throw up everywhere. Days went on and this would happen to me on and off. I sat in class one day and it happened once again. My...
    adrienleigh adrienleigh
    13-15, F
    Apr 17, 2016

    Daughter With Wpw

    My daughter is now 17 years old and when she was 8 years old she was diagnosed with Wolff-parkinson-white Syndrome, She has been in and out of hospital, been on numerious beta blockers, fitted with King of Hearts machine umpteen times and had 2 catheter ablation operations...
    morganfiona morganfiona
    18-21, F
    3 Responses Apr 19, 2012

    I am 20 and I have WPW.

    (I'm italian so I'm sorry for my grammar mistakes). I discovered to have this syndrome at the age of 17 during a medical check for sport (I done it every year). They found me strange lines in my EKG. In that moment started my long journey. When you are 17 you only want to think...
    Kamycami Kamycami
    22-25, F
    Dec 9, 2013

    I Have Wollf Parkinson White Syndrome

    hi there i have this heart condition ive had two abaltions which have not worked an simply living with this condition i have 3 children which is sometimes a big worry especially when im alone with my 2 year old an my heart starts racing is there any 1 else who has this condition...
    1landrover 1landrover
    41-45, F
    2 Responses Dec 15, 2011

    Living With The Disease

    Not easy but it is curable. I'll be getting the I athletes ablation done soon and I believe I had symptoms since I was 7 but it was discovered until 2012
    Kassi298 Kassi298
    18-21, F
    4 Responses Nov 14, 2013

    Waiting For Treatment.

    Hi there,I'm 22, and since I was about 17 I've had frequent dizzy spells and weakness every day.  Sometimes I would faint outright, but not more than once ever few months. I had seen doctors for it but none of them checked my heart until recently.Last month I fainted...
    sheisakeeper sheisakeeper
    22-25, F
    2 Responses Jan 15, 2010

    Don'T Be Afraid Of Ablation Surgery

    Mojosanders Hello to all with WPW. I would just like to say that everyones symptoms are all fairly similar, but living in fear is hard enough already & compounds WPW. Having the ablation was the best thing ever to happen to me. No more episodes of pounding heart rate which scares...
    Mojosanders Mojosanders
    46-50, M
    1 Response May 13, 2013

    Cured of Wpw

    I was born with WPW, but I didn't know I had it until I was 59 years old.  I had episodes of racing heartbeat since my 20's, but the doctors all said that it was just annoying, not life-threatening.  After running up a couple of flights of stairs one day, I couldn't...
    DarylHallFan DarylHallFan
    56-60, F
    3 Responses Oct 5, 2009

    I Could Have Died, But Instead I Survived!

    I'm 29, I've been married for 10 years and I have to girls 9 and 6. Thought I was completely healthy,but on June 16, 2012 at 8:30 am I was admitted to the ER with a heart rate that ranged from 290-310. The hospital thought I was on drugs. They told my parents that the only time...
    Mrrrranda Mrrrranda
    26-30, F
    2 Responses Jun 26, 2012

    My Beautiful Son Josh

    When i was nineteen in 2001; i was shocked but happy to find out i was pregnant and soon discovered i was having a little boy whos name would definately be Josh . He was born on the first of november that year weighing a very healthy 8lb 6 oz, i was delighted he was beautiful...
    nickylaw nickylaw
    1 Response Dec 7, 2012

    I'm a 19 year old Male

    and I was diagnosed with wpw when I was 15 years old for 4 years I have basically ignored my symptoms but in recent years it has become increasingly crippling it has effected my exam taking ability and I used to play football but in recent years owing to my heart I have stopped...
    faiquzaki faiquzaki
    18-21, M
    Mar 30, 2016

    Other Symptoms?

    I was told I have Wolff-Parkinson-White syndrome about a year ago. I was referred to an electrophysiologist for a few different symptoms. I'm not sure when I started having episodes, I never quite knew what they were. When I'd tell my pcp about them he'd just say it must be...
    ibepatience ibepatience
    36-40, F
    1 Response Jan 9, 2013

    Help Me

    How often do you have an attack? And how long are you having it for? Please answer this as my cardiologist is not being very helpful. Thank you
    Steviej23 Steviej23
    1 Response Jul 7, 2013

    Please Someone Respond To My Post!

    Hi, I am a 22 year old female who was just diagnosed with Wolff-Parkinson-White Syndrome. I had just seen an electrocardiologist today who is collecting more information from other specialists before wanting to do a catheter ablation. The only thing that is out of the ordinary is...
    ashleymarie101 ashleymarie101
    26-30, F
    8 Responses Jul 26, 2013

    Just Diagnosed With WPW

    I'm 29 years old and was diagnosed with WPW today.  I've been on line searching for information and I came across this website.  I had an emergency c-section in march and there was an abnormality on my EKG.  First I was told it was a left bundle branch blockage...
    Blessed77 Blessed77
    26-30, F
    2 Responses May 19, 2010

    My Story

    Hi, i have had symptoms of wpw as far back as i can remember, i had been to the doctors several times to be diagnosed with anxiety and panic attacks. It was only this year in feb 2013 that they got a lot worse, lasting a lot longer and started to make me feel dizzy, light headed...
    Kazx Kazx
    26-30, F
    Sep 11, 2013

    Had Wpw, Symptoms Worsened, Went In For Ablation, But Ep Study Came Out Negative- Help?

    I'm not sure what to do, I'm hoping someone out there might have had this same experience or can shed some light?I was diagnosed with WPW at 33, after going in for severe palpitations.  I was told at that time to live with it and I should be monitered, not understanding really...
    kaq331 kaq331
    Dec 24, 2011


    Hello everyone that is reading this. I am 24 and I was diagnosed with WPWS on 6/14/13. Before I went into the ER I have had the feeling of shortness of breath and pressure on my chest for a little over a week. Before this I felt normal, at least for 1 year I did. Thats how long...
    Abelness Abelness
    26-30, M
    3 Responses Jun 18, 2013

    WPW While I Was Running!

    I am a 25 year old male. On March 12, 2012 I went for my nightly run around my neighborhood and within 15 minutes of my run, I felt very lightheaded and collapsed on the side of the road. I got back up only to feel light-headed and nausea. I literally couldn't stand without...
    thechav thechav
    22-25, M
    4 Responses May 9, 2012

    I was diagnosed with WPW 6 months ago

    and have had 3 unsuccessful ablation procedure since. I am now wait for the fourth procedure and have had some complications from the previous procedures. However I find the benefit of a successful ablation to far outweight the risks of the procedure. I have experienced...
    occo occo
    36-40, M
    1 Response Sep 10, 2015

    Living In Fear And Fatigue

    I can honestly say that i feel burnt out almost everyday of my life. The constant switching of meds and the fatigue that follows tachycardia. My Cardiologist told me that wolff parkinsons white syndrome is usually not curable so like others they couldnt ablate. I wake up some...
    Rohd3915 Rohd3915
    31-35, F
    1 Response Mar 6, 2013

    I Have Wolff Parkinson White Syndrome

    hi im 27 female Australia :) i was recently dignosed with wpw i first decided to see a specialist when one day while having lunch everytime i swallowed a mouthfull of food i was in pain like i had a tablet stuck in my throught (please excuse my spelling  ) a sharp...
    ctwoeight ctwoeight
    26-30, F
    3 Responses Sep 23, 2009

    More of a question than an experience

    but I was diagnosed with WPW last year. I had an EP study which should have followed with an ablation. The cardiologist decided it was safer to leave the pathway as I wasn't symptomatic. However, 5 weeks ago I had an episode that cause me to black out. At A&E I was seen by a...
    deleted deleted
    Sep 17, 2015

    I Am A Natural Healer With Wpw

    I am 42 and a Natural Healing Practitioner living in Lexington, Kentucky. I was first diagnosed with WPW at 34 years old though I have had symptoms through out my life, no one paid attention. When I was a small child and they would put me down for a nap I would lay on my side to...
    Mystc1111 Mystc1111
    41-45, F
    8 Responses Nov 9, 2009

    My Experience With Wpw

    I was diagnosed with Wolff Parkinson White Syndrome a little over a month ago.  It was a complete shock to me.  The event leading to my diagnosis was a track meet.  I'm on the high school track team, and participated in a meet where I ran 2 events: the mile and half mile...
    Kwolff Kwolff
    4 Responses May 18, 2011

    WPWS Cured

      I was diagnosed with WPWS in 2007. my symptoms was exactly as described. the ablation was 100% successful. my cardio says i am cured. spend the money on the ablation it is worth it. regards
    expokerpete expokerpete
    1 Response Jul 10, 2013

    Hi there! My son is 3 months old

    and he has wpw syndrome. Since he was born he had SVPT two times in 2months...and when the doctors changed the therapy to Amiodarone he is stable. But I have read the contraindications of this medicine and I'm afraid of it cuz he is just a baby but he has to take such strong...
    snegulka123 snegulka123
    26-30, F
    Jan 9, 2015

    I would love to hear from someone

    who has had a similar story and a positive outcome! My doctor was not really forthcoming with information, and to be fair, I had so many questions and he only had so much time. My hope is that the ablation will alleviate all of these symptoms I have been trying to have fixed...
    3Es1A 3Es1A
    31-35, F
    Jan 19, 2016

    Learning To Live With Wpw

    i collapsed in march, when in ambulance had ecg, and they picked up on my heart condition. Been to doctors for years with tiredness, palpitations, shortness of breath, never diagnosed. stayed in hospital for 3 weeks, being monitored then waiting for a bed at St Thomas hospital in...
    n10i9k11 n10i9k11
    31-35, F
    7 Responses Jun 2, 2010
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