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I Have Wolff-parkinson-white Syndrome

A Wolff-Parkinson-White Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Wolff-Parkinson-White Syndrome. You're not alone. 133 People

    Just Been Diagnosed And Had Surgery

    Hi everyone, I'd had a few dizzy spells followed by a rapid heartbeat a number of times over the years but they'd passed quite quickly so I never really bothered too much - however 2 weeks ago I had another episode where the rapid heart beat did not stop. I had been out running...
    Orbs Orbs 41-45, M 3 Responses Oct 5, 2013

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    Considered Cured After An Ablation--Hopefully It Never Comes Back.

    I first noticed the symptoms that would eventually be diagnosed as WPW when I was in middle school. I was a very athletic kid in elementary school and played baseball every year, but I never had an incident until sixth grade gym class. It would feel like my heart would "shudder...
    grounden88 grounden88 26-30, M 1 Response May 10, 2013

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    Living In Fear And Fatigue

    I can honestly say that i feel burnt out almost everyday of my life. The constant switching of meds and the fatigue that follows tachycardia. My Cardiologist told me that wolff parkinsons white syndrome is usually not curable so like others they couldnt ablate. I wake up some...
    Rohd3915 Rohd3915 31-35, F 1 Response Mar 6, 2013

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    Please Someone Respond To My Post!

    Hi, I am a 22 year old female who was just diagnosed with Wolff-Parkinson-White Syndrome. I had just seen an electrocardiologist today who is collecting more information from other specialists before wanting to do a catheter ablation. The only thing that is out of the ordinary is...
    ashleymarie101 ashleymarie101 22-25, F 5 Responses Jul 26, 2013

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    Started Having Palpitations At 12 But Wasn't Diagonsed Until 26

    This is really amazing that so many others have experienced the exact same symptons. I'm a 38 yeard old female w/ a 3 year old son. I remember I was 12 when I had my first heart palpitation episode. I ran track at the YMCA with my school and I remember my heart beating...
    nicety25 nicety25 36-40, F Sep 27, 2013

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    Other Symptoms?

    I was told I have Wolff-Parkinson-White syndrome about a year ago. I was referred to an electrophysiologist for a few different symptoms. I'm not sure when I started having episodes, I never quite knew what they were. When I'd tell my pcp about them he'd just say it must be...
    ibepatience ibepatience 36-40, F 1 Response Jan 9, 2013

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    WPWS Cured

      I was diagnosed with WPWS in 2007. my symptoms was exactly as described. the ablation was 100% successful. my cardio says i am cured. spend the money on the ablation it is worth it. regards
    expokerpete expokerpete 31-35 1 Response Jul 10, 2013

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    Had Wpw, Symptoms Worsened, Went In For Ablation, But Ep Study Came Out Negative- Help?

    I'm not sure what to do, I'm hoping someone out there might have had this same experience or can shed some light?I was diagnosed with WPW at 33, after going in for severe palpitations.  I was told at that time to live with it and I should be monitered, not understanding really...
    kaq331 kaq331 41-45 Dec 24, 2011

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    Texas Giel

    I was diagnosed with wolf parkinson white 4 years ago after I fainted and fell down the stairs. I have been taking toprol to control the rapid heartbeat. I recently moved to another state and have seen 3 heart doctors. They all recommend ablation. They were actually surprised...
    Dancininphilly Dancininphilly 51-55 3 Responses Jun 11, 2011

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    I Could Have Died, But Instead I Survived!

    I'm 29, I've been married for 10 years and I have to girls 9 and 6. Thought I was completely healthy,but on June 16, 2012 at 8:30 am I was admitted to the ER with a heart rate that ranged from 290-310. The hospital thought I was on drugs. They told my parents that the only time...
    Mrrrranda Mrrrranda 26-30, F 2 Responses Jun 26, 2012

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    06/14/13

    Hello everyone that is reading this. I am 24 and I was diagnosed with WPWS on 6/14/13. Before I went into the ER I have had the feeling of shortness of breath and pressure on my chest for a little over a week. Before this I felt normal, at least for 1 year I did. Thats how long...
    Abelness Abelness 22-25, M 3 Responses Jun 18, 2013

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    Confusion

    I believe I started having symptoms when I was seven but it wasn't discovered until 2012 when I was walking in the hall with a whole bunch of book to my class and had symptoms that lasted an hour and so far I have had multiple episodes and usually all day long without having an...
    Kassi298 Kassi298 16-17, F 3 Responses Nov 14, 2013

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    My Experience/College Options

    I've had Wolff Parkinson White Syndrome for about 2 years now, and each year I've had a surgery to ablate it. I'm one of the rare cases where it was to close to my SV node, but we thought it might have been damaged enough to help me go on with less symptons- but my symptons seem...
    RobinFleming RobinFleming 16-17, F Jul 27, 2013

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    Cured of Wpw

    I was born with WPW, but I didn't know I had it until I was 59 years old.  I had episodes of racing heartbeat since my 20's, but the doctors all said that it was just annoying, not life-threatening.  After running up a couple of flights of stairs one day, I couldn't...
    DarylHallFan DarylHallFan 56-60, F 5 Responses Oct 5, 2009

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    My Beautiful Son Josh

    When i was nineteen in 2001; i was shocked but happy to find out i was pregnant and soon discovered i was having a little boy whos name would definately be Josh . He was born on the first of november that year weighing a very healthy 8lb 6 oz, i was delighted he was beautiful...
    nickylaw nickylaw 31-35 1 Response Dec 7, 2012

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    I Have It Too!

    Hi everyone! im WALTER ..26! I hope you are all getting better! I was diagnose With wolf! that's how I call it!:) First day I felt a sharp pain on the left side of my chest and I panic and started to ha have other symptoms... I now realize that my problem was from eating bad!!! I...
    Osorio Osorio 26-30 1 Response Apr 23, 2013

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    Still Standing

    Hello,  I am a 28 yr old mother of 3 daughter's and I have WPW Syndrome. I was first diagnosed in 2006 2 months after I had my 3rd daughter. I presented to the ER after I fainted. The Dr's wanted to know if I had any palpitations and I said no I did't. Well apparently they saw...
    karesha82 karesha82 26-30 1 Response Mar 15, 2011

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    Learning To Live With Wpw

    i collapsed in march, when in ambulance had ecg, and they picked up on my heart condition. Been to doctors for years with tiredness, palpitations, shortness of breath, never diagnosed. stayed in hospital for 3 weeks, being monitored then waiting for a bed at St Thomas hospital in...
    n10i9k11 n10i9k11 31-35, F 7 Responses Jun 2, 2010

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    Thinking Of Just "Dealing" With It...

    I was diagnosed about 3 months ago with WPW and decided to go ahead and have the ablation and put it all behind me forever.. or so I thought! Last Wednesday I went in for the procedure and during... some part of the Doctors equipment starting failing and he had to stop mid...
    importgurl83 importgurl83 26-30 7 Responses Apr 16, 2013

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    Have Wpw. Anyone Else With Symptoms Lasting For Days?

    I was diagnosed in 04 (14yr old) with psvt and have had several episodes every few months, had 2 children and it was still manageable. Just had twins in february, and this pregnancy they were horrible, lasted for hrs. Was hospitalized the last mth of pregnancy for preterm labor...
    Meg1109 Meg1109 22-25, F 5 Responses Apr 15, 2013

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    Daughter With Wpw

    My daughter is now 17 years old and when she was 8 years old she was diagnosed with Wolff-parkinson-white Syndrome, She has been in and out of hospital, been on numerious beta blockers, fitted with King of Hearts machine umpteen times and had 2 catheter ablation operations...
    morganfiona morganfiona 16-17, F 3 Responses Apr 19, 2012

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    Living With The Disease

    Not easy but it is curable. I'll be getting the I athletes ablation done soon and I believe I had symptoms since I was 7 but it was discovered until 2012
    Kassi298 Kassi298 16-17, F 4 Responses Nov 14, 2013

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    My Experience With Wpw

    I was diagnosed with Wolff Parkinson White Syndrome a little over a month ago.  It was a complete shock to me.  The event leading to my diagnosis was a track meet.  I'm on the high school track team, and participated in a meet where I ran 2 events: the mile and half mile...
    Kwolff Kwolff 13-15 4 Responses May 18, 2011

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    My WPW Story

    I can't remember when I had my 1st episode of WPW, I think it was when I was a teenager but wasn't until last year (28 years) that it was certified. I was doing some exercise at home (alone) and the palpitations started I thought I was going to die, it was the worst episode I...
    lolylababy lolylababy 26-30, F Sep 29, 2013

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    I Am A Natural Healer With Wpw

    I am 42 and a Natural Healing Practitioner living in Lexington, Kentucky. I was first diagnosed with WPW at 34 years old though I have had symptoms through out my life, no one paid attention. When I was a small child and they would put me down for a nap I would lay on my side to...
    Mystc1111 Mystc1111 41-45, F 9 Responses Nov 9, 2009

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    I am 20 and I have WPW.

    (I'm italian so I'm sorry for my grammar mistakes). I discovered to have this syndrome at the age of 17 during a medical check for sport (I done it every year). They found me strange lines in my EKG. In that moment started my long journey. When you are 17 you only want to think...
    Kamycami Kamycami 18-21, F Dec 9, 2013

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    Living With Wpw And Not Letting It Get The Best Of Me.

    I was diagnosed with Wolff Parkinson White Syndrome one month before my wedding, perfect timing. I had "episodes" since i was in my teens, but they were short and usually reverted by holding my breath. As i got older the episodes increased in length and severity, and eventually...
    CharleneBD CharleneBD 26-30 2 Responses Oct 12, 2012

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    I Have Wolff Parkinson White Syndrome

    hi im 27 female Australia :) i was recently dignosed with wpw i first decided to see a specialist when one day while having lunch everytime i swallowed a mouthfull of food i was in pain like i had a tablet stuck in my throught (please excuse my spelling  ) a sharp...
    ctwoeight ctwoeight 26-30, F 4 Responses Sep 23, 2009

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    My Story

    Hi, i have had symptoms of wpw as far back as i can remember, i had been to the doctors several times to be diagnosed with anxiety and panic attacks. It was only this year in feb 2013 that they got a lot worse, lasting a lot longer and started to make me feel dizzy, light headed...
    Kazx Kazx 22-25, F Sep 11, 2013

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    My Life In One Page

    Hi I'm a 15 year old female and I've been dealing with Wolff parkinson white since I was born but didn't get symptoms until I was 7. I've been to the hospital countless times I have near-syncope and paroxysmal tachycardia & will be on hospital homebound soon. My cardiologist...
    Kassi298 Kassi298 16-17, F Nov 14, 2013

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    Help Me

    How often do you have an attack? And how long are you having it for? Please answer this as my cardiologist is not being very helpful. Thank you
    Steviej23 Steviej23 22-25 1 Response Jul 7, 2013

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    Going In Tomorrow For Ablation!

    Hope this goes okay! Will update ASAP !
    Acastevecross Acastevecross 41-45 1 Response May 1, 2013

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    Don'T Be Afraid Of Ablation Surgery

    Mojosanders Hello to all with WPW. I would just like to say that everyones symptoms are all fairly similar, but living in fear is hard enough already & compounds WPW. Having the ablation was the best thing ever to happen to me. No more episodes of pounding heart rate which scares...
    Mojosanders Mojosanders 46-50, M 1 Response May 13, 2013

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    Just Diagnosed With WPW. Trying To Figure Out What To Expect.

    Hi All - I was just diagnosed with WPW yesterday, I have yet to see the cardiologist, but was wondering was the sequence of events that happened after you found out what was going on. A little about me: I am 24 years old, and for the past couple of months I have had a periodic...
    Jliberotti Jliberotti 22-25 3 Responses May 11, 2013

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    I Thought Everyone Had This!

    As long as I can remember, I had these "sessions" where my heart skipped a beat and started fluttering. The longer it went on, the more my chest felt like it was cramping and I became light-headed. I've always been very active and athletic so I just thought everyone experienced...
    EAScott EAScott 46-50 1 Response Mar 12, 2012

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    Getting Tired Of The Wolff...

    I found out last year that I have wpw. I thought it was anxiety and depression. On the visit that I found out I had wpw, I told my doctor that my heart was beating so fast that I was scared I was having a heart attack. Then I was "wired" for the next 24 hours. Thats how he knew...
    texasrain222 texasrain222 36-40, F 8 Responses Jan 15, 2010

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    I was just diagnosed with WPW this past week.

    I'm 43 and I first experienced symptoms when playing high school football. At the time it was diagnosed as a PSVT, but no one noticed the WPW pattern on my EKG until last week. I haven't had a PSVT episode in a year or two and I hadn't been thinking about my condition much...
    denm denm 41-45, M 1 Response Dec 28, 2013

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    Waiting For Treatment.

    Hi there,I'm 22, and since I was about 17 I've had frequent dizzy spells and weakness every day.  Sometimes I would faint outright, but not more than once ever few months. I had seen doctors for it but none of them checked my heart until recently.Last month I fainted...
    sheisakeeper sheisakeeper 22-25, F 3 Responses Jan 15, 2010

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    Well...

    I was diagnosed with WPW back in May 2012, when I was 18. I had been symptomatic all my life, but all tests were normal when they would be done. They couldn't figure it out. I just got lucky enough to have an issue with it while the doctor was checking my heart, and he noticed...
    Jessileanne Jessileanne 18-21 May 17, 2013

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    Little Leo

    I don't have Wolff Parkinson White Syndrome but I gave birth 2 weeks ago to the most beautiful little boy Leo who does. Leo was born with a coarctation of the aorta that was discovered at a day old, he had surgery at 5 days old to correct it and during surgery he had an SVT, this...
    Leosmummy Leosmummy 26-30 Aug 9, 2013

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    Wpw

    im 23 years old and i have a wpw im verry scared becouse off sudden death with wpw,,please help me i took darob medicines and i dont have palpitations but im sccared am i going to die every second...
    krizban krizban 22-25, F 1 Response Nov 24, 2010

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    WPW While I Was Running!

    I am a 25 year old male. On March 12, 2012 I went for my nightly run around my neighborhood and within 15 minutes of my run, I felt very lightheaded and collapsed on the side of the road. I got back up only to feel light-headed and nausea. I literally couldn't stand without...
    thechav thechav 22-25, M 4 Responses May 9, 2012

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    WPW Is Finally In My Past

    One week ago today, Dr. G at Blair E. Batson in Jackson, deleted this problem for good. I had an ablation which included mapping the heart to find the extra connective tissue that caused the problem (which took way longer than expected) and then using a laser to make sure it's...
    kaylahhall kaylahhall 16-17, F Mar 20, 2013

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    Living With Wpw Still...

    When I was born the first symptoms of what I guess can be considered wpw now started with an unusually high heart rate. I don't know what exactly the vital signs were, but I always remember my mother saying that I was monitored with a fast pulse. Other signs began showing at...
    ckeyz85 ckeyz85 26-30, M 1 Response Dec 29, 2012

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    Living With Wolff-parkinson-white (wpw) Syndrome

    I have been diagnosed with Wolff-Parkinson-White (WPW) syndrome and for the past year my symptoms have become worse. I have not been able to exercise because I get very severe symptoms such as; heart palpitations, shortness of breath, dizziness, chest pain/cramps, chest and head...
    tanja386 tanja386 36-40, F 65 Responses Jul 2, 2011

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    Doctor's Taking My Heart Problem Seriously.

    Hello again. Update from me on the WPW. Finally met my specialist on Wednesday. He confirmed that it is WPW (my family doc wasn't sure but now we know) and explained how it all works perfectly. He was very down to earth and took my case seriously. I'm very happy with my doctor...
    sheisakeeper sheisakeeper 22-25, F 1 Response Jun 4, 2010

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    Heart Is Heavy

    my son is 9. March of this year he came to me and say his heart was beating too fast, and his chest and head hurt. I rushed him to the hospital. He was rushed to the back with 4 nurses. Doctor came in. Nurse said she needed a crash cart and they gave him something to slow his...
    lovelyred29 lovelyred29 26-30 2 Responses Aug 4, 2013

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    Just Diagnosed With WPW

    I have had this all my life but only found out it was WPW the other day. I am a 41 year old female. When I was a little girl I would announce to my parents that my heart was "doing that funny thing again." My mom took me to our family doc and he said I was hyperventilating. I...
    lonetwin lonetwin 36-40 6 Responses Apr 13, 2013

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    What To Do....

    Just in a really hard spot... Do I have the ablation or not? I really have no problems with this and its never affected my life. Any Suggestions?
    shellmac77 shellmac77 31-35 2 Responses Sep 27, 2010

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    Finally An Explination.

    This all started back when I was in 7th grade. I was in gym, and after class I had bent over to pick up my equipment and felt this weird jumpstart flutter sensation in my chest. My heart was racing to the point of about 220 bpm. It was weird because it didn't hurt, but I felt...
    Doogie86 Doogie86 26-30, M 1 Response Oct 9, 2013

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    My Life With WPW Syndrome...Can I Fly?

    Hello, first of all sorry for my English - I'm from Poland. :) I understand what I read, worse with writing... ;) On the polish Internet forums I can't find any information... I am 27 years old and I have found to WPW syndrome. All the time I take medications: propafenonum 150...
    disilussion disilussion 26-30, F 1 Response Sep 1, 2013

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    Should I Have Ablation?

    Hi I was diagnosed with WPW last June and am scheduled for ablation March 20. Talk about a "late bloomer"! I am a 45 yr old female and I never had any doctor test me for this syndrome before! The only reason it was detected was an accident - I'd signed up for an adult ADHD...
    Erinbird Erinbird 46-50, F 5 Responses Mar 3, 2013

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    I Have Wollf Parkinson White Syndrome

    hi there i have this heart condition ive had two abaltions which have not worked an simply living with this condition i have 3 children which is sometimes a big worry especially when im alone with my 2 year old an my heart starts racing is there any 1 else who has this condition...
    1landrover 1landrover 41-45, F 2 Responses Dec 15, 2011