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I Know Someone With Charge Syndrome

Personal Stories, Advice, and Support 7 People

    Most Wonderful Person I Know...

    My daughter has CHARGE - throughout all she has been through, she remains the happiest, most positive, energetic, fun person ever.  She keeps us laughing and happy EVERY DAY.  We could all learn a lot from her! 
    CitizenDame CitizenDame 36-40 1 Response Jan 27, 2010

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    I Am An Individual With Charge Syndrome

    I am an individual with Charge Syndrome. I'm not like most; I "should" be severely mentally challenged. (I have a college degree.) I "should" be blind. (My favorite hobby is visiting art galleries.) I "should" be deaf...
    SomewhereSomehow SomewhereSomehow 26-30 3 Responses Feb 14, 2009

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    My uncle. He is toutched by this damned illness since 2007. It started as a lung cancer. Everybody can say it is fatal desease. Medical services thought he would life only one...
    michalmos michalmos 31-35, M Jun 24

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    I've known him only for a short time. I won't say his name cuz he probably doesn't want me to share it. But he was picked on for it when he was in school. And when I heard his...
    BloodRedDarkness1 BloodRedDarkness1 16-17, F 1 Response Jul 1

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    I have Tourette's. It sucks SO MUCH. People always tell me it's part of who I am and I should accept it. But how can I accept something that stutters my breathing and keeps me from...
    goats4lyfe goats4lyfe 13-15, F 2 Responses Jun 30

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    My best life long friend. Advanced non small cell stage 4 lung cancer.
    Kayparker56 Kayparker56 56-60, F Jun 24

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    Yep. Lunatics will act respectful in one profile, but you can clearly tell that the other profiles are the same person, and they're attitude is rotten. Example: jazzzpiano and...
    markcallen markcallen 31-35, M Jun 27

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    My mom told me today she needs chemo. She's 37 and just had all of her lady parts taken out because of a large tumor. It was the size of a small baby. So now she's not only going...
    mattihope mattihope 18-21, F 2 Responses Jun 30

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    ...a friend of mine has AIDS. He was given about one year to live....*sighs*
    perpetualThinker perpetualThinker 13-15, F 2 Responses Jul 12

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    My daughter is a little over one year old. ( I don't like talking in months)She has Down Syndrome. I don't treat her differently from my other kids. Her needs are a little...
    Kryzta Kryzta 26-30, F 1 Response Jul 8

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    I was diagnosed with Turner Syndrome in 1989 pretty much right when I was born. The doctors found several heart issues, as well as cancer cells growing inside of me that they had...
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    In 2011 I gave birth healthy beautiful baby. She was perfect and I loved her from the first time I saw her beautiful curly mop on her head and that chubby little face. As a mother...
    SweetAlibis SweetAlibis 26-30, F Jul 8

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    I've been dating my girlfriend for almost four years now (I'm 20, she's 22 and we met when we were 16 and 18, respectively). We were together for about a year when I noticed that...
    xxxwindowxxx xxxwindowxxx 18-21, F 1 Response Jun 28

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    I am not married, not yet, but hope to be in the near future. My boyfriend is a retired infantry soldier who served two tours in Iraq. I have only known him since he was retired...
    Serenity14 Serenity14 26-30, F 15 hrs ago

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    Hi, I am new to this MPD so, I may not know much about it. I am currently dating a woman who has it and it has been a little rocky ever since we dated 4 months ago. Our love for...
    Junchew Junchew 18-21, M 1 Response Jun 30

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    My boyfriend and I have been together since high school. When we started dating he wasn't diagnosed yet, in fact, my mother was the first person that suggested that he might see...
    nscott09 nscott09 22-25, F Jul 2

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    My step-brothers and I bestfriend Joe 💔 this is going to bring me to tears but first let me tell you little bit about Joseph .. Joe is really funny , he's tall ( 6'7 ) , he's...
    Dallycee Dallycee 16-17, F 1 Response Jul 4

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    My name is irrelevant. My husband and I have a long history together. We met 15 years ago, as kids. He was my soul mate. Because of past drama with me I didn't act and he knew and...
    needjhim14 needjhim14 26-30, F 1 Response Jul 12

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    Well my good guy friend kinda told me. Well his friend told me. On his phone. I honestly don't know if it's a prank or not. Idk IM SO CONFUSED. My school is known to play pranks...
    Everystormends Everystormends 13-15, F Jul 1

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    I'm sick of people joking about OCD unless you have it or lived with someone suffering from it you have no idea what the hell you are talking about... Ultimately this coupling...
    dmlongobardo23 dmlongobardo23 26-30, F 2 Responses Jul 7

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    This is a weird piece in my history.... I vaguely recall my late father going on about a cousin of his who killed himself by sticking a pillow case/ slip or whatever, over his...
    cpthaddock cpthaddock 51-55, M 1 Response Jul 13

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    My aunt, was possessed when she was younger by a lover ghost. A lover ghost, is a ghost that falls inlove with a human it could be either male or female. So they took her to a man...
    fearlesslyliving fearlesslyliving 18-21, F 1 Response Jun 24

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    I have been with my boyfriend for a year. This is a long distance relationship where we fly back and forth. He is a veteran of two wars and was in law enforcement/human trafficking...
    LeslieOK LeslieOK 36-40, F Jun 26

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    My sister in law has cancer. It is stage 3 brain cancer and she is 24. The life span after diagnosis, with treatment, is 18 months. We are at about 6 months. The doctors gave her 6...
    Marie090 Marie090 22-25, F 3 Responses Jul 2

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    um fine with it .... i know the feel
    Thepainlover Thepainlover 22-25, M 5 days ago

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    "She will not come out of her room" her mother cried to me on the other end of the phone that fate full day so many years ago...... A month before this sad day....seeing how...
    SassyBabe39 SassyBabe39 41-45, F 1 Response 5 days ago

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    I miss my husband every day.even though I spend almost 12 hours a day with him. I miss our life...and the little things, like sharing coffee, or even going to get coffee for that...
    mrskeys78 mrskeys78 31-35, F Jun 23

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    I read on here that their husbands show excessive anger. But mine shows it passive aggressively any one else getting emotionally beat up? Lied to by omission? Sugar coated insults...
    jjflygirl1 jjflygirl1 46-50, F 2 Responses Jul 13

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    I have Aspergers, and am not dating anyone. I just wanted to say a heartfelt thanks to all those women and men who express such love and appreciation for those with Aspergers they...
    jollygoat jollygoat 22-25, M 1 Response Jun 27

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    The husband started taking Atripla on Tuesday evening. This makes the diagnosis undeniably real. Of course this kind of scares me, but is undeniably a good thing. I honestly didn't...
    ShaeDM ShaeDM 41-45, F 2 Responses Jul 10

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    My husbands having a bad night... Even asked to go to the va! But we have no way of getting there and he doesn't want me to call an ambulance. Our car is busted, and we are staying...
    RebeccaReynolds RebeccaReynolds 18-21, F 1 Response a week ago

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    My baby girl started ballet class this week, She is so happy.
    SheldonCooperRocks SheldonCooperRocks 41-45, F Jul 5

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    My mom would never shut up day or night.... It's ******* annoying especially when she's referring to something i didnt do or would even nag me about my sisters fault.... She wouldn...
    Actuallyundecided Actuallyundecided 18-21, F 1 Response Jun 24

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    My partner is making me beyond fat...He brings me so much food.. I love how happy it makes him to watch me eat..I feel very loved too..
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    My boyfriend has a six year old child. It's hard putting myself in that situation
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    Me and my boyfriend and my kids suffer asd
    prettybum prettybum 18-21, F Jul 7

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    I used to have a gf who would seek me out, ask me out then dump me like a week later-wash, rinse, repeat. Anyway, I found other signs of her having it besides what I just put above...
    ninathecat ninathecat 31-35 1 Response Jul 9

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    please, please, message me.
    cloakedgarden cloakedgarden 13-15, F 1 Response Jul 11

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    Anyone looking for a feeder I would be glad to help
    lovemybelly lovemybelly 18-21, F 2 Responses Jul 13

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    1) What would you name your future daughter? Zoey!! 2) Do you miss anyone? Uncontrollably. 3) What if I told you that you're pretty? Aww, thanks.. *blushes* 4) Ever been told...
    Jennnaaa Jennnaaa 13-15, F 5 hrs ago

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    My husband and I were in a motorcycle wreck in Feb. (2 days after our wedding in India). I'm interested in getting to know other people dealing with Compartment Syndrome, in hopes...
    JenniferLakhlani JenniferLakhlani 36-40, F Jul 13

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    Hi, im Hollie im 14 and I've had Duane syndrome since I was born. Because of my Duane syndrome it means I can't move my left eye at all to the left. This really annoys me because...
    HMace HMace 13-15, F 1 Response Jun 30

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    I'm having trouble and I can't hope! Its not easy being a Jewish kid with Aspergers Syndrome in Dorset! Dorset is like the British version of Texas. Help please...
    YitzchakWinternitz YitzchakWinternitz 16-17, M 5 Responses Jun 27

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