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I Know Someone With Charge Syndrome

Personal Stories, Advice, and Support 8 People

    Most Wonderful Person I Know...

    My daughter has CHARGE - throughout all she has been through, she remains the happiest, most positive, energetic, fun person ever.  She keeps us laughing and happy EVERY DAY.  We could all learn a lot from her! 
    CitizenDame CitizenDame 36-40 1 Response Jan 27, 2010

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    I Am An Individual With Charge Syndrome

    I am an individual with Charge Syndrome. I'm not like most; I "should" be severely mentally challenged. (I have a college degree.) I "should" be blind. (My favorite hobby is visiting art galleries.) I "should" be deaf...
    SomewhereSomehow SomewhereSomehow 26-30 3 Responses Feb 14, 2009

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    Related Experiences

    Actually I know two for certain, my grandfather has rectal cancer and my dad has cancer too although I don't know what kind of cancer he has and I don't want to ask. I.. I don't...
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    Watching my mom happy know she will be sad and full of pain. Sucks. Cervical cancer is really bad. I wish everyone would get checked. Every day I cry. Don't want her gone. I am...
    hopeforjanice hopeforjanice 41-45, F Sep 22

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    Aside from myself having Autism I made a friend here who has autism his name is Luke, he is 20 years old and has a bad bladder problem so he has to wear nappies. He also doesn't...
    Keespanker Keespanker 18-21, F 4 Responses Sep 11

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    I am sadden by the fact that 2 of my relatives have been afflicted with cancer this year. It's even harder on my mom because it was her dad and older sister. I lost my grandfather...
    tessa4ever tessa4ever 31-35, F Sep 18

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    my best friend is currently battling cancer and I'm the only one that knows.... it's stage 3 and developing on top of that my other best friend has an inoperable brain tumor that...
    xoxogossipgirl7 xoxogossipgirl7 13-15, F a week ago

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    Me, I have Tourette's. And they are my companion
    saboosa1 saboosa1 13-15, F 2 Responses Sep 5

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    It can be so exhausting. Sometimes I wonder if it is harder to date someone with depression than it is to actually have depression. I have to battle it too. I have a choice to...
    hopeful1995 hopeful1995 18-21 Sep 18

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    I am married to someone with PTSD and chronic pain. He has had both for the past 5 years and has been going to therapy. It has been very hard living with him, but at the same...
    littlebetsy littlebetsy 46-50, F Sep 21

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    Hello! I would just like to rant about something that is bothering me tonight. So first off I have known this boy for awhile and we went to the same school. I have graduated and he...
    morgana777 morgana777 18-21, F 3 days ago

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    My twin brother has Down syndrome, along with many other problems, he can't talk clear, only we can understand what he's saying, I've heard people call him ugly, fat.. Short...
    Bflyboo14 Bflyboo14 13-15, F 2 Responses a week ago

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    I got a call last night from my husband telling me someone we knew (he knew him a little better then me) hung himself. It's so sad, a successful suicide means he really wanted to...
    thefeels21 thefeels21 18-21, F 1 Response Sep 8

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    Well I have a teacher and she always wear long sleeves and bracelets, then today I saw her take her sleeves off and check her cuts but she didn't know I saw, and she's also...
    zennarts zennarts 13-15, F Sep 9

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    I had a friend from high school. She was a girl that held so much pain in her smile. She was a girl that never felt beautiful. She was a girl who had a handsome boyfriend, who she...
    livingwallflower livingwallflower 18-21, F 2 Responses 3 days ago

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    One girl in middle school, and then another in high school. The girl from middle school (I don't want to name names out of respect) I did not know her well, I just saw her around...
    gardengirl17 gardengirl17 22-25, F 1 Response 3 days ago

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    Rip Michael I couldn't explain why he would shoot himself I talked to him the night before and he was fine not sad or depressed it hurts knowing the guy always laughing and smiling...
    maridoneka maridoneka 18-21, M 2 Responses 2 days ago

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    the problem is if the door opens, is it really open or is it just cracked with someone on the other side who don't want you there. Be diligent but careful
    looking4slut looking4slut 56-60, M 1 Response Sep 9

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    I have read so many of your experiences it's like a mirror to my own life. Who knew 21 years ago when I married my husband I would suffer like this daily! I didn't know my husband...
    Niff73 Niff73 41-45, F 1 Response 1 day ago

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    I have this love-hate secretly relationship with a colleague. He lost a lot of weight. Like 250 lbs down to 140 lbs in just 6 months. No kidding! He bragged about it all the time...
    Elleshore81 Elleshore81 31-35, F 1 Response 3 days ago

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    This reminds me of love if a door suddenly closes know a new one will open but it doesn't only apply for love it's for life to
    livelovehopefree livelovehopefree 13-15, F Sep 9

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    Mine as many of you probably already know or can tell is of Kristen Stewart and Robert Pattinson from the Twilight Saga. I am a twihard to the core. I have explained this fact in...
    violet1698 violet1698 31-35, F Sep 17

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    I don't know myself... It's part of my internet identity though.
    Vumsy Vumsy 18-21, M Sep 17

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    It's like love when a engaged door closes you get the choice of opening the door of marriage or the door if I'm sorry I can't do this...it's the same with life if the door of life...
    kenzie111Hall kenzie111Hall 26-30, F Sep 10

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    It's from my senior prom. I went with my best friend. We left early and went to this fancy coffee/dessert place downtown. He wore his suit and I wore my dress, it was so much fun...
    Kat0524 Kat0524 18-21, F Sep 16

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    An unpredictable world with unpredictable lives FULL of unpredictable friends to be made That's pretty much how I feel about EP
    MNI1982 MNI1982 26-30, F 2 Responses Sep 17

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    My coworker (same sex) admitted she has a crush on me I can say is that it was totally unexpected and surprising!!
    Fitnesschick Fitnesschick 18-21, F Sep 3

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    And I dislike him. He's in my class and stresses people out
    adrianacecilia14 adrianacecilia14 13-15, F Sep 6

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    Why couldn't you just say bye instead of leaving me hanging? It's a really crappy way of saying bye. You were so sweet so I didn't want to believe it. What we had was short-lived...
    outofthebleu outofthebleu 31-35, F Sep 16

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    met this one dude that was sweet as hell but smelled like the monkey and old gym socks mixed i felt so sorry for this guy and instead of hurting his feelings i tried to buy him...
    lizmcfee lizmcfee 22-25, F 1 Response 4 days ago

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    Well I love plenty of them on here!
    chrismarlboro chrismarlboro 51-55, M Sep 7

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    How's gaining going? Anybody want to have a little fun? Guy or girl doesn't matter. I just ask that you be greater than 300lbs
    Oceanbeat16 Oceanbeat16 16-17, F 1 Response Sep 13

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    Yea, god gives you something to jump out of. Lol
    bellaboo68 bellaboo68 36-40, F Sep 10

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    Mines of a fat cheetah cuz I found it super cute on Instagram :)
    loveylaura loveylaura 26-30, F 2 Responses Sep 16

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    Mine is a print by the artist Paul A. Lanquist. It's a man and his dog standing on a river bank in Alaska. I've wanted to go to Alaska since I was a little kid reading Gary Paulsen...
    PastaBanana PastaBanana 22-25, F 1 Response Sep 16

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    Mine I think shows me....cute but devilish!
    formieyesonly formieyesonly 41-45, F 1 Response Sep 17

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    Colorful Creative That explains my pic
    RainbowWolf13 RainbowWolf13 13-15, F 2 Responses Sep 17

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    Mine is a tattoo that I'm gona have.. Well something along the lines as I love the heart n key
    katiehad katiehad 22-25, F Sep 17

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    Mines was one morning on the way to work I was board and stuck in traffic so took a pic of the sunrise
    Sproketsocet Sproketsocet 18-21, M Sep 17

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    I'm an ogre, a princess and green .... So I couldn't have anything else :)
    Littlemisspixie Littlemisspixie 51-55, F 1 Response Sep 17

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    Its me . It was a nice day .. nothin more really
    Alylovespuppies Alylovespuppies 18-21, F 1 Response Sep 17

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    Mine is Mjolnir or Thor's hammer. Norse paganism means a lot to me and has gotten me further in life then when I tried being a Christian. I have a Mjolnir pendant that us hand...
    ValhallaAwaits ValhallaAwaits 18-21, M Sep 18

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    I need help concerning dissociative identity... Anyone who has this or knows someone with it please message me. I need to understand what the hell is going on in my head.
    camille2344 camille2344 18-21, F 2 Responses 4 days ago

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    Hello my name is Mark Miller. I was diagnosed with Klinefelters Syndrome when I was 4 years old. My parents knew something was wrong when I could not speak words until I was 7...
    Mark7Miller Mark7Miller 18-21, M 1 Response Sep 3

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    I was diagnosed at age 8 with Sjogren's (I am now 22 years old) I have never talked to another person with the disease but would love to. As you know if you have this as well...
    hollyphoenix92 hollyphoenix92 22-25, F 1 Response Sep 5

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    When I read about women in relationships with Aspies, I see my own life and relationship reflected so clearly in their stories. But I think my ADHD is making it even worse. My...
    TiffanyPerkins TiffanyPerkins 36-40, F 1 Response 1 day ago

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    "You really shouldn’t say ‘I love you’ unless you mean it. But if you mean it, you should say it a lot. People forget.” – Jessica, age 8 I've read quite a few people...
    rtvbvfde rtvbvfde 26-30, M Sep 23

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