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I Live In Pain From Pseudotumor Cerebri

Personal Stories, Advice, and Support 14 People

    Raise Awareness

    I hope you enjoy my story and website about IIH.. please feel free to email me yours Id love to post it too to raise awareness.. emilyjordan2222.wix.com/raise-awareness-iih
    emilyboyd2222 emilyboyd2222 22-25, F Sep 25, 2013

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    thesweetjen thesweetjen 31-35, F 2 Responses Apr 25, 2013

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    Related Experiences

    I'm new to this! But I was diagnosed with PtC 3 years ago. I'm 23 now. I've had headaches that have always been unbearable since I can remember. I went from doctor to doctor trying...
    Shelmash Shelmash 22-25, F 1 Response Aug 19

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    Is PTC lifelong? I have not been diagnosed yet, but all of my symptoms point to PTC, I am waiting to see a specialist. I have had blood work and multiple MRIs, all coming out...
    tcollier tcollier 22-25, F 1 Response 4 days ago

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    When I see a person who is sad, depressed, hurt or whatever else bad happened to him/her I wish I could just take the pain from her/him even to me...
    Adamexxx Adamexxx 13-15, M 1 Response Aug 2

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    Ever since I was seven years old I would plan out my own suicide and/or suicide attempts. I'm 14 now and when I was younger I'd always tell myself that I'd never live to see the...
    XSimplyXSuicideX XSimplyXSuicideX 13-15, F 3 Responses 1 hr ago

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    Thanks to all the great feedback I’ve been getting here, I’ve been able to process a lot of what’s going on in my marriage. Most of it is simply about clarity rather than any...
    AshInOakland AshInOakland 41-45, M 6 Responses Aug 14

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    something I have realized a while now.... I enjoy the pain of my migrains on some level. The pain can be unbearable and hellish at times, and I hate it. But just like other things...
    Barlong Barlong 22-25, F 2 Responses Aug 15

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    Well right now as I type this, I am laying in bed listening to the Enigma Station in Pandora Radio- hopefully that helps give a better of idea of what all common chronic pain...
    thekid2010 thekid2010 22-25, M Aug 9

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    If your walls could talk what would they say? The walls of my childhood bedrooms would tell a story of a seemingly normal boy, regular life, loving family, but he partook in an odd...
    drpepper666 drpepper666 26-30, M Aug 4

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    Moving on: I am packing up my office and my home this week. I am moving out of state and starting a new job. ( I have posted part of this update a little earlier.) But a posting...
    katzlaw katzlaw 36-40, F 10 Responses Aug 7

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    Hello everyone, Here is my (brief)story of pain. I live in a very critical & strict house. Through age 12 to 15, I was abused physically & emotionally by my mom. She used to...
    GenaAmore GenaAmore 18-21, F 4 Responses Aug 13

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    So I guess the question for me is, "How long does it take to turn an SM into a "normal" marriage?," or "How long does it take to recover from an SM, and make it better?" Of course...
    indianoutlaw indianoutlaw 31-35, M 23 Responses 5 days ago

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    I had breakups before but they were never painful. The first breakup that really hurt me was when I was 14 years old. I remember that we could see each other only every two weeks...
    zyakkui zyakkui 18-21, F 2 Responses Aug 5

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    Painkillers are more of a sympathetic ear than anyone else I know. They call my name, begging me to go over the lethal dose limit. Have you ever had your parent(s) call you...
    DemonKidd DemonKidd 18-21, M Aug 11

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    Well, I am sick and tired of hiding and pretending it isn't there... It started out as back pain that won't go away with basic procedures. And I thought after the months went by...
    4NeonFun 4NeonFun 16-17, F 1 Response 6 days ago

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    Through my failed marriage, I've concluded that, despite the already recognized different classification of personalities, humans fall into two main person types: Selfless and...
    lovegentle lovegentle 36-40, M 8 Responses Aug 17

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    So late breaking development....my wife comes downstairs about an hour ago to my home office, which is very unusual as she very rarely bothers me during the work day in personally...
    MelancholyDude MelancholyDude 36-40, M 23 Responses Aug 18

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    Neglect - One of the most important things I've learned from my decision to end my sexless marriage is that I will never again tolerate being neglected by my partner. We all...
    CherishMe2 CherishMe2 51-55, F 9 Responses 2 days ago

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    It all started on this one day in winter, cold air, freezing door handles when you touch, you get stuck. The snow dropping from the sky. High school looking like the cabin in a...
    Blast9003lawl Blast9003lawl 16-17, M Aug 2

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    You, who are reading this and have the patience to finish it, try to learn from my mistakes and know that even in the darkest hour, you are not alone! I am George, 32 years old...
    ggeorgiev2008 ggeorgiev2008 31-35, M 5 days ago

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    Can someone here explain to me the kind of pain and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking...
    sugarcakes143 sugarcakes143 18-21, F 3 Responses 4 days ago

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    It does seem that way. It seems like what "happiness" i seem to feel is always so short lived. then i go into this numb like state that at times can turn painful emotionally. it...
    000SadisticBitch000 000SadisticBitch000 31-35, F 17 hrs ago

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    Success in Turning Around a 20 Year SM: Part 1 - Overview This summer I celebrated my 20th anniversary. For the first 19 ½ years, we lived in a SM / virtual SM. The reason I am...
    TimeforLiving2 TimeforLiving2 41-45, M 9 Responses 4 hrs ago

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    Hi there, I am new to this forum and I'm just writing to let you know if my experience and to find out advice from people suffering the same or similar to me... Last year I started...
    emmalou23xxx emmalou23xxx 26-30, F 1 Response Aug 3

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    Everyone says I know how you feel "But!" I wrote this poem when I was 13 if you understand it then you will know your not alone and now I'm 33 not happy but alive. SMILE The...
    MyTest MyTest 31-35, F 6 days ago

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    A heart beat, a cry... Tears that run dry. A whisper a look in ones eye. Memory's, moments seconds and days, words that have meanings in so many ways. Love and power, anger and...
    Ameliaaaa Ameliaaaa 26-30, F 1 Response Aug 3

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    Through the vail of anonymity that is "The Internet", I am -as I press the letter keys in real time- apprehensive to share this part of me. I am alone in a bedroom full up with...
    homesickalien87 homesickalien87 26-30, M Aug 7

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    My wife and I love each other but we have not been physically intimate in five years. It began when my wife gave birth to our only son. She had preeclampsia and was very ill; our...
    AshInOakland AshInOakland 41-45, M 15 Responses Aug 13

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    The Finish Line … I left my marriage of 13 years a year ago this month. Legally, I am separated and in the process of finalizing the divorce. Emotionally, the last 12 months...
    SleeplessKnight SleeplessKnight 41-45, M 8 Responses Aug 18

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    I really want to live as woman full time that would be my dream come true.i love dressing in womens clothes and painting my nails and all but it goes further than that in my mind i...
    sofie35 sofie35 31-35, T 8 Responses Aug 20

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    "Feels Like Forever" By: Of Mice and Men Did you ever contemplate when all was lost you hesitate and nothing seems the same? Have you ever hid your face, in such disgrace...
    Ashbarg Ashbarg 13-15, F Aug 23

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    It truly feels like a demon lives inside my head. I'm so sick of living with these illnesses. When I talk to my fiancé about what I'm thinking about and what I'm going through, he...
    Mileena28 Mileena28 18-21, F 1 Response 6 days ago

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    I started a weekend job last weekend and this week I am having pain in my hands. I had to do a lot of accordion style napkin folding and I think this is the result of that. Any...
    fishingbuddy fishingbuddy 56-60, F Aug 6

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    So I had 2 shoulder surgeries one month apart. First surgery was for taking care of a shoulder impingement and tighten my shoulder which could pop out of its socket. Then...
    yodasl yodasl 41-45, M Aug 8

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    My mom is in a very abusive relationship ... 2 days ago she got in a fight with her husband in which he threw her phone out of the window while he was driving, took her head and...
    RiseAbove222 RiseAbove222 22-25, F 2 Responses Aug 10

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    Maybe I'd better post and explain why I'm in such a crap mood this morning - I'm getting a lot of PMs. (And really, that's nice - I'm happy and grateful to have concerned friends...
    SmartKat SmartKat 46-50, F 22 Responses Aug 11

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    Some thoughts on forgiveness. When I first posted here 3 years ago, I was struggling with forgiveness. My situation is very unusual for this place, in being a "success" story...
    hl42 hl42 51-55, M 10 Responses Aug 13

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    Oh Boy....for those who still don't believe that their deal is toast....here's a good read for ya. http://www.huffingtonpost.com/2014/08/12/breakup-signs-_n_5649458.html...
    lycheechan lycheechan 31-35, F 13 Responses Aug 13

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    I have been in a relationship for only 3 months with my boyfriend. We are both in our mid 30's and currently trying to work on a long distance relationship. In the first month...
    1234dogma 1234dogma 31-35, F 3 Responses Aug 15

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    The best itineraries. Cruise with us and you will you'll want to expertise the best of each and every location you check out, irrespective of which of our around one hundred...
    Kit1739qm Kit1739qm 31-35, M 1 Response Aug 18

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    No fuss eating, just fantastic meals may be the purchase of the day at Meeru Maldives. No dressing up to impress. Just stroll in from the Seashore or from the area and sit back and...
    Darrickexp Darrickexp 31-35, M 1 Response Aug 23

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    I've wanted an alien tumblr type shirt for so long. They are so cute, but I'm cheap and none of them were ever 'just right'. Today I remembered I have a couple plain white shirts...
    kittenasylum kittenasylum 16-17, F 1 Response Aug 23

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    Hotfrog Edge ads seem over the rest in Hotfrog aspect web pages. By upgrading today your advertisement will seem before potential prospects prior to they detect your rivals.We...
    Carriele83 Carriele83 31-35, M 1 Response Aug 24

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    I have never experienced a worse pain than period pain. The first day is the day is the day I feel like I may not make it out alive. You may think this is an exaggeration, but it...
    ForeverIsOver ForeverIsOver 13-15, F 2 Responses 4 days ago

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    So I'm a little nervous about posting this here, but I guess I just felt the need to talk about it. I've had what I believe are some very vivid past life stuff, mainly what I talk...
    acerbuskeeper acerbuskeeper 18-21, T 3 days ago

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    I have been thinking about receiving psychotherapy for months now regarding my emotional instability and attitudes toward myself and my environment. I constantly feel disconnected...
    pflz91 pflz91 18-21, M 1 Response Aug 3

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