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I Live In Pain From Pseudotumor Cerebri

Personal Stories, Advice, and Support 17 People

    thesweetjen thesweetjen 31-35, F 2 Responses Apr 25, 2013

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    Raise Awareness

    I hope you enjoy my story and website about IIH.. please feel free to email me yours Id love to post it too to raise awareness.. emilyjordan2222.wix.com/raise-awareness-iih
    emilyboyd2222 emilyboyd2222 22-25, F Sep 25, 2013

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    Related Experiences

    Hey... I am huge fan of late actor Paul Walker. When he died I felt sad but not devastated but when I saw his new film in the theater I cried my heart out when he said...
    MalavikaPaul MalavikaPaul 18-21 Apr 8

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    I'm in so much pain from my period
    neonpinkcupcakelover neonpinkcupcakelover 16-17, F 1 Response Mar 28

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    At the age of 13, and tired of the constant mental abuse and beatings from my adoptive parents, I decided to run away!!! I still remember the date April 24th 1978. I was 2 months...
    AwesomeAlert AwesomeAlert 46-50, M 5 Responses a week ago

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    I am currently trapped in a loveless and sexless marriage of 35 years. Really not sure when things started to go wrong but probably more than 5 years ago maybe nearer 10. First of...
    Lymebay Lymebay 56-60, M 19 hrs ago

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    Is it crazy to think that the pain of loneliness has almost become my friend? Unlike people (who I realize aren't perfect) the pain that comes from loneliness is almost always...
    UnwantedHuman UnwantedHuman 18-21, M 7 hrs ago

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    I didn't even know MD was a thing until I Googled "I'm obsessed with my original characters" after a four day long daydreaming binge. I was always an imaginative, creative child...
    clementine86 clementine86 26-30 2 hrs ago

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    If life is truly given to us just once and after that there's nothing only black emptiness in which our whole essence disappear.... Then shouldn't we use this gift of life wisely...
    Gelezinis Gelezinis 18-21, F 4 Responses 7 hrs ago

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    Most days I wake up and I call my parents since they don't call me. I think they are still trying to build my independence. But I've always been a bit of a loner you know? :( When...
    SpiritualBunny SpiritualBunny 26-30, F 7 hrs ago

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    It's been such a long time since I have been on here. One of the reasons is because I live in chronic pain 24/7. I knew I wouldn't get better and that eventually, I would get worse...
    TwilightDream TwilightDream 36-40, F Apr 4

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    It's been such a long time since I have been on here. One of the reasons is because I live in chronic pain 24/7. I knew I wouldn't get better and that eventually, I would get worse...
    TwilightDream TwilightDream 36-40, F 1 Response Apr 4

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    Came home from a lovely dinner with Ma :) to hearing him yelling and screaming from the apt building hallway. He was venting about me, whether to company or on the phone. Open the...
    designbycassandra designbycassandra 31-35, F 1 Response 22 hrs ago

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    WHY is this so hard here to figure out? WOW do people play games. I do a straight search for "I LIVE IN MASSACHUSETTS" contact them and they TELL me they are in Nebraska...
    Fbaser Fbaser 46-50, M 1 Response 10 hrs ago

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    My name is Eva ,I'm 35 years of age ,dark-skinned lady living in the uk since 1992 . I came to the uk when I was 13 ,and as many immigrants I have encountered lots of racial abuse...
    Soullesss Soullesss 31-35, F 3 Responses Mar 19

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    My name is Eva ,I'm 35 years of age ,dark-skinned lady living in the uk since 1992 . I came to the uk when I was 13 ,and as many immigrants I have encountered lots of racial abuse...
    Powerlesss Powerlesss 31-35, F Mar 21

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    My life has sucked a bit, and as such I have had plenty of opportunity to try out the range of painkillers out there from paracetamol to morphine, and not one of them work on me at...
    MrWinstonSmith MrWinstonSmith 22-25, M Mar 22

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    It's not unusual for my Husband to be physically affectionate. We have a very close, very loving marriage. We're soul-mates who have been married 24 years (I'm 42, he's 52). He...
    xxLionessxx xxLionessxx 36-40, F 7 Responses Mar 30

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    I was diagnosed with it three years ago. I slowly started to realize that my level of pain probably wasn’t in the average range when it increased with each day. I sometimes...
    mishale80 mishale80 31-35, F 1 Response Mar 30

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    I can't afford to move out yet, I'm 26. Everything was going pretty well until my grandma and uncle moved in. It's too crowded and I lost my privacy. Now every day when I'm at work...
    awaywego4 awaywego4 26-30, F 2 Responses 9 hrs ago

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    I already feel I do. To the outside world, I'm probably seen as some freaky outcast, I dunno. I know though, because you can feel it, really feel, the wall between you and the...
    SunGun SunGun 16-17 7 hrs ago

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    Death in the dark mirror This will be the possible title of a fictional story that I'm working on but part of it will be based on personnel life's events that have taken place in...
    Soullesss Soullesss 31-35, F 2 Responses Mar 19

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    Any ladies have a portfolio of body painting to show?
    niteride niteride 36-40, M 23 hrs ago

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    I Love Sacramento (place I live) Because every thing to us is a So close and a Short Drive.. with the Beach, and San Fran, 2 hour dive west of us. and the Mountains, Snow, Reno...
    Micheael Micheael 26-30, M Mar 18

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    Death, it is a main factor in our lives. In my opinion, death is the center of many things in human life and society, like the principle of “carpe diem” (enjoy the present...
    DiegoSMarinho DiegoSMarinho 16-17, M Mar 18

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    My husband has suffered with chronic pain for 6 years. He had a fusion thinking it was the root cause of his pain but it didn't help. He has tried every treatment under the moon...
    gauls gauls 31-35, F 3 Responses Mar 29

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    I have been in chronic pain for 25 years, what that has taught me I would like to share with others, My life was perfect, our four children were grown and on their own and we were...
    darlingrose darlingrose 70+, F 9 Responses Mar 29

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    I'm not afraid to die, but I'm afraid of the pain in dying. I don't want to live anymore because of the hatred I get from mostly everyone I'm around. Compliments are extremely rare...
    Lunakicker Lunakicker 22-25, M Apr 8

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    I came across a book that I found quite helpful. It is for the chronic pain individual and their spouse. It is called "coping with chronic pain, a team effort!: for you and your...
    5354yyc 5354yyc 41-45, F 2 Responses Apr 9

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    I'm done. The pain progresses. It's been 2.5 years seince I've been normal. Doctors still find nothing. I'm in so much pain I tried to commit suicide with a plastic shaws bag. I...
    Lolatux Lolatux 13-15, F Mar 18

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    I want to raise awareness about the discrimination and racism towards dark skinned immigrants in the uk .. I'm a dark skinned woman who is a daughter if immigrants and I had lived...
    Soullesss Soullesss 31-35, F Mar 22

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    can someone offer me tips on how to emotionally support my fiancee who is greatly depressed, and a large part (but not all) is about her pain? she has ehlers downlos (im a bad...
    kinkystapler kinkystapler 18-21, F 1 Response 3 days ago

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    I never wanted to live, I know some of you respond negativeo hate me, friends who replace me and parents who only care I o this but hear me out. I never had real friends or even a...
    CaseyaBrokenDoll CaseyaBrokenDoll 13-15, F Mar 20

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    My LSD trip and meet the old spirit. Super natural thing does exist I believe, really mind-opening. in March 22nd 2015. and I decided to do the shrooms tonight and see if I could...
    Yinghongxu Yinghongxu 22-25, F Mar 23

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    My heart is feeling broken because I'm so angry, so unforgiving and I can't let things go... I knew it was only a matter of time before it began taking over... I want to live in...
    iamFrightened iamFrightened 18-21, M Apr 7

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    I made a Promise to God. 'If I live through this surgery I have renewed lease on life and I will use it if you still have use for me on this earth.' I lived. It was the scariest...
    michnn michnn 41-45, F 6 days ago

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    My Master and I have been together over 10 years. We are married and live 24/7 BDSM.
    hispreciouspet1 hispreciouspet1 46-50, F 1 Response 3 hrs ago

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    In a way! I've Ben doing really well for myself following my breakup....but sometimes I catch myself thinking about him and often his friends approach me and ask what happened...
    madusand madusand 18-21, F Mar 18

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    Don't follow the map that makes others happy, if it doesn't make you happy. Live your own life. Live authentically and dare to take a path others haven't gone down before. It's...
    SeeingAuras SeeingAuras 18-21, F Apr 9

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    Frustration That's how i am summing up my week with my husband's chronic degenerative disc in his back. After a pain pump implantation 3 years ago I thought life would would be...
    lovewillkeepus2gether lovewillkeepus2gether 36-40, F 1 Response a week ago

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    I was just talking to a friend of mine (neither of us from Australia originally) about obligations.. I'm always hearing stories from Aussies about their weekends.. All the plans...
    aquagrl aquagrl 31-35, F 2 Responses Apr 2

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