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I Live In Pain From Pseudotumor Cerebri

Personal Stories, Advice, and Support 14 People

    Raise Awareness

    I hope you enjoy my story and website about IIH.. please feel free to email me yours Id love to post it too to raise awareness.. emilyjordan2222.wix.com/raise-awareness-iih
    emilyboyd2222 emilyboyd2222 22-25, F Sep 25, 2013

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    thesweetjen thesweetjen 31-35, F 2 Responses Apr 25, 2013

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    Related Experiences

    I'm new to this! But I was diagnosed with PtC 3 years ago. I'm 23 now. I've had headaches that have always been unbearable since I can remember. I went from doctor to doctor trying...
    Shelmash Shelmash 22-25, F 1 Response Aug 19

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    Is PTC lifelong? I have not been diagnosed yet, but all of my symptoms point to PTC, I am waiting to see a specialist. I have had blood work and multiple MRIs, all coming out...
    tcollier tcollier 22-25, F 1 Response 22 hrs ago

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    When I see a person who is sad, depressed, hurt or whatever else bad happened to him/her I wish I could just take the pain from her/him even to me...
    Adamexxx Adamexxx 13-15, M 1 Response Aug 2

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    So I'm a little nervous about posting this here, but I guess I just felt the need to talk about it. I've had what I believe are some very vivid past life stuff, mainly what I talk...
    acerbuskeeper acerbuskeeper 18-21, T 11 hrs ago

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    He's been my best friend since we were 5 years old. Though he recently came back into my life recently, his presence has been helping my days be more bearable. It's funny how we...
    MorbidMorals MorbidMorals 18-21, F 13 hrs ago

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    Thanks to all the great feedback I’ve been getting here, I’ve been able to process a lot of what’s going on in my marriage. Most of it is simply about clarity rather than any...
    AshInOakland AshInOakland 41-45, M 6 Responses Aug 14

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    something I have realized a while now.... I enjoy the pain of my migrains on some level. The pain can be unbearable and hellish at times, and I hate it. But just like other things...
    Barlong Barlong 22-25, F 2 Responses Aug 15

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    Being someone you run back to is no fun, Thinking the pain has finished - but it has just begun. Curling into a ball, resting my hand on my heart, Wondering why it's me that's...
    MsTedious MsTedious 16-17, F 13 hrs ago

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    Our electrical contractors can offer new builds, additions and refurbishments of commercial premises, specialised network and data cabling and total provider routine maintenance...
    Benitakey Benitakey 31-35, M 1 Response 4 hrs ago

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    most affordable rate assurance We want you to definitely fork out the bottom feasible rate for your area. In case you have reserved a hotel home by Agoda, and after that show...
    Wendolynce106 Wendolynce106 31-35, M 1 Response 13 mins ago

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    Well right now as I type this, I am laying in bed listening to the Enigma Station in Pandora Radio- hopefully that helps give a better of idea of what all common chronic pain...
    thekid2010 thekid2010 22-25, M Aug 9

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    If your walls could talk what would they say? The walls of my childhood bedrooms would tell a story of a seemingly normal boy, regular life, loving family, but he partook in an odd...
    drpepper666 drpepper666 26-30, M Aug 4

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    Moving on: I am packing up my office and my home this week. I am moving out of state and starting a new job. ( I have posted part of this update a little earlier.) But a posting...
    katzlaw katzlaw 36-40, F 10 Responses Aug 7

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    Hello everyone, Here is my (brief)story of pain. I live in a very critical & strict house. Through age 12 to 15, I was abused physically & emotionally by my mom. She used to...
    GenaAmore GenaAmore 18-21, F 4 Responses Aug 13

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    So I guess the question for me is, "How long does it take to turn an SM into a "normal" marriage?," or "How long does it take to recover from an SM, and make it better?" Of course...
    indianoutlaw indianoutlaw 31-35, M 22 Responses 2 days ago

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    I had breakups before but they were never painful. The first breakup that really hurt me was when I was 14 years old. I remember that we could see each other only every two weeks...
    zyakkui zyakkui 18-21, F 2 Responses Aug 5

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    Painkillers are more of a sympathetic ear than anyone else I know. They call my name, begging me to go over the lethal dose limit. Have you ever had your parent(s) call you...
    DemonKidd DemonKidd 18-21, M Aug 11

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    Well, I am sick and tired of hiding and pretending it isn't there... It started out as back pain that won't go away with basic procedures. And I thought after the months went by...
    4NeonFun 4NeonFun 16-17, F 3 days ago

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    Yesterday I posted a post-divorce update - kind of a one year out of a SM report. A lot of the responses were about having the conviction to divorce. I looked in my journal for...
    Buroak Buroak 51-55, M 7 Responses Jul 30

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    Through my failed marriage, I've concluded that, despite the already recognized different classification of personalities, humans fall into two main person types: Selfless and...
    lovegentle lovegentle 36-40, M 8 Responses Aug 17

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    So late breaking development....my wife comes downstairs about an hour ago to my home office, which is very unusual as she very rarely bothers me during the work day in personally...
    MelancholyDude MelancholyDude 36-40, M 23 Responses Aug 18

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    recently i was in a serious car accident , and of course it has been very traumatic and this is a time more than ever that i need my wife to be there for me to provide some love...
    skiball5150 skiball5150 36-40, M 19 Responses Jul 29

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    5 ways narcissists get inside your head http://selfcarehaven.wordpress.com/2014/07/21/five-powerful-ways-abusive-narcissists-get-inside-your-head/ 1. The Idealization-Devaluation...
    zsuzsilowinger zsuzsilowinger 36-40, F 10 Responses Jul 31

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    It all started on this one day in winter, cold air, freezing door handles when you touch, you get stuck. The snow dropping from the sky. High school looking like the cabin in a...
    Blast9003lawl Blast9003lawl 16-17, M Aug 2

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    You, who are reading this and have the patience to finish it, try to learn from my mistakes and know that even in the darkest hour, you are not alone! I am George, 32 years old...
    ggeorgiev2008 ggeorgiev2008 31-35, M 2 days ago

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    Can someone here explain to me the kind of pain and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking...
    sugarcakes143 sugarcakes143 18-21, F 3 Responses 19 hrs ago

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    I found this quote and though just how inspirational it is."Life will break you. Nobody can protect you from that, and living alone won't either, for solitude will also break you...
    lilreddress lilreddress 36-40, F 2 Responses 9 hrs ago

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    Any girls from the Washington, D.C. Area, Md Va or west va?
    jbeaver975 jbeaver975 22-25, M 8 hrs ago

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    I suffer from urticaria and have to take meds every day respond if u relate
    tjteya tjteya 18-21, F 1 Response 3 hrs ago

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    Firstly I am trying to cope with losing my beloved mother to dementia. Every time I see her she is more confused and less herself. It is very painful that although she is still...
    Romani52 Romani52 51-55, F 1 Response Aug 1

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    Hi there, I am new to this forum and I'm just writing to let you know if my experience and to find out advice from people suffering the same or similar to me... Last year I started...
    emmalou23xxx emmalou23xxx 26-30, F 1 Response Aug 3

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    Everyone says I know how you feel "But!" I wrote this poem when I was 13 if you understand it then you will know your not alone and now I'm 33 not happy but alive. SMILE The...
    MyTest MyTest 31-35, F 3 days ago

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    Does anyone live in tacoma
    Shrek0is0life Shrek0is0life 13-15, F 14 hrs ago

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    I lived in spain wan I'm 2 year old and now I'm 15and I love spain and I wish I go to uk but I can't but spain is my love
    hmkspain hmkspain 16-17, M 6 hrs ago

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    Now I have been in NC for over a week now, the freedom to dress and live as a girl is great. I am living with a roommate now, we both crossdress and are having a great time. This...
    Joann62 Joann62 61-65, M 1 Response 6 hrs ago

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    My Story Part 2 About a year I could not face the reality... I thought it all was happening to somebody else and I was just watching... at the same time my country collapsed in...
    TheFullMoon TheFullMoon 51-55, F Aug 1

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    A heart beat, a cry... Tears that run dry. A whisper a look in ones eye. Memory's, moments seconds and days, words that have meanings in so many ways. Love and power, anger and...
    Ameliaaaa Ameliaaaa 26-30, F 1 Response Aug 3

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    Through the vail of anonymity that is "The Internet", I am -as I press the letter keys in real time- apprehensive to share this part of me. I am alone in a bedroom full up with...
    homesickalien87 homesickalien87 26-30, M Aug 7

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    My wife and I love each other but we have not been physically intimate in five years. It began when my wife gave birth to our only son. She had preeclampsia and was very ill; our...
    AshInOakland AshInOakland 41-45, M 15 Responses Aug 13

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    The Finish Line … I left my marriage of 13 years a year ago this month. Legally, I am separated and in the process of finalizing the divorce. Emotionally, the last 12 months...
    SleeplessKnight SleeplessKnight 41-45, M 7 Responses Aug 18

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    I really want to live as woman full time that would be my dream come true.i love dressing in womens clothes and painting my nails and all but it goes further than that in my mind i...
    sofie35 sofie35 31-35, T 7 Responses Aug 20

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    "Feels Like Forever" By: Of Mice and Men Did you ever contemplate when all was lost you hesitate and nothing seems the same? Have you ever hid your face, in such disgrace...
    Ashbarg Ashbarg 13-15, F 6 days ago

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    It truly feels like a demon lives inside my head. I'm so sick of living with these illnesses. When I talk to my fiancé about what I'm thinking about and what I'm going through, he...
    Mileena28 Mileena28 18-21, F 1 Response 3 days ago

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    Body Dysmorphic Disorder - July 30, 2014- I recently heard of this on a television show. I never truly understood this friend's feelings until I learned more of this disorder. To...
    JustaMann JustaMann 41-45, M Jul 30

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