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I Need a Defibrillator Implant Support Group

Personal Stories, Advice, and Support 46 People

    Do I Want A Defibrillator?

    I've had cardiomyopathy and an ejection fraction of 35% for almost two years. I am on 18 medications but they have not improved the EJ and I am having more and more clumps of irregular heart beats. Docs are insisting I need a defrillator implanted. However, there many risks and...
    msmike3 msmike3 66-70 5 Responses May 25, 2010

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    Implanted Icd At 16

    Hi, I'm Diana. I ran track and played basketball since I was 8. One day my older sister who was my age now at the time (21) wasn't feeling well and went to go get her heart checked. My dad also had aver heart problems with an ICD and has had strokes and died in 2009 of a massive...
    DianaRaquel DianaRaquel 18-21, F 1 Response Mar 11, 2012

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    Trying To Decide If I Will Go Through With Having A Defibrillator

    I was told that I needed a defibrillator and through one screw up after another in my Doctor's office I was still without one after a month. All this time has giving me time to get over my shock and really give myself time to really think this through. I am hoping to find someone...
    statuesque1 statuesque1 61-65, F 4 Responses May 18, 2013

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    Just Got The News, Im Getting An Icd Implant

    Hi, I'm Cansas, im 20 years old and have left ventricular cardiomyopathy. Over the past 9 months i have passed out 7 times and my blood pressure drops extremely low. I found this out at age 16 during a soccer game for my high school when i passed out on the feild. My uncle had...
    catheycn catheycn 18-21, F 2 Responses Aug 17, 2011

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    21 And Just Got Defibrillator

    Hey, just got released from hospital yesterday, had defibrillator put in, any tips/suggestions for healing process/what was it like for anyone else?
    ckraft3 ckraft3 18-21 1 Response May 25, 2012

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    Want To Find Out More About A Defibrillator Implant

      My husband Scott had a heart attack 6/15/2012 at the age of 48. At his 3 month check up he was referred to have a consultation with the dr that completes defibrillator implants. His pumping is at 40%, so he is borderline. Is there anyone that is around the same age that...
    rojean rojean 46-50 Nov 4, 2012

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    What To Do?

    I got mine on Dec. 21, 2010. 6 days later, without any warning and no symptoms I got shocked. I wasn't' sure what hit me at first. It was the most painful and horrifying experience of my life. By the time I figured out what happen, BANG I got it again, then again and again. 12...
    jdfonz jdfonz 46-50 3 Responses Jan 17, 2011

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    Welcome To My Crazy Life.. :)

    Hello all! I thought I would introduce myself and share my back story. My name is Jennie, I'm 27, and I was born with Congenital Heart Disease. The variety I have is one of the more rare ones-- Pulmonary Atresia with ventricular septal defect. I was diagnosed and had my first...
    jempfer jempfer 26-30, F Sep 23, 2012

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    Had A Freak Cardiac Arrest

    Luckily I had two colleagues in my office with me when it happened. I'm 55, and have always been athletic, active, and worked out at the gym....but, would get tachacardia every few months. I was unconcsious and they used hypothermic blanket, rescesitated me the first night...
    DebraT DebraT 51-55, F May 28, 2012

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    Regarding "shocking"

    I have HCM and known about it now the past 4 years and I have chosen to NOT put that device in my chest until they improve it as when I reviewed the past  failure rate studies of these devices worldwide - it used to be a whopping 30% failure rate when inadvertent shocking...
    tomrgold tomrgold 46-50 1 Response May 18, 2012

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    My "shocking" Experience

    I received my difibrillator 5 weeks ago today, November 16,2010. This past Friday December 17th the device fired and delivered six consecutive shocks! I never saw it coming and was stunned and shocked (literaly) when it happened. The feeling that I experienced was like an...
    pichiotino pichiotino 51-55 5 Responses Dec 21, 2010

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    Father With Chf And Needing Defibrillator

    My father is 63 years old and has Chronic CHF.  A year ago he had a triple bypass and valve repair, and is doing very well now.  He is maintaining his weight and diet. He tries to walk for excercise regularly.  He saw his Dr. a few months ago and they ordered a...
    dadshelper dadshelper 61-65 May 7, 2010

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    Had my defibrillator put in 2 months ago.

    No pain. Until the seatbelt rubs against it, I don't even think about it. Haven't had the chance to set off any metal detectors yet. Looking forward to that.
    marriedup marriedup 56-60, M 1 Response Dec 11, 2014

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    Lovin My Life

    HELLO ALL I AM 30 YR OLD FEMALE THAT WAS TOLD 4 YEARS AGO I WAS DIAGNOSIS WIT CONGESTIVE HEART FALUIRE MY HEART WAS ONLY CLOSEIN 15 PERCENT AND NOW IT IS ONLY CLOSIN 25 PERCENT SO ON THE 27 OF AUGUST AT 9:30 A.M I HAD  SURGERY TO GOT MY DEFIBULATOR PUT IN I WAS NOT ALL THE...
    mizzblack mizzblack 31-35 Sep 9, 2010

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    Any Experiences Please Share???!!!

    My brother just had a defibrillator implanted in his upper left chest muscle a couple of weeks ago and it has been the most traumatic experience for me yet, after they sent him home a week later it started firing and it is like watching the person you care about get shot over and...
    Mystic44 Mystic44 41-45, F 2 Responses May 7, 2008

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    Judy

    I am 60 years old and have never had heart problems, despite the fact that two of my brothers have had heart attacks plus my dad died of one at age 49. I was life flighted out of our small town to another 120 miles away on March 1 after having horrible chest pains. When I got...
    jhubbard jhubbard 56-60, F Oct 19, 2011

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    So What's The Status On Defibrillator Nowadays

    I read all your stories, all dated a few years back. It doesn't seem that anyone is coming back here to provide further comments. You're scaring the daylights out of me. Excuse me for being so direct, but does that mean this device is not very useful and most of you are deceased...
    BearSpirits BearSpirits 61-65, M 3 Responses Jul 27, 2013

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    No Fear Of My Defibrillator

    I had my first defibrillator implanted in July 2006 after I died once at a festival and was revived but not stable and a second time in the ambulance with the same result only the second time I was put on life support. After 3 days they got my heart rate stabilized but would not...
    Luckysmate Luckysmate 61-65 Sep 28, 2012

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    Defribulator/pacemaker

    I just want to know what the shock of a defribulator feels like.  I think I've had the shock a few times.
    pegstags pegstags 46-50, F 10 Responses Apr 18, 2010

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    I'm Getting A Defibrillator/pacemaker Implant In 4 Days From Today

    June 2, 2011     I'm having a defibrillator/pacemaker implant in 4 days from today.  I'm incredibly afraid of it...of how my life is going to have to change. I'm sorry, right now I can't even finish this because I've started crying again....
    TerriIamusingmyrealname TerriIamusingmyrealname 51-55, F 7 Responses Jun 2, 2011

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