Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Need a Defibrillator Implant Support Group

Personal Stories, Advice, and Support 46 People

    Any Experiences Please Share???!!!

    My brother just had a defibrillator implanted in his upper left chest muscle a couple of weeks ago and it has been the most traumatic experience for me yet, after they sent him home a week later it started firing and it is like watching the person you care about get shot over and...
    Mystic44 Mystic44 41-45, F 2 Responses May 7, 2008

    Your Response

    Cancel

    Judy

    I am 60 years old and have never had heart problems, despite the fact that two of my brothers have had heart attacks plus my dad died of one at age 49. I was life flighted out of our small town to another 120 miles away on March 1 after having horrible chest pains. When I got...
    jhubbard jhubbard 56-60, F Oct 19, 2011

    Your Response

    Cancel

    Father With Chf And Needing Defibrillator

    My father is 63 years old and has Chronic CHF.  A year ago he had a triple bypass and valve repair, and is doing very well now.  He is maintaining his weight and diet. He tries to walk for excercise regularly.  He saw his Dr. a few months ago and they ordered a...
    dadshelper dadshelper 61-65 May 7, 2010

    Your Response

    Cancel

    Lovin My Life

    HELLO ALL I AM 30 YR OLD FEMALE THAT WAS TOLD 4 YEARS AGO I WAS DIAGNOSIS WIT CONGESTIVE HEART FALUIRE MY HEART WAS ONLY CLOSEIN 15 PERCENT AND NOW IT IS ONLY CLOSIN 25 PERCENT SO ON THE 27 OF AUGUST AT 9:30 A.M I HAD  SURGERY TO GOT MY DEFIBULATOR PUT IN I WAS NOT ALL THE...
    mizzblack mizzblack 31-35 Sep 9, 2010

    Your Response

    Cancel

    What To Do?

    I got mine on Dec. 21, 2010. 6 days later, without any warning and no symptoms I got shocked. I wasn't' sure what hit me at first. It was the most painful and horrifying experience of my life. By the time I figured out what happen, BANG I got it again, then again and again. 12...
    jdfonz jdfonz 46-50 3 Responses Jan 17, 2011

    Your Response

    Cancel

    My "shocking" Experience

    I received my difibrillator 5 weeks ago today, November 16,2010. This past Friday December 17th the device fired and delivered six consecutive shocks! I never saw it coming and was stunned and shocked (literaly) when it happened. The feeling that I experienced was like an...
    pichiotino pichiotino 51-55 5 Responses Dec 21, 2010

    Your Response

    Cancel

    I'm Getting A Defibrillator/pacemaker Implant In 4 Days From Today

    June 2, 2011     I'm having a defibrillator/pacemaker implant in 4 days from today.  I'm incredibly afraid of it...of how my life is going to have to change. I'm sorry, right now I can't even finish this because I've started crying again....
    TerriIamusingmyrealname TerriIamusingmyrealname 51-55, F 7 Responses Jun 2, 2011

    Your Response

    Cancel

    Just Got The News, Im Getting An Icd Implant

    Hi, I'm Cansas, im 20 years old and have left ventricular cardiomyopathy. Over the past 9 months i have passed out 7 times and my blood pressure drops extremely low. I found this out at age 16 during a soccer game for my high school when i passed out on the feild. My uncle had...
    catheycn catheycn 18-21, F 2 Responses Aug 17, 2011

    Your Response

    Cancel

    No Fear Of My Defibrillator

    I had my first defibrillator implanted in July 2006 after I died once at a festival and was revived but not stable and a second time in the ambulance with the same result only the second time I was put on life support. After 3 days they got my heart rate stabilized but would not...
    Luckysmate Luckysmate 61-65 Sep 28, 2012

    Your Response

    Cancel

    Regarding "shocking"

    I have HCM and known about it now the past 4 years and I have chosen to NOT put that device in my chest until they improve it as when I reviewed the past  failure rate studies of these devices worldwide - it used to be a whopping 30% failure rate when inadvertent shocking...
    tomrgold tomrgold 46-50 1 Response May 18, 2012

    Your Response

    Cancel

    Trying To Decide If I Will Go Through With Having A Defibrillator

    I was told that I needed a defibrillator and through one screw up after another in my Doctor's office I was still without one after a month. All this time has giving me time to get over my shock and really give myself time to really think this through. I am hoping to find someone...
    statuesque1 statuesque1 66-70, F 4 Responses May 18, 2013

    Your Response

    Cancel

    Defribulator/pacemaker

    I just want to know what the shock of a defribulator feels like.  I think I've had the shock a few times.
    pegstags pegstags 46-50, F 10 Responses Apr 18, 2010

    Your Response

    Cancel

    Had my defibrillator put in 2 months ago.

    No pain. Until the seatbelt rubs against it, I don't even think about it. Haven't had the chance to set off any metal detectors yet. Looking forward to that.
    marriedup marriedup 56-60, M 1 Response Dec 11, 2014

    Your Response

    Cancel

    21 And Just Got Defibrillator

    Hey, just got released from hospital yesterday, had defibrillator put in, any tips/suggestions for healing process/what was it like for anyone else?
    ckraft3 ckraft3 18-21 1 Response May 25, 2012

    Your Response

    Cancel

    So What's The Status On Defibrillator Nowadays

    I read all your stories, all dated a few years back. It doesn't seem that anyone is coming back here to provide further comments. You're scaring the daylights out of me. Excuse me for being so direct, but does that mean this device is not very useful and most of you are deceased...
    BearSpirits BearSpirits 61-65, M 3 Responses Jul 27, 2013

    Your Response

    Cancel

    Want To Find Out More About A Defibrillator Implant

      My husband Scott had a heart attack 6/15/2012 at the age of 48. At his 3 month check up he was referred to have a consultation with the dr that completes defibrillator implants. His pumping is at 40%, so he is borderline. Is there anyone that is around the same age that...
    rojean rojean 46-50 Nov 4, 2012

    Your Response

    Cancel

    Implanted Icd At 16

    Hi, I'm Diana. I ran track and played basketball since I was 8. One day my older sister who was my age now at the time (21) wasn't feeling well and went to go get her heart checked. My dad also had aver heart problems with an ICD and has had strokes and died in 2009 of a massive...
    DianaRaquel DianaRaquel 18-21, F 1 Response Mar 11, 2012

    Your Response

    Cancel

    Welcome To My Crazy Life.. :)

    Hello all! I thought I would introduce myself and share my back story. My name is Jennie, I'm 27, and I was born with Congenital Heart Disease. The variety I have is one of the more rare ones-- Pulmonary Atresia with ventricular septal defect. I was diagnosed and had my first...
    jempfer jempfer 26-30, F Sep 23, 2012

    Your Response

    Cancel

    Do I Want A Defibrillator?

    I've had cardiomyopathy and an ejection fraction of 35% for almost two years. I am on 18 medications but they have not improved the EJ and I am having more and more clumps of irregular heart beats. Docs are insisting I need a defrillator implanted. However, there many risks and...
    msmike3 msmike3 66-70 5 Responses May 25, 2010

    Your Response

    Cancel

    Had A Freak Cardiac Arrest

    Luckily I had two colleagues in my office with me when it happened. I'm 55, and have always been athletic, active, and worked out at the gym....but, would get tachacardia every few months. I was unconcsious and they used hypothermic blanket, rescesitated me the first night...
    DebraT DebraT 51-55, F May 28, 2012

    Your Response

    Cancel

    Related Experiences

    Although I am not one among them but I strongly support their stand
    kartikeybharadwaj kartikeybharadwaj 22-25, M 5 hrs ago

    Your Response

    Cancel
    My partner is starting the divorce paperwork after 8 years. He left with nothing. No equalization. They have a daughter who is now 12 years old. He will pay the child support...
    PuzzlePiecez PuzzlePiecez 36-40 5 hrs ago

    Your Response

    Cancel
    Is the website not doing as great as you would like it to obtain? There might be a number of internet business mistakes that you make. By searching inside the various ways, you can...
    vagarland65 vagarland65 36-40, M 7 hrs ago

    Your Response

    Cancel
    I do all i can to make them happy even neglect my dreams n wishes but still they are never happy......i have an important exam and i have no support from them and over the top they...
    tendertulip tendertulip 26-30, F 1 Response 11 hrs ago

    Your Response

    Cancel
    Love is the same for everybody. I support LGBTQ rights, including marriage and having children. I don't hate or discriminate. I will always support you!!!
    disappeared88 disappeared88 26-30, F 12 hrs ago

    Your Response

    Cancel
    I'm a 19 year old girl. My parents are pretty serious about education, I knew that from a very young age. So I worked hard and I excelled in academics. But I didn't do it because I...
    z296 z296 18-21, F 16 hrs ago

    Your Response

    Cancel
    I am Muslim and I support Israel! Am Yisrael Chai!
    aminaanam94 aminaanam94 18-21, F 1 Response 17 hrs ago

    Your Response

    Cancel
    You know, technically by adding this to your "experiences" you'r telling the people who look at your profile that you don't think anyone who sees the group would join it. Now that...
    TigeroftheOcean TigeroftheOcean 16-17, F 20 hrs ago

    Your Response

    Cancel
    I support the Afghan Taliban. Some afghans told me the Americans did bad stuff and the Taliban is the freedom fighter group and it makes sense. Doesn't it?
    hindustaniberawem hindustaniberawem 18-21, M 4 Responses 22 hrs ago

    Your Response

    Cancel
    Youth have a hard enough time as it is I can't see why any person would make it harder by taking away support they need because how they were born.
    Maybeincubus Maybeincubus 22-25, M 2 days ago

    Your Response

    Cancel
    What Will the Business of the Next Century Look Like? by Victor Edozien Reviews of the Asaba Group, Inc. We started this book by asking, “What will the New America look like...
    asabagroupholdings asabagroupholdings 31-35, F 2 days ago

    Your Response

    Cancel
    So I decided for now on I'm not going to ask my boyfriend for anything I don't want to ask him for a ride or money or any favors or to buy me something that I want because of some...
    LuvLostSoul LuvLostSoul 26-30, F 3 days ago

    Your Response

    Cancel
    I find it extremely ironic that some Republicans are using their freedom of religion to oppress a group of American citizens. Wasn't part of founding America (239 almost 240 years...
    SapphicMinion SapphicMinion 26-30, F 6 Responses 3 days ago

    Your Response

    Cancel
    Welp this group does not look very active but I will still give it a try. Here is my short but long weight loss story. When I was a teenage I was 5'7 120 gotta say I was proud of...
    Neutralize Neutralize 26-30, F 4 Responses 3 days ago

    Your Response

    Cancel
    Welp this group does not look very active, but I will still give it a try. Here is my short, but long weight loss story. When I was a teenage (13, 14, 15, 16, 17) I was 5'7 120...
    Neutralize Neutralize 26-30, F 2 Responses 3 days ago

    Your Response

    Cancel
    Can I be a part of this gang? I'm not friendly because I'm filthy stinking rich and just overall better than most people because I'm filthy stinking rich (not to mention hot) but...
    SquilliamFancyson SquilliamFancyson 70+ 1 Response 3 days ago

    Your Response

    Cancel
    Founded in 2013 after the staggering number of executions all over the world that year, The Peterson Group is committed to the abolition of the death penalty through public...
    tpgglobal tpgglobal 36-40, M 3 days ago

    Your Response

    Cancel
    I'm officially recruiting members into the StrawHatHustleGang! We're a friendly group of people on EP who like to laugh and have fun together. We treat everyone with respect...
    ThatSenpaiWithTheHat ThatSenpaiWithTheHat 18-21, M 16 Responses 3 days ago

    Your Response

    Cancel
    Lasercoil Receives Order for Laser Coil Cutter New Boston, MI - LaserCoil Technologies has received an order for a LaserCoil coil-fed blanking system from SET Enterprises, a...
    albertfrancoo1 albertfrancoo1 26-30, M 6 days ago

    Your Response

    Cancel
    I am a complicated person. Just like most people I suppose... I am unsure of who I am and I am constantly feeling the need to reinvent myself. I am completely uninterested in sex...
    y2brooke y2brooke 16-17, F 1 Response Jun 24

    Your Response

    Cancel
    First off i would like to say that i support the transgender community 100 percent. I believe its a persons right to try and be who they truly are. I decided to follow this group...
    funguy6987 funguy6987 26-30, M 4 Responses Jun 24

    Your Response

    Cancel
    ‘Dad, will you go to jail?’ – The cost of reporting truth Mon Jun 22, 2015 - 2:44 pm EST I spent an entire day trying to figure out how to break it to my wife that my name...
    Soniador1963 Soniador1963 51-55, M 1 Response Jun 23

    Your Response

    Cancel
    I feel broken. I have been betrayed and lied to so much(family betrayal), so much trauma physical(very bad dental Mexico) and am emotional tonight and feeling sorry for myself. I...
    nsight nsight 46-50, F Jun 21

    Your Response

    Cancel