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I Need a Defibrillator Implant Support Group

Personal Stories, Advice, and Support 45 People

    Father With Chf And Needing Defibrillator

    My father is 63 years old and has Chronic CHF.  A year ago he had a triple bypass and valve repair, and is doing very well now.  He is maintaining his weight and diet. He tries to walk for excercise regularly.  He saw his Dr. a few months ago and they ordered a...
    dadshelper dadshelper 61-65 May 7, 2010

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    No Fear Of My Defibrillator

    I had my first defibrillator implanted in July 2006 after I died once at a festival and was revived but not stable and a second time in the ambulance with the same result only the second time I was put on life support. After 3 days they got my heart rate stabilized but would not...
    Luckysmate Luckysmate 61-65 Sep 28, 2012

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    Defribulator/pacemaker

    I just want to know what the shock of a defribulator feels like.  I think I've had the shock a few times.
    pegstags pegstags 46-50, F 10 Responses Apr 18, 2010

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    Any Experiences Please Share???!!!

    My brother just had a defibrillator implanted in his upper left chest muscle a couple of weeks ago and it has been the most traumatic experience for me yet, after they sent him home a week later it started firing and it is like watching the person you care about get shot over and...
    Mystic44 Mystic44 41-45, F 2 Responses May 7, 2008

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    Want To Find Out More About A Defibrillator Implant

      My husband Scott had a heart attack 6/15/2012 at the age of 48. At his 3 month check up he was referred to have a consultation with the dr that completes defibrillator implants. His pumping is at 40%, so he is borderline. Is there anyone that is around the same age that...
    rojean rojean 46-50 Nov 4, 2012

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    Had A Freak Cardiac Arrest

    Luckily I had two colleagues in my office with me when it happened. I'm 55, and have always been athletic, active, and worked out at the gym....but, would get tachacardia every few months. I was unconcsious and they used hypothermic blanket, rescesitated me the first night...
    DebraT DebraT 51-55, F May 28, 2012

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    Judy

    I am 60 years old and have never had heart problems, despite the fact that two of my brothers have had heart attacks plus my dad died of one at age 49. I was life flighted out of our small town to another 120 miles away on March 1 after having horrible chest pains. When I got...
    jhubbard jhubbard 56-60, F Oct 19, 2011

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    What To Do?

    I got mine on Dec. 21, 2010. 6 days later, without any warning and no symptoms I got shocked. I wasn't' sure what hit me at first. It was the most painful and horrifying experience of my life. By the time I figured out what happen, BANG I got it again, then again and again. 12...
    jdfonz jdfonz 46-50 3 Responses Jan 17, 2011

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    21 And Just Got Defibrillator

    Hey, just got released from hospital yesterday, had defibrillator put in, any tips/suggestions for healing process/what was it like for anyone else?
    ckraft3 ckraft3 18-21 1 Response May 25, 2012

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    My "shocking" Experience

    I received my difibrillator 5 weeks ago today, November 16,2010. This past Friday December 17th the device fired and delivered six consecutive shocks! I never saw it coming and was stunned and shocked (literaly) when it happened. The feeling that I experienced was like an...
    pichiotino pichiotino 51-55 5 Responses Dec 21, 2010

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    Regarding "shocking"

    I have HCM and known about it now the past 4 years and I have chosen to NOT put that device in my chest until they improve it as when I reviewed the past  failure rate studies of these devices worldwide - it used to be a whopping 30% failure rate when inadvertent shocking...
    tomrgold tomrgold 46-50 1 Response May 18, 2012

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    Implanted Icd At 16

    Hi, I'm Diana. I ran track and played basketball since I was 8. One day my older sister who was my age now at the time (21) wasn't feeling well and went to go get her heart checked. My dad also had aver heart problems with an ICD and has had strokes and died in 2009 of a massive...
    DianaRaquel DianaRaquel 18-21, F 1 Response Mar 11, 2012

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    So What's The Status On Defibrillator Nowadays

    I read all your stories, all dated a few years back. It doesn't seem that anyone is coming back here to provide further comments. You're scaring the daylights out of me. Excuse me for being so direct, but does that mean this device is not very useful and most of you are deceased...
    BearSpirits BearSpirits 61-65, M 3 Responses Jul 27, 2013

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    Do I Want A Defibrillator?

    I've had cardiomyopathy and an ejection fraction of 35% for almost two years. I am on 18 medications but they have not improved the EJ and I am having more and more clumps of irregular heart beats. Docs are insisting I need a defrillator implanted. However, there many risks and...
    msmike3 msmike3 66-70 5 Responses May 25, 2010

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    Welcome To My Crazy Life.. :)

    Hello all! I thought I would introduce myself and share my back story. My name is Jennie, I'm 27, and I was born with Congenital Heart Disease. The variety I have is one of the more rare ones-- Pulmonary Atresia with ventricular septal defect. I was diagnosed and had my first...
    jempfer jempfer 26-30, F Sep 23, 2012

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    Trying To Decide If I Will Go Through With Having A Defibrillator

    I was told that I needed a defibrillator and through one screw up after another in my Doctor's office I was still without one after a month. All this time has giving me time to get over my shock and really give myself time to really think this through. I am hoping to find someone...
    statuesque1 statuesque1 61-65, F 4 Responses May 18, 2013

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    I'm Getting A Defibrillator/pacemaker Implant In 4 Days From Today

    June 2, 2011     I'm having a defibrillator/pacemaker implant in 4 days from today.  I'm incredibly afraid of it...of how my life is going to have to change. I'm sorry, right now I can't even finish this because I've started crying again....
    TerriIamusingmyrealname TerriIamusingmyrealname 51-55, F 7 Responses Jun 2, 2011

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    Lovin My Life

    HELLO ALL I AM 30 YR OLD FEMALE THAT WAS TOLD 4 YEARS AGO I WAS DIAGNOSIS WIT CONGESTIVE HEART FALUIRE MY HEART WAS ONLY CLOSEIN 15 PERCENT AND NOW IT IS ONLY CLOSIN 25 PERCENT SO ON THE 27 OF AUGUST AT 9:30 A.M I HAD  SURGERY TO GOT MY DEFIBULATOR PUT IN I WAS NOT ALL THE...
    mizzblack mizzblack 31-35 Sep 9, 2010

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    Just Got The News, Im Getting An Icd Implant

    Hi, I'm Cansas, im 20 years old and have left ventricular cardiomyopathy. Over the past 9 months i have passed out 7 times and my blood pressure drops extremely low. I found this out at age 16 during a soccer game for my high school when i passed out on the feild. My uncle had...
    catheycn catheycn 18-21, F 2 Responses Aug 17, 2011

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    Related Experiences

    It is provides more privacy than other groups - only members can see posts and other members. There's more details here - http://www.pseudomyxomasurvivor.org/onlinecommunity.html
    pseudomyxomasurvivor pseudomyxomasurvivor 46-50 Nov 8

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    But there is a cautionary note, and that is recognizing what would make them fail. If clinicians regard the a number of details I've described, the minis will work. If they do not...
    Laurenazrj90 Laurenazrj90 31-35, M 1 Response Oct 31

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    If there is a kidney needy patient of blood group ABpositive from Assam please contact me here 7663006498.
    anubrahma anubrahma 26-30 23 hrs ago

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    The future is disappearing: How humanity is falling short of its grand technological promise by The Koyal Group Info Mag What I find most interesting about typical visions of the...
    jadeinnbachmeier jadeinnbachmeier 22-25, F Nov 4

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    What’s more important than medical devices? It is the people who develop, design, test it before the devices can be launched in the market. How do companies find these set of...
    siresearch1992 siresearch1992 18-21, F 8 hrs ago

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    Norvell Electronics: Hvad Du Ser På Menuen Er Hvad Du Får Fra starten i 1955, Norvell har holdt denne enkle, klare filosofi: vi kun tjene op hvad vi kan servicere. Meget gerne...
    amberray24 amberray24 22-25, F 7 hrs ago

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    Improved visual appearance: Whenever you shed the whole tooth - crown and root - shrinkage on the jawbone could bring about your deal with to glance more mature. Dental implants...
    Laurenazrj90 Laurenazrj90 31-35, M 2 Responses Oct 31

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    Each and every situation differs and there are lots of factors in just how long the method can take. Most circumstances choose quite a few months through the time the implant is to...
    Laurenazrj90 Laurenazrj90 31-35, M 1 Response Oct 29

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    i need someone nice to be supportive? cant sleep. healing from abuse. i . eh.... shouldnt be a wuss about this ****.. but .. i just left Jekkyl and Hyde :( he was both...
    amtired amtired 22-25 3 Responses 6 hrs ago

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    sometimes I feel lame whenever I talk to or hang out with my friends. Yes I drink, but only with a group of people, so I'm only a social drinker. yet other than that, I don't smoke...
    alxvii alxvii 18-21, F 3 Responses 6 hrs ago

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    The Shearin Group Leadership Training Tips: Try 4 Tips From Leadership Coaches The old top-down, command-and-control style of leadership seldom works in today's organizations...
    cassielawson2 cassielawson2 18-21, F Oct 28

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    I wish I could just go somewhere and start over, RIGHT NOW! Just drop everything and see the world …. or more of it, at the least. I am really done with where I am at in life...
    EpilepticOne EpilepticOne 31-35, M Oct 30

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    I am probably one of the BIGGEST Supporter of the LGBTQIP-A You'll EVER meet! But, I don't have that much time so we gotta make this quick! Well, being one of the BIGGEST...
    DarkOnTheInside13 DarkOnTheInside13 13-15, F Nov 9

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    I have Skyla. It is a birth control implant made by the same company as Mirena. Skyla is for females who have not had children because the size is smaller in comparison to Mirena...
    fitness12 fitness12 18-21, F 1 Response Nov 18

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    I have attended many concerts in my short little life but my groupie experience was pretty fun. It was with a well know dj and his crew. Damn that was a hot and fun night in an...
    PoojaTimberlake PoojaTimberlake 18-21, F 1 hr ago

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    I'm gonna talk to you this time about my life and experience in Bournemouth I moved to Bournemouth at the end of September 2009 for the fact that it was a beautiful town and it...
    lostsouluk lostsouluk 31-35, F Nov 9

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    Not after a good friend had her saline Implant leak at the valve
    belleolbes belleolbes 31-35, F 3 Responses Nov 5

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     This is a relatively new group created on Facebook, and is a support network for all those Hydrocephalus sufferers, carers and parents of those people that have this...
    aussieman01 aussieman01 51-55, M Oct 28

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    Study proposes that Prolonged Health Coverage may Improve Cancer results in young Adults Warning! According to a study from Dana-Farber/Brigham and Women's Cancer Center (DF/BWCC...
    mortonriddl3 mortonriddl3 26-30, M Oct 28

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    For awhile I wanted to be the one to support everyone else, I wanted to be strong. That's changed quite dramatically. I just want to be held and feel protected now. Though I think...
    Friability Friability 18-21 1 Response 6 days ago

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    Lately I have been struggling with this thought in my mind. Should I pursue mtf transition seriously or not ? I know I am gender queer for a long time now. And I have serious...
    deeplycurious deeplycurious 26-30, T 4 Responses Oct 28

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    I'm gonna talk to you about my experience with the nhs mental health in the uk and I'm going to be very honest As you know I was referred to a psychiatrist in Bournemouth for my...
    lostsouluk lostsouluk 31-35, F 1 Response Nov 9

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    How to deal with emotional friends? I have one friend, and she's great and one of my really good pals and all, but she is SOooOoo all over the place emotionally. She says it's just...
    PinkMellow PinkMellow 18-21, F 1 Response Nov 12

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    we had to choose a group in college . i was going with the one i thought would be good for me. but then my friends said to come to their group ,and together we will have fun...but...
    mdifferent mdifferent 18-21, F 4 Responses Nov 3

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    How to know if you must change to a new undercarriage It is especially significant to distinguish when you must have a new undercarriage. Almost 20 percent of the acquisition...
    willh00p3r willh00p3r 36-40, F Nov 4

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    Norvell Group and Associates: Ihre Hardwareanforderungen Erfüllt Online Sprechen Sie über Ihre Elektronik-Hardware-Anforderungen und man kann auf jeden Fall schätzen, was...
    olssvenus olssvenus 36-40, F 4 days ago

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    Occasionally a tweet from one of Anonymous or an affiliated group will show up on twitter. I find their news and tidbits more credible than most messages from the government.
    SilverPagan SilverPagan 51-55, M 2 Responses 4 days ago

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    Din maskinvara måste uppfyllas Online Prata om din elektronik maskinvara måste och kan man definitivt uppskatta vad Norvell elektronik ger genom sin webbplats. Med femtio år...
    altonvelez altonvelez 22-25, M 1 day ago

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