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I Need a Defibrillator Implant Support Group

Personal Stories, Advice, and Support 45 People

    No Fear Of My Defibrillator

    I had my first defibrillator implanted in July 2006 after I died once at a festival and was revived but not stable and a second time in the ambulance with the same result only the second time I was put on life support. After 3 days they got my heart rate stabilized but would not...
    Luckysmate Luckysmate 61-65 Sep 28, 2012

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    Regarding "shocking"

    I have HCM and known about it now the past 4 years and I have chosen to NOT put that device in my chest until they improve it as when I reviewed the past  failure rate studies of these devices worldwide - it used to be a whopping 30% failure rate when inadvertent shocking...
    tomrgold tomrgold 46-50 1 Response May 18, 2012

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    Judy

    I am 60 years old and have never had heart problems, despite the fact that two of my brothers have had heart attacks plus my dad died of one at age 49. I was life flighted out of our small town to another 120 miles away on March 1 after having horrible chest pains. When I got...
    jhubbard jhubbard 56-60, F Oct 19, 2011

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    Father With Chf And Needing Defibrillator

    My father is 63 years old and has Chronic CHF.  A year ago he had a triple bypass and valve repair, and is doing very well now.  He is maintaining his weight and diet. He tries to walk for excercise regularly.  He saw his Dr. a few months ago and they ordered a...
    dadshelper dadshelper 61-65 May 7, 2010

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    Had A Freak Cardiac Arrest

    Luckily I had two colleagues in my office with me when it happened. I'm 55, and have always been athletic, active, and worked out at the gym....but, would get tachacardia every few months. I was unconcsious and they used hypothermic blanket, rescesitated me the first night...
    DebraT DebraT 51-55, F May 28, 2012

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    Defribulator/pacemaker

    I just want to know what the shock of a defribulator feels like.  I think I've had the shock a few times.
    pegstags pegstags 46-50, F 10 Responses Apr 18, 2010

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    Trying To Decide If I Will Go Through With Having A Defibrillator

    I was told that I needed a defibrillator and through one screw up after another in my Doctor's office I was still without one after a month. All this time has giving me time to get over my shock and really give myself time to really think this through. I am hoping to find someone...
    statuesque1 statuesque1 61-65, F 4 Responses May 18, 2013

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    Any Experiences Please Share???!!!

    My brother just had a defibrillator implanted in his upper left chest muscle a couple of weeks ago and it has been the most traumatic experience for me yet, after they sent him home a week later it started firing and it is like watching the person you care about get shot over and...
    Mystic44 Mystic44 41-45, F 2 Responses May 7, 2008

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    Lovin My Life

    HELLO ALL I AM 30 YR OLD FEMALE THAT WAS TOLD 4 YEARS AGO I WAS DIAGNOSIS WIT CONGESTIVE HEART FALUIRE MY HEART WAS ONLY CLOSEIN 15 PERCENT AND NOW IT IS ONLY CLOSIN 25 PERCENT SO ON THE 27 OF AUGUST AT 9:30 A.M I HAD  SURGERY TO GOT MY DEFIBULATOR PUT IN I WAS NOT ALL THE...
    mizzblack mizzblack 31-35 Sep 9, 2010

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    Do I Want A Defibrillator?

    I've had cardiomyopathy and an ejection fraction of 35% for almost two years. I am on 18 medications but they have not improved the EJ and I am having more and more clumps of irregular heart beats. Docs are insisting I need a defrillator implanted. However, there many risks and...
    msmike3 msmike3 66-70 5 Responses May 25, 2010

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    Want To Find Out More About A Defibrillator Implant

      My husband Scott had a heart attack 6/15/2012 at the age of 48. At his 3 month check up he was referred to have a consultation with the dr that completes defibrillator implants. His pumping is at 40%, so he is borderline. Is there anyone that is around the same age that...
    rojean rojean 46-50 Nov 4, 2012

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    Welcome To My Crazy Life.. :)

    Hello all! I thought I would introduce myself and share my back story. My name is Jennie, I'm 27, and I was born with Congenital Heart Disease. The variety I have is one of the more rare ones-- Pulmonary Atresia with ventricular septal defect. I was diagnosed and had my first...
    jempfer jempfer 26-30, F Sep 23, 2012

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    So What's The Status On Defibrillator Nowadays

    I read all your stories, all dated a few years back. It doesn't seem that anyone is coming back here to provide further comments. You're scaring the daylights out of me. Excuse me for being so direct, but does that mean this device is not very useful and most of you are deceased...
    BearSpirits BearSpirits 61-65, M 3 Responses Jul 27, 2013

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    What To Do?

    I got mine on Dec. 21, 2010. 6 days later, without any warning and no symptoms I got shocked. I wasn't' sure what hit me at first. It was the most painful and horrifying experience of my life. By the time I figured out what happen, BANG I got it again, then again and again. 12...
    jdfonz jdfonz 46-50 3 Responses Jan 17, 2011

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    Just Got The News, Im Getting An Icd Implant

    Hi, I'm Cansas, im 20 years old and have left ventricular cardiomyopathy. Over the past 9 months i have passed out 7 times and my blood pressure drops extremely low. I found this out at age 16 during a soccer game for my high school when i passed out on the feild. My uncle had...
    catheycn catheycn 18-21, F 2 Responses Aug 17, 2011

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    Had my defibrillator put in 2 months ago.

    No pain. Until the seatbelt rubs against it, I don't even think about it. Haven't had the chance to set off any metal detectors yet. Looking forward to that.
    marriedup marriedup 56-60, M 1 Response Dec 11, 2014

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    Implanted Icd At 16

    Hi, I'm Diana. I ran track and played basketball since I was 8. One day my older sister who was my age now at the time (21) wasn't feeling well and went to go get her heart checked. My dad also had aver heart problems with an ICD and has had strokes and died in 2009 of a massive...
    DianaRaquel DianaRaquel 18-21, F 1 Response Mar 11, 2012

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    21 And Just Got Defibrillator

    Hey, just got released from hospital yesterday, had defibrillator put in, any tips/suggestions for healing process/what was it like for anyone else?
    ckraft3 ckraft3 18-21 1 Response May 25, 2012

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    I'm Getting A Defibrillator/pacemaker Implant In 4 Days From Today

    June 2, 2011     I'm having a defibrillator/pacemaker implant in 4 days from today.  I'm incredibly afraid of it...of how my life is going to have to change. I'm sorry, right now I can't even finish this because I've started crying again....
    TerriIamusingmyrealname TerriIamusingmyrealname 51-55, F 7 Responses Jun 2, 2011

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    My "shocking" Experience

    I received my difibrillator 5 weeks ago today, November 16,2010. This past Friday December 17th the device fired and delivered six consecutive shocks! I never saw it coming and was stunned and shocked (literaly) when it happened. The feeling that I experienced was like an...
    pichiotino pichiotino 51-55 5 Responses Dec 21, 2010

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    Related Experiences

    I'm really having an off day and I am thankful that today is my support group day. It's nice hearing stories from people that are going through the same types of things that I am...
    OhShucksGoDucks OhShucksGoDucks 36-40, F 1 Response Jan 5

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    In their 20s, and who have no kids. My reasoning behind this is there is plenty of support for young people who do have kids, yet I haven't heard of or seen a group or organization...
    iamnikki iamnikki 22-25, F 1 Response Jan 1

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    'mI'm so glad I found daily strength and this support group. Since the age of 12 I've been a homosexual. I've had to struggle with it all my life. Living with ridicule and being...
    italia41 italia41 41-45, F Jan 22

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    Someone very close to me told me last night that they were sexually abused by their cousin as a child. I feel, angry, sick, depressed and confused in hearing this. What I'd like to...
    mbubu mbubu 26-30, M 3 Responses Jan 15

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    I'm scared of doctors . I'm scared of the possible prognosis... I need help and support for when I go get tests done . My bp is high for unknown reasons .. Also need a Pap test...
    krisE14 krisE14 31-35, F 3 Responses Jan 7

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    Construction Indonesia 2015 - Upcoming Trade Fairs This coming September 9 – 12 September 2015, Jakarta. Construction Indonesia 2015 is collocated with: A. Electric B. Power...
    willh00p3r willh00p3r 36-40, F 8 hrs ago

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    Construction Indonesia 2015 - Upcoming Trade Fairs: Announcement from Axis Capital Group, Jakarta Indonesia This coming September 9 – 12 September 2015, Jakarta. Construction...
    amandafhuneycutt amandafhuneycutt 18-21, F 10 hrs ago

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    Ways to Gain a Competitive Edge in Construction It was not long ago that most construction companies like Axis Capital Group in Jakarta were experiencing growth year after year...
    willh00p3r willh00p3r 36-40, F Jan 15

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    I have 2 son's one, the youngest, 27 years old, is wonderful, loving, caring and we love and support each other. However my oldest son, 34 years old, has been cold, distant...
    hardworkingmom88 hardworkingmom88 51-55, F 1 Response Jan 2

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    I don't support gay marriage. So how many people were furious at that fist line? Let me be clear here I support choice, whether that is marriage between a man and a woman, a man...
    jhnn0356 jhnn0356 18-21, F Jan 10

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    Muslim Women’s Network chair: ‘A lot of women are suffering in silence’ As the head of a national charity for Muslim women, Shaista Gohir is determined to give voice to those...
    sogdianrock sogdianrock 51-55, M Jan 19

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    If you build your own wealth, then you deserve to enjoy it.Now, this, at first glance, might seem reasonable. But think of the inverse of it ‘those who don’t build...
    AdrianKroll AdrianKroll 26-30, M 2 days ago

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    https://m.facebook.com/groups/803022473091714 For anyone who's interested in joining, I host a fb group called LegStyle - Tights & Pantyhose Fashion. click link to join & share...
    LegStyles LegStyles 26-30, M Jan 2

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    Some quotes I found that I think may help some parents understand their child's estrangement better. Not posting to be mean but to try to show the other side of the coin so there...
    Violet22 Violet22 26-30, F 1 Response Jan 14

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    I'd already had one surgery on my lower back, a discectomy. Years later I got degenerative disc disease. My disc was going going gone. I had two choices: have the back fused...
    steverick steverick 56-60, M 1 Response Jan 16

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    2015 Annual Report & Forecast Last year, we reported expectations for an “average” business year, based on the performance of various construction markets in 2013. The effects...
    thiagojavieri thiagojavieri 31-35, M Jan 18

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    2015 Annual Report & Forecast Last year, we reported expectations for an “average” business year, based on the performance of various construction markets in 2013. The...
    willh00p3r willh00p3r 36-40, F Jan 19

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    hello everyone. So I have a major problem... well, perhaps you won't find it as important as I do, but I really hope someone will take some time and read this. I am a sophmore in...
    loneeeelyinlove loneeeelyinlove 16-17, F 4 Responses 1 day ago

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    “When Parents are Getting Old and Our Pockets are Getting Heavier.” The end of the year is fast approaching and we need to look back for our life how we became from the moment...
    lea37ortiz lea37ortiz 26-30, F Dec 31, 2014

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    I just wish I had a group of friends to talk to about the horrible things in my life and who support me, and understand me! :(
    musicgirl91 musicgirl91 22-25, F 1 Response Jan 1

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    Absloutely hilarious article about Netanyahu in France, you will really laugh out loud reading about Netanyahu's behaviour and about how he was recieved there. I am not in...
    MissGaga MissGaga 22-25, F 6 Responses Jan 16

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    January is the hardest month for me. My daughter was 15 when she decided to stop coming over. She decided to stop speaking to me. The she blew off our family Christmas. Then...
    sadmom68 sadmom68 46-50, F Jan 9

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     5 Essential Things To Move Up The Corporate LadderAmbitious employees always seek opportunities to climb up the corporate ladder. There is no dearth of individuals who are...
    N89murphy N89murphy 22-25, F Jan 9

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    I want to invite you all to join the LegStyle Facebook group at https://m.facebook.com/groups/803022473091714 Come meet & share new LegStyles, and get the latest on new...
    LegStyles LegStyles 26-30, M Jan 15

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    A friend in need is a friend in deed might be an old say but applies till date and I am yet to find such one. All these years I had few good ones but not much in touch with them...
    psycruler psycruler 31-35, M 2 Responses Jan 14

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    I'm tried of being bossed around like a little child. I have three babies and another on the way. I'm capable of making my own decisions. I know what's right and wrong. So I don't...
    badgirlbee badgirlbee 18-21, F 12 Responses a week ago

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    I need someone to talk to I don't know what to do need relationship help
    0zzy2597 0zzy2597 16-17, M 3 Responses 2 hrs ago

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    anyone needs to talk I will gladly listen and offer advice if you need it
    Bethirvine Bethirvine 13-15, F