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I Need a Defibrillator Implant Support Group

Personal Stories, Advice, and Support 44 People

    Trying To Decide If I Will Go Through With Having A Defibrillator

    I was told that I needed a defibrillator and through one screw up after another in my Doctor's office I was still without one after a month. All this time has giving me time to get over my shock and really give myself time to really think this through. I am hoping to find someone...
    statuesque1 statuesque1 61-65, F 4 Responses May 18, 2013

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    Do I Want A Defibrillator?

    I've had cardiomyopathy and an ejection fraction of 35% for almost two years. I am on 18 medications but they have not improved the EJ and I am having more and more clumps of irregular heart beats. Docs are insisting I need a defrillator implanted. However, there many risks and...
    msmike3 msmike3 66-70 5 Responses May 25, 2010

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    I'm Getting A Defibrillator/pacemaker Implant In 4 Days From Today

    June 2, 2011     I'm having a defibrillator/pacemaker implant in 4 days from today.  I'm incredibly afraid of it...of how my life is going to have to change. I'm sorry, right now I can't even finish this because I've started crying again....
    TerriIamusingmyrealname TerriIamusingmyrealname 51-55, F 7 Responses Jun 2, 2011

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    Regarding "shocking"

    I have HCM and known about it now the past 4 years and I have chosen to NOT put that device in my chest until they improve it as when I reviewed the past  failure rate studies of these devices worldwide - it used to be a whopping 30% failure rate when inadvertent shocking...
    tomrgold tomrgold 46-50 1 Response May 18, 2012

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    Implanted Icd At 16

    Hi, I'm Diana. I ran track and played basketball since I was 8. One day my older sister who was my age now at the time (21) wasn't feeling well and went to go get her heart checked. My dad also had aver heart problems with an ICD and has had strokes and died in 2009 of a massive...
    DianaRaquel DianaRaquel 18-21, F 1 Response Mar 11, 2012

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    My "shocking" Experience

    I received my difibrillator 5 weeks ago today, November 16,2010. This past Friday December 17th the device fired and delivered six consecutive shocks! I never saw it coming and was stunned and shocked (literaly) when it happened. The feeling that I experienced was like an...
    pichiotino pichiotino 51-55 5 Responses Dec 21, 2010

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    Had A Freak Cardiac Arrest

    Luckily I had two colleagues in my office with me when it happened. I'm 55, and have always been athletic, active, and worked out at the gym....but, would get tachacardia every few months. I was unconcsious and they used hypothermic blanket, rescesitated me the first night...
    DebraT DebraT 51-55, F May 28, 2012

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    Just Got The News, Im Getting An Icd Implant

    Hi, I'm Cansas, im 20 years old and have left ventricular cardiomyopathy. Over the past 9 months i have passed out 7 times and my blood pressure drops extremely low. I found this out at age 16 during a soccer game for my high school when i passed out on the feild. My uncle had...
    catheycn catheycn 18-21, F 2 Responses Aug 17, 2011

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    No Fear Of My Defibrillator

    I had my first defibrillator implanted in July 2006 after I died once at a festival and was revived but not stable and a second time in the ambulance with the same result only the second time I was put on life support. After 3 days they got my heart rate stabilized but would not...
    Luckysmate Luckysmate 61-65 Sep 28, 2012

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    Father With Chf And Needing Defibrillator

    My father is 63 years old and has Chronic CHF.  A year ago he had a triple bypass and valve repair, and is doing very well now.  He is maintaining his weight and diet. He tries to walk for excercise regularly.  He saw his Dr. a few months ago and they ordered a...
    dadshelper dadshelper 61-65 May 7, 2010

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    Want To Find Out More About A Defibrillator Implant

      My husband Scott had a heart attack 6/15/2012 at the age of 48. At his 3 month check up he was referred to have a consultation with the dr that completes defibrillator implants. His pumping is at 40%, so he is borderline. Is there anyone that is around the same age that...
    rojean rojean 46-50 Nov 4, 2012

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    Judy

    I am 60 years old and have never had heart problems, despite the fact that two of my brothers have had heart attacks plus my dad died of one at age 49. I was life flighted out of our small town to another 120 miles away on March 1 after having horrible chest pains. When I got...
    jhubbard jhubbard 56-60, F Oct 19, 2011

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    Lovin My Life

    HELLO ALL I AM 30 YR OLD FEMALE THAT WAS TOLD 4 YEARS AGO I WAS DIAGNOSIS WIT CONGESTIVE HEART FALUIRE MY HEART WAS ONLY CLOSEIN 15 PERCENT AND NOW IT IS ONLY CLOSIN 25 PERCENT SO ON THE 27 OF AUGUST AT 9:30 A.M I HAD  SURGERY TO GOT MY DEFIBULATOR PUT IN I WAS NOT ALL THE...
    mizzblack mizzblack 31-35 Sep 9, 2010

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    So What's The Status On Defibrillator Nowadays

    I read all your stories, all dated a few years back. It doesn't seem that anyone is coming back here to provide further comments. You're scaring the daylights out of me. Excuse me for being so direct, but does that mean this device is not very useful and most of you are deceased...
    BearSpirits BearSpirits 61-65, M 3 Responses Jul 27, 2013

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    21 And Just Got Defibrillator

    Hey, just got released from hospital yesterday, had defibrillator put in, any tips/suggestions for healing process/what was it like for anyone else?
    ckraft3 ckraft3 18-21 1 Response May 25, 2012

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    Defribulator/pacemaker

    I just want to know what the shock of a defribulator feels like.  I think I've had the shock a few times.
    pegstags pegstags 46-50, F 10 Responses Apr 18, 2010

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    Welcome To My Crazy Life.. :)

    Hello all! I thought I would introduce myself and share my back story. My name is Jennie, I'm 27, and I was born with Congenital Heart Disease. The variety I have is one of the more rare ones-- Pulmonary Atresia with ventricular septal defect. I was diagnosed and had my first...
    jempfer jempfer 26-30, F Sep 23, 2012

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    What To Do?

    I got mine on Dec. 21, 2010. 6 days later, without any warning and no symptoms I got shocked. I wasn't' sure what hit me at first. It was the most painful and horrifying experience of my life. By the time I figured out what happen, BANG I got it again, then again and again. 12...
    jdfonz jdfonz 46-50 3 Responses Jan 17, 2011

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    Any Experiences Please Share???!!!

    My brother just had a defibrillator implanted in his upper left chest muscle a couple of weeks ago and it has been the most traumatic experience for me yet, after they sent him home a week later it started firing and it is like watching the person you care about get shot over and...
    Mystic44 Mystic44 41-45, F 2 Responses May 7, 2008

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    Related Experiences

    I need help. I recently started going down the path to joining the air force. My recruiter wants to start doing paperwork this Friday to take the ASVAB and actually join the...
    katieg2796 katieg2796 16-17, F 1 Response 23 hrs ago

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    I'm Brian and suffered a life changing football injury! I was wearing a defective football helmet! I was hit and suffered a subdurral hemmatoma! I was in a coma for 5 weeks and...
    Majerle1972 Majerle1972 41-45, M 1 Response Jun 30

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    I want one person to talk to, I don't care who you are. Someone that will stay up all night just to talk on the phone. I don't care how far away we are. Distance doesn't matter. I...
    sarax18 sarax18 13-15, F 5 Responses 6 days ago

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    For a long time i wanted and longed for a group of loving friends to share my life and experiences with. I have a few friends in reality that i know are true friends and we share a...
    lilreddress lilreddress 36-40, F 13 Responses Jul 3

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    I dont know how to start,, um when i was a child i had no worries and i was so happy with my family,,my cousins used to love me and we used to stay all day together.. We were best...
    jessyy17 jessyy17 16-17, F 6 Responses 8 hrs ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 day ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 day ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 day ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 day ago

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    I can't stop saying mean things to my ex. Granted he deserves it after cheating on me for three years and charging up our joint credit cards to support his mistress and then not...
    greyeye greyeye 51-55, F 2 hrs ago

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    Science Breakthroughs The Koyal Group InfoMag Reviews – Loredana Paglialonga nojaa koko hänen isänsä altis kehon ja kuiskaa hänen korvaansa: "Spinta, Papi...
    lovejones28 lovejones28 41-45, F 22 hrs ago

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    The occupation in numbers sinse:Number of children killed since september 2000:Israel: 131      Palestine: 1661Total number killed since Septemer 2000:Israel: 1134...
    iggy1993 iggy1993 18-21, M 2 Responses 9 hrs ago

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    Voluntary and charity. I think the greatest job as we can do is to support each other. The relation of society to the disabled is such a different that we are overminded by thought...
    michalmos michalmos 31-35, M Jun 26

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    I am the proud supporter of a small group of lgbt people(one gay, lesbian and a gender fluid person)!!!! And me myself I am bi and I am proud!!! :)
    cobble123 cobble123 18-21, M Jun 29

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    It is a good thing that Sexuals can go to specific groups for specific needs and talk with like-minded people to get together or just share stories and ideas. Anyway, these groups...
    ninathecat ninathecat 31-35 Jun 30

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    I fall somewhere in the middle. The ideology on both sides is just horrible. "The constitution says we can have any weapon we want with no restriction" "if we ban guns they will go...
    Based4ever Based4ever 13-15, M 1 Response Jul 2

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    Israeli calls for Palestinian blood ring at fever pitch.Concerned humanists may have hoped that when a group of Jewish Israelis confessed to kidnapping and killing Muhammad Abu...
    peza peza 46-50, M 4 Responses 2 days ago

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    When I watched the movie "West Side Story{ I feel for the young woman trying so hard to impress the gang. She wanted to fit in, and to be very important in the eyes of her peers...
    Alicehath Alicehath 56-60, F Jun 26

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    I got married last year in a simple civil ceremony. That was fine, but pretty much everything went wrong. Stained dresses (mine), missing transport, wrong music, late groomsmen...
    CorruptedAngel CorruptedAngel 22-25, F 3 Responses Jul 15

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    I'm extremely angry at the moment. I wish for normalcy. I wish to have some support and someone I can talk to. My relationship with my parents is atrocious. I don't see how they're...
    fairytalesandspiderwebs fairytalesandspiderwebs 18-21, F Jul 9

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    I was raised in a very religious household and although my parents never directly mentioned it we were brought up, mainly through church believing homosexuality to be a sin. That...
    spankedmatilda spankedmatilda 18-21, F 4 Responses Jul 9

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    and i shall continue to support them. Everything palestine is enduring is something i wouldn't wish upon anybody. Without going into too more detail i wanted to share reality...
    sidraa sidraa 16-17, F Jul 11

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    There too many judgmental people out there. Yes I'm into allot of mature groups and yes I like to have fun. But there is allot more to me than this. People assume if a person is...
    deleted deleted 26-30 3 Responses Jun 25

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    ~trailing my finger whilst biting my lip as i go,so many wondrous experiences i see bellowMy eyes light up as my creative juice begins to flowi delve in deeper taking my time to...
    lilreddress lilreddress 36-40, F 1 Response Jun 28

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    I'm currently 23, and over my lifetime have had many many MANY different friends, from junior school to high school to college. I've been in many groups and slowly faded away from...
    slipdasystem slipdasystem 18-21, M Jun 29

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    I'm new to all of this, but am so glad I finally found a group that can relate with my struggle. I'm currently married to an addict. My husband and I got married 9 months ago and...
    WP928 WP928 22-25, F 1 Response Jul 8

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    I am in my early 40s and my sister is in her 50s. My sister and I had always been close, even though were do not have the same mother. I was raised in a home that "step" or "half...
    sunshinesammie sunshinesammie 41-45 1 Response Jul 9

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    Sorry if this is a little long but please hang on. I just turned 16 recently, she turned 15 not to long ago. We met 2.5 years ago and used to talk to eachother daily through emails...
    albert93 albert93 16-17, M 3 Responses Jul 9

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    I LOVE POPPING CHERRIES Personal Stories, Advice, and Support 69 PEOPLE 69 PEOPLE? love popping cherries? My dirty mind doesn't understand the way that works. LOL.
    DarkwingGoslyn DarkwingGoslyn 31-35 Jul 10

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    I have twin girls born in 1988. My marriage was highly abusive and after 7 years I had to get out. I had custody until they were 13 then because of a comment that was disrespectful...
    trish03 trish03 51-55, F 1 Response Jul 11

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