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I Need to Know More About Chiaris Malformation

Support, chat, personal stories and community for Arnold Chiari Malformations Type I and II 38 People

    Why Didn't My Surgery Work?

    I've been suffering with Chiari for the past 4-6 years. It took me years to be accurately diagnosed.  I don't have time now to tell my story, but I have a question for anybody reading this.  I had decompression surgery October 2006 and my headaches aren't better. ...
    allison69 allison69 31-35, F Oct 27, 2007

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    Getting Ready For Surgery

    My fiance was diagnosed with Chiari about 6 months ago. After several weeks of pain she finally went to her doctor and they told her what she had. Luckily we live in western Pennsylvania and there is an excellent neurosurgeon in Pittsburgh. We went to the doctor at the Hillman...
    burghman burghman 18-21 Jan 18, 2008

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    More Information For You

    My wife had the surgery last year, April 3rd to be exact. For more information please feel free to check out her website at www.devinsdiary.com or my myspace account at www.myspace.com/chris_kalisz I am certain that she would love to talk with you about this and try to put you at...
    tattss1 tattss1 26-30, M Apr 2, 2007

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    Just Sharing

    Hi I  am 37 years old and just found out I have Chiari Malformation . I'm not sure what one yet . But I can not believe all these things that I been feeling , are all to do with this . When I use to tell people all the things I would be feeling . They would just laugh and...
    Trinny Trinny 36-40, F Nov 6, 2007

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    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 18-21, M 1 Response Jun 18, 2007

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    One Long Year

    My name is Courtney Freeman, I am 29 years old and have been married for 8 years and have two beautiful daughters who are ages 3 and 8. About one year ago, I woke up with the worst headache I have ever had. By mid afternoon, the pain was intolerable so my husband took...
    Hrting Hrting 26-30, F Oct 26, 2007

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    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

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    Uninsurable?

    I happened to see an advanced copy of Sicko, Micheal Moore's new documentary, and caught a glimpse at a list that said those with Chiari Malformation might be considered uninsurable.  Since I was diagnosed this last year, but am asymptomatic and don't need surgery, I wasn't...
    kaida kaida 18-21, F 1 Response Jun 21, 2007

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    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

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    My Son.

    In March of 2006 My 6 year old son fell at school and hit his head on the black top.  For days he wouldn't quit vomiting, numerous trips to the Doctor & E.R.  they finally found out he had a chiari malformation and the trauma from the fall he was smashing his brain...
    cabayaudi cabayaudi 31-35, F Oct 12, 2007

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    My Path

         In 1997, at the age of 40, I began my struggle.  I was in a very bad head on car wreck.  The next day my head, my neck, left arm and shoulder were very sore.  I had a seat belt on and an air bag.  I initially thought I was okay...
    bog57 bog57 51-55 1 Response Aug 27, 2008

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    Under the Knife In May 07

    I have had the symptoms of ACM for the past 7 years.  Many doctors just thought I had sinus problems or just plain old headaches.  With treatment for those not working, I got another opinion from a 4th doctor (Dr. Knox in Lexington, KY).  Another MRI was done and a...
    KevinScott KevinScott 31-35, M 1 Response Jun 18, 2007

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    Chiari Type 1

    I have been a migraine suffer since 2000, and have taken several medications to reduce the frequency. (All have been unsuccessful) I have went to a Neurologist, and was told all was well. I began receiving abortive medications, since the migraines were so severe. In December...
    Robertsgirl Robertsgirl 36-40, F Jul 17, 2007

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    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 18-21, M Jun 18, 2007

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    My 16-year-old Daughter Was Diagnosed With Type I Chiari's Malformation....

    ....just last week.  she's been suffering from migraines (bunches of dif. kinds) for most of her life, ever since she was little.  migraines run in our family. i've had terrible ones for years.  about a month ago, she started having them WAY too frequently...
    MysticWriter MysticWriter 36-40, F 10 Responses Mar 17, 2007

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    Symptoms

    he had severe migranes, and had to stop training with everyone else. he would have graduated last week. but he is in a special place for it now.
    airforce1 airforce1 16-17, F Oct 18, 2007

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    My Name Is Shorty I Have Chiari1

    i was diagnosed in 2006 with chiari type 1. i have alot of symptoms from it. i take diamox to relieve the csf. fluid build up.
    shotry shotry 31-35 May 21, 2008

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    Also looking for information from those

    who have it, because personal experience is best for getting all of the true facts.
    littlegrayfeather littlegrayfeather 36-40, F 1 Response Jan 8

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    IT Is Ok

    In March of 2006, i had the surgery for Chiari 1. I was very scared when i found out that i had this problem going on, all i could think of was this is my brain, my spinal cord and if they messed up it would mess me up for the rest of my life. I lived with migraines for 5yrs and...
    1moretime 1moretime 18-21, F 2 Responses Apr 1, 2007

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    On My Way to Surgery

    Hi! My name is Missy,I was diagnosed with Chiari1Malformation last summer. I started out becoming dizzy,followed by passing out,having severe head and neck pain,confusion(unable to concentrate),fatigue,and having a hard time sleeping. I was sent to a neurologist who told me all...
    aggravatted aggravatted 36-40 1 Response Nov 15, 2008

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    My Brother

    my brother john is in the airforce. he was just diagnosed with this a couple weeks ago. have any advice for him? should he get the surgery?
    airforce1 airforce1 16-17, F 2 Responses Oct 18, 2007

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    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 18-21, M Jun 18, 2007

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    It Is All In Gods Hands

    Sept 30th 2006, a day that changed our famliy. It was Homecoming for our PARA Football leauge. The boys just had their pictures taken and the game was starting. At 6:50 pm a player went down in fumble recovery. It got quiet, we all were looking for our child, I kept thinking...
    KristinSue KristinSue 36-40 Oct 1, 2008

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    Confused

    Hello , my wife was just diagnosed with this problem, i'm confused because her doctor says that it won't need surgery however sending her to a neurosurgen but everything that I have read leads to surgery, my question is, how is the prognosis? is there any dangers into the surgery...
    shawnbecky2 shawnbecky2 31-35, M Jun 2, 2007

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    Related Experiences

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    Ok ok a little more babes, I am an open book, but maybe you have not yet opened the cover. So here is your first peek into me. People with the worst singing voices always bring...
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    I start roller derby practice for beginners this week!! I am so excited. I know this will be so much fun and also challenging. Anyone have any tips for me? :)
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    So this is my first outbreak of genital HSV-1. The bumps are on my labia and rub together whenever I walk. Is there any cream or something I can put on them to make it hurt less?
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    Do you know what your body and its needs? Many people are not properly educated about a proper diet and vitamin supplements. Your body needs many minerals and nutrients everyday...
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    The Os are coming up in a year and I don't know what to do. Seniors keep scaring us that it we don't study well now, we are doomed the next year. After I come back home from school...
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    The most used sentence is that we fear the unknown.. that which is different. But I did not worry about burning my hands on kitchen stuff, befor I actually burned them.. for...
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    I always feel like I am never good enough... though people give me compliments about my studies... I just don't feel like I really am smart enough... I always feel like I am...
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    My dogs have not judged me for being broke they loved me through the good and the bad that's why I care about my dogs, and I don't care about people in general.My dogs give me...
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    Yes cause if I get bad grades my parents get super disappointed in me and I have like a phobia of disappointing people and that makes me sad anyway
    IrwinsScars IrwinsScars 16-17, F 2 Responses Apr 13

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    There is not a day that goes by where I am not stressed, haha
    blueworldsapart blueworldsapart 16-17, F 1 Response Apr 13

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    any gainers online that want to chat? any age, any gender, hit me up :)
    nighthawk56 nighthawk56 16-17, M 1 Response a week ago

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    So is this website basically for people that have had lots of experience with like sex? or what the hell is this app even for?
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    I'd rather have something to remember about you- even if I tend to be forgetful. If we talk more, and get to know more about each other, it's more memorable than just asking me...
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