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I Need to Know More About Chiaris Malformation

Support, chat, personal stories and community for Arnold Chiari Malformations Type I and II 38 People

    Also looking for information from those

    who have it, because personal experience is best for getting all of the true facts.
    littlegrayfeather littlegrayfeather 36-40, F 1 Response Jan 8

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    One Long Year

    My name is Courtney Freeman, I am 29 years old and have been married for 8 years and have two beautiful daughters who are ages 3 and 8. About one year ago, I woke up with the worst headache I have ever had. By mid afternoon, the pain was intolerable so my husband took...
    Hrting Hrting 26-30, F Oct 26, 2007

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    Getting Ready For Surgery

    My fiance was diagnosed with Chiari about 6 months ago. After several weeks of pain she finally went to her doctor and they told her what she had. Luckily we live in western Pennsylvania and there is an excellent neurosurgeon in Pittsburgh. We went to the doctor at the Hillman...
    burghman burghman 18-21 Jan 18, 2008

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    IT Is Ok

    In March of 2006, i had the surgery for Chiari 1. I was very scared when i found out that i had this problem going on, all i could think of was this is my brain, my spinal cord and if they messed up it would mess me up for the rest of my life. I lived with migraines for 5yrs and...
    1moretime 1moretime 18-21, F 2 Responses Apr 1, 2007

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    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 18-21, M Jun 18, 2007

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    It Is All In Gods Hands

    Sept 30th 2006, a day that changed our famliy. It was Homecoming for our PARA Football leauge. The boys just had their pictures taken and the game was starting. At 6:50 pm a player went down in fumble recovery. It got quiet, we all were looking for our child, I kept thinking...
    KristinSue KristinSue 36-40 Oct 1, 2008

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    My Brother

    my brother john is in the airforce. he was just diagnosed with this a couple weeks ago. have any advice for him? should he get the surgery?
    airforce1 airforce1 16-17, F 2 Responses Oct 18, 2007

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    My Name Is Shorty I Have Chiari1

    i was diagnosed in 2006 with chiari type 1. i have alot of symptoms from it. i take diamox to relieve the csf. fluid build up.
    shotry shotry 31-35 May 21, 2008

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    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

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    My Son.

    In March of 2006 My 6 year old son fell at school and hit his head on the black top.  For days he wouldn't quit vomiting, numerous trips to the Doctor & E.R.  they finally found out he had a chiari malformation and the trauma from the fall he was smashing his brain...
    cabayaudi cabayaudi 31-35, F Oct 12, 2007

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    Symptoms

    he had severe migranes, and had to stop training with everyone else. he would have graduated last week. but he is in a special place for it now.
    airforce1 airforce1 16-17, F Oct 18, 2007

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    Under the Knife In May 07

    I have had the symptoms of ACM for the past 7 years.  Many doctors just thought I had sinus problems or just plain old headaches.  With treatment for those not working, I got another opinion from a 4th doctor (Dr. Knox in Lexington, KY).  Another MRI was done and a...
    KevinScott KevinScott 31-35, M 1 Response Jun 18, 2007

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    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 18-21, M 1 Response Jun 18, 2007

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    Chiari Type 1

    I have been a migraine suffer since 2000, and have taken several medications to reduce the frequency. (All have been unsuccessful) I have went to a Neurologist, and was told all was well. I began receiving abortive medications, since the migraines were so severe. In December...
    Robertsgirl Robertsgirl 36-40, F Jul 17, 2007

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    My Path

         In 1997, at the age of 40, I began my struggle.  I was in a very bad head on car wreck.  The next day my head, my neck, left arm and shoulder were very sore.  I had a seat belt on and an air bag.  I initially thought I was okay...
    bog57 bog57 51-55 1 Response Aug 27, 2008

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    More Information For You

    My wife had the surgery last year, April 3rd to be exact. For more information please feel free to check out her website at www.devinsdiary.com or my myspace account at www.myspace.com/chris_kalisz I am certain that she would love to talk with you about this and try to put you at...
    tattss1 tattss1 26-30, M Apr 2, 2007

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    Confused

    Hello , my wife was just diagnosed with this problem, i'm confused because her doctor says that it won't need surgery however sending her to a neurosurgen but everything that I have read leads to surgery, my question is, how is the prognosis? is there any dangers into the surgery...
    shawnbecky2 shawnbecky2 31-35, M Jun 2, 2007

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    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 18-21, M Jun 18, 2007

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    Why Didn't My Surgery Work?

    I've been suffering with Chiari for the past 4-6 years. It took me years to be accurately diagnosed.  I don't have time now to tell my story, but I have a question for anybody reading this.  I had decompression surgery October 2006 and my headaches aren't better. ...
    allison69 allison69 31-35, F Oct 27, 2007

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    Just Sharing

    Hi I  am 37 years old and just found out I have Chiari Malformation . I'm not sure what one yet . But I can not believe all these things that I been feeling , are all to do with this . When I use to tell people all the things I would be feeling . They would just laugh and...
    Trinny Trinny 36-40, F Nov 6, 2007

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    On My Way to Surgery

    Hi! My name is Missy,I was diagnosed with Chiari1Malformation last summer. I started out becoming dizzy,followed by passing out,having severe head and neck pain,confusion(unable to concentrate),fatigue,and having a hard time sleeping. I was sent to a neurologist who told me all...
    aggravatted aggravatted 36-40 1 Response Nov 15, 2008

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    My 16-year-old Daughter Was Diagnosed With Type I Chiari's Malformation....

    ....just last week.  she's been suffering from migraines (bunches of dif. kinds) for most of her life, ever since she was little.  migraines run in our family. i've had terrible ones for years.  about a month ago, she started having them WAY too frequently...
    MysticWriter MysticWriter 36-40, F 9 Responses Mar 17, 2007

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    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

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    Uninsurable?

    I happened to see an advanced copy of Sicko, Micheal Moore's new documentary, and caught a glimpse at a list that said those with Chiari Malformation might be considered uninsurable.  Since I was diagnosed this last year, but am asymptomatic and don't need surgery, I wasn't...
    kaida kaida 18-21, F 1 Response Jun 21, 2007

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    Related Experiences

    So here I am, trying to pen down my thoughts so as to let go of something that has been holding me down for months now. So here it goes: I belong to a south indian family. And we...
    mogan24 mogan24 22-25, F 1 Response 2 hrs ago

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    Basically, my friends and I divulged our darkest secrets. I'm not upset because they told anybody mine or something, but out of us four, I am the only one who ended up feeling like...
    YuriXWolfram86 YuriXWolfram86 18-21, F 10 hrs ago

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    I promise that one day I'll be around I'll keep you safe I'll keep you sound Right now it's pretty crazy And I don't know how to stop or slow it down Hey I know there are some...
    Johnviolinist823 Johnviolinist823 22-25, M 4 days ago

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    Been dating my bf for 1.5-2 yrs and been having this nagging feeling for a little while that it's not fulfilling my needs. I care about my bf dearly, i love him, but he's not very...
    willgethru willgethru 26-30, F 5 days ago

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    I went to a biker festival called mountain fest about hour away. I decided to camp their for the 4 day event. While I was camping their on Friday ran into a nice couple and their...
    johnjoe4824 johnjoe4824 31-35, M 1 Response 5 days ago

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    I have seen the experiences that other have put up on here. I don't have it, but I would like to learn more about it. I have tried doing some research already on my own, and it has...
    Eikenmaster Eikenmaster 22-25, M 5 days ago

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    FULL MOUTH RECONSTRUCTION IN 5 DAYS With help of painless single sitting root canals (M2 technology - germany) ; digital xrays; cad cam computerised crowns (lava- usa); and...
    rohanvirani rohanvirani 31-35, M 6 days ago

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    Tonight I went for the third time to a Zen monastery that's up in the northern part of my state. I've been meditating for about eight months now and I find it's been making a small...
    DeGustibus DeGustibus 26-30, M 6 days ago

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    - Choosing the right boat There’s around five hundred from which to choose, which include regular Turkish gulets to catamarans and Motor yachts.Yacht charter operators in...
    Andrew0369nbp8 Andrew0369nbp8 31-35, M 1 Response a week ago

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    Useful Arts And Crafts Information You Need To Know About Have you considered arts and crafts or known an artist and wondered what they were up to? This is the right place, then...
    cocesar66 cocesar66 51-55, M Jul 27

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    Hi I would like to vent a bit.I was going to put I have husband who thinks he knows everything.But also my in laws think they know everything too.It bothers me a lot.Here is...
    Fruitypunch15 Fruitypunch15 31-35 Jul 27

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    My fascination with pantyhose.....the sight, the touch, I often wear them myself........
    UP4anythingNOW UP4anythingNOW 51-55, M Jul 26

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    It'd likewise be wise for you really to certainly understand, before committing yourself, what your online host fees hourly for other complex services as well as crisis program...
    giantquack1097 giantquack1097 26-30, T 1 Response Jul 25

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    I've just recently found out about them, and I was wondering if there was anyone else out there who was curious about therians. I'd definitely like to talk to one and ask a few...
    AdamantSilence AdamantSilence 18-21 Jul 25

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    Hi guys my names Lowri.. I'd like to introduce myself to you all.. I work for a company called body by vi.. I don't know if anyone heard of it but it is an American company all...
    LJay1985 LJay1985 26-30, F Jul 25

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    Hi guys my names Lowri.. I'd like to introduce myself to you all.. I work for a company called body by vi.. I don't know if anyone heard of it but it is an American company all...
    LJay1985 LJay1985 26-30, F Jul 25

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    Hi guys my names Lowri.. I'd like to introduce myself to you all.. I work for a company called body by vi.. I don't know if anyone heard of it but it is an American company all...
    LJay1985 LJay1985 26-30, F Jul 25

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    I guess we have a lot of people running for president in 2016 and to be honest most of them are people I've never even heard of. I have heard of Hillary Clinton, Jeb Bush, and...
    katiemitchell katiemitchell 13-15, F Jul 24

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    "Reap" I read a story about the land of Judea being cursed for their sins becoming barren, unfruitful, sowing good seeds growing unattended with repentance and good works attended...
    sister11 sister11 36-40, F Jul 24

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    Why is getting over somebody always so difficult, I mean they can destroy you, rip you too shreds but you will still chase them untill your emotionally beaten black and blue. Love...
    amberblueford15 amberblueford15 13-15, F Jul 24

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