Post

I Need to Know More About Chiaris Malformation

Support, chat, personal stories and community for Arnold Chiari Malformations Type I and II 36 People

    Just Sharing

    Hi I  am 37 years old and just found out I have Chiari Malformation . I'm not sure what one yet . But I can not believe all these things that I been feeling , are all to do with this . When I use to tell people all the things I would be feeling . They would just laugh and...
    Trinny Trinny 36-40, F Nov 6, 2007

    Your Response

    Cancel

    IT Is Ok

    In March of 2006, i had the surgery for Chiari 1. I was very scared when i found out that i had this problem going on, all i could think of was this is my brain, my spinal cord and if they messed up it would mess me up for the rest of my life. I lived with migraines for 5yrs and...
    1moretime 1moretime 21-25, F 2 Responses Apr 1, 2007

    Your Response

    Cancel

    One Long Year

    My name is Courtney Freeman, I am 29 years old and have been married for 8 years and have two beautiful daughters who are ages 3 and 8. About one year ago, I woke up with the worst headache I have ever had. By mid afternoon, the pain was intolerable so my husband took...
    Hrting Hrting 26-30, F Oct 26, 2007

    Your Response

    Cancel

    My 16-year-old Daughter Was Diagnosed With Type I Chiari's Malformation....

    ....just last week.  she's been suffering from migraines (bunches of dif. kinds) for most of her life, ever since she was little.  migraines run in our family. i've had terrible ones for years.  about a month ago, she started having them WAY too frequently...
    MysticWriter MysticWriter 36-40, F 10 Responses Mar 17, 2007

    Your Response

    Cancel

    Uninsurable?

    I happened to see an advanced copy of Sicko, Micheal Moore's new documentary, and caught a glimpse at a list that said those with Chiari Malformation might be considered uninsurable.  Since I was diagnosed this last year, but am asymptomatic and don't need surgery, I wasn't...
    kaida kaida 21-25, F 1 Response Jun 21, 2007

    Your Response

    Cancel

    Under the Knife In May 07

    I have had the symptoms of ACM for the past 7 years.  Many doctors just thought I had sinus problems or just plain old headaches.  With treatment for those not working, I got another opinion from a 4th doctor (Dr. Knox in Lexington, KY).  Another MRI was done and a...
    KevinScott KevinScott 31-35, M 1 Response Jun 18, 2007

    Your Response

    Cancel

    My Name Is Shorty I Have Chiari1

    i was diagnosed in 2006 with chiari type 1. i have alot of symptoms from it. i take diamox to relieve the csf. fluid build up.
    shotry shotry 31-35 May 21, 2008

    Your Response

    Cancel

    Why Didn't My Surgery Work?

    I've been suffering with Chiari for the past 4-6 years. It took me years to be accurately diagnosed.  I don't have time now to tell my story, but I have a question for anybody reading this.  I had decompression surgery October 2006 and my headaches aren't better. ...
    allison69 allison69 31-35, F Oct 27, 2007

    Your Response

    Cancel

    Getting Ready For Surgery

    My fiance was diagnosed with Chiari about 6 months ago. After several weeks of pain she finally went to her doctor and they told her what she had. Luckily we live in western Pennsylvania and there is an excellent neurosurgeon in Pittsburgh. We went to the doctor at the Hillman...
    burghman burghman 21-25 Jan 18, 2008

    Your Response

    Cancel

    My Son.

    In March of 2006 My 6 year old son fell at school and hit his head on the black top.  For days he wouldn't quit vomiting, numerous trips to the Doctor & E.R.  they finally found out he had a chiari malformation and the trauma from the fall he was smashing his brain...
    cabayaudi cabayaudi 31-35, F Oct 12, 2007

    Your Response

    Cancel

    Symptoms

    he had severe migranes, and had to stop training with everyone else. he would have graduated last week. but he is in a special place for it now.
    airforce1 airforce1 16-18, F Oct 18, 2007

    Your Response

    Cancel

    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

    Your Response

    Cancel

    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 19-21, M Jun 18, 2007

    Your Response

    Cancel

    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 19-21, M 1 Response Jun 18, 2007

    Your Response

    Cancel

    Confused

    Hello , my wife was just diagnosed with this problem, i'm confused because her doctor says that it won't need surgery however sending her to a neurosurgen but everything that I have read leads to surgery, my question is, how is the prognosis? is there any dangers into the surgery...
    shawnbecky2 shawnbecky2 31-35, M Jun 2, 2007

    Your Response

    Cancel

    My Brother

    my brother john is in the airforce. he was just diagnosed with this a couple weeks ago. have any advice for him? should he get the surgery?
    airforce1 airforce1 16-18, F 2 Responses Oct 18, 2007

    Your Response

    Cancel

    It Is All In Gods Hands

    Sept 30th 2006, a day that changed our famliy. It was Homecoming for our PARA Football leauge. The boys just had their pictures taken and the game was starting. At 6:50 pm a player went down in fumble recovery. It got quiet, we all were looking for our child, I kept thinking...
    KristinSue KristinSue 36-40 Oct 1, 2008

    Your Response

    Cancel

    More Information For You

    My wife had the surgery last year, April 3rd to be exact. For more information please feel free to check out her website at www.devinsdiary.com or my myspace account at www.myspace.com/chris_kalisz I am certain that she would love to talk with you about this and try to put you at...
    tattss1 tattss1 26-30, M Apr 2, 2007

    Your Response

    Cancel

    Chiari Type 1

    I have been a migraine suffer since 2000, and have taken several medications to reduce the frequency. (All have been unsuccessful) I have went to a Neurologist, and was told all was well. I began receiving abortive medications, since the migraines were so severe. In December...
    Robertsgirl Robertsgirl 36-40, F Jul 17, 2007

    Your Response

    Cancel

    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 19-21, M Jun 18, 2007

    Your Response

    Cancel

    On My Way to Surgery

    Hi! My name is Missy,I was diagnosed with Chiari1Malformation last summer. I started out becoming dizzy,followed by passing out,having severe head and neck pain,confusion(unable to concentrate),fatigue,and having a hard time sleeping. I was sent to a neurologist who told me all...
    aggravatted aggravatted 36-40 1 Response Nov 15, 2008

    Your Response

    Cancel

    My Path

         In 1997, at the age of 40, I began my struggle.  I was in a very bad head on car wreck.  The next day my head, my neck, left arm and shoulder were very sore.  I had a seat belt on and an air bag.  I initially thought I was okay...
    bog57 bog57 51-55 1 Response Aug 27, 2008

    Your Response

    Cancel

    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

    Your Response

    Cancel

    Related Experiences

    Hi, I'm Namara, a wolf. I do believe in vampires and would like to know more about them. If any REAL vampires would like to give me some information, please message me. I would...
    EchoOfNamara EchoOfNamara 13-15, F Jul 16

    Your Response

    Cancel
    <<>> Find out more at: www.facebook.com/FavorUponYou Today we have this effort from About.com (http://islam.about.com/od/commonmisconceptions/tp/myths.htm) to resolve the...
    FavorUponYou FavorUponYou 22-25, M Jun 30

    Your Response

    Cancel
    ***Post of the Day*** Find out more at: www.facebook.com/FavorUponYouWONDERS OF GOD’S CREATION: THE EARTH’S GRAVITATIONAL FORCE“Did we not make the earth a...
    FavorUponYou FavorUponYou 22-25, M Jul 8

    Your Response

    Cancel
    I could tell about all the characters from all the Final Fantasy games for example (minus Final Fantasy XI and XIV) for example.
    psycopower90 psycopower90 22-25, M Jul 19

    Your Response

    Cancel
    pkay I am researching what people look for when losing weight my boss is starting a weight loss retreat program please give me some feedback what do you turn too to lose weight...
    wieghtlosssavior wieghtlosssavior 22-25 4 days ago

    Your Response

    Cancel
    Im tired of some adults thinking they know everything or more then teens and kids just because their older. Yeah some kids/teens aren't as mature and wise as some but age is just a...
    XFallingAngelX XFallingAngelX 16-17, F 7 Responses Jul 1

    Your Response

    Cancel
    Love Old Cars and Trucks I Dont Know Much About Them Though
    michigan11 michigan11 22-25, M 3 days ago

    Your Response

    Cancel
    I happened to find an interesting article on the benefits of drinking coffee. However, please note that coffee is not good for everyone, and it can be harmful in excessive...
    Buckley4U Buckley4U 36-40, F 2 Responses 1 day ago

    Your Response

    Cancel
    Was browsing books at local Bookstore, saw guy taking newest Sapkowski's Witcher book, commented "It's average...". We talked awhile about Witcher, Metro 2023/2034 some cold war...
    karasugi karasugi 18-21 15 hrs ago

    Your Response

    Cancel
    I have Asperger's Syndrome, High-functioning Autism, My senses are too acute, and my social skills aren't up to par with my age group. My pain is both physical and emotional. I'm...
    Fatemaster Fatemaster 31-35, M 2 Responses Jul 2

    Your Response

    Cancel
    I am an old lady.plz don't take offense, I'm proud of my age,don't act it,but sometimes feel it. I have a menagerie of animals,6 dogs, 3 cats, 27 chickens, 2 pot bellied pigs...
    50freenflirty 50freenflirty 26-30, F Jul 12

    Your Response

    Cancel
    Is coffee your daily grind?
    jml2000 jml2000 56-60, M 2 Responses Jun 29

    Your Response

    Cancel
    I spilled coffee all over my Macbook....... Now it won't go to sleep.
    jml2000 jml2000 56-60, M 3 Responses Jul 1

    Your Response

    Cancel
    The kettle at work has broken! What on Earth am I going to do now?!!! Today is going to be a bad day. Grrrrr.
    ConcreteSleeper ConcreteSleeper 31-35, M 2 Responses 2 days ago

    Your Response

    Cancel
    Lmfao my mom asked me if i knew what **** was the other day
    Angelique16 Angelique16 16-17, F Jun 28

    Your Response

    Cancel
    It's very true ,like just on Ep alone I see this wonderful advice from teenagers helping others out with there problems and solving them ,and then just underneath there's a comment...
    Life8227 Life8227 16-17, F 2 Responses Jul 7

    Your Response

    Cancel
    they say that pain is just weakness leaving the body.
    mierdamundo mierdamundo 31-35 2 Responses Jul 2

    Your Response

    Cancel
    I found out today, his 4 day fling 2 years ago was actually a year long ordeal. I got cursed bc of her, hit, held at gunpoint bc I wouldn't let him leave in my car, abandoned...
    50freenflirty 50freenflirty 26-30, F Jul 8

    Your Response

    Cancel
    I've had a few slaves up until now, but none have met my standards. I like to take control of my slave, give her daily tasks to complete, tell her what to do, punish her when she...
    ancient1978 ancient1978 31-35, M Jul 18

    Your Response

    Cancel
    We were told today... I guess it was yesterday now, that my dad has cancer. They found tumors on his lungs and aren't sure where its originating from. Tomorrow, or today...
    NotBadForAYankeeGirl NotBadForAYankeeGirl 36-40, F 4 Responses Jul 11

    Your Response

    Cancel
    I have read the books from Crowley. His "Ars Goetia" (which is originally not from him but I come to it later), "Liber al vel legis", "magick" and a few grimoires written in latin...
    OnlyDeadHumansAreGoodHumans OnlyDeadHumansAreGoodHumans 18-21, M 1 Response Jul 12

    Your Response

    Cancel
    I feel kinda odd about myself, kinda like I lost a part of me that I miss. I feel like I was in a depression that I'm just starting to get out of. I was picked on and attacked in...
    Vampireloveless Vampireloveless 18-21, F 1 Response 3 hrs ago

    Your Response

    Cancel
    I just need one true friend ... a real life friend .. i don't want ep friend to chat, I want ep to be just medium I one someone who knows everything about me and about whom I know...
    vishar vishar 18-21, M 2 hrs ago

    Your Response

    Cancel
    i'm writing this story for people to read and learn about something that so many ask about and rather then repeatedly writing about the same thing I'm going to put it all here I'm...
    tom67890 tom67890 46-50, M 2 Responses Jul 12

    Your Response

    Cancel
    1) I’m Lumierre. 2) I hate it when humans are described as biological machines. 3) I can’t say I have a specific hobby , I am interested in human behavior if that counts...
    ReversedLumiere ReversedLumiere 18-21, F 2 Responses Jul 6

    Your Response

    Cancel
    I met a guy through a legit dating service and we hit it off really well. I didn't think anything of it. Then we started emailing and that turned into phone calls and texting, on a...
    notworthtime notworthtime 22-25, F 11 Responses 20 hrs ago

    Your Response

    Cancel
    Preferably from someone with medical knowledge. Please, I'm a little scared. So I don't really have a history of bad digestive problems, but tonight I don't feel right at all...