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I Need to Know More About Chiaris Malformation

Support, chat, personal stories and community for Arnold Chiari Malformations Type I and II 39 People

    Getting Ready For Surgery

    My fiance was diagnosed with Chiari about 6 months ago. After several weeks of pain she finally went to her doctor and they told her what she had. Luckily we live in western Pennsylvania and there is an excellent neurosurgeon in Pittsburgh. We went to the doctor at the Hillman...
    burghman burghman 18-21 Jan 18, 2008

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    My Son.

    In March of 2006 My 6 year old son fell at school and hit his head on the black top.  For days he wouldn't quit vomiting, numerous trips to the Doctor & E.R.  they finally found out he had a chiari malformation and the trauma from the fall he was smashing his brain...
    cabayaudi cabayaudi 31-35, F Oct 12, 2007

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    Confused

    Hello , my wife was just diagnosed with this problem, i'm confused because her doctor says that it won't need surgery however sending her to a neurosurgen but everything that I have read leads to surgery, my question is, how is the prognosis? is there any dangers into the surgery...
    shawnbecky2 shawnbecky2 31-35, M Jun 2, 2007

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    One Long Year

    My name is Courtney Freeman, I am 29 years old and have been married for 8 years and have two beautiful daughters who are ages 3 and 8. About one year ago, I woke up with the worst headache I have ever had. By mid afternoon, the pain was intolerable so my husband took...
    Hrting Hrting 26-30, F Oct 26, 2007

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    Under the Knife In May 07

    I have had the symptoms of ACM for the past 7 years.  Many doctors just thought I had sinus problems or just plain old headaches.  With treatment for those not working, I got another opinion from a 4th doctor (Dr. Knox in Lexington, KY).  Another MRI was done and a...
    KevinScott KevinScott 31-35, M 1 Response Jun 18, 2007

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    It Is All In Gods Hands

    Sept 30th 2006, a day that changed our famliy. It was Homecoming for our PARA Football leauge. The boys just had their pictures taken and the game was starting. At 6:50 pm a player went down in fumble recovery. It got quiet, we all were looking for our child, I kept thinking...
    KristinSue KristinSue 36-40 Oct 1, 2008

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    My Brother

    my brother john is in the airforce. he was just diagnosed with this a couple weeks ago. have any advice for him? should he get the surgery?
    airforce1 airforce1 16-17, F 2 Responses Oct 18, 2007

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    More Information For You

    My wife had the surgery last year, April 3rd to be exact. For more information please feel free to check out her website at www.devinsdiary.com or my myspace account at www.myspace.com/chris_kalisz I am certain that she would love to talk with you about this and try to put you at...
    tattss1 tattss1 26-30, M Apr 2, 2007

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    Symptoms

    he had severe migranes, and had to stop training with everyone else. he would have graduated last week. but he is in a special place for it now.
    airforce1 airforce1 16-17, F Oct 18, 2007

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    Just Sharing

    Hi I  am 37 years old and just found out I have Chiari Malformation . I'm not sure what one yet . But I can not believe all these things that I been feeling , are all to do with this . When I use to tell people all the things I would be feeling . They would just laugh and...
    Trinny Trinny 36-40, F Nov 6, 2007

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    Why Didn't My Surgery Work?

    I've been suffering with Chiari for the past 4-6 years. It took me years to be accurately diagnosed.  I don't have time now to tell my story, but I have a question for anybody reading this.  I had decompression surgery October 2006 and my headaches aren't better. ...
    allison69 allison69 31-35, F Oct 27, 2007

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    On My Way to Surgery

    Hi! My name is Missy,I was diagnosed with Chiari1Malformation last summer. I started out becoming dizzy,followed by passing out,having severe head and neck pain,confusion(unable to concentrate),fatigue,and having a hard time sleeping. I was sent to a neurologist who told me all...
    aggravatted aggravatted 36-40 1 Response Nov 15, 2008

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    My 16-year-old Daughter Was Diagnosed With Type I Chiari's Malformation....

    ....just last week.  she's been suffering from migraines (bunches of dif. kinds) for most of her life, ever since she was little.  migraines run in our family. i've had terrible ones for years.  about a month ago, she started having them WAY too frequently...
    MysticWriter MysticWriter 36-40, F 9 Responses Mar 17, 2007

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    IT Is Ok

    In March of 2006, i had the surgery for Chiari 1. I was very scared when i found out that i had this problem going on, all i could think of was this is my brain, my spinal cord and if they messed up it would mess me up for the rest of my life. I lived with migraines for 5yrs and...
    1moretime 1moretime 18-21, F 2 Responses Apr 1, 2007

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    My Name Is Shorty I Have Chiari1

    i was diagnosed in 2006 with chiari type 1. i have alot of symptoms from it. i take diamox to relieve the csf. fluid build up.
    shotry shotry 31-35 May 21, 2008

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    Uninsurable?

    I happened to see an advanced copy of Sicko, Micheal Moore's new documentary, and caught a glimpse at a list that said those with Chiari Malformation might be considered uninsurable.  Since I was diagnosed this last year, but am asymptomatic and don't need surgery, I wasn't...
    kaida kaida 18-21, F 1 Response Jun 21, 2007

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    My Path

         In 1997, at the age of 40, I began my struggle.  I was in a very bad head on car wreck.  The next day my head, my neck, left arm and shoulder were very sore.  I had a seat belt on and an air bag.  I initially thought I was okay...
    bog57 bog57 51-55 1 Response Aug 27, 2008

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    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

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    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

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    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 18-21, M Jun 18, 2007

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    Also looking for information from those

    who have it, because personal experience is best for getting all of the true facts.
    littlegrayfeather littlegrayfeather 36-40, F 1 Response Jan 8, 2015

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    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 18-21, M Jun 18, 2007

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    Chiari Type 1

    I have been a migraine suffer since 2000, and have taken several medications to reduce the frequency. (All have been unsuccessful) I have went to a Neurologist, and was told all was well. I began receiving abortive medications, since the migraines were so severe. In December...
    Robertsgirl Robertsgirl 36-40, F Jul 17, 2007

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    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 18-21, M 1 Response Jun 18, 2007

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    Related Experiences

    The USA TV has a lot of Christian show and Christian book about marriage. I am agnostic. I am not trying to be anti-religion. I am thinker. I want explore ideas. I am an idea...
    kcthinker kcthinker 41-45, M 1 Response 5 hrs ago

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    I was born female but I feel like a male. I don't like being called "she" or with my female birth name. I don't like being considered as feminine. I don't like dress feminine. I...
    darklotus01 darklotus01 13-15, T 9 hrs ago

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    Yummy!! Tried the Carmel Machiatto at Dunkin and it's good!! I could drink it all day :)
    Libraladyseeking Libraladyseeking 36-40, F 12 hrs ago

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    usually I don't touch my phone if I am up all night but if I do it generally is to speak to my former Master..he lives on the other side of the world. (10 hours ahead) so if I am...
    moongoddess35 moongoddess35 31-35, F 1 Response 1 day ago

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    The strongest people are not those who show strength in front of us, but those who win battles we know nothing about
    aj32792 aj32792 22-25, M 1 day ago

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    I'm ready to be someone's priority.....i'm tired of just being a convenient distraction.😐
    BronzeJamesBond BronzeJamesBond 31-35 1 Response 1 day ago

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    Where are you my love? Don't you miss me? Don't your heart call for me? Why can't you come close to me don't you feel you are my dearest and i love you with every ounce of my...
    cynzia cynzia 51-55, F 1 day ago

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    I thought it might be a little narcissistic to do one of these but I love reading them so I figured, why not. Here goes. 1. My name is Spencer 2. I'm a senior in high school 3...
    JerseyBoy16 JerseyBoy16 16-17, M 2 days ago

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    There are so many things that I could change about my life but actually pointing out where the change needs to begin is beyond me. I think at times that I am only 23 and I don't...
    who317 who317 22-25, F 2 Responses 3 days ago

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    Its weird when listening to the song All I Want by Kodaline, never experiencing anything like it before in my life, yet feeling it. Its like i have a hole where something is...
    dathglas dathglas 13-15, M 4 days ago

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    ...simply stated. i find myself worrying so much about the smallest things. the bible says to do this and it's for our own good. i pray that Jesus will give me the strength and...
    cosmosdrift cosmosdrift 31-35, F 1 Response 4 days ago

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    My new husband was a single child and lived a sheltered life. We have only been married a few weeks now, and since he comes from a religious family, we lived strictly apart until...
    bakeddolores bakeddolores 18-21, F 19 Responses 4 days ago

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    When I was really young I thought that a car was just a place to sit as the world moved around, taking us where we needed to go. Ah, I miss not knowing **** about gasoline prices.
    BillytLovette BillytLovette 22-25, M 5 days ago

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    1. I love the Lord, my God 2. You probably don't care about this list, lol 3. I have low self esteem 4. I love Superheroes but Batman and Power Rangers are my favorites 5. I...
    DarkKnightRanger DarkKnightRanger 26-30, M 5 days ago

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    I thinks we all do but I'm clingy and need it more then my friends I think idk maybe I'm just a freak
    CallMePonyTail CallMePonyTail 13-15, F 4 Responses 5 days ago

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    Right now, I'm losing my mind because it's like if it's not one thing, it's another. Yesterday I had to hear my mom talk about sex and how I need to get back in school. Although I...
    ILoveBacon23 ILoveBacon23 18-21, F 2 Responses 6 days ago

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    Hey, I am looking for a person or group to travel the world with and be free from the disappointment around me. I not only know how to live, I know how to survive. Message me to...
    Unknown1047 Unknown1047 18-21, M 1 Response 6 days ago

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    I am in pain just stepped on an earring.
    blahblahblahxoxo blahblahblahxoxo 18-21, F 6 Responses 6 days ago

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    "...sad a lot." "Why do you think that is?" "I don't know..." "Well, why do you think...? "I... I... I guess.... well, I mean I just feel like... I don't know... this is hard...
    MarkPaul MarkPaul 26-30 6