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I Need to Know More About Chiaris Malformation

Support, chat, personal stories and community for Arnold Chiari Malformations Type I and II 34 People

    Up In the Air - hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her...
    parker parker 61-65, F May 25, 2007

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    Why Didn't My Surgery Work? - I've been suffering with Chiari for the past 4-6 years. It took me years to be accurately diagnosed.  I don't have time now to tell my story, but...
    allison69 allison69 31-35, F Oct 27, 2007

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    Getting Ready For Surgery - My fiance was diagnosed with Chiari about 6 months ago. After several weeks of pain she finally went to her doctor and they told her what she had...
    burghman burghman 21-25 Jan 18, 2008

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    Chiari For the Masses - I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches...
    Clovis Clovis 19-21, M Jun 18, 2007

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    Symptoms - he had severe migranes, and had to stop training with everyone else. he would have graduated last week. but he is in a special place for it now.
    airforce1 airforce1 16-18, F Oct 18, 2007

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    Under the Knife In May 07 - I have had the symptoms of ACM for the past 7 years.  Many doctors just thought I had sinus problems or just plain old headaches.  With...
    KevinScott KevinScott 31-35, M 1 Response Jun 18, 2007

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    My Name Is Shorty I Have Chiari1 - i was diagnosed in 2006 with chiari type 1. i have alot of symptoms from it. i take diamox to relieve the csf. fluid build up.
    shotry shotry 31-35 May 21, 2008

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    More Information For You - My wife had the surgery last year, April 3rd to be exact. For more information please feel free to check out her website at www.devinsdiary.com or my...
    tattss1 tattss1 26-30, M Apr 2, 2007

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    Up In the Air - hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her...
    parker parker 61-65, F May 25, 2007

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    My 16-year-old Daughter Was Diagnosed With Type I Chiari's Malformation.... - ....just last week.  she's been suffering from migraines (bunches of dif. kinds) for most of her...
    MysticWriter MysticWriter 36-40, F 10 Responses Mar 17, 2007

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    Just Sharing - Hi I  am 37 years old and just found out I have Chiari Malformation . I'm not sure what one yet . But I can not believe all these things that I been feeling...
    Trinny Trinny 36-40, F Nov 6, 2007

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    It Is All In Gods Hands - Sept 30th 2006, a day that changed our famliy. It was Homecoming for our PARA Football leauge. The boys just had their pictures taken and the game was...
    KristinSue KristinSue 36-40 Oct 1, 2008

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    My Path -      In 1997, at the age of 40, I began my struggle.  I was in a very bad head on car wreck.  The next day my head, my neck, left arm...
    bog57 bog57 51-55 1 Response Aug 27, 2008

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    Confused - Hello , my wife was just diagnosed with this problem, i'm confused because her doctor says that it won't need surgery however sending her to a neurosurgen but everything...
    shawnbecky2 shawnbecky2 31-35, M Jun 2, 2007

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    Chiari For the Masses - I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches...
    Clovis Clovis 19-21, M 1 Response Jun 18, 2007

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    My Son. - In March of 2006 My 6 year old son fell at school and hit his head on the black top.  For days he wouldn't quit vomiting, numerous trips to the Doctor & E.R...
    cabayaudi cabayaudi 31-35, F Oct 12, 2007

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    On My Way to Surgery - Hi! My name is Missy,I was diagnosed with Chiari1Malformation last summer. I started out becoming dizzy,followed by passing out,having severe head and neck...
    aggravatted aggravatted 36-40 1 Response Nov 15, 2008

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    Uninsurable? - I happened to see an advanced copy of Sicko, Micheal Moore's new documentary, and caught a glimpse at a list that said those with Chiari Malformation might be...
    kaida kaida 21-25, F 1 Response Jun 21, 2007

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    One Long Year - My name is Courtney Freeman, I am 29 years old and have been married for 8 years and have two beautiful daughters who are ages 3 and 8. About one year ago, I...
    Hrting Hrting 26-30, F Oct 26, 2007

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    Chiari Type 1 - I have been a migraine suffer since 2000, and have taken several medications to reduce the frequency. (All have been unsuccessful) I have went to a Neurologist, and...
    Robertsgirl Robertsgirl 36-40, F Jul 17, 2007

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    IT Is Ok - In March of 2006, i had the surgery for Chiari 1. I was very scared when i found out that i had this problem going on, all i could think of was this is my brain, my...
    1moretime 1moretime 21-25, F 2 Responses Apr 1, 2007

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    Chiari For the Masses - I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches...
    Clovis Clovis 19-21, M Jun 18, 2007

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    My Brother - my brother john is in the airforce. he was just diagnosed with this a couple weeks ago. have any advice for him? should he get the surgery?
    airforce1 airforce1 16-18, F 2 Responses Oct 18, 2007

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    ***Post of the Day*** Find out more at: www.facebook.com/FavorUponYou The story of how I reverted to al #Islam is a story of plans. I made plans, the group I was with made plans...
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    ***Post of the Day*** Find out more at: www.facebook.com/FavorUponYouThe Qur’an’s Challenge: A Literary and Linguistic MiracleWhy is the Qur’an a Miracle?:What...
    FavorUponYou FavorUponYou 22-25, M 1 Response 4 days ago

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    ***Post of the Day*** To find out more, visit: www.facebook.com/TrueQuranSpeaksWONDERS OF GOD’S CREATION: THE REGION THAT CONTROLS OUR MOVEMENTS“No indeed! If he does...
    FavorUponYou FavorUponYou 22-25, M Mar 19

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    A good news to tell all of you, the official herpes dating site === www.HerpesWoo.com are very popular recently. It has more than 730 000 members. Most of the members are verified...
    leslovingJenny leslovingJenny 31-35, F Apr 3

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    I don't know about any of you, but I'm so sick of people who are on their forties, assuming they know more just because of their age... There are so many 'young' people who have...
    Lunarflowerrr Lunarflowerrr 22-25, F 2 Responses Mar 18

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    It's the little things piling up on top of the bigger issues now. I feel defeated and absolutely disrespected at times. It might seem petty but no matter what it is, whether I...
    cbnfvr cbnfvr 26-30, F Mar 29

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    There's this really cute, adorable girl in two of my classes. The problem is I would like to get to know her better, but I haven't even had a real conversation with her and its the...
    TheAbyssWalker TheAbyssWalker 22-25, M 1 Response Mar 27

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    I feel like even thought this is a place to vent that if I'm posting so much it's a problem in real life :( Anyway. As I have stated before.. I feel like I am married to both my...
    cbnfvr cbnfvr 26-30, F Mar 29

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    I wish that he showed it more.
    Sonny02 Sonny02 41-45, F 1 Response Apr 5

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    This is a major pet peeve. I hate when people think they can predict things about me or they "know me sooo well". All the people who REALLY know me (and I wouldn't say that's a lot...
    fairytalesandspiderwebs fairytalesandspiderwebs 18-21, F Mar 23

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    either come to my door government, or tell me where to go to give you one. im sick of you.
    Alexdrunkunc Alexdrunkunc 18-21 Mar 18

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    Well, it's not like we're stupid:P
    Runawayday Runawayday 13-15, F 4 Responses Mar 22

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    I'm done wishing he would care, done hoping he will man up, done just WAITING. It feels like I'm always WAITING. Done with broken promises, his selfish wants and ways, done with...
    cbnfvr cbnfvr 26-30, F 2 Responses 5 days ago

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    I'm selfless.. probably...
    PedacosPieces PedacosPieces 18-21, F 2 Responses 5 days ago

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    i need to talk to las vegas. residents...plan to move there but i don't know where to move...need to know more about crime areas..
    FAITH40 FAITH40 36-40, F Apr 5

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    I can't stop thinking about a guy I barely know- He works with my mum and I've seen him in the pub a few times too. Since my uncle is dating his mum, I was quite keen on knowing...
    ImChelsea ImChelsea 16-17, F 1 Response 3 days ago

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    I hate it when people think they know me. My own family doesn't even know me. I have my associates and I have a friend as in one... Really when I think about it, the people on ep...
    Shygirl917 Shygirl917 18-21, F Mar 18

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    With the rising of infrastructure, building sand is more and more widely, and the sand making machine is a special equipment for the production of construction sand, gravel sand...
    mhah mhah 22-25, M Apr 7

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    Ok..here is my story..I was 19 yrs old and lived with my parents, brother and boyfriend in apartment. Everything was great, even I wasn't always in good relationship with my mum...
    auspergerica auspergerica 22-25, F 5 Responses Mar 18

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    Desperately need a friend... I'm sorry this is a long background story but this is the abbreviated version. I'll try to make things clear. It may just come off as shallow, whiny...
    ArtsyPatrick ArtsyPatrick 41-45, M 3 Responses Mar 21

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    After relationship nonsense after relationship nonsense, I began to realize I don't need that crap while I'm still trying to figure out who I am. For days and days on end I would...
    imryll imryll 18-21, F 1 Response Mar 23

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    It is my belief that God is real. Please don't knock me down just cause you don't agree, Atheists. We can disagree and still be respectful towards each others feelings. I am a...
    blossomingbeauti blossomingbeauti 36-40, F 2 Responses Apr 4

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    Recently, I have been doing yoga and meditation. I pray to god before my yoga and meditation that I get the most out of it. I feel like god is very close to me now. I feel closer...
    Scarlett13 Scarlett13 18-21, F 2 Responses Apr 9

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    I thought of you today. I think of you most days. I miss you. I'm sorry things are all messy right now. I'm sorry you feel the way you do about it all. I wish you could see my...
    CaliLove87 CaliLove87 26-30, F 4 days ago

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    Words can't express all that I'm feeling right now, i spent 2.5 years on this jerk, only for things to repeat. But this time it felt like things were getting better, after I had...
    Stargasm Stargasm 22-25, F 1 Response 3 days ago

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    1. When I was 8 my great grandmother died. 2. I cried everyday for 2 years after, and still do sometimes. 3. I'm Wiccan. 4. I'm "in the broom closet" 5. Same Love by Macklemore...
    HeyItsMexox HeyItsMexox 18-21, F 1 Response Mar 31

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    Dear Sir,I don't know your name.I don't remember your face.I know you, though.My parents are still trying convince me that you were just a nightmare.There's a type that you belong...
    WhoAmI613 WhoAmI613 22-25, F Mar 27

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    I have come to conclusion that all people are human and they make mistakes. For the most part adults ( more so parents) make mistakes to & that depending on them for need is not...
    beaudsaste beaudsaste 13-15, F 2 Responses 5 days ago