Post

I Need to Know More About Chiaris Malformation

Support, chat, personal stories and community for Arnold Chiari Malformations Type I and II 34 People

    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 19-21, M Jun 18, 2007

    Your Response

    Cancel

    Getting Ready For Surgery

    My fiance was diagnosed with Chiari about 6 months ago. After several weeks of pain she finally went to her doctor and they told her what she had. Luckily we live in western Pennsylvania and there is an excellent neurosurgeon in Pittsburgh. We went to the doctor at the Hillman...
    burghman burghman 21-25 Jan 18, 2008

    Your Response

    Cancel

    My Name Is Shorty I Have Chiari1

    i was diagnosed in 2006 with chiari type 1. i have alot of symptoms from it. i take diamox to relieve the csf. fluid build up.
    shotry shotry 31-35 May 21, 2008

    Your Response

    Cancel

    My Path

         In 1997, at the age of 40, I began my struggle.  I was in a very bad head on car wreck.  The next day my head, my neck, left arm and shoulder were very sore.  I had a seat belt on and an air bag.  I initially thought I was okay...
    bog57 bog57 51-55 1 Response Aug 27, 2008

    Your Response

    Cancel

    Under the Knife In May 07

    I have had the symptoms of ACM for the past 7 years.  Many doctors just thought I had sinus problems or just plain old headaches.  With treatment for those not working, I got another opinion from a 4th doctor (Dr. Knox in Lexington, KY).  Another MRI was done and a...
    KevinScott KevinScott 31-35, M 1 Response Jun 18, 2007

    Your Response

    Cancel

    One Long Year

    My name is Courtney Freeman, I am 29 years old and have been married for 8 years and have two beautiful daughters who are ages 3 and 8. About one year ago, I woke up with the worst headache I have ever had. By mid afternoon, the pain was intolerable so my husband took...
    Hrting Hrting 26-30, F Oct 26, 2007

    Your Response

    Cancel

    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

    Your Response

    Cancel

    On My Way to Surgery

    Hi! My name is Missy,I was diagnosed with Chiari1Malformation last summer. I started out becoming dizzy,followed by passing out,having severe head and neck pain,confusion(unable to concentrate),fatigue,and having a hard time sleeping. I was sent to a neurologist who told me all...
    aggravatted aggravatted 36-40 1 Response Nov 15, 2008

    Your Response

    Cancel

    It Is All In Gods Hands

    Sept 30th 2006, a day that changed our famliy. It was Homecoming for our PARA Football leauge. The boys just had their pictures taken and the game was starting. At 6:50 pm a player went down in fumble recovery. It got quiet, we all were looking for our child, I kept thinking...
    KristinSue KristinSue 36-40 Oct 1, 2008

    Your Response

    Cancel

    Symptoms

    he had severe migranes, and had to stop training with everyone else. he would have graduated last week. but he is in a special place for it now.
    airforce1 airforce1 16-18, F Oct 18, 2007

    Your Response

    Cancel

    My Brother

    my brother john is in the airforce. he was just diagnosed with this a couple weeks ago. have any advice for him? should he get the surgery?
    airforce1 airforce1 16-18, F 2 Responses Oct 18, 2007

    Your Response

    Cancel

    Just Sharing

    Hi I  am 37 years old and just found out I have Chiari Malformation . I'm not sure what one yet . But I can not believe all these things that I been feeling , are all to do with this . When I use to tell people all the things I would be feeling . They would just laugh and...
    Trinny Trinny 36-40, F Nov 6, 2007

    Your Response

    Cancel

    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 19-21, M 1 Response Jun 18, 2007

    Your Response

    Cancel

    My Son.

    In March of 2006 My 6 year old son fell at school and hit his head on the black top.  For days he wouldn't quit vomiting, numerous trips to the Doctor & E.R.  they finally found out he had a chiari malformation and the trauma from the fall he was smashing his brain...
    cabayaudi cabayaudi 31-35, F Oct 12, 2007

    Your Response

    Cancel

    Chiari For the Masses

    I've had slowly worsening chiari symptoms since I was 9 years old, for a long time I thought they were simply normal headaches. At age 14 my headaches picked up the pace to the tune of 3-4 times a week. Going to the hospital they admitted me as an adult, something I wish I had...
    Clovis Clovis 19-21, M Jun 18, 2007

    Your Response

    Cancel

    Why Didn't My Surgery Work?

    I've been suffering with Chiari for the past 4-6 years. It took me years to be accurately diagnosed.  I don't have time now to tell my story, but I have a question for anybody reading this.  I had decompression surgery October 2006 and my headaches aren't better. ...
    allison69 allison69 31-35, F Oct 27, 2007

    Your Response

    Cancel

    Uninsurable?

    I happened to see an advanced copy of Sicko, Micheal Moore's new documentary, and caught a glimpse at a list that said those with Chiari Malformation might be considered uninsurable.  Since I was diagnosed this last year, but am asymptomatic and don't need surgery, I wasn't...
    kaida kaida 21-25, F 1 Response Jun 21, 2007

    Your Response

    Cancel

    More Information For You

    My wife had the surgery last year, April 3rd to be exact. For more information please feel free to check out her website at www.devinsdiary.com or my myspace account at www.myspace.com/chris_kalisz I am certain that she would love to talk with you about this and try to put you at...
    tattss1 tattss1 26-30, M Apr 2, 2007

    Your Response

    Cancel

    IT Is Ok

    In March of 2006, i had the surgery for Chiari 1. I was very scared when i found out that i had this problem going on, all i could think of was this is my brain, my spinal cord and if they messed up it would mess me up for the rest of my life. I lived with migraines for 5yrs and...
    1moretime 1moretime 21-25, F 2 Responses Apr 1, 2007

    Your Response

    Cancel

    Up In the Air

    hello, i am the mother of a 33yr daughter w/chiari 2.  i am not very computer  literate, trying to learn, and helping her to connect with people like her. do we need a writing prompt?  looking forward to chatting more about her experiences. She has multiple...
    parker parker 61-65, F May 25, 2007

    Your Response

    Cancel

    My 16-year-old Daughter Was Diagnosed With Type I Chiari's Malformation....

    ....just last week.  she's been suffering from migraines (bunches of dif. kinds) for most of her life, ever since she was little.  migraines run in our family. i've had terrible ones for years.  about a month ago, she started having them WAY too frequently...
    MysticWriter MysticWriter 36-40, F 10 Responses Mar 17, 2007

    Your Response

    Cancel

    Confused

    Hello , my wife was just diagnosed with this problem, i'm confused because her doctor says that it won't need surgery however sending her to a neurosurgen but everything that I have read leads to surgery, my question is, how is the prognosis? is there any dangers into the surgery...
    shawnbecky2 shawnbecky2 31-35, M Jun 2, 2007

    Your Response

    Cancel

    Chiari Type 1

    I have been a migraine suffer since 2000, and have taken several medications to reduce the frequency. (All have been unsuccessful) I have went to a Neurologist, and was told all was well. I began receiving abortive medications, since the migraines were so severe. In December...
    Robertsgirl Robertsgirl 36-40, F Jul 17, 2007

    Your Response

    Cancel

    Related Experiences

    ***Post of the Day*** Find out more at: www.facebook.com/FavorUponYou The story of how I reverted to al #Islam is a story of plans. I made plans, the group I was with made plans...
    FavorUponYou FavorUponYou 22-25, M Apr 14

    Your Response

    Cancel
    ***Post of the Day*** Find out more at: www.facebook.com/FavorUponYouWONDERS OF GOD’S CREATION: THE SUN WILL EXPIRE AFTER SOME TIME“And the sun runs to a fixed resting...
    FavorUponYou FavorUponYou 22-25, M 4 days ago

    Your Response

    Cancel
    ***Post of the Day*** Find out more at: www.facebook.com/FavorUponYouThe Qur’an’s Challenge: A Literary and Linguistic MiracleWhy is the Qur’an a Miracle?:What...
    FavorUponYou FavorUponYou 22-25, M 1 Response Apr 13

    Your Response

    Cancel
    ***Post of the Day*** Find out more at: www.facebook.com/FavorUponYouBackground: Some people believe that Muslims do not follow the teachings of Jesus (peace be upon him)Muslims...
    FavorUponYou FavorUponYou 22-25, M 1 Response 5 days ago

    Your Response

    Cancel
    A good news to tell all of you, the official herpes dating site === www.HerpesWoo.com are very popular recently. It has more than 730 000 members. Most of the members are verified...
    leslovingJenny leslovingJenny 31-35, F 1 Response Apr 3

    Your Response

    Cancel
    Hi everybody. Me too I would like to know more Tunisians people over here. :---)
    mermaid07 mermaid07 13-15, F 5 days ago

    Your Response

    Cancel
    It's the little things piling up on top of the bigger issues now. I feel defeated and absolutely disrespected at times. It might seem petty but no matter what it is, whether I...
    cbnfvr cbnfvr 26-30, F Mar 29

    Your Response

    Cancel
    There's this really cute, adorable girl in two of my classes. The problem is I would like to get to know her better, but I haven't even had a real conversation with her and its the...
    TheAbyssWalker TheAbyssWalker 22-25, M 1 Response Mar 27

    Your Response

    Cancel
    Today i made a check list of what i like and what i do not like about my soon to be "hubby". Love is all about compromising right...
    toloveandtohold toloveandtohold 26-30, F 3 days ago

    Your Response

    Cancel
    I feel like even thought this is a place to vent that if I'm posting so much it's a problem in real life :( Anyway. As I have stated before.. I feel like I am married to both my...
    cbnfvr cbnfvr 26-30, F Mar 29

    Your Response

    Cancel
    I wish that he showed it more.
    Sonny02 Sonny02 41-45, F Apr 5

    Your Response

    Cancel
    I'm done wishing he would care, done hoping he will man up, done just WAITING. It feels like I'm always WAITING. Done with broken promises, his selfish wants and ways, done with...
    cbnfvr cbnfvr 26-30, F 2 Responses Apr 11

    Your Response

    Cancel
    I'm selfless.. probably...
    PedacosPieces PedacosPieces 18-21, F 2 Responses Apr 12

    Your Response

    Cancel
    Twinkle peak of our sunsets
    Bethybeezz Bethybeezz 31-35 3 hrs ago

    Your Response

    Cancel
    i need to talk to las vegas. residents...plan to move there but i don't know where to move...need to know more about crime areas..
    FAITH40 FAITH40 36-40, F Apr 5

    Your Response

    Cancel
    I'm not one to spill my guts without someone really wanting to know my story. I know everyone has lived a tough life, and I respect that, but not everyone (IE me) is willing to...
    dazedATdawn dazedATdawn 16-17, F 1 Response 3 days ago

    Your Response

    Cancel
    I can't stop thinking about a guy I barely know- He works with my mum and I've seen him in the pub a few times too. Since my uncle is dating his mum, I was quite keen on knowing...
    ImChelsea ImChelsea 16-17, F 1 Response Apr 13

    Your Response

    Cancel
    With the rising of infrastructure, building sand is more and more widely, and the sand making machine is a special equipment for the production of construction sand, gravel sand...
    mhah mhah 22-25, M Apr 7

    Your Response

    Cancel
    1. I'm 17 2. I know more about everything in general for my own good 3. Black men makes me weak lol 4. Hate being tickled 5. When I love, I love hard. 6. I hate the # 6 I bet you...
    lexix0 lexix0 16-17, F 1 Response 6 days ago

    Your Response

    Cancel
    I have a friend who is exactly like that fake hipster I talked about in another story. She says she's a hipster and all about the earth and her body which I admit, slightly gets on...
    PitchDaffy PitchDaffy 22-25, F 2 Responses 2 days ago

    Your Response

    Cancel
    It is my belief that God is real. Please don't knock me down just cause you don't agree, Atheists. We can disagree and still be respectful towards each others feelings. I am a...
    blossomingbeauti blossomingbeauti 36-40, F 2 Responses Apr 4

    Your Response

    Cancel
    Recently, I have been doing yoga and meditation. I pray to god before my yoga and meditation that I get the most out of it. I feel like god is very close to me now. I feel closer...
    Scarlett13 Scarlett13 18-21, F 2 Responses Apr 9

    Your Response

    Cancel
    I thought of you today. I think of you most days. I miss you. I'm sorry things are all messy right now. I'm sorry you feel the way you do about it all. I wish you could see my...
    CaliLove87 CaliLove87 26-30, F Apr 12

    Your Response

    Cancel
    Words can't express all that I'm feeling right now, i spent 2.5 years on this jerk, only for things to repeat. But this time it felt like things were getting better, after I had...
    Stargasm Stargasm 22-25, F 1 Response Apr 14

    Your Response

    Cancel
    1. When I was 8 my great grandmother died. 2. I cried everyday for 2 years after, and still do sometimes. 3. I'm Wiccan. 4. I'm "in the broom closet" 5. Same Love by Macklemore...
    HeyItsMexox HeyItsMexox 18-21, F 1 Response Mar 31

    Your Response

    Cancel
    Dear Sir,I don't know your name.I don't remember your face.I know you, though.My parents are still trying convince me that you were just a nightmare.There's a type that you belong...
    WhoAmI613 WhoAmI613 22-25, F Mar 27

    Your Response

    Cancel
    I have come to conclusion that all people are human and they make mistakes. For the most part adults ( more so parents) make mistakes to & that depending on them for need is not...
    beaudsaste beaudsaste 13-15, F 2 Responses Apr 11

    Your Response

    Cancel
    I am so angry. Angry with him. About the last relationship that we had. The way he treated me. The way things have been happening I can't forget I was so hurt It really knocked me...
    lilygeorge12 lilygeorge12 22-25, F 1 Response Apr 12

    Your Response

    Cancel
    I saw this news article and just had to share it. Go here to read the article, see pictures and get a link to a more detailed article. NASHPORT, Ohio (AP) — A couple who held...
    blossomingbeauti blossomingbeauti 36-40, F 3 days ago

    Your Response

    Cancel
    So last night I was tinkering around the spiritual side of YouTube and watched some videos on animal spirit guides, then I read about it on some forums online. Now I've always...
    thigoh thigoh 41-45, M 2 days ago

    Your Response

    Cancel