I Suffer From Vestibulitis

Personal Stories, Advice, and Support 47 People

    My Success Story After 12 Years Of Pain!!

    Hi Everyone, This is long but I hope you read. My goal over Christmas break is to blanket the internet with my VVS success story, so I'm starting here in hopes that I can help even one person. My VVS only ever affected me during sexual intercourse, which I noticed from the day I...
    mommusic mommusic
    11 Responses Dec 22, 2010

    A Good Ending to Vestibulitis, Read This!!!!!!!!!

    Hello, I suffer from vestibulitis. My symptoms came on sunddenly when I was 20, living in a foreign country. ( I am 21, now).  I wanted to share with you my experience with treatment. I have tried estrace, steroids, and other topical treatments. However, I found that as...
    Ajs248 Ajs248
    Feb 18, 2009

    My Vulvar Vestibulitis Story

    I want to share my story with everyone, but I've already typed it out on my blog, which would be a lot easier than doing it again. So, if you want to read my story, and follow along with me as I hopefully find a cure in this journey, my blog is: http://sorryimallergic.blogspot...
    slilj slilj
    5 Responses Aug 9, 2010

    My Vvs Journey

    HI!  Vulvar Vestibulitis Syndrome (VVS) is an awful thing. How much more simple can I say it? I hope to meet lots of other women who can relate and and we can communicate and share and give support and make a difference in the world to find a cure for this VVS crap!!! This...
    julieannpdx julieannpdx
    41-45, F
    9 Responses Jan 2, 2008


    my husband told me i should look to see if a group existed for this, and i doubted there would be one, but lo and behold, there is! therefore i shall join it and write its inaugural story. warning: this story is about my hoo-ha. do not read if you do not want to hear about it. i...
    journeyfulloflaughter journeyfulloflaughter
    26-30, F
    3 Responses Jan 2, 2008

    My Story

    I'm from Isral I have suffered many years  from pain in the perineum and urinated very frequently. My condition don't connect to sex. The condition started in age 21 after inflmmation in the vagina  and make worse. Today I'm 32 I'm not completly healthy...
    lam123 lam123
    31-35, F
    1 Response Dec 4, 2009

    Vv Can Kiss My Hoo-ha

    Before today, I felt like I was the only person in the world who even knew what VV is. Thank God for all of you and I do hope you all are healing from this stupid , horrible, no good disease!! Women who can just go about their lives never even giving a second thought to the...
    Bd88 Bd88
    22-25, F
    3 Responses Aug 11, 2010


    Today I was diagnosed with vuvular vestibulitis. It was a relief in a way after over 15 years of wondering if I was getting yeast infections, i I was allergic to latex, if I was allergic to *****, I got an answer which seems to make sense. I was very sensitive during the q-tip...
    BerniceR BerniceR
    3 Responses Oct 14, 2008

    This Helped Me Alot. It May Help You Too.

    After a year long fight with a yeast infection I developed VV. I went to the Doc's and this is what she gave me. It's called Neocutis and you can get it at Lovelyskin.com. I'm not really sure what makes it so great, but you apply it 2x a day until you feel better. It did take a...
    picylou picylou
    31-35, F
    3 Responses Nov 16, 2010

    Online Blog For Vvs Sufferers....(in Case You Are Interested!)

    For you VVS sufferers, I thought I should share a blog I am part of.... http://vvssupport.wordpress.com/ Vulvar Vestibulits Support Network (VVSN) (formerly known as National Vulvar Vestibulitis Organization, or NVVO) I hope you all have found some good online support groups...
    julieannpdx julieannpdx
    41-45, F
    2 Responses Sep 28, 2010

    I Dont Know If I Have Vestibulitis?

    Hi... Im not sure where to start, i have been with my partner for just over 4 years he is 23 and i'm 20 i love him with all my heart. I bassicaly cant have sex with him anymore because it hurts sooooooooo much - even after. i think i might have a yeast infection too? (im not sure...
    emmychik emmychik
    18-21, F
    1 Response Oct 2, 2008

    Another Vv Experience Story :)

    Hi there, Figured I should add to the list since I know when I've been suffering from this horrible condition, all the posts and possible treatments made me feel better. I have had VV for the past 1 and half years. I got in when I was 19, I used to have very frequent...
    kd123 kd123
    Dec 30, 2010

    We'll See...

    hi, I'm currently 21 years old. I developed Vestibulitis just before or just after my 20th birthday, it's hard to tell. I firmly believe that my VVS started from a kidney stone and the surgery I had fro it last march. My stone wasn't too big to pass but it was very jagged and...
    kkc10 kkc10
    Aug 9, 2011

    Thank You

    Hey, girls! I am so glad that I have found you guys. I generally like being alone, but this disease has made me change my mind about that. Now I need somebody to talk to. Somebody who understands what it feels like. Most really don't. They don't know what it feels like having...
    deleted deleted
    Jan 13, 2013
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