I Suffer With Severe Gastroparesis

Personal Stories, Advice, and Support 129 People

    Does your Gastroparesis get worse

    when you're ill with a cold/flu? Or does it get better or stay the same?
    Gastroparesis Gastroparesis
    31-35, M
    Nov 26, 2015

    My Problem Is From Neuropathy Of The Vagus Nerve Because Of Diabeties

    I have had managed diabetes 2 for about 20 years.  Last year, I went into a deep depression and quit testing or eating properly. I became extremely thirsty (sign #1)and began drinking gallons of water and gatorade. Then I started vomiting and couldn't stop but refused to let...
    2sassy4u 2sassy4u
    56-60, F
    3 Responses Apr 12, 2012

    Gastroparesis = Hell

    Ive always said, i can eat whatever i want...well i think i jinxed myslef. In 2007 i started feeling sick, after my gparents passed away.(major stress n nerves) i thought me being sick was depression and stress from my job(working 12 hour DAYS With kids). i was living alone so...
    glm336 glm336
    26-30
    Sep 21, 2011

    Gp And Constipation

    I suffer with severe gastroparesis. For instance, yesterday I ate brunch(first meal of the day), which was 1 piece of toast, one scrambled egg, palm size portion of hash browns and 2 pieces of bacon. That was @ 10:45 a.m. At 5:40 p.m. I ate 1/2 piece of pizza. At 4:00 a.m. I...
    1mama23 1mama23
    51-55, F
    1 Response Jan 7, 2013

    I Have Suffered With Gastroparesis For Four Years

    Hi I am a 42 year old female who has been dealing with gastroparesis since Sept 2007. After being ill, losing 28lbs and looking like the walking dead. I ended up traveling 10 hours to Scottsdale AZ Mayo Clinc to finally be diagnosed with gastroparesis and fibromyalgia. I has seen...
    tchilcote tchilcote
    41-45, F
    2 Responses Jul 19, 2011

    My Daughters Story

    My daughter is 26 and suffers with gatroparesis. She has had two operations trying to get better. Nothing so far has worked. I am a very concerned mother just trying to find some answers to her condition and some hope. She feels hopeless.
    mhn1954 mhn1954
    56-60, F
    2 Responses Sep 11, 2012

    I REALLY need a wheelchair.

    I started a gofundme to help with the cost. Any donations will help:) https://www.gofundme.com/r9u3nyj8
    kikitaina kikitaina
    18-21, F
    Apr 4

    It Must Have Gotten Severe

    I'm so relieved from this website. I'm sorry for anyone going through this but man oh man did it relieve me to know I'm not alone. This last month has be HELL. Doctors are so mean. Beginning time line: Jan 2011 - appendix removed Mar 2011- Gallbladder removed Sep 2011...
    morethanordinary32 morethanordinary32
    18-21
    1 Response Nov 12, 2012

    Gastroparesis Has Taken Over My Life

    I'm 22, and I suffer from gastroparesis. I was glad to find a support group and have started to share my story many times but then backed out. When I made my symptom list for my doctors appt later today (i.e. I should not be awake right now) I decided how should I receive...
    KymeeKat12 KymeeKat12
    22-25, F
    Jan 14, 2013

    From Colitis To Gastroparesis, I Really Need Help

    Hi, I'm a 20 year old female! I have Celiac Disease, Ulcerative Colitis, PMDD, Severe IBS, Gastritis and newly diagnosed Gastroparesis. I really need help and I hope sharing my story can get me some firsthand advice from other Gastroparesis fighters! The jist of it is, I took an...
    pegasus02 pegasus02
    18-21, F
    3 Responses Feb 3, 2013

    Horrible And Misunderstood

    I've suffered from SEVERE gastroparesis for 11yrs now. When it first started I thought I had a bug that wouldnt go away. The first two months or so I suffered tremendously. I was in severe pain, nausea and severely vomiting every 30 minutes or so. I couldnt do anything but lay in...
    butterflyapgl butterflyapgl
    36-40
    1 Response Feb 12, 2011

    I Too Suffer From Severe Gastroparesis

    It all started 11 months ago one weekend. What I thought I was experiencing the Flu, became my worst nightmare, well at least that's how I felt it was like at the time. I couldn't stop vomiting nor having severe, like I couldn't get off the pot, Diarrhea that was so severe, I...
    twindee twindee
    41-45
    1 Response Mar 18, 2011

    Gastroparesis Has Taken Over My Life

    I am so happy I found this group. I am 34 years old, and have not taken very good care of myself, even though I am a nurse. Last Nov. I was admitted to the hospital from my PCP when I came into his office, vomiting blood for 3 days, he admitted me and while there, I saw my GI doc...
    slynch1975 slynch1975
    31-35, F
    6 Responses Sep 3, 2009

    Hey! I am 18 & have been in the hospital

    for weeks now.. I just got diagnosed with severe Gastroparesis. It's HORRIBLE. I'm out of work & college right now. Because of this disease I've lost everhthing - the dorm life at college, my boyfriend, friends, everything. BecauSe who wants to be friends or around someone who's...
    laneyrn laneyrn
    18-21, F
    4 Responses Apr 18, 2014

    I Dont Know What I'm Gonna Do

    My name is Nancy and I'm battling what many doctors have told me is the worst case of Gastroparesis they have ever seen. My story starts in early November 2005. I thought I had the flu and went to see my family doctor a few days of nonstop nausea and vomiting. She thought I had...
    nncyl72 nncyl72
    36-40, F
    4 Responses Jan 6, 2011

    Life Changing.......with No Help!!

    Very similar story!! I have been suffering for years with severe pain which all of the sudden this past year got severe and had recently been (this year) diagnosed as gastroparesis. I had to advocate for myself. It seems the doctors do not look for this …. at all. A...
    Mistypax Mistypax
    36-40, F
    2 Responses Sep 5, 2009

    Will It Ever End

    I was diagnosed with marked gastroparesis 2 1/2 years ago.  I have doctors who practice in four seperate hospitals.  They all have their ideas on how to treat this condition.  First I was put on TPN and a visiting nurse came once a week.  That nursing...
    pamamheu pamamheu
    51-55, F
    4 Responses Mar 23, 2010

    8 Years And Counting

    I have been suffering for 8 Years and until last week it did not have a name. My Story: 8 Years ago I had my gallbladder removed prior to this I was active and did everything. Now I miss out on a lot becuase there is no energy. For the first few years I had problems with only...
    skbruck skbruck
    41-45, F
    1 Response May 10, 2013

    Diagnosed In Feb 2012

    I've had stomach problems for the last 5 yrs. It started with H. Pylori was treated and sent on my way. After getting 2 endoscopys and a colonoscopy because of severe vomiting and chronic diarrhea I was told not eat out in 11/11 by my previous GI. That prompted me to get a new GI...
    shalit shalit
    31-35, F
    Jun 26, 2012

    Living With Severe Gastriparesis

    I am a 54 year old female who suffers from severe gastriparesis. I was just told that I have this. I am a type 1 diabees and a legally blind albino. I am still learning what this means for the rest of my life. I have other medical problems but none as shocking as this is. I...
    myrab48 myrab48
    51-55, F
    1 Response Aug 21, 2012

    Gastroparesis Has Taken Over My Life (cont.)

    My symptom list was too long lol Please read the rest in case of suggestions you may have. *pain at night that wakes me and keeps me awake for hours (Amitriptaline caused me to have extreme anxiety and didn't assist with sleep, however my clonazepam was good for sleep...
    KymeeKat12 KymeeKat12
    22-25, F
    4 Responses Jan 14, 2013

    New Here--have Gastroparesis

    Hello everyone--I am new to this group/community and suffer with gastroparesis and want to learn what helps people with this condition.
    garry2758 garry2758
    51-55, M
    2 Responses Dec 5, 2012

    Jerry

    I have no hunger pains, water and food passes straight through and am getting no nutrition. Body getting no nutrition, no muscle tone, ribs showing, lost job, insurance, wife, body has shut down.....is there anything at all I can do
    dideedo73 dideedo73
    41-45
    4 Responses Nov 14, 2012

    Gastroparesis

    I have been suffering with Gastroparesis for what seems like forever.  It has become worse very rapidly.  I do not vomit and can only remember been nauseous twice.My main problem is the severe bloating.  It has been so bad I can feel the pressure in my chest, throat, nose and...
    Daves4ever01 Daves4ever01
    46-50
    Dec 29, 2011

    How My Condition Came To Be..

    Hello to anyone who is reading this, my name is Emily. I am currently 16 years old, and I suffer from severe gastroparesis. It all started in early October 2010 when I began vomiting almost everything that I ate. At first, we thought I might have had a virus, but that was soon...
    emilyfilomena emilyfilomena
    16-17
    3 Responses Apr 10, 2011

    Mono? Cyclic Vomitting? No, Gastroparesis!

    It all started in April 2011, I was diagnosed with Mono while living in a small town.  The Dr.s in the small town that I lived in, were very rude. They were convinced that what I had was prolonged mono symptoms that they would not do any other test to see if there was a...
    ladydawgsm ladydawgsm
    16-17
    1 Response Mar 30, 2012

    I Suffer With Severe Gastroparesis

    I have had gastroparesis for about 11 years. I had thyroid cancer and surgery in 1999 but I don't know if that's related. I've tried all the different drugs for reflux and acid and have been taking Aciphex for several years. I've been to the Mayo Clinic and had so many tests...
    cbcarver cbcarver
    61-65
    1 Response Feb 8, 2011

    Rest For The Weary From Gastroparesis

    There is hope. If you live in Pittsburgh, PA, his name is Dr. Arnold 412.621.2176. His Secretary, Mary, who runs the clinic 412.623.1309. The two main treatments they prescribe are Domperidone or a stimulator. Domperidone is fda regulated but not fda approved. There are only...
    hopealltime hopealltime
    41-45
    Dec 18, 2011

    Scared For My Husband

    My huband is a diabetic who has recently been diagnosed with gastroparesis.  The doctors never alluded to how serious this can be.  The prescribed him some Reglan and sent him on his way.  At first his symptoms were not that sever, but they've gotten increasingly...
    vnreid vnreid
    31-35, F
    3 Responses Jun 12, 2010

    I'm So Sick And Tired Of Being Sick And Tired......

    Wow, I have to say I am crying right now, just from reading all these stories.  I too think this fricken disease is now causing me to just "exist".  At first I was having horrible stomach pain, so I went to see a doctor about it and he took out my gallbladder.... needless to...
    nellygirlak nellygirlak
    26-30, F
    1 Response Dec 28, 2010

    This Horrible Disease

    My husband was diagnosed with gastroparesis about 3 years ago.  Since then are lives have drastically changed.  He is no longer able to eat regulary with his family.  He has not been able to eat breakfast during this time.  Since his diagnosis he has a...
    leigh6271 leigh6271
    31-35, M
    5 Responses Jun 23, 2010

    Intestinal Failure Gastroparesis

    Hello my name is joe i have started this discussion for my mum who suffers with gastroparesis and intestinal failure. I am trying to find out about people who have this similar problem has my mum is unable to empty her bowls on top of not being able to eat, she is on a NJ tube...
    mts1 mts1
    61-65
    2 Responses Apr 2, 2013

    Gastroperesis: My Story

    Hi all, Lately I have been suffering with depression due to my illness, and so I felt sharing my story and knowing there were other people out there struggling with the same problem would be a way to keep me fighting. I first became ill in 2007 - I cant remember exactly how it...
    AcapellaRose14 AcapellaRose14
    26-30, F
    3 Responses Mar 20, 2013

    Gastroparesis

    Ive always said, i can eat whatever i want...well i think i jinxed myslef. In 2007 i started feeling sick, after my gparents passed away.(major stress n nerves) i thought me being sick was depression and stress from my job(working 12 hour DAYS With kids). i was living alone so...
    glm336 glm336
    26-30
    Sep 21, 2011

    Shakeology

    Hi, I have gastroparesis. Have you heard of Shakeology? It's been a lifesaver for me. Inbox me for more info
    deleted deleted
    26-30
    1 Response Oct 16, 2013

    My Story

    It all started a year ago. I mean, i've always been sickly, but not to this extent. It started out as waking up on random mornings around 5am vomitting. And I don't mean just throwing up once and feeling better. I would throw up and throw up and throw up, and not feel better...
    10lewisk 10lewisk
    16-17, F
    5 Responses May 20, 2009

    My Experience With Severe Gastroparesis

    lets go back about a year. i was happy,overweight, had a few great friends and was going into my junior year. over the summer i was in a lot of stomach pain and was getting my gallbladder on that september 22nd (‘09). I was looking forward to getting over the pain and...
    jonaslovex824o8 jonaslovex824o8
    16-17
    2 Responses Oct 24, 2010

    Juices

      Even if I have fruit or Vegetable Juice. My bowel get backed up and they seem to make my bowel even slower. Does any-one else find this?
    anasdevil666 anasdevil666
    31-35
    2 Responses Jun 24, 2013

    How Long Can I Live With This...? No Idea What To Do :(

    I was diagnosed with mild-moderate gastroparesis back in April of 2011. Over the past couple of months, it has become severe. I had been seeing a GI doc for years for IBS and ulcers. I went to see her at the beginning of 2011 about these new symptoms- nausea, vomiting...
    pixiedarling pixiedarling
    26-30
    7 Responses Jan 28, 2012

    Gastroparesis

    I've been very sick since xmas of 09. Vomiting almost everyday, some days not so bad. Always nauseous, everyday. Lost 40lbs since about two month ago from posting this message. Been to the ER three times, possibly more can't remember. Been complaining to my doctors and...
    billbernard billbernard
    41-45
    1 Response Oct 20, 2010

    I Have Gp And Ibs

    I am 30 and was diagnosed in my early 20's with GP. I have had a few scopes to fix strictures in my esophagus and have had the Niessen Flap Sx for severe GERD and a hiatal hernia fixed and my gallbladder removed. I was vomiting non-stop,keeping esophagitis and gastritis. I have...
    Jallie23 Jallie23
    26-30, F
    1 Response Nov 25, 2012

    New To Gastroparesis

    Hello all, here's my story: I have been sick since I was 19, I'm now 30. After years of doc visits and tests I was diagnosed with Lupus SLE. My lupus has been loosely controlled with a myriad of drugs until last Sept when I started vomiting after every meal and having extreme...
    gbmiller82 gbmiller82
    31-35, F
    1 Response Jun 1, 2013
More Stories