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I Take Tysabri

Personal Stories, Advice, and Support 39 People

    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 3 Responses Nov 13, 2012

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Related Experiences

    A picture from 1993 taken on film which I've digitised :D 
    HPage HPage 51-55, M 3 hrs ago

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    If you still care about me don't ever let me know. If you don't care for me anymore don't ever let me know. I rather keep you in my memories where you are always kind and sweet. I...
    saraandherfoxes saraandherfoxes 26-30, F 2 Responses 4 hrs ago

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    Later this afternoon, I'm gonna get my hair trimmed, and I will make sure to take a picture :)
    georgiapeach1995 georgiapeach1995 18-21, F 1 Response 5 hrs ago

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    My whole life, I've had to tiptoe around and walk on eggshells with people. Be nice. That's it. I have to be nice. I don't want to hurt anyone's feelings or upset people. You know...
    MeIncarnated MeIncarnated 70+, M 18 hrs ago

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    I swear this picture exactly describes me lol!The shortest shower I could ever take is about 20 minutes, most of my showers last more than that and if you ask me what I do inside...
    MissGaga MissGaga 22-25, F 2 Responses 22 hrs ago

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    I'm sick of the stress! Being married to the idiot that I am brings so much stress and drama into my life it's unreal. I'm 38+1 weeks pregnant and I have his family causing so much...
    JenniBob JenniBob 26-30, F 2 days ago

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    How To Turn Six Dollars Into Six Thousand Dollars: I found this on a bulletin board and decided to try it. A little while back I was browsing through newsgroups just like you are...
    manusundr manusundr 46-50, M 5 days ago

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    I've suffered from chronic pain for most of my life, but doctors didn't know why. When I was 18, I went to a neurologist. I learned later that he's actually the best neurologist in...
    hiddenkitty hiddenkitty 18-21, F 1 Response 6 days ago

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    Unless I take it, I don't want others taking my photo, it makes me look more unflattering than I already am, at least if I take it, it makes me look a little better! aha.
    usernameinneed usernameinneed 26-30, M a week ago

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    despite all the pix I do take....I really do not like having my picture taken. sometimes me taking an obsessive amount of pics is my way of getting over the fact that I don't like...
    craigslist504 craigslist504 36-40 a week ago

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    If they don't then the boys would take over. And if that happens we'll it actually has already happened that but it's not just boys who are cruel and reckless girls can also be...
    Singingbutterfly Singingbutterfly 13-15, F Aug 14

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    Here is another article from the archives of Christian Home: ROLE MODELS FOR BOYS The male supremacists are at it again. This time their target is single mothers. Their...
    TeachingRespect TeachingRespect 51-55, F 3 Responses Aug 14

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    Cold showers are the best thing ever especially after an intense workout but I always take cold showers #Gabbyfunfact
    Badgalgabby Badgalgabby 18-21, F Aug 12

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    It is a shame when a woman is taken advantage of. Woman was created to enhance not be token down by a man. I really try to avoid being used. It is bad enough what could happen...
    Babeondwy Babeondwy 41-45, F 4 Responses Aug 12

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    I am usually predictable but every once in a while I get an off the wall idea. I will list some of them: I would like to learn Kung Fu I would like to learn to ***** and be...
    AdviceCannon AdviceCannon 26-30, M 1 Response Aug 12

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    I have pictures on my profile, that I haven't taken myself, but friends shared with me, don't worry, I am not showing their faces.
    deleted deleted 26-30 2 Responses Aug 12

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    I dont like having any phone facing me at all just because I think someone's trying to take a pic of me. Thats how little I like pictures. ~ Lys ♪
    LysChan LysChan 18-21, F 1 Response Aug 12

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    yes, I have two pieces of jewelry I never take off one is a cross that my godfather gave me & the other is a gold horseshoe chain that close friends gave me for my birthday couple...
    theswordinthestone theswordinthestone 41-45, M Aug 12

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    First trip to California...absolutely gorgeous scenery! Had to take a few pics. Granted, not the best...but they'll do for meLaguna BeachMission San Juan Capistrano
    RisenFromAshes RisenFromAshes 36-40, M 3 Responses Aug 11

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    I have a Celtic Cross necklace (Cross of the scriptures) that I never take off. It's the only Protestant cross in Ireland.
    AmbellinaPrise AmbellinaPrise 31-35, F 1 Response Aug 11

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    MY PRECIOUS. .. I take care of my Granny. She gave me a pretty silver ring and I just love it..it's a thin ring that is comfortable the to wear.
    moonstar312 moonstar312 41-45, F 1 Response Aug 10

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    "She tried to stay strong, but the pain was too much. A smile, so lovely, you wouldn't believe it was fake. The pressure to be perfect was just too much to take. Behind her happy...
    Ana104 Ana104 18-21, F 2 Responses Aug 10

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    I am a bipolar type II and not too extreme in the highs. I quit taking meds in 1975 and have not taken any since then. This is not for most especially type I where you need...
    Golondrinas Golondrinas 51-55, M 1 Response Aug 10

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    I never take off my wedding band, but I also never take off a rubber bracelet that says "Imagine the Possibilities." It was my uncle's and he wore it when he was battling leukemia...
    JennSadai JennSadai 36-40 Aug 10

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    I take relationships seriously but what happens when she's way more serious than you. As in ready for marriage. I tried to tell her that I am not for matrimonial ceremonies but you...
    biodegradable biodegradable 18-21, M 1 Response Aug 10

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    I have a 14K gold bracelet my grandpa gave to me before he died. I haven't taken it off since. Also I have an anlet I got on a trip from a pastor because she was excited we ame to...
    seanboy1993 seanboy1993 18-21, M Aug 10

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    I'm really sensitive. I get emotionally attached to men too quickly and too easily. And I don't even know why. Everytime someone puts me down, the only word that comes to my mind...
    evewalter evewalter 16-17, F 2 Responses Aug 10

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    I don´t really like it getting taken rectally, but my parents and doctor say it´s the best way and there is no arguing with them about it. That´s the way it´s always done.
    shirashayna shirashayna 13-15, F Aug 10

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