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I Take Tysabri

Personal Stories, Advice, and Support 38 People

    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 3 Responses Nov 13, 2012

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Related Experiences

    I just recently graduated high school this past week. And It feels great.....relieving. My dad and my older brother asked me if I had already signed up for community college this...
    lonewolf2323 lonewolf2323 18-21, M 5 hrs ago

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    There are things in life that I wish for - a better life, more time with my close ones, getting fit etc. Yet my laid back attitude is working against me, with me doing nothing and...
    HappieStinger HappieStinger 41-45, M 3 Responses Apr 26

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    I still get mine taken rectally and I am almost 15. Both my parents take it that way all the time and I get it at the pediatrician too. I don´t really like it because I get...
    shirashayna shirashayna 13-15, F Apr 24

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    I still get mine taken rectally and I am almost 15. Both my parents take it that way all the time and I get it at the pediatrician too. I don´t really like it because I get...
    shirashayna shirashayna 13-15, F 2 Responses Apr 24

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    Control...Letting the Curves Take You...The answer to control is practicing surrender.Trying to maintain control in this life is a bit like trying to maintain control on a roller...
    anghel77 anghel77 36-40, F Apr 27

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    It has happened to me my entire life, ever since the first grade which i still remember for some reason,i was a more sensitive boy than others, and i got made fun of for it, i was...
    Otokonoko Otokonoko 16-17, M Apr 29

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    My day is surrounded by brilliant sunshine today..as far as the eye can see the sky is a beautiful crystal azure blue. I hear the birds outside my window singing away, so carefree...
    sensualbeauty1 sensualbeauty1 46-50, F 5 Responses May 3

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    The love in you're eyes, now turned to glass The tender in you're kiss, is now long past The charm in you're smile, now turned to hate The embrace of you're arms, is now not my...
    traceyannmay traceyannmay 22-25, F 3 Responses May 4

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    Aaron, pictured here, was an aspiring model that needed a break to get into the business. I offered to take various photos of him to make his portfolio to hand out to agencies...
    beachfoot12 beachfoot12 22-25, M 1 Response May 7

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    I don't know guys whether you're reading this or not, but I needed to write about it. Everything started 4 months ago, when my friend added me to a group chat with someone that I...
    Georgie505 Georgie505 18-21, M May 8

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    most of my picture takeing is with my kids and celebrities. Its what I enjoy and look forward to. My daughter has a pretty cool camera. I really want to be able to take photos and...
    sandyleejr sandyleejr 41-45, M 1 Response May 9

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    So "adults" say that we are all stupid and are too busy popping pills to be taken seriously. I beg to differ, not all of us are stupid. A lot of teens are already advocate of...
    redrosexxvii redrosexxvii 16-17, F 3 Responses May 13

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    I believe If we all take a moment out of our lives to do a selfless act, we could really make a difference. Last Tuesday, I was having a really bad day. My whole world seemed to...
    IanMoone9019 IanMoone9019 26-30, M 1 Response 6 days ago

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    Taking pics is one of my passions. Nature is my fav thing to take pics of but just about anything is worth a pic lol I'm always looking for THE pic to take. Now if only I could...
    Treesaw50 Treesaw50 46-50, F 5 days ago

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    I take a lot of pills just to function. I take 400 mg of Lamictal, 80mg Geodon, 120mg Latuda, 20mg Brintellix, 200+ mg of Benadryl, and 3-4mg of Ativan and melatonin and valerian...
    SeaOfMonsters SeaOfMonsters 26-30, F 3 days ago

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    Summer has just begon. Record-breaking temperatures are being recorded . There are many creative, even wacky ways to cool off. You can cut an ice cold watermelon in half, put your...
    niceskip niceskip 46-50, M 2 days ago

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    Here's a photo I got. I like how photography is an instrument into appreciating the little things we see in life. It contradicts the idea that the world sucks which is why when I'm...
    SofieAnonymous SofieAnonymous 13-15, F 2 Responses Apr 25

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    I tell everyone I'm doing OK but I'm really not. Truth is my life sucks right now and has been sucking for awhile now. I've totally let myself go. I don't work, go to school, hate...
    bmorev bmorev 22-25, F 2 Responses Apr 26

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    Catfish!!!Look how closly they watch the people outside their tank!!!The white one knows it is beautiful and takes center stage!The old man of the lake is 103 pounds and does not...
    LadyGypsy LadyGypsy 36-40, F 1 Response Apr 26

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    I do not own a fancy camera. My digital was less then $75. I still get dis cent photos on it but I would love some recommendations on cameras and lenses. I love taking close up...
    Nennie86 Nennie86 26-30, F Apr 26

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    Magnificent view of Carnival ship from the balcony of the Royal Caribbean, Liberty! Taken with an iPhone.
    TheRightFitforLife TheRightFitforLife 46-50, F 7 Responses Apr 27

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    I try...I really do...but i've been pushed down so many times and i feel like this time will be the last, my thoughts and dreams ( nightmares) are constantly invaded by memories of...
    Lyxdesicgal Lyxdesicgal 22-25, F 2 Responses Apr 28

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    ​I'm an amateur photographer. I've had an eye for taking decent pictures since I was a youngin. Finally decided to get a nice camera in 2011. I don't want to toot my own horn but...
    ashleeloraine ashleeloraine 22-25, F 10 Responses Apr 29

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    I wish I was here today. Taken 12/14 in Balmoral Beach Bay, Bahamas
    ashleeloraine ashleeloraine 22-25, F 4 Responses Apr 30

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    I take Many pics of myself and videos but no where to post them. thought I can make some money. anyone can help?
    angelove777 angelove777 41-45, F 6 Responses Apr 30

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    Life has mysterious ways of working out even though we have taken the rough paths and life guided us to the right path - the right ways of life.
    Stephen25 Stephen25 22-25, M Apr 30

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    I take so many. I dnt think im vain, but maybe a little deluded. Night guys xx
    TasStn TasStn 18-21, F 3 Responses Apr 30

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    I am a very giving, caring, and generous person. I am always the reliable one, and I always put others before myself. (Even when I am sick: physically or mentally.) If someone...
    RebekahWriter13 RebekahWriter13 31-35, F 2 Responses Apr 30

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