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I Take Tysabri

Personal Stories, Advice, and Support 38 People

    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    Related Experiences

    I have nothing prescribed to me. Just a bunch of over-the-counter meds. I take benadryl for my sinuses and to help me sleep. Sometimes I cave and take benadryl when I absolutely...
    Rocksparkles Rocksparkles 22-25, F 1 hr ago

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    Many of us have a strange tendency in relationships. We tend to feel something about someone – some hurt, some pain, some resentment and yet we wait and wait for things to go...
    restored87 restored87 46-50, F 6 Responses Nov 20

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    Howard beale - " I don't have to tell you things are bad. Everybody knows things are bad. It's a depression. Everybody's out of work or scared of losing their job. The dollar buys...
    MK25 MK25 22-25, M Nov 30

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    I work hard to get nowhere. Constantly get taken advantage of. But worst of all I'm stuck. Stuck in a house sharing a bedroom with a sibling that is bipolar and has borderline...
    Fulgurite Fulgurite 22-25, F 23 hrs ago

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    I really don't. Wake up every day, so tired and defeated that have to live another day, and that‘s even if I do sleep, which is extremely rare anymore. Have to force myself to...
    GhostOfGrey GhostOfGrey 31-35, F 3 Responses Nov 30

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    I have a gold ring that I wear all the time. When I sleep, as I shower, even if I needed to wear another ring, I'd still wear this one too. I got this ring from my father, and he...
    CoolManMcGoodName CoolManMcGoodName 16-17, M Dec 1

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    Though I’m careful not to overdo it nowadays. There’s an attraction once you start taking a supplement and feel minutely better to start taking loads for all the ‘aspects...
    morea morea 22-25, F Dec 5

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    My parents are so selfish and they've taken advantage of me whenever possible but through all of that, but I'd still choose to be taken advantage of. I'm stronger because of it...
    gglz18 gglz18 22-25, F 2 Responses Nov 17

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    my moms going to take my phone away when she gets back. every time I don't go to school because I'm sick, she decides to take it away because she feels I'm being defiant, and her...
    emgal emgal 16-17, F 2 Responses Nov 19

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    I try to hold on to good things and hope for the best, not the worse. But lately my walls are crumbling down on me. I'm so lost and confused. Not sure who is real, and who's...
    EyeDontGiveAHoot EyeDontGiveAHoot 36-40, F 3 Responses Nov 20

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    I have been a photographic nut for more years than most of you have been alive. It started in High School and continues to today. I remember a Christmas gift from my parents...
    dsm455 dsm455 70+, M 5 Responses Nov 24

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    I like to take pictures of anything. Making something that is taken for granted more often than not, and making it the center of attention gives me joy. I see something beautiful...
    dreamingoptimist dreamingoptimist 22-25, F 1 Response 5 days ago

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    When I look around I see people who are hurting either from the financial challenges they face, health or social issues surrounding them. The world seem not to be more fair on some...
    Rirchu Rirchu 26-30, M 2 days ago

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    I can be very picky, which I hate. I hate when they don't take a hint when im trying to be nice about it cause then I do it in a very mean way.
    Cakrissy23 Cakrissy23 18-21, F 1 Response Nov 17

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    I would like to have my butt hole trained by a female with small hands to train me to take whole hand inside me.
    johnb1936 johnb1936 70+, M Nov 18

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    Can't take it But it's like assigned to me By life The cosmos My own decisions both mental and relational. So I just struggle less and less to try and resist the pain and or run...
    J3didiah J3didiah 26-30, M Nov 19

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    I would love to take pictures, not the frustrated kind but for the love of taking moments and keeping it forever. I joined a media club, but what use do i have if i don't have a...
    needsoutlet needsoutlet 18-21 Nov 20

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    I give everyone advices, i listen, i know the problem and i know how to help them do the right thing to solve it, but when it comes to me, i dont know what to do, i take out my...
    DarkAngelxoxo DarkAngelxoxo 13-15, F Nov 20

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    I think I was taken advantage of but I'm not sure. I blacked out. I don't remember if I was dreaming or it was real life. I just feel weird (not as in spiked drink weird, mentally...
    oceanskat oceanskat 22-25, F 2 Responses Nov 21

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    It's weird taking compliments like "you're cute/attractive" or most positive things towards me BUT If you say you trust and/or respect me, I take them compliments and I love them...
    akaShaun akaShaun 16-17, M 2 Responses Nov 21

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    Started a new anti depressant medication hoping it'd have a much better effect, I read this medication helps ppl sleep.. I was already able to sleep only now I sleep and feel...
    heyitsabike heyitsabike 31-35, F 2 Responses Nov 22

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    I don't post on the internet but i do take many :P
    ash99906 ash99906 22-25, M 2 Responses Nov 22

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    I will take you as you are... Though all the flaws and your greatest demise. I will love, not run like the others. I'll stay.
    AzuraA AzuraA 16-17, F Nov 22

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    I do. Im a slow typer and have lots of things going on. Doesnt mean im not interested in talking, just means that It takes a lil while for me to: 1) think of what to say 2) grab...
    chocolatecurlz chocolatecurlz 18-21, F 1 Response Nov 22

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    I would love to have an Adderall buddy to talk about the experiences, the ups and down, and just the over all feelings of adderall. No one knows I take it so it's hard to keep it...
    itsmee33 itsmee33 22-25, F Nov 23

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    Day 30: 1955, The Desperate Hours starring Humphrey Bogart and Frederick March. Bogart and a couple of jailbirds take over a modern day suburban home and terrorize the whole...
    johnny048 johnny048 46-50, M 1 Response Nov 23

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    Sometimes if i want convey a complex series of thoughts into a message its hard to find the right words and it takes longer. Or i just don't know what to say atm
    TheWickedJester TheWickedJester 26-30, M Nov 23

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    My laziness and depression leads to days laying in bed, smoking pot and doing nothing but reading fanfiction. "I don't take proper care of myself" is becoming an understatement...
    BubbleCha BubbleCha 18-21, F Nov 23

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    I mean I don't really exercise minus dance and yoga . I eat junk food constantly because I'm too busy to cook for myself and no one takes out food I eat . I smoke . It's a habit...
    Alylovespuppies Alylovespuppies 18-21, F 4 Responses Nov 23

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    I respond right away but I'll also take as long as I please. I'm horrible.1
    ValhallaAwaits ValhallaAwaits 18-21, M Nov 23

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    any ladys want to chat about Taken in hand
    bstaats9 bstaats9 31-35, M 1 Response Nov 24

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    I used to take 20mg a day... But it didn't do much...
    catho catho 18-21, F 1 Response Nov 25

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    I have been taking care of my grandfather for awhile now. He is in a wheelchair. My dad and aunt were supposed to be caring for him but neglected him instead. My grandfathers...
    edemylove edemylove 22-25, F Nov 26

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