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I Take Tysabri

Personal Stories, Advice, and Support 39 People

    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 2 Responses Nov 17, 2012

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F 1 Response Apr 11, 2011

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F Jul 18, 2013

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Related Experiences

    Which is quite strange since when our shared mother whom I normally ADORE was pregnant with him and I was 5 I REFUSED to even hug her! But recently he was with me in the capital...
    AlphahatesOmega AlphahatesOmega 18-21, M 4 days ago

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    I'm kind of sick of all these pills, to be honest. Doctors have been force feeding me pills since I was 15 years old. I have to keep a running list of all the psychiatric...
    showusyoursouls showusyoursouls 22-25, F 1 Response 3 days ago

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    Here is The solution to are Carnival cruises all-inclusive, is alcohol incorporated on Carnival cruises, are foods and tender beverages A part of the fares. Study The most...
    Willy52yt Willy52yt 31-35, M 1 Response Aug 24

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    I've had a day to think about it. And the more I think about it, the sicker I feel. I feel like sharing it here will help. That's all I can hope for at least. Last night I was...
    emelon12 emelon12 18-21, F 2 Responses Sep 5

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    When I was about seven, I had to stay several days in the hospital for an infection. I had just put on the gown they gave me when the nurse came in to take my temperature. She...
    Bobbie1952 Bobbie1952 61-65, M Aug 18

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    I had my viriginty taken away by rape. I had my dad taken away from me , I had drugs take my mom away for me.
    youngadult14 youngadult14 13-15, F 1 Response Aug 18

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     I like to take pictures of pretty much everything. I wish I had a good camera to take good pictures and really set my own settings, but at the moment I take pictures with my...
    RichardAndon RichardAndon 22-25, M Sep 1

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    So if you red my depression experience then you already know I take Lexapro. Lexapro is an anti depressant pill that I was prescribed from my psychiatrist. So, I'm feeling horrible...
    foreverisabella foreverisabella 13-15, F Sep 6

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    I really don't care who reads this, I'm not looking for sympathy of any kind. I just need to tell someone... And maybe some one will take the time to read this. It's not that I don...
    TypoKytty TypoKytty 18-21, F 1 Response Aug 18

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    Stop asking! I don't take them! I won't take them! I mean I'll talk about anything, even bad stuff, that's fine, but I'm not sending n*ked pics of me out anywhere so here's your...
    CuteMandi CuteMandi 13-15, F 2 Responses Aug 19

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    people who own animals but dont take the time to meet their needs are awful. thats another life right there and its just as important as yours now take care of it. why are you...
    griefseed griefseed 13-15, F 1 Response Aug 22

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    I used to take Prozac and Zoloft in 2008 and felt more suicidal so I just stopped. I just take medication for my anxiety and other things.
    roselani2005 roselani2005 26-30, F Aug 23

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    Houses Which may be coming to the marketplace shortly but aren't however identified with a many listing company (MLS). They include pre-foreclosures, foreclosed homes and homes...
    Meljbr26d Meljbr26d 31-35, M 1 Response Aug 24

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    I will help him out later...guys wanna take selfie? "Guys need a help here" Me:but first lets take a selfie.. Say cheese! :D
    meokeju meokeju 22-25, F Aug 29

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    I want to take a break.. from technology. Other than music and you know, the occasional tv and phone calls/messages, and the occasional youtube (shh I need my pewdiepie), I want to...
    mournwiththemoonandthestars mournwiththemoonandthestars 13-15, F 1 Response Aug 29

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    i like to take pics. id love to take pics if a girl is beautiful like you...
    berealistic811 berealistic811 26-30, M 2 Responses Sep 2

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    A few years ago, even being as young as I am, I noticed a correlation in my life. I began to in my mind see, that bad things would happen to my family and loved ones while I was...
    NothingSpecialJustMe421 NothingSpecialJustMe421 16-17, F Sep 3

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    i hate taking pills and i take about 6 i can not swallow big pills so i have cut them in half anyway i take 6 pills 1 in the morning for polycystic ovaries, 2 at lunch which is...
    catsrule5678 catsrule5678 16-17, F Sep 4

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    OMG My left!! DO NOT take a picture of me from my left!! My right is the good side. And I'll take a 100 selfies before i get the perfect one and save it. Some of us were just not...
    tantra95 tantra95 18-21, F Sep 5

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    If I were to die today I don't know what would become of my family. They would surely make it financially, but would they ever cook, clean, or tend to the home in any way. I am...
    rrainfall rrainfall 31-35, F 1 Response Sep 9

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    I don't like having my picture taken. I don't like smiling because I hate my smile both forced and non-forced. I don't like getting my picture taken.
    jm4life jm4life 16-17, M Sep 9

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    I don't like to take pictures..... I love to take pictures!!!!! Beauty is everywhere! All you have to do is look for it!
    captainrum captainrum 46-50, M 5 days ago

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    So here's the thing. Most of us can reproduce Ansel Adams works. Not to take away from them, but to put simple, while beautiful they are boring. Looking back at all the...
    David4fun2 David4fun2 26-30, M 2 Responses 4 days ago

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    My friend's brother has orchestrated the divorce of his elderly parents for his own financial gain. The parents are elderly and the mother has beginnings of dementia. The brother...
    crede800 crede800 51-55 1 day ago

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    I have full memory on my phone as I take so many pictures hahaha
    lemoncurd10 lemoncurd10 13-15, F 2 Responses Aug 17

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    Maybe it's time to stop caring about people and take a break.
    FinnyFunny FinnyFunny 18-21, F Aug 18

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    So husband and I had our yearly fight finally. He's been feeling pressure from going to court and our drastically reduced budget, I've been feeding the press from my little side...
    TheWomanYouHate TheWomanYouHate 31-35, F Aug 19

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    I can only take so much stress, and then I explode. And when I explode, there's the whole deal: tears, tantrum, screaming. Yep. Where my mind is confused and overwhelmed, my body...
    Seblett Seblett 13-15, F Aug 19

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    I'm a **** haha i love to take pictures, selfies, underwear pics, bulge pics naked pics its all good to me. Oddly though im not keen on otehr people taking my picture haha
    surfdas surfdas 22-25, M 2 Responses Aug 20

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    Music and concert photography has always been my passion. I have an extensive portfolio of live music photography and have had my work published on several album covers and jackets...
    Unluckycharmed Unluckycharmed 46-50, M Aug 20

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    I've got a new mix of pills to try and let me sleep for once but there are so many... I'm afraid I'll overdose but at the same time I wouldn't really mind it. I'm going to take...
    YeahIKnowImSick YeahIKnowImSick 16-17, F 1 Response Aug 20

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    I really wished I did....I wish I could take back my cutting addiction it sucks people will ask me at school "why do wear all those bracelets?" And I'm like "if u saw u would stay...
    Botdf1shutup Botdf1shutup 13-15, F 2 Responses Aug 21

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    Everyone takes naked pictures of themselves at some point even if it's just to look at for themselves... Or is that just me?
    questionableG questionableG 18-21, M 5 Responses Aug 22

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    And it BUMS me out. So badly. I don't think I've taken my anti-depressants in days, maybe a half a week. I keep forgetting, and when I remember… I just don't do it. Why do we not...
    MissAutumn MissAutumn 18-21, F Aug 22

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