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I Take Tysabri

Personal Stories, Advice, and Support 39 People

    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 3 Responses Nov 13, 2012

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    Related Experiences

    Is it just me. I don't really take a lot of selfies. But when I do, I try to line it up so it's framed nicely (You've seen the epic fails of those who didn't check the background...
    VeronicaJane1 VeronicaJane1 41-45, T 23 hrs ago

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    Especially in person, it's a lot easier for me due to the help of body language. But through message or text, it kinda takes me awhile to figure it out but eventually, I can take a...
    Darkslinger Darkslinger 26-30, M 1 Response 2 days ago

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    I don't even take particularly good ones. I just enjoy taking pictures. Whenever I go anywhere I make sure to take a lot of photos!
    abi96 abi96 18-21, F 3 Responses a week ago

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    I'm not sure how long I will be gone but I know I will be back. Hubs had a heart to heart with me today and said he was concerned about the amount of time I spend on EP. He knows...
    pinkstarburst pinkstarburst 41-45, F 16 Responses Jul 21

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    Last year I took an AP Class at my high school, the thing is I'm not a smart kid at all and I later asked myself at the end of the year why did I even take the class. I have come...
    Karlsonkit Karlsonkit 13-15, M Jul 19

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    I take everything too seriously. It’s one of my many fatal flaws. Life for me is a walk in the park— well, the industrial park… And I’m Spongebob on the back of a red...
    Personalstories Personalstories 18-21, M Jul 14

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    I was about three years old and I meet this guy at school . . .we use to sit beside eachother on the bus and I told my mom about him and some how she knew his parents so we started...
    Makayla246 Makayla246 13-15, F 1 Response Jul 14

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    I find women smoking the sexist thing in the world. Love being used as a human ashtray by a smoking women having her flick her ash in my mouth and then making me eat her cigarette...
    spiderman666 spiderman666 22-25, M 1 Response Jul 14

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    Once I was told that I have "darkness inside" but, actually, I feel depressed because I see darkness all around me, in the people who I cross into, so I think that mine is just a...
    hashsoul hashsoul 26-30, F Jul 13

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    Helli guys :) I like to take pictures. If you wanna see pics of mature please follow @seetheworldsbeauty on Instagram
    ShawdowsStartsToSing ShawdowsStartsToSing 70+, F Jul 13

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    I am happily taken by someone very special that I hope to spend my life with ^^
    IzumiSK12 IzumiSK12 13-15, M Jul 12

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    I am going to take a shower alone. See you all later.
    mother1983 mother1983 31-35, F 4 Responses Jul 12

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    I really like to take pictures of people. I enjoy being behind the camera and finding that special look or special place. It gives me great pleasure to take a picture and make it...
    malexander564 malexander564 51-55, M Jul 12

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    The dry lands with olive trees surrounding the place I live, taken from a nearby hill.
    deleted deleted 26-30 1 Response Jul 12

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    I have my first rectal temperature taken nearly about 2 years ago. My partner took and he taught me how. He is a Doctor and a not a good one, A VERY GOOD ONE! sad to say, he can't...
    CheetoCrunch CheetoCrunch 36-40, F 4 Responses Jul 12

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    They wont let me stay to take pictures like this. Because housing cant house me fast. Moronically abusive thugs.
    Converted Converted 46-50, M 1 Response Jul 11

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    I haven't felt much like taking photos lately. I used to really love to take them. Just to see the simple this in life through the lens of a camera always made me so happy. To...
    BrokenAngel38 BrokenAngel38 36-40, F 2 Responses Jul 11

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    Tend to take them a lot 😊.
    trej222 trej222 13-15, M Jul 11

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    13 a day, in the winter it's only 12 because I don't need my Hayfever tablets then. I don't know when I'm well off though, my mum takes 27 pills every day and has been given...
    thedimone thedimone 13-15, F Jul 11

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    I have a howling wolf pendant necklace I haven't taken it off dice I got it apart from going swimming/a water park and my mum thinks I take it off when I go to sleep bit I don't...
    NalasTala NalasTala 13-15, F 1 Response Jul 11

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    My phone always tells me my memory is full to take any more pictures ;((((
    Babymelon Babymelon 22-25, F 2 Responses Jul 11

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    I have 3 rings that my bffs gave me and I never take them off the to Best guy friends
    blade12356 blade12356 18-21 Jul 11

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    A spinner ring for my thumb she got each of us. It only comes off if it may get damaged. It means more to me that some people. I would end a relationship if she couldn't accept...
    SeekingMyUnkown SeekingMyUnkown 26-30, M Jul 11

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    It's been a while since I had earrings in the second holes of my ears. Whenever I put earrings in them now, my ears become irritated. So I would eventually take them off...
    NaomiSunshine NaomiSunshine 31-35, F 1 Response Jul 10

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    one thing I always wear, my ygdrasil pentagram. as well as a Celtic knot-work ring. I'll get married with that ring, and I'll never take off my necklace, save for a bath/shower...
    Mike3569 Mike3569 22-25, M 1 Response Jul 10

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    I'm so tired of asking my H to fix this or take care of that. He's rarely home..workaholic, but when he is, he's parked in front of the t.v., apparently incapable of movement. It...
    fallensparrow fallensparrow 51-55, F 2 Responses Jul 10

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    I am a Mormon. I wear a crucifix. I hate the Mormon choose the right rings because they're not pretty and they are ugly. And I can relate more and want to obey with the reminder...
    zoesimonesays zoesimonesays 16-17, F Jul 10

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    jade bracelet. i got it in China and it came with an identical pair. I gave the other one to my grandma, who's currently in the hospital. She and I agreed to never take ours off so...
    Seraphine246 Seraphine246 31-35 1 Response Jul 10

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    I use to take a vacation at least 2 -4 times a year. I got in this marriage and he is old fashion. He do not like to go out of town, neither spend the night. He feels like he has...
    Babeondwy Babeondwy 41-45, F Jul 10
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