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I Take Tysabri

Personal Stories, Advice, and Support 38 People

    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 3 Responses Nov 13, 2012

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    Related Experiences

    I'm on effexor xr 75mg and invega 9mg and I have this awful feeling in my chest like my heart's going to explode, it's not quite guilt or anxiety it's just this awful feeling in my...
    ShadowOnTheSun ShadowOnTheSun 18-21, T 1 Response 5 hrs ago

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    Take me to a place where I have never been. Take me to a place where our eyes can truly meet, no matter what the world say about your serious look You will give me a broad smile...
    winterfall winterfall 36-40 Mar 28

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    She seems a million miles away When she walks by, you don't know what to say You gonna make a move, you better make it now Don't be afraid, 'cause love will show you how You take...
    TheScorpio1966 TheScorpio1966 46-50, M Mar 26

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    My mother suffers from a lot of things. One of her legs is longer then the other so she had bad posture and her back hurts all the time. It got to the point to where it hurt so...
    WlCKED WlCKED 18-21, F Mar 22

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    I've always loved this-even as a kid. And this even PRE-dates me--this version--by a whole YEAR! To me there is no better vocal arrangement of it-or interpretation-(Artie Shaw...
    Elandra77 Elandra77 56-60 Mar 28

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    With everything. Life, homework, traveling, drawing, work, driving, and others things. Whether * do or don't want to, * can't, even if it's important, needs to get done, or...
    CrossCresentCreed CrossCresentCreed 18-21, F 1 Response Mar 29

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    I never take selfies, it just seems so wrong. I only take self-portraits. :DAnd yes, the hair is terrible, the skin is oily and the beard is distracting... Just shu...[Message...
    KimKarlsson KimKarlsson 16-17, M 1 Response Apr 5

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    i'm 20. and i just had one ex. yes i take relationships REALLY seriously. i don't know, maybe because of our culture but i know it's really myself. i really take relationships for...
    MrRadicals MrRadicals 18-21, M Apr 8

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    I didn't believe in God until I started having the strangest things happen to me. First they were subtle little things that could have been set up. Then they graduated to paranoia...
    SeasonsinHell SeasonsinHell 22-25, M 1 Response Apr 9

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    It's great to have lasting memories through print or electronic storage. You can take a look at anytime and reflect on what took place at that particular moment. Modern...
    Danielle1011 Danielle1011 51-55, F 4 days ago

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    I can't get this song out of my head."Take Me To A Higher Plane"I feel worried that my brain is just a fool in your sick gameSo I will never open my heartI try to express how I...
    dialzero4fun dialzero4fun 46-50, M 1 day ago

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    i like when relationships are kinda serious. like obviously i love joking around, but i think that some of the relationships i have been in before were just bad. i wanted to take...
    morgancoppage morgancoppage 13-15, F 1 Response Mar 22

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    and have my picture taken. I like to show them to strangers. It's exciting.
    jessicaxoxo420 jessicaxoxo420 26-30, F 19 Responses Mar 23

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    I'm starting to love editing pictures and recording vids I was bored and thought I'd take selfies and edit them whatcha think xP <3 :]
    Dezitorsmilez Dezitorsmilez 18-21, F 3 Responses Mar 23

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    This is Lincoln Cathedral taken from the battlements of Lincoln Castle . Lincoln Castle was used as a back drop for some scenes filmed for Downtown Abby . They called it York...
    Homejames Homejames 46-50, M 1 Response Mar 23

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    Like the movie... Dear Gawd you better watch out for my dad, he's gonna mess a fella up... I am taken to myself...
    Orchidspetals Orchidspetals 36-40, F 1 Response Mar 23

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    It's not working I've been on them for over a month and I have not gotten better at all I am constantly at my lowest point and it's so horrible I cannot take it any longer there is...
    neutralwalrus neutralwalrus 70+, M 1 Response Mar 25

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    im old fashioned. its sickning to me all these transgenders around. these people along ws should not be praised they truly have a severe mental disorder. they are not right in the...
    RamboJohnJ RamboJohnJ 26-30, M 3 Responses Mar 25

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    I like to take pictures. Is it bad if they're of myself and I send them to other people?
    SandsofTimes SandsofTimes 18-21, M Mar 25

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    I'm thinking "HEY" great idea for a job. You need a new bra and you're of legal age. You call my personal new business. I come by pick you up and take you shopping for the perfect...
    AfanOfbigNaturals AfanOfbigNaturals 46-50, M 3 Responses Mar 26

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    I really do. Life is great, full of wonder. It is gregarious, full of sorrow. Live is exciting, full of discoveries. It is mundane, full of redundancy. Life is beautiful, full of...
    stupendusdude stupendusdude 46-50 3 Responses Mar 26

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    I am submissive woman who wants a man who will take care of her, handle all responsibility and discipline when needed, im tired of always being the one to.do.it all. call me old...
    Kmek3232 Kmek3232 31-35, F 6 Responses Mar 27

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    These last couple of days have been the worst of my life, I found a lump in my underarm, I was worried but enough to go to the doc, but not that much. Cancer goes in my family, but...
    lily449 lily449 18-21, F Mar 27

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    These last couple of days have been the worst of my life, I found a lump in my underarm, I was worried but enough to go to the doc, but not that much. Cancer goes in my family, but...
    lily449 lily449 18-21, F Mar 27

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    Breaking up with me and telling me it's not my fault took a considerable toll on me. I need to think about what I could have done wrong, or what I should have done better. In any...
    Alyyeska Alyyeska 26-30, F 1 Response Mar 27

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    I take them to reveal myself to others and to express what I am thinking or feeling
    TornSoul13 TornSoul13 36-40, M Mar 28

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    they take too long and theyre overrated
    Beutifulman1970 Beutifulman1970 41-45, M Mar 28

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    About 6 months ago I finally stopped taking antidepressants after being on them for 18 years. It was the final step in overcoming depression. I was worried at first thinking I...
    hadyourchance hadyourchance 36-40, F 5 Responses Mar 29

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