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I Take Tysabri

Personal Stories, Advice, and Support 39 People

    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 2 Responses Nov 17, 2012

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 26-30, F Jul 18, 2013

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F 1 Response Apr 11, 2011

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    Related Experiences

    I have went from 40 mg to 30 to 20 to 15 to 10 mg. I was told since I was a little girl that I needed adderall. I will never forget in junior high being called into the nurses...
    Shmeather1234 Shmeather1234 26-30, F 1 Response Jul 22

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    It would just be nice to be taken care of for once. I take care of everyone else I make my family dinner every nite pack a lunch for my husband and older son, I run kids all over I...
    krisina krisina 36-40 3 days ago

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    everytime i get together with my girls, or boys u knw its picture time, i feel like if i dnt take that moment i will never see it again. so i take everything every time. i love how...
    mamello mamello 22-25, F Jul 15

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    I have this habit of taking it personal when a friend doesn't take the time to try to talk to me (she's probably just busy with life, like me) or doesn't take the initiative to try...
    brittanys13 brittanys13 22-25, F Jul 15

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    I'm 17 and i'm about to turn 18 on August 7. The reason I havent been able to is because, every time I want to take, my mother never takes me. She always says to study it and on...
    Vanessanicolexo Vanessanicolexo 16-17, F Jul 19

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    I know what it's like to grow up without having been cared for by parents or any guardians. Every thing good that has been done has been followed by an equal or worse price to pay...
    kiddishguy kiddishguy 26-30, M 1 Response Jul 4

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    I always dreamed that I would be kidnapped taken to a a castle of some kind and taken as a tickle slave where there are all kinds of bondages and tickle tools and I am tickled...
    oceanskywalker oceanskywalker 18-21, F 1 Response Jul 7

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    I can admit, I don't know how much more I can take. I am tired of crying. Not being about to be where I want to be. Not having something that I have never had. How many people can...
    HollySch13 HollySch13 26-30, F Jul 7

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    I've been ok. Started taking an anti anxiety pill that has left me feeling numb. Only 10mgs I remember I was on it at 20/40mgs but it gave me headaches and a ringing in my ears. So...
    heyitsabike heyitsabike 31-35, F Jul 10

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    A picture paints a thousand words, or so they say. I try to take a camera everywhere with me, because when I haven't had it with me, that's the time when the ideal picture presents...
    CarMechanic CarMechanic 66-70, M 4 Responses Jul 12

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    Who doesn't like to take pictures😊 i love to take selfies😎
    Ashley989 Ashley989 22-25, M 1 Response Jul 12

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    I love to take pictures, my mom says I act like a tourist. Everywhere I go I take plenty of pictures, upload them on the computer, print them out and put them in a scrapbook :)
    MeowChan99 MeowChan99 13-15, F 1 Response Jul 15

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    I can't take it anymore I feel like I am going to lose my girlfriend and that I can't take it anymore! I feel like I am being force to give up by everyone I feel like I can't love...
    ECrierie ECrierie 16-17, M Jul 19

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    I can't take it anymore! I always am being called names by my moms ex. He shouldn't even be there! Why doesn't my mom see that he's treating me like this! Sure I have anger...
    YLIhououin YLIhououin 18-21, M 1 Response Jul 19

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    It takes a lot for me to hate someone. So to be specific I don't hate the person I hate the behavior. I deal with kids five days a week all day in the summer. It's a martial arts...
    BleedingOrchids BleedingOrchids 13-15, F 1 Response 5 days ago

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    Oh My GODDDDDD!!!! The starfish are gonna take over the world! Their army is enrolling, they've joined forces with the jellyfish and the penguins, and they've already taken a shot...
    InternationalDarkness InternationalDarkness 13-15, F 3 Responses 3 days ago

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    So it's been 15 days since we had protected sex (we used condom and he didn't come either). We just did it for 2 mins or less. I have taken 6 HPT's already just to find out if i...
    BakerQueen14 BakerQueen14 22-25, F 1 Response Jun 30

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    I have had prenty of Dates but i can't happen to find that one person who can knoch me off my feets . Its like though am just meeting the wrong Men . I don't know if there's a...
    ithinkthisway ithinkthisway 26-30, F Jun 30

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    I love taking photos! I take selfies all the time.. Once in a while I post them to my photos in my profile. I recently posted a couple more with part of my cosplay
    SammiKitten SammiKitten 16-17, F 3 Responses Jun 30

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    I started off at 10mg as a mood stabilizer to help fight side effects i had from taking Vyvanse. I think it is the fact that these can have worsening side effects when taken...
    chemically99 chemically99 13-15, F Jul 1

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    Join my army today Requirements 1. Must be insaneish/crazy 2. Must want to take over the world 3. Do weird things....
    eatthekids1stplease eatthekids1stplease 18-21, M Jul 1

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    If you have got time and ar committed to creating the foremost Gold, the most effective thanks to try this is via crafting. Late within the game, crafted things are often among the...
    mmogoogle mmogoogle 22-25, M Jul 1

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    day 15 – a song that describes youRegrets collect like old friendsHere to relive your darkest momentsI can see no way, I can see no wayAnd all of the ghouls come out to...
    izzypie izzypie 36-40, F Jul 2

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    Eventhough I am not too pretty, I love taking my own picture or what do they call selfie pictures. Not that I am a narcisistic person but I just enjoy making faces infront of my...
    kimkyu kimkyu 22-25, F Jul 2

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    Pictures capture so much. It wraps up the feeling and the memory and I love that so much. I take pictures as often as I can, of everything.
    classytami classytami 18-21, F Jul 3

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    So I started taking it about a week ago, don't know if it kicked in yet but I've been feeling calm lately. I've had bad days but I haven't been down yet or went in to a fit of rage...
    londepV londepV 22-25, F Jul 3

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    I really do take the time to read the stories of other EP members on here. It's the only way to get to know people. I especially keep tabs on people in my circle but others as well...
    johnny048 johnny048 46-50, M 3 Responses Jul 4

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    This is the most recent picture i've taken with my phone. It's really bad quality because my phone isn't the best.
    hornewrecked hornewrecked 16-17, F 4 Responses Jul 4

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    This is so true for me. I hate if someone points camera at me and i am so glad we are not allowed to have mobile phones at school, so no girl can take pictures.
    yulico yulico 13-15, F 5 Responses Jul 5

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    If I could, I would take all the pain in your life, you don't deserve to feel hurt- no one does. But I don't mind, as long as you are happy. You deserve to be happy after all, if...
    Error404nameunknown Error404nameunknown 13-15, F 2 Responses Jul 6

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    I take public transport to work and I enjoy it. Instead of focusing on driving on the road, I can just zonked out and let it carry me to my destinations. But there are times I...
    HappieStinger HappieStinger 41-45, M 2 Responses Jul 7

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    I also had another fantasy where I would find the most beautiful ticklish girl kidnap her taker to my secret tickle palace and tickle her whenever I wanted. I would tie her up in...
    oceanskywalker oceanskywalker 18-21, F 2 Responses Jul 7

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    I cant take the emotional pain in my life anymore, i either go nuts or i die of some sickness in my future.
    angel8i angel8i 31-35, F 1 Response Jul 8

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    I still get my temperature taken rectally
    lexie119 lexie119 31-35, F 1 Response Jul 8

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