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I Take Tysabri

Personal Stories, Advice, and Support 40 People

    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    so, December 15th was the date of my second

    infusion. so far not so good. jcv came back negative so that's that but side effects blow. I had a uti for nearly three weeks the first time. severe headache and flu like symptoms the first two days. this time, uti again and it seems as though every ailment I suffer has become...
    Vnel Vnel 22-25, F Dec 21, 2015

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 3 Responses Nov 13, 2012

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    I love having my underwear taken off by someone and I don't care if it's woman or men I just love it when I am laying on the bed and am told to raise my *** and thay grab the the...
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    I would be more than happy to take a look for you. just lay down and let me take a peak or two.. :)
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    Indecisive people bother me, especially the women I date. Never been afraid to take charge in any situation I find myself. Can't decide where to eat. ....I will tell you where we...
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    ive taken an online IQ test and this is the ******* email i received...Ugh!!
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    It's getting to the point now if I don't know if I can keep going. I am practising acceptance and making peace with what may come to me. But what I can't take anymore is the...
    32forever2016 32forever2016 31-35, M Jan 27

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    I do not take adderall, But I am afrtraid that I have ADHD, and am talking to my Psychiatrist about taking ADD meds, I was always a terrible student K-12 and now I am in college...
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    But first, let me take a selfie!
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    When people tear you apart and promise to leave your life, they should keep that promise. I can't take any more pain so go far away from wherever I am, please.
    ErraticSarcastic ErraticSarcastic 26-30, F Jan 26

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    When it's too dark to take a decent profile picture. Grrr....
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    I wasn't raped. In that sense of "taken advantage of." But let me tell you, being used for sex and then left with nothing more than being told that you're meaningless, that you're...
    asterlime asterlime 18-21 Jan 26

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    Don't take selfies when your drunk. You'll make an *** of yourself.
    trashsash trashsash 16-17, F 2 Responses Jan 26

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    I, like my dad, love to take pictures. Mainly I take them of my parrots. Recently I took some close ups of flowers at the supermarket. My phone is a Samsung Galaxy S6 and I swear...
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    I found out I had diabetes in October 2014. Now, I have to take medicine everyday and I struggle with remembering! I don't have to take as much as most and thank goodness I don't...
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    I gotta take this semester serous. actually I gotta take school serous for now on. Until Spring break, I'll be back Until Summer break. I'll be back Until Fall break or winter...
    ZardaF5 ZardaF5 26-30, M 1 Response Jan 26

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    Well, usually just my pants (no panties) because I've ran into a few obstacles when peeing w my pants on. I do take them all off if it's prior to a shower. I've recently discovered...
    whatalifetolive whatalifetolive 36-40, F 4 Responses Jan 25

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    Guys you have to learn to relax once in a while. Some things in life are too hard for you to be serious about. Take a break, do something productive.
    theguywiththeredhair theguywiththeredhair 18-21, M Jan 25

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    I'm a good girl. I never smoke and never take any illegal drugs . But I tried to drink and it doesn't work. I'm glad that I have an allergy in any alcohol drinks.. :)
    melodyyyy melodyyyy 18-21, F 1 Response Jan 24

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    I would love any man really to take me and share me with his friends stretching me!!
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    Hey...don't ignore this,just give me a chance to explain Don't grab your "tools" whenever you feel bad.Remind yourself what will happen if you give up.How are you going to deal...
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    There were some naughty ones taken on my first honeymoon, not sure what happened to those ones, but I was really surprised I could talk my wife into them. Otherwise I do take some...
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