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I Take Tysabri

Personal Stories, Advice, and Support 39 People

    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F 1 Response Apr 11, 2011

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 2 Responses Nov 17, 2012

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    Related Experiences

    I admit that I have just joined EP and I did so because I noticed my 15 year old daughter scanning (or is the word surfing?) through here just after I received my usual snarls and...
    beccarnmommy beccarnmommy 41-45, F 4 Responses 2 days ago

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    I'm pretty laid back. I like to think I have a good sense of humor. I can laugh at myself. I don't mind being the butt of the joke, as long as it isn't cruel. And if it is, I can...
    smarmybrat smarmybrat 26-30, F 1 Response Oct 5

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    I love to take pictures but a lot of my "friends" make fun of them a lot. They also have nice cameras and think their photos are so much better than mine. I think they try to make...
    nothingbutmissingyou nothingbutmissingyou 13-15, F 8 Responses 1 day ago

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    Check out this box if you'd probably not prefer to obtain our Distinctive specials email newsletter that contains terrific hotel promotions.I'm a daily at Jetwing Blue as the...
    Keniaga838 Keniaga838 31-35, M 1 Response Sep 24

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    Like you're carrying the world atop your shoulders. That's how I always felt, with friends, family, work. I somehow always blame myself when something goes wrong. I act all...
    lonelydinosaur lonelydinosaur 26-30, F Sep 27

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    I just started taking Zantrex 3 Fat Burner in the red bottle today and it really curbs my appetite and makes me have extra energy. So far I haven't had any side effects and was...
    fallout07 fallout07 18-21, F 2 Responses Sep 28

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    I take heaps like say my hair is really cool, I will take heaps of photos with it till i find one I like! (Like the pic I put In with this)
    LLAMAAAA LLAMAAAA 13-15, F 1 Response Oct 1

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    I can't do it anymore. I wanted to be strong. I don't want to guilt him. I didn't guilt him last time. He came back on his own. I only left him two messages, neither pressuring nor...
    WingsofTime WingsofTime 22-25, F Oct 3

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    I hate how some people smoke or drink or do drugs eat extremely unhealthy. I know a lot of it is either their choice or something they can't control I won't judge some one by it I...
    singledaddy101 singledaddy101 31-35, M 1 Response Oct 5

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    I'm a junior at some lame high school... I get very depressed going to school everyday. The teacher's are great, nice, some are sympathetic--but I don't enjoy having things...
    ifollowthemoonlight ifollowthemoonlight 13-15, F 1 Response Oct 5

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    fly towards unknown placeno fear of winning any raceas i take off my feeti am sure i can take a lead.....................
    daphee daphee 22-25, F 3 Responses Oct 11

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    I have not had them taken of me! I have been the photographer taking them for more than 30 years. The term boudoir photos is relatively new, but the photos have been around almost...
    CharleyT3000 CharleyT3000 51-55, M 1 Response Oct 13

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    I went to the psychiatrist today and told them that I was showing symptoms of depression. Looks like I will start taking prozac. I have never taken medication, so I am curious as...
    onafaerieswings onafaerieswings 18-21, F 2 Responses Oct 13

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    I love to take pictures where i have been and love to take nature pictures also
    harrymyself harrymyself 26-30, M 5 days ago

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    I have taken it and now have the correct type This Explains A lot- I Am An INFJ! Stats Rarest personality type; estimated 2% of population. Characteristics private sensitive...
    OppressedLuna OppressedLuna 13-15, M 5 days ago

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    I'm a super shy person with a big mouth. but in the bedroom a man can only take control of me. and I like to take control of a women... I've very dominating and love when I get to...
    chinamary1 chinamary1 26-30, F 1 Response 2 days ago

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    How do I STAY motivated to workout? especially since its getting colder outside in the winter months. Is it crazy to try to eat healthy in the winter when everyone is trying to...
    beccaishere89 beccaishere89 22-25, F 4 Responses 1 day ago

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    I have always taken relationships seriously. Because of this I have only been in one relationship that is my current one. We both take our relationship very seriously and we...
    ForgottenCelestria ForgottenCelestria 16-17, F 1 Response 1 day ago

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    I don't need a freaking guy to take care of me or love me, i can take care of myself and love? God is there for it ;)
    LovelyBitch1 LovelyBitch1 16-17, F 1 day ago

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    I would take a bullet for you Becuz it'd break my heart in 2 If I saw that blood stain not on me, but on you So yes it may be cheeky, And also maybe corny, But I would take that...
    JazLife21 JazLife21 13-15, F 8 hrs ago

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    I take so many photos on my phone that I run out of memory and have to transfer them to my computer once a month and I send my favorites to Groovebook to get printed. It's almost...
    Maybaby24 Maybaby24 22-25, F 3 Responses Sep 24

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    My new baby. I've started learning to play. All I can say is it can be a bit painful on the fingers when you have very weak skin. lol Plus I was pressing the strings to hard. to...
    SadisticPsychoBitch SadisticPsychoBitch 31-35, F Sep 24

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    You will never find the perfect friend or mate. It is impossible. That is why I believe in give and take in every relationship, be it plutonic or romantic. We all are so different...
    johnny048 johnny048 46-50, M 1 Response Sep 24

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    I'm about to lose it all. I can't take this horrible feeling anymore.
    HisDaysAreNumbered HisDaysAreNumbered 18-21, M 1 Response Sep 24

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    I see beauty in everything. So I take as many photos as I can before society eats away the beauty of the world, leaving it a grey mess.
    raspberryicetea raspberryicetea 13-15, F Sep 25

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    Ever since I started listening to Linkin Park's The Hunting Party, I was thinking I could start off somewhere other than electric keyboard. So guess what? :P I chose to take up...
    TetraZL TetraZL 13-15, F Sep 26

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    betterlifechallenge.com Better Life Challenge #1: Talk to three new people, each day. In person, not online or through phone. All human beings are connected to one another...
    Margavita Margavita 22-25 Sep 26

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    .-. Aha yeaas.. Like to many x) but I hate it when people watch me take a picture.. Like ew no..
    akaKitten akaKitten 16-17, F Sep 26

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    Sorry peeps ;) I'm taken by the love of my life
    Harrley Harrley 13-15, F 2 Responses Sep 27

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    When I was younger I wanted to be a journalist. That was my big dream for the future so of course I recorded everything I could and did little stories on it. As I got older it went...
    Plungeintoadream Plungeintoadream 18-21, F 1 Response Sep 27

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    My boyfriend and I having a long distance relationship from the day we met, it's now almost 10 months, but I can only say we start our real couple relationship since last month as...
    Maggiehere Maggiehere 22-25, F 1 Response Sep 27

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    I would love to be taken by U xoxo
    LilLexi16 LilLexi16 16-17, F 2 Responses Sep 28

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    Oh if only! Take two tablets and return to bed with a huge grin on your face:)
    picklebobble picklebobble 46-50, M Sep 28

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    Soo with that being said.. take control Lol
    foreverequalsinfinity foreverequalsinfinity 18-21, M Sep 28

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