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I Take Tysabri

Personal Stories, Advice, and Support 38 People

    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Related Experiences

    I can't take anything seriously these days that it's come to the point that I feel apathetic and numb to everything. My friends, my part-time job co-workers (though this makes...
    Unable2Breathe Unable2Breathe 22-25 1 Response 1 day ago

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    And you know what I want to say to medical professionals who say I take to much or I have been on it for too long? **** OFF! I have had migraines and anxiety issues since before I...
    simplysusan01 simplysusan01 41-45, F 1 Response Feb 18

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    One of my coworkers is always asking me to cover her shifts and help her out and i have done it so many time. I really don't mind, especially when I work one day a week and she...
    maggiemae89 maggiemae89 22-25, F 2 Responses Feb 6

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    I am body confident yet dislike having my picture taken. I hate posing for pictures, I don't really know why. Hubby likes to take pictures of me and I always find it .. a deep...
    JayneNF JayneNF 31-35, F 6 Responses Feb 18

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    Not long, I promise. I take concerta. i went from 19-27-36-54 mg. I hate hate hate it. I have to take it becuause i say weird stuff that make no sense and i get in trouble by...
    loveoreosnutella loveoreosnutella 13-15, F 1 Response Feb 16

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    My Walk Alone---- Preface-- This is a continuation of the story, or plays around the story of "New Year's Day Walk " (not currently posted) and it's sequel "Our Last Walk...
    Elandra77 Elandra77 56-60 1 Response Feb 18

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    Sweet Desires To know, and be known, To love, and be loved, To lust, and to be lusted after, To pursue, and to be pursued, To surrender, and to be victorious, To dominate, and to...
    hardbargain hardbargain 46-50, M 5 Responses Feb 18

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    I hate to take my medicine I don't remember the last time I took it but I really don't like to. I have bi-polar and I get really mean and depressed and have break downs wen I don't...
    LostUnderSubmission LostUnderSubmission 16-17, F 1 Response Feb 19

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    The first night with my master was surprising and sexy. He sprinkled rose petals all over the house and had a bath drawn with tea light candles floating in the water.. After giving...
    LilLexi16 LilLexi16 16-17, F 4 Responses Feb 21

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    I take 3 pills for Crohns disease, 2 different antidepressants/antianxieties, 1 for blood pressure, vitamin d, vitamin b complex, probiotics, omega 3, vitamin c, iron, glucosamine...
    R177 R177 18-21, M Feb 21

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    I have tried an tried again to be what he wants. I can never be. The moment I have any happiness. He has to crush it. Why do I not just go away? Six foot under cant be that bad. No...
    Txwoman123 Txwoman123 41-45, F Feb 22

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    I'm 21 years old. I was diagnosed with Bipolar Type 1, Rapid Cycling when I was just 8 years old. I've been on medication basically since then. I was really lucky as a kid because...
    sweetsmarts sweetsmarts 18-21, F 1 Response 4 days ago

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    so I went shopping and purchased some new bits and Bob's for my house I was feeling so confident and just positive for the next set of purchases especially after not having enough...
    lilygeorge12 lilygeorge12 22-25, F 4 days ago

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    yes i have when they put me in a mental hospital. i was detained. it made me feel like a criminal and not a sick person at all . it made me feel i did somethink wrong.and i was...
    furrycats furrycats 31-35 2 days ago

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    I have posed for photos taken by my ex boyfriend, and I have taken a lot of selfies. Digital photography is so much easier than the photography with film negatives and everything...
    Astrucbmt Astrucbmt 22-25, F 10 Responses 2 days ago

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    I hate having my picture taken by a random stranger... so I'm on my way home on the bus this guy was with his girlfriend, she was falling asleep non the wiser of his stupid stalker...
    lilygeorge12 lilygeorge12 22-25, F 1 Response 1 day ago

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    Wow, kinda cool to find this topic. Back in October 2014, I was asked by my boss and my boss' boss if I wanted to take a new position within the team. I didn't hardly hesitate at...
    AlwaysPersevere71 AlwaysPersevere71 41-45, M 1 Response 3 hrs ago

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    Especially when I'm with my boyfriend like you can clearly see I'm taken. The worst was when this guy who was hitting on me (in front of my bf) kept following us around after I...
    Sxculent Sxculent 18-21, F 1 Response Feb 6

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    Ita saturday and i have taken three naps. om so proud of myself.
    Cheshirecupacat Cheshirecupacat 13-15, F Feb 7

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    The next time my heart takes more pain, I don't think I will be able to bare it... I think it would be nice in a way to just give up. What pulled you through the tough moments?
    Harper101 Harper101 16-17, F 5 Responses Feb 8

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    My husband takes me to the barbershop every six weeks for a hair cut, and neck shave. He likes me in short so now I have to keep it short, Do other women get there hair cut in a...
    HAIRCUTTER10 HAIRCUTTER10 56-60 2 Responses Feb 8

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    Everything's been going wrong today and yesterday. ******* everything. I'm already depressed and suicidal and anxiety-ridden even before the last couple of days, but now I'm just...
    polyglotparrot polyglotparrot 13-15, F 1 Response Feb 8

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    https://www.surveymonkey.com/s/R2DCWBF Would everyone help me take this 1 question survey with yes or no answer regarding homosexual marriage for my AP government and politics...
    Avatarmecha Avatarmecha 18-21, M Feb 8

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    When we sing our life like a lullaby, luv will come to us on its own... but remember... luv is just one side of the coin... with love comez...suffering.....! So its like u want sun...
    celestialsoul celestialsoul 36-40, F Feb 9

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    Just because I like to take a zillion pictures on my iPhone doesn't mean that you're entitled to see a single one! Nor does it mean that I want pictures of male anatomy--you aren...
    YellowGirl225 YellowGirl225 22-25, F 2 Responses Feb 9

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    I used to take cocaine. and if I'm honest I miss it. but my current partner is absolutely against it. relationship breaking against it. I'm wondering is it all worth it. It's not...
    amberlise amberlise 22-25, F Feb 10

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    I take .5 twice a day. Is that too much and need to worry about it?
    tweetybird1975 tweetybird1975 36-40, F Feb 10

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    Apparently when A guy takes a selfie its gay jeez society calm down lol
    silverstrike silverstrike 13-15, M 1 Response Feb 11

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    I wish I could stop but I love the feeling of not being in control to have no grip on my surroundings I love getting lost its a sensation I love how happy I feel but it takes more...
    elizachloe06 elizachloe06 18-21, F 3 Responses Feb 13

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