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I Take Tysabri

Personal Stories, Advice, and Support 39 People

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    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F 1 Response Apr 11, 2011

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 2 Responses Nov 17, 2012

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    Related Experiences

    I'm pretty laid back. I like to think I have a good sense of humor. I can laugh at myself. I don't mind being the butt of the joke, as long as it isn't cruel. And if it is, I can...
    smarmybrat smarmybrat 26-30, F 1 Response Oct 5

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    I cant take being alone anymore. I cant take never feeling good enough. Its too much. Yeah say whatever crap u want about me being too young. But that doesnt mean it doesnt hurt.
    Dontlookbackk Dontlookbackk 16-17, F Sep 22

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    Check out this box if you'd probably not prefer to obtain our Distinctive specials email newsletter that contains terrific hotel promotions.I'm a daily at Jetwing Blue as the...
    Keniaga838 Keniaga838 31-35, M 1 Response Sep 24

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    Like you're carrying the world atop your shoulders. That's how I always felt, with friends, family, work. I somehow always blame myself when something goes wrong. I act all...
    lonelydinosaur lonelydinosaur 26-30, F Sep 27

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    I just started taking Zantrex 3 Fat Burner in the red bottle today and it really curbs my appetite and makes me have extra energy. So far I haven't had any side effects and was...
    fallout07 fallout07 18-21, F 2 Responses Sep 28

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    I take heaps like say my hair is really cool, I will take heaps of photos with it till i find one I like! (Like the pic I put In with this)
    LLAMAAAA LLAMAAAA 13-15, F 1 Response Oct 1

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    I can't do it anymore. I wanted to be strong. I don't want to guilt him. I didn't guilt him last time. He came back on his own. I only left him two messages, neither pressuring nor...
    WingsofTime WingsofTime 22-25, F Oct 3

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    I hate how some people smoke or drink or do drugs eat extremely unhealthy. I know a lot of it is either their choice or something they can't control I won't judge some one by it I...
    singledaddy101 singledaddy101 31-35, M 1 Response Oct 5

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    I'm a junior at some lame high school... I get very depressed going to school everyday. The teacher's are great, nice, some are sympathetic--but I don't enjoy having things...
    ifollowthemoonlight ifollowthemoonlight 13-15, F 1 Response Oct 5

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    fly towards unknown placeno fear of winning any raceas i take off my feeti am sure i can take a lead.....................
    daphee daphee 22-25, F 3 Responses Oct 11

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    I have not had them taken of me! I have been the photographer taking them for more than 30 years. The term boudoir photos is relatively new, but the photos have been around almost...
    CharleyT3000 CharleyT3000 51-55, M 1 Response 6 days ago

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    I went to the psychiatrist today and told them that I was showing symptoms of depression. Looks like I will start taking prozac. I have never taken medication, so I am curious as...
    onafaerieswings onafaerieswings 18-21, F 2 Responses 6 days ago

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    I love to take pictures where i have been and love to take nature pictures also
    harrymyself harrymyself 26-30, M 1 day ago

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    I have taken it and now have the correct type This Explains A lot- I Am An INFJ! Stats Rarest personality type; estimated 2% of population. Characteristics private sensitive...
    OppressedLuna OppressedLuna 13-15, M 1 day ago

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    When you make a Draugr death lord look good..you learn to take photos to avoid having to be in them.
    ArnoldJRimmer ArnoldJRimmer 46-50, M 1 Response Sep 19

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    I love taking pictures! I take tons of pictures of the Stars, the Mountains, the Sky, everything!
    shakiaxo shakiaxo 16-17, F 4 Responses Sep 21

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    Take a pretty selfie for selfie Sunday, it'll make you smile if your feeling down. I'm always here to talk.
    mayanatasha mayanatasha 16-17, F 24 Responses Sep 21

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    So is selfie Sunday really a thing? Lol I mean, here's a selfie. It's still Sunday. Why not? Might as well take a break from studying anyway lol 
    scrtasnman13 scrtasnman13 18-21, M Sep 21

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    My shower is all the way hot all the time. Unless I decide to take a cold shower.
    wedgieshurtalot wedgieshurtalot 16-17, F Sep 21

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    It's impposible for one to take down corruption alone. I'm proud to be apart of a 32 old astrological conspiracy that is doing so.
    champ4life07 champ4life07 51-55, M Sep 22

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    Yea, everyone is always saying...did you take your meds?? when someone says something strange...and I don't care. lol Prozac really is a little lifesaver in pill form.
    Levi1 Levi1 13-15, M Sep 22

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    Because I have a soft heart and can't really say no to people or shout, some tend to take advantage of me..... how do I harden up.... saying I should just say no is easier said...
    Ashy0328 Ashy0328 22-25, F 17 Responses Sep 23

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    My best friend...is now ignoring me.She is now hanging out with the person who i hate the most...I just cant take this anymore..It always happens to me from my school days..the...
    MaddyBale MaddyBale 18-21, F 1 Response Sep 23

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    I take so many photos on my phone that I run out of memory and have to transfer them to my computer once a month and I send my favorites to Groovebook to get printed. It's almost...
    Maybaby24 Maybaby24 22-25, F 3 Responses Sep 24

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    My new baby. I've started learning to play. All I can say is it can be a bit painful on the fingers when you have very weak skin. lol Plus I was pressing the strings to hard. to...
    SadisticPsychoBitch SadisticPsychoBitch 31-35, F Sep 24

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    You will never find the perfect friend or mate. It is impossible. That is why I believe in give and take in every relationship, be it plutonic or romantic. We all are so different...
    johnny048 johnny048 46-50, M 1 Response Sep 24

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    I'm about to lose it all. I can't take this horrible feeling anymore.
    HisDaysAreNumbered HisDaysAreNumbered 18-21, M 1 Response Sep 24

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    I see beauty in everything. So I take as many photos as I can before society eats away the beauty of the world, leaving it a grey mess.
    raspberryicetea raspberryicetea 13-15, F Sep 25

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    Ever since I started listening to Linkin Park's The Hunting Party, I was thinking I could start off somewhere other than electric keyboard. So guess what? :P I chose to take up...
    TetraZL TetraZL 13-15, F Sep 26

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    betterlifechallenge.com Better Life Challenge #1: Talk to three new people, each day. In person, not online or through phone. All human beings are connected to one another...
    Margavita Margavita 22-25 Sep 26

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    .-. Aha yeaas.. Like to many x) but I hate it when people watch me take a picture.. Like ew no..
    akaKitten akaKitten 16-17, F Sep 26

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    Sorry peeps ;) I'm taken by the love of my life
    Harrley Harrley 13-15, F 2 Responses Sep 27

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    When I was younger I wanted to be a journalist. That was my big dream for the future so of course I recorded everything I could and did little stories on it. As I got older it went...
    Plungeintoadream Plungeintoadream 18-21, F 1 Response Sep 27

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    My boyfriend and I having a long distance relationship from the day we met, it's now almost 10 months, but I can only say we start our real couple relationship since last month as...
    Maggiehere Maggiehere 22-25, F 1 Response Sep 27

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