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I Take Tysabri

Personal Stories, Advice, and Support 39 People

    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F 1 Response Apr 11, 2011

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 2 Responses Nov 17, 2012

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 26-30, F Jul 18, 2013

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    Related Experiences

    I have went from 40 mg to 30 to 20 to 15 to 10 mg. I was told since I was a little girl that I needed adderall. I will never forget in junior high being called into the nurses...
    Shmeather1234 Shmeather1234 26-30, F 1 Response 7 hrs ago

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    I am constantly being taken advantage of! My family knows that I starting to be successful so they are trying to weigh me down as much as possible! My older sister(Becca) is...
    SaphiraJane SaphiraJane 16-17, F Jun 27

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    Last week marked a new chapter in my relationship with one of the two men I mentioned. I was walking home from a trip to the supermarket, when one of the men, Mody, came out of his...
    mrs36lori mrs36lori 31-35 2 Responses a week ago

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    everytime i get together with my girls, or boys u knw its picture time, i feel like if i dnt take that moment i will never see it again. so i take everything every time. i love how...
    mamello mamello 22-25, F a week ago

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    I have this habit of taking it personal when a friend doesn't take the time to try to talk to me (she's probably just busy with life, like me) or doesn't take the initiative to try...
    brittanys13 brittanys13 22-25, F 6 days ago

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    I'm 17 and i'm about to turn 18 on August 7. The reason I havent been able to is because, every time I want to take, my mother never takes me. She always says to study it and on...
    Vanessanicolexo Vanessanicolexo 16-17, F 2 days ago

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    I want someone rich to provide me with the good life. Me and my family. To take care of us. Give us the good things in life. Like family is supposed to, but we don't have any...
    wishtobefree wishtobefree 26-30, F Jun 22

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    Never in my life will I do it. I think of it but I don't succumb to the temptation of the knife and pills. I like to believe something's out there and it will take my life but it's...
    AnEverWonderer AnEverWonderer 16-17, F Jun 22

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    I take photos of myself nude--usually my favorite part minus my face. I take photos of candid moments when I get my hands on my cam
    Xhibitionist27 Xhibitionist27 26-30, F 47 Responses Jun 23

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    I like to take pictures when traveling or in occasions, I think all people do , but later I delete most of these pictures. I like to take pictures of the places and moments but not...
    ascentofawoman67 ascentofawoman67 46-50, F 3 Responses Jun 24

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    Man I would slap and punch every stupid and fake girls that think they can look down on me cause I don't do make up or have long hair or dress up and show my skin or have super...
    FighterWolf FighterWolf 13-15, F 1 Response Jun 28

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    If you are an insecure sort of person you can invest a lot of energy and yourself in finding a person or persons on EP who will be a friend, a love, a confidante, whatever. You...
    shydate shydate 66-70, M 1 Response Jun 29

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    I know what it's like to grow up without having been cared for by parents or any guardians. Every thing good that has been done has been followed by an equal or worse price to pay...
    kiddishguy kiddishguy 26-30, M 1 Response Jul 4

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    I always dreamed that I would be kidnapped taken to a a castle of some kind and taken as a tickle slave where there are all kinds of bondages and tickle tools and I am tickled...
    oceanskywalker oceanskywalker 18-21, F 1 Response Jul 7

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    I can admit, I don't know how much more I can take. I am tired of crying. Not being about to be where I want to be. Not having something that I have never had. How many people can...
    HollySch13 HollySch13 26-30, F Jul 7

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    I've been ok. Started taking an anti anxiety pill that has left me feeling numb. Only 10mgs I remember I was on it at 20/40mgs but it gave me headaches and a ringing in my ears. So...
    heyitsabike heyitsabike 31-35, F Jul 10

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    A picture paints a thousand words, or so they say. I try to take a camera everywhere with me, because when I haven't had it with me, that's the time when the ideal picture presents...
    CarMechanic CarMechanic 66-70, M 3 Responses Jul 12

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    Who doesn't like to take pictures😊 i love to take selfies😎
    Ashley989 Ashley989 22-25, M 1 Response Jul 12

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    I love to take pictures, my mom says I act like a tourist. Everywhere I go I take plenty of pictures, upload them on the computer, print them out and put them in a scrapbook :)
    MeowChan99 MeowChan99 13-15, F 1 Response a week ago

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    I can't take it anymore I feel like I am going to lose my girlfriend and that I can't take it anymore! I feel like I am being force to give up by everyone I feel like I can't love...
    ECrierie ECrierie 16-17, M 2 days ago

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    I can't take it anymore! I always am being called names by my moms ex. He shouldn't even be there! Why doesn't my mom see that he's treating me like this! Sure I have anger...
    YLIhououin YLIhououin 18-21, M 1 Response 2 days ago

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    i like to take pictures with different expressions on my own
    happyhuman1 happyhuman1 22-25, F 1 Response Jun 22

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    Take this quiz and show us what your qualities are... http://www.playbuzz.com/aaronh12/which-member-of-the-justice-league-are-you Remember, cut and paste your result!
    AlwaysPersevere71 AlwaysPersevere71 41-45, M Jun 22

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    I'm weird, awkward, a little insecure, talkative, clingy, and a hyper spaz. Take it or leave it. I've accepted my flaws✌️
    hopeless1012 hopeless1012 18-21, F 4 Responses Jun 22

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    I love to take pictures. No matter what I'm taking pics
    Elisharocks12 Elisharocks12 13-15, F 2 Responses Jun 23

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    day 06 – a song that reminds you of somewhereThis song takes me back to the beach, warm days and summer vacation
    izzypie izzypie 36-40, F 1 Response Jun 23

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    I hate when people take things for granted, that other people can't have, such as friends, freedom, good communication skills, boyfriend/girlfriend etc.
    NovaScotia902 NovaScotia902 22-25 Jun 23

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    Nothing seems to get better... My life is falling apart. I'm falling apart and no matter what I do nothing seems to help. I can't take it anymore!!! My friends tell me to be...
    CuteMonster CuteMonster 16-17, F 6 Responses Jun 25

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    if im in a relationship with you you'll be my one and only. you'll come first. i wont talk to any other girls. honestly not a lot of people are like that anymore. but i am. if...
    xxxalyssabrownxxx xxxalyssabrownxxx 13-15, F Jun 26

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    I am realizing you can't take everyone with you. Sometimes improving your life starts with letting go of the people who are closest to you, letting go of those who have hurt you or...
    Aly00cat Aly00cat 22-25, F Jun 26

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    I've been described as stubborn, strong willed and determined. In other words extremely hardheaded to the point of stupidity at some times. This goes along with my outright refusal...
    BleedingOrchids BleedingOrchids 13-15, F Jun 26

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    I am who I am and If you don't like it then too bad I'm not gonna change for anyone Lol 😝take it or leave it
    jaynick15 jaynick15 13-15, F Jun 27

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    and it seems to me that the picture (even if not a hero or heroine), but well matched to the story (even if they are different). Excellent visual effect gives support to the text...
    tarasi tarasi 41-45, F 1 Response Jun 28

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    Hard to believe isnt it!! Haha actually about to take a shower now:P lol Havent had one in 3-4 days come to think of it...... Hehe ooops been busy with band stuff
    trombonegurl trombonegurl 13-15, F 4 Responses Jun 29

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