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I Take Tysabri

Personal Stories, Advice, and Support 40 People

    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    so, December 15th was the date of my second

    infusion. so far not so good. jcv came back negative so that's that but side effects blow. I had a uti for nearly three weeks the first time. severe headache and flu like symptoms the first two days. this time, uti again and it seems as though every ailment I suffer has become...
    Vnel Vnel 22-25, F Dec 21, 2015

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 3 Responses Nov 13, 2012

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    Related Experiences

    I am upset and having anxiety.My ex called me and told me he wants to take my 'newborn' son out for the weekend to stay with him and his racist mother on a two hour drive. Is this...
    KiannaJ KiannaJ 22-25, F 5 days ago

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    A philosophy professor stood before his class with some items on the table in front of him. When the class began, wordlessly he picked up a very large and empty mayonnaise jar and...
    saad31 saad31 26-30, M 5 days ago

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    I love having my underwear taken off by someone and I don't care if it's woman or men I just love it when I am laying on the bed and am told to raise my *** and thay grab the the...
    satinlover1958 satinlover1958 56-60, M 2 Responses 6 days ago

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    Currently, it's really just a thing for when I travel-especially if I'm traveling alone. I don't like to take lots of jewelry along when I travel...it just seems like a stupid idea...
    Sarahbellas Sarahbellas 26-30, F 1 Response 6 days ago

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    I would be more than happy to take a look for you. just lay down and let me take a peak or two.. :)
    marriedguy67 marriedguy67 46-50, M Jan 30

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    Indecisive people bother me, especially the women I date. Never been afraid to take charge in any situation I find myself. Can't decide where to eat. ....I will tell you where we...
    1luckytraveler 1luckytraveler 36-40, M 1 Response Jan 29

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    My family cannot take care of themselves let alone their animals. I have one cat that I saved from a bad situation. My cat has honestly made my life so much easier it hurts me to...
    shootdownthestars shootdownthestars 18-21, F 1 Response Jan 28

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    I wasn't raped. In that sense of "taken advantage of." But let me tell you, being used for sex and then left with nothing more than being told that you're meaningless, that you're...
    asterlime asterlime 18-21 Jan 26

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    I, like my dad, love to take pictures. Mainly I take them of my parrots. Recently I took some close ups of flowers at the supermarket. My phone is a Samsung Galaxy S6 and I swear...
    TitaniaMoon TitaniaMoon 18-21, F 9 Responses Jan 26

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    I found out I had diabetes in October 2014. Now, I have to take medicine everyday and I struggle with remembering! I don't have to take as much as most and thank goodness I don't...
    paris071982 paris071982 31-35, F 1 Response Jan 26

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    I gotta take this semester serous. actually I gotta take school serous for now on. Until Spring break, I'll be back Until Summer break. I'll be back Until Fall break or winter...
    ZardaF5 ZardaF5 26-30, M 1 Response Jan 26

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    Guys you have to learn to relax once in a while. Some things in life are too hard for you to be serious about. Take a break, do something productive.
    theguywiththeredhair theguywiththeredhair 18-21, M Jan 25

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    I'm a good girl. I never smoke and never take any illegal drugs . But I tried to drink and it doesn't work. I'm glad that I have an allergy in any alcohol drinks.. :)
    melodyyyy melodyyyy 18-21, F 1 Response Jan 24

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    I would love any man really to take me and share me with his friends stretching me!!
    fistme101 fistme101 26-30, F 4 Responses Jan 24

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    Hey...don't ignore this,just give me a chance to explain Don't grab your "tools" whenever you feel bad.Remind yourself what will happen if you give up.How are you going to deal...
    ghostdolly ghostdolly 13-15, F Jan 24

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    There were some naughty ones taken on my first honeymoon, not sure what happened to those ones, but I was really surprised I could talk my wife into them. Otherwise I do take some...
    burgh712009 burgh712009 41-45, M 1 Response Jan 23

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    i am a very imperfect person. It hurts me knowing that i cannot have something, or when i lose something i had before.. It's hard for me, seeing you are no longer the person you...
    blitzkrieg7 blitzkrieg7 22-25, F Jan 23

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    can u take care of me? i will take care of u too.
    bokading bokading 31-35, F Jan 23

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    I want to take the world, but work hard for it so it means something if or when I do.
    ToxicVodka ToxicVodka 18-21, M Jan 22

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    I want to stay home and take care of the house and let someone else work for a change. I will do the dishes and yard work and sweep and mop the floor. and I am even a pretty good...
    stevecobb76 stevecobb76 36-40, M 2 Responses Jan 22

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    Yesterday was a nice winters day, so i for once got in a mood to just try to take some pictures. I dont really intend to be in the internet cat buisness :P, but it can be more fun...
    mirkwood86 mirkwood86 26-30, M 5 Responses Jan 21

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    Well aftering talking to a friend about "how lack of sex can cause depression in men", I did some heavy & deep thinking. I have came to the conclusion that I have been taking...
    nevets68 nevets68 46-50, M 2 Responses Jan 21

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    I know I shouldn't take them seriously because 9/10 times someone promised me something, they didn't do it.
    Emma0929 Emma0929 16-17, F 1 Response Jan 20

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    Yesterday I found out that a friend from college passed away. He was 47, and died in the night from a heart attack. He was larger than life. His personality, humor, his warmth and...
    frostyflower frostyflower 31-35, F 2 Responses Jan 20

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    Taken with my iPhone while home in Hawaii. This was on the "big island". It was a rainy day which provided many beautiful waterfalls.
    Lostinexile Lostinexile 26-30, F 3 Responses Jan 19

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    It isn't just a physical sport, it requires mental skill and if taken seriously and practiced regularly you will notice both mental and physical improvements. In this day and age...
    RolexRush RolexRush 31-35, F 5 Responses Jan 19

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    My parents always take mine that way too. Sux!
    jordan6052 jordan6052 13-15, M 3 Responses Jan 19