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I Take Tysabri

Personal Stories, Advice, and Support 38 People

    My Life With Ms - Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Help - I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Just Giving Up Rebif.. - I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    MS Research - I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently...
    estaples estaples 26-30, F Jul 18, 2013

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    I Need Advice 4 Months On Tysabri - It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    I Am Gonna Try Tysabri... - I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    What May Kill Me Is Actually Keeping Me Alive - Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch...
    meganomalie meganomalie 22-25, F 1 Response Apr 11, 2011

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    Just Do It.............. - "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Ms And The Menu Of Drugs - Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    On Tysabri, Feeling "fencey" - Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences...
    megbat megbat 31-35, F Dec 16, 2012

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    Tysabri Is A Modern Miracle - I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    Pml - Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

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    If Someone Could Answer My Questions.. - I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and...
    Christine2686 Christine2686 26-30 2 Responses Nov 17, 2012

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    Avonex Patient Who Is Switching To Tysabri - My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor...
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    Related Experiences

    I had this friend, we were so close. Lets call him Fred. Also though on the edge of being together for quite some time. I got a new boyfriend, after a few months we were perfect...
    BlooRae BlooRae 16-17, F 8 hrs ago

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    I already took a slight one, now i am thinking something very dangerous. I am not sure what my family will do to me....i have only wanted freedom my entire life and now i am old...
    Sierce Sierce 18-21, F 1 hr ago

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    I havent taken my medicine in days and it's getting harder to breathe everyday. oh well
    g0ne g0ne 13-15, F 48 mins ago

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    This was originally for an Accutane survivor thread/forum. I took Accutane as a senior in High School. I had acne, it was bad, not terrible, but bad. I disliked having acne, but...
    Anon010101 Anon010101 22-25, M 2 Responses 4 days ago

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    Yes yes, I am independent, I don't NEED to be taken care of, but its a lovely feeling to be with a man that WANTS to take care of me. I have never had it before in previous...
    suzieb1971 suzieb1971 41-45, F 1 Response Mar 24

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    I'm depressed and i have no one to talk to. I have no real friends and all my family members are seriously ****** in the head (in my opinion). It all started when i was about 10. I...
    Canaduhh Canaduhh 13-15, F 3 Responses Mar 26

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    I waver between being very thoughtful and not wanting anything to do with anything in a serious way :))) I take much of life serious, but myself is another story. I take that back...
    jeresey jeresey 56-60, F 2 Responses Apr 3

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    Day 2: guns & roses 'paradise city' I picked this song bc a long time ago me and my mum would jam out to journey and guns & roses XD anyway i think its got good guitar parts in it...
    RavenHearts RavenHearts 16-17, F 1 Response Apr 7

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    I don't think I'm pretty or remotely close to beautiful. I go to a school with girls who are models and are drop dead gorgeous. But I feel ugly. So ugly I stopped trying and...
    PrincessGobi PrincessGobi 13-15, F 2 Responses Mar 17

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    It helps me sleep really well if I take it and get in bed, but most of the time I get distracted and then realize 45 minutes later, "Whoa, I feel stoned." And then I wake up the...
    showusyoursouls showusyoursouls 18-21, F 2 Responses Mar 18

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    I went to Mexico this summer and I was walking around this beautiful church. There's had to be like 100 stands at least, of people selling there things around the church. I ended...
    Live5772 Live5772 18-21, F 1 Response Mar 29

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    You Can Thank My Sister For That!! When we were young my sister had a thing for taking pictures of me. I don't mean nice ones either. She would hide in different places, under...
    maqeurious maqeurious 31-35, F Mar 30

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    You Can Thank My Sister For That!! When we were young my sister had a thing for taking pictures of me. I don't mean nice ones either. She would hide in different places, under...
    maqeurious maqeurious 31-35, F Mar 30

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    Medication abuses who you are as a person, especially depression meds. Sometimes, I wonder what I would be like if I hadnt started to take them in the first place, would I be...
    MajorasAngel97 MajorasAngel97 16-17, F 1 Response Apr 1

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    I'm SO embarrassed. So what happened was that I won intern of the month. I am not one to be center of attention, so when they called my name, I literally said, "F--K." I didn't...
    BlueIce612 BlueIce612 16-17, F 3 Responses Apr 3

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    I'm so lost, my therapist and psych say I won't feel better until I take them regularly, but my family and boyfriend make me feel Like a criminal just for doing what the doctors...
    elizabethmary21 elizabethmary21 22-25, F 2 Responses Apr 8

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    Your Existing Situation Works well with others. Needs personal relationships which are understanding and relatively conflict-free. Your Stress Sources "Not a team player and is...
    DoubleyouX DoubleyouX 22-25 5 days ago

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    I was attempting to stop taking them but it's 2am... Oh the struggle... To take them or to not take them? Such a predicament.
    LivviyLove LivviyLove 16-17, F 5 days ago

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    What do you all take and how much.? I'm trying to figure out if I am taking too much. Womens daily vitamin which includes biotin and d, but I also take an additional d and biotin...
    mrvitous26 mrvitous26 26-30, F 4 days ago

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    I have wanted to have boudoir photography taken as long as I can remember. Not anything fully nude or trashy, the classic tease, but the beautiful lingerie or a man's favorite t...
    CodeNameNevermore CodeNameNevermore 22-25, F 1 Response Mar 17

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    My doctor recommended me to take 2 Benadryl pills every night before bed for two weeks to get my sleeping pattern back! On 14th day I woke up my face swollen like someone had...
    WhoIsLiz WhoIsLiz 36-40, F 2 Responses Mar 19

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    They also take me way too seriously.
    sighimnotgoodwithnames sighimnotgoodwithnames 22-25, F 4 Responses Mar 20

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    Call me old fashioned, but if you aren't going to take your relationship seriously, why are you In a relationship. It unnecessarily breaks hearts, and destroys the trust people...
    AlaiahMay AlaiahMay 18-21, F Mar 21

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    My mum is always like "Go get a job and stop being lazy and make your own money" even though she knows nowhere will take people my age unless its volunteer work and they don't have...
    KaydieKay KaydieKay 13-15, F 1 Response Mar 22

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    I've always wanted to go out and take a jog or walk like 5AM but my sleeping habit change. I sleep between 2-3am because of all the stress I've had between my irresponsible partner...
    chinab3280 chinab3280 31-35, F 1 Response Mar 22

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    I take Zzz quil and in sore that it is making me sick in other ways. So I will deal with the lack if sleep and read more. FML
    Zeita75 Zeita75 36-40, F Mar 23

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    When did we as people start to not take relationship serious anymore? I mean serious. Everyone wants to cheat or tell everyone their business and you wonder why I don't want a...
    lachee lachee 16-17, F 3 Responses Mar 23

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    I'm almost 18, and my parents control every single aspect of my life. Yeah, I've made some bad choices, but they've never given me a chance to show them I am more mature since then...
    sothisiswhatitfeelslike sothisiswhatitfeelslike 16-17, F 2 Responses Mar 24

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    How I wish I could. :( It's been almost a week the first time I joined on EP and since then, I started knowing numerous experiences of people (that captured my heart) coming from...
    MissPurple912 MissPurple912 18-21, F 5 Responses Mar 24

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    I have sleep apnea as well and have had insomnia most if my life. I take Benadryl at nite to help me fall asleep and it helps me tremendously. I recommend taking 2 at nite and you...
    denaellis575 denaellis575 46-50, F 2 Responses Mar 26

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    I can't take my life anymore... I've been through so much since I was a little girl and every time I try to be happy it gets screwed up. I lost the love of my life because he fell...
    xxersabooxx xxersabooxx 18-21, F 3 Responses Mar 26

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    I think it would be a ton of fun to take a road trip and drive through all over the US. It may cost a bit of money, but I'd be willing to save up and do it! It sounds like FUN! :D
    Whoami30 Whoami30 26-30, M Mar 26

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    I just want to take a long road trip with a friend or two, and just live out of the car for a while, it sounds fun.
    anovasiangel anovasiangel 13-15, F 1 Response Mar 26

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    I hate my friends right now! They keep trying to take me picture!😡
    FantasyButterfly4 FantasyButterfly4 13-15, F 1 Response Mar 27

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    My fiancé works long hrs- 12-14 hr days. Goes to the gym, comes home, spends an hour on the can, eats then games. Work and gaming come before me always... This means he hardly...
    painfultime painfultime 31-35 2 Responses Mar 27

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    I am too inarticulate to ever be capable of telling someone just how much they are worth to me. I can say 'I love you', but my face won't shape the words the same way my mouth does...
    typedwriter typedwriter 26-30, F 1 Response Mar 27

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    Hi, I have always had this feeling of wanting to help others the best way I can. I always plan that when I get older i will do lots of charities and volunteer at animal shelters...
    musicgirl102 musicgirl102 16-17, F 3 Responses Mar 27

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