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I Take Tysabri

Personal Stories, Advice, and Support 38 People

    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 3 Responses Nov 13, 2012

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    Related Experiences

    I hate having my picture taken I don't take pictures of myself at all but I love taking pictures just not of myself!
    DarkWorld98 DarkWorld98 16-17, F 19 hrs ago

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    I can't take it anymore . I think I'm going to be sick . My brother have been acting like a completely bratty selfless ( there's are words I want to say but I'd get deleted if i do...
    crazyram45 crazyram45 22-25, M 6 days ago

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    i am always asked to be someones girfriend cause im pretty funny blah blah blah well guess what IM TAKEN SO **** OFF!
    LexiMarieTherien LexiMarieTherien 13-15, F 6 days ago

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    I take new ones almost everyday of myself and like other random stuff I see that I like
    BrooklynTheHarlot BrooklynTheHarlot 13-15, F 2 Responses 6 days ago

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    Drugs are cool, take them, I love cocaine it's one of the best drugs
    dannyboy808 dannyboy808 22-25, M 1 Response 6 days ago

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    So if you like to take pictures and you take a picture of a picture you drew would that make you a narcissist?
    CptAustin CptAustin 26-30, M 4 Responses Jun 23

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    Okay are there any people here that have overcome taking things too personally or have made progress. I need help the wife is born or conditioned to take everything as criticism...
    midlifeknot midlifeknot 36-40, M 2 Responses Jun 23

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    I have been a widow for 12 years. My husband took care of all the financial matters. I told him before he passed that I was lousy with money. He told me I should contact his...
    kazmisan kazmisan 61-65, F Jun 22

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    I really do. To wisp it all away I will take it& bottle it up& bring it with me to a place to simply turn into positive energy. Recyle.
    Sugasug Sugasug 41-45, M 1 Response Jun 22

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    Taken a couple of Springs ago, haven't seen such a beautiful one since
    momenti momenti 18-21, F 1 Response Jun 21

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    i m a virgin can your wife takes mine
    Davgotswag87 Davgotswag87 26-30, M Jun 21

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    I love is when my boyfriend has a bad day and got anger to release out, he takes it out on my bum and do up to three loads before finishing and he will beat it. I love it when he...
    lukegayreed lukegayreed 22-25, M 2 Responses Jun 21

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    I absolutely love living in the United States of America and I am very thankful to all those who have gone to war and died in battle so that I may have my freedom. Freedom is...
    emily51515 emily51515 16-17, F 1 Response Jun 20

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    i don't want to leave my room and face reality but i know i have to. no matter how many times i tell everyone i'm fine everybody believes it.... no one sees the lie anymore. i...
    catsrule5678 catsrule5678 18-21, F Jun 20

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    Directed to a person guy adult dude that's my mom's boyfriend: You tell me that I don't do enough at home, you tell me I don't walk the dog enough, don't wash the dishes enough...
    DoorMattress DoorMattress 13-15, M 3 Responses Jun 18

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    My dream catcher necklace... I will NEVER take it off!!!
    HappyHippie432 HappyHippie432 13-15, F 2 Responses Jun 18

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    Many of my friends know that I am a photographer.. One of the office managers at the bingo Hall I work in, is getting married in August,,and asked me to do the photography .... I...
    expressomarkie expressomarkie 46-50, M 4 Responses Jun 18

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    I want to be as good as freaking Conner Franta omfg he's great I want his skills but I can take some ok pictures if I try hard enough
    oOMaleehaOo oOMaleehaOo 13-15, F 1 Response Jun 18

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    Bought XperiaZ1 with 20mp camera so that I can take better pictures. But somehow not 100% satisfied with the camera. I prefer Apple still I think. But I have no complaints for...
    Venosha Venosha 18-21, F 1 Response Jun 18

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    Messages - and email as well - as scarily permanent. And empty - it's so hard to chat without body language and expressions sometimes. And no, emoji s do not count. If I'm replying...
    Lenada Lenada 18-21, F Jun 17

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    I can't be logged on 24/7 I'm sorry. I have things to do as well... Don't take it personal.
    adriana0102 adriana0102 16-17, F Jun 17

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    Why do "certain" people send you a random message that you have never talked to before. And, then when you don't respond because you are busy, asleep etc. They take it as a...
    Mfudgie Mfudgie 31-35, F 7 Responses Jun 17

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    I absolutely love when I see old pictures of me. It takes me back in time and makes me smile at the very moment when the picture was taken.
    Prissys20 Prissys20 26-30, F 2 Responses Jun 17

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    For my friend Nik...I'll take your Spectacular Spider in a Nursery and see you a Marvellous Moth on a drainpipe.. :)
    GalateaSpheres GalateaSpheres 36-40, F 4 Responses Jun 17

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    I wanted to share my quick story with Vyvanse, and also ask some questions about it at the same time. As side information, I take Abilify and Trazadone. Yesterday I was prescribed...
    kenzieburr kenzieburr 16-17, F 2 Responses Jun 17

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    I was a 5th grader and did not wear the latest fashion, did not have stylish hair, my parents just couldn't afford the stuff with the labels for me, and what they could afford, I...
    rballa rballa 31-35, F 2 Responses Jun 16

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    yes i do believe in give and take respect,love or anything , if we want to take respect than we do need to learn,how to give respect first
    deleted deleted 26-30 Jun 16

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    Worse now than ever, so much so that people are starting to notice. I'm paranoid that everyone is against me and I take offense to everything anyone says. I think people are...
    Fiftypercent Fiftypercent 18-21 1 Response Jun 16

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    I sometimes have trouble sleeping, so I take benadryl or some other sleep aid but tonight I forgot to...DOH! So what do you do when you can't sleep, well you check out groups and...
    AwakenEdge AwakenEdge 41-45, F 1 Response Jun 15