Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Take Tysabri

Personal Stories, Advice, and Support 38 People

    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

    Your Response

    Cancel

    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

    Your Response

    Cancel

    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

    Your Response

    Cancel

    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

    Your Response

    Cancel

    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

    Your Response

    Cancel

    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

    Your Response

    Cancel

    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

    Your Response

    Cancel

    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

    Your Response

    Cancel

    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

    Your Response

    Cancel

    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

    Your Response

    Cancel

    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

    Your Response

    Cancel

    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

    Your Response

    Cancel

    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

    Your Response

    Cancel

    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

    Your Response

    Cancel

    Related Experiences

    I really want an antique camera to take my photos with. I love vintage. I take pictures of mostly nature but I like taking photos of objects too. I love they way the light his...
    XxNightRavexX XxNightRavexX 18-21, F Nov 4

    Your Response

    Cancel
    Many of us have a strange tendency in relationships. We tend to feel something about someone – some hurt, some pain, some resentment and yet we wait and wait for things to go...
    restored87 restored87 46-50, F 2 Responses 2 days ago

    Your Response

    Cancel
    I don't want to take medication for my depression/anxiety. My mom and dad keep telling me I need to take medication for it so I can be like everyone else but I hate the idea of...
    ForgetThisAlready ForgetThisAlready 18-21, F Nov 4

    Your Response

    Cancel
    12:00 pm I was in a Skype call with this "friend" I just met a couple hours before, and I had called my grandma's phone. No answer. 12:49 pm I figured she must be in church...
    cheyne201 cheyne201 18-21, F Nov 9

    Your Response

    Cancel
    I have always taken relationships seriously. Because of this I have only been in one relationship that is my current one. We both take our relationship very seriously and we...
    ForgottenCelestria ForgottenCelestria 16-17, F 2 Responses Oct 23

    Your Response

    Cancel
    I don't need a freaking guy to take care of me or love me, i can take care of myself and love? God is there for it ;)
    LovelyBitch1 LovelyBitch1 16-17, F Oct 23

    Your Response

    Cancel
    I would take a bullet for you Becuz it'd break my heart in 2 If I saw that blood stain not on me, but on you So yes it may be cheeky, And also maybe corny, But I would take that...
    JazLife21 JazLife21 13-15, F 1 Response Oct 23

    Your Response

    Cancel
    I take a long time to fall for a man.I take a long time to stop loving a man.
    SmartKat SmartKat 46-50, F 5 Responses Oct 24

    Your Response

    Cancel
    I love animals so much and why do people feel the need to own a pet if they're not going to take responsibility and look after it? Please just don't purchase/take in the animal in...
    Dispense Dispense 18-21, F Oct 24

    Your Response

    Cancel
    I take pictures of myself everyday, and i also take pictures of some interesting stuff in my point of view.
    unknrnt unknrnt 13-15, F 1 Response Oct 29

    Your Response

    Cancel
    American Bald Eagle   ...Another frequent summer visitor.  Mr. E always lands on his favorite tree.  But when he catches his prey, he takes off to eat it. ...
    Love2014nb Love2014nb 51-55, F 3 Responses Oct 30

    Your Response

    Cancel
    I'm an independent woman and have been very fortunate to have the life I built on my own for my children and myself. I am single (but dating) and I just want to be taken care of...
    IntomeYousee IntomeYousee 36-40, F Oct 30

    Your Response

    Cancel
    My father's girlfriend brought a dog make all four of us a family(even though I don't like the b*tch). But after a few weeks of having the puppy, she didn't do anything to take...
    gorgeusgirlSky3 gorgeusgirlSky3 13-15 2 Responses Nov 1

    Your Response

    Cancel
    If I could take your pain away I would, especially the people I care about. When ever I hear someone's stories where they were scared or got hurt, mentally or physically, I wish...
    wedgieshurtalot wedgieshurtalot 16-17, F 1 Response Nov 2

    Your Response

    Cancel
    Seeing someone cry make some want to know their story. I want to rob all the banks in the world to help them. I want to invent the cure for cancer or find world peace. But it's...
    GetYourFreakOn GetYourFreakOn 16-17, F 1 Response Nov 3

    Your Response

    Cancel
    At work. Not so much in my personal life. I work hard, and I work hard because I actually enjoy feeling accomplished. And I also like to get credit for what I do. I won't go...
    roryta roryta 26-30, F Nov 6

    Your Response

    Cancel
    Taken while on vacation last year.  I stumbled upon Lizzie while taking pics of the sculptures in this garden.  I must have taken over 75 of the various lizards there on...
    Love2014nb Love2014nb 51-55, F Nov 6

    Your Response

    Cancel
    My meds have changed my life!! My boyfriend has even lacked interest in traveling with me due to my contagious stress in the past. But for the last six months I've been on...
    Skylerdai Skylerdai 26-30, F Nov 7

    Your Response

    Cancel
    Especially I take a selfie! :D also I like to take photo of plants and animals. I love nature. And I think we should protect the environment.
    melikeakayy melikeakayy 16-17, F 2 Responses Nov 8

    Your Response

    Cancel
    My parents are so selfish and they've taken advantage of me whenever possible but through all of that, but I'd still choose to be taken advantage of. I'm stronger because of it...
    gglz18 gglz18 22-25, F 2 Responses 5 days ago

    Your Response

    Cancel
    my moms going to take my phone away when she gets back. every time I don't go to school because I'm sick, she decides to take it away because she feels I'm being defiant, and her...
    emgal emgal 16-17, F 2 Responses 4 days ago

    Your Response

    Cancel
    I try to hold on to good things and hope for the best, not the worse. But lately my walls are crumbling down on me. I'm so lost and confused. Not sure who is real, and who's...
    EyeDontGiveAHoot EyeDontGiveAHoot 36-40, F 3 Responses 2 days ago

    Your Response

    Cancel
    Don't take life too seriously. Nobody gets out alive anyway (>_<)/
    hippiee hippiee 13-15, F Oct 23

    Your Response

    Cancel
    I have a few people I would take a bullet for.
    psychedeliica psychedeliica 18-21, F 2 Responses Oct 24

    Your Response

    Cancel
    I would take a bullet for anyone. Your life is ten times more important than mine, and I want to die anyway, so fire away.
    Cazjarvo Cazjarvo 13-15, F 2 Responses Oct 25

    Your Response

    Cancel
    Taken on an extremely rare foggy day in Phx. Az.
    rompinrob rompinrob 46-50, M 2 Responses Oct 25

    Your Response

    Cancel
    I love having a best friend I can take silly pictures with even if we're wearing club dresses :)
    kaitybobaityxo kaitybobaityxo 18-21, F 9 Responses Oct 25

    Your Response

    Cancel
    Hello people from EP! Well, I don't know were to start. My parents are getting divorce and I just don't know how to deal with it. I feel like I'm falling apart and this is all too...
    Daris21 Daris21 18-21, F 2 Responses Oct 26

    Your Response

    Cancel
    My mom and dad fight all the time and they are both to s5 up I'd to understand that they are destroying my own and my sisters lives I go to school on Mondays and everyone is all...
    willgooch willgooch 13-15, M Oct 26

    Your Response

    Cancel
    There is a place people escape to where you can be who you want to be. Truths. Lies. Who's to know? You are anonymous. It's intriguing at first, but beware... If you're not careful...
    PersephoneStardust PersephoneStardust 31-35, F Oct 27

    Your Response

    Cancel
    I can never take just one.
    trs1999 trs1999 13-15, F 2 Responses Oct 27

    Your Response

    Cancel
    This is one of my favorite photos I've ever taken. I was aiming to get a pic of the flowers and cat tails....and then that butterfly landed right as I was snapping away and I was...
    SupernovaxxGirl SupernovaxxGirl 26-30, F 5 Responses Oct 27

    Your Response

    Cancel
    I was watching a video from years ago. It was fun seeing all the people I knew. Happy times. I began to notice all the people who have passed since the video was made. I...
    Amantcul Amantcul 51-55, M Oct 27

    Your Response

    Cancel