Post

I Take Tysabri

Personal Stories, Advice, and Support 38 People

    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

    Your Response

    Cancel

    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 26-30, F Jul 18, 2013

    Your Response

    Cancel

    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F 1 Response Apr 11, 2011

    Your Response

    Cancel

    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

    Your Response

    Cancel

    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

    Your Response

    Cancel

    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

    Your Response

    Cancel

    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

    Your Response

    Cancel

    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

    Your Response

    Cancel

    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 2 Responses Nov 17, 2012

    Your Response

    Cancel

    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

    Your Response

    Cancel

    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

    Your Response

    Cancel

    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

    Your Response

    Cancel

    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

    Your Response

    Cancel

    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

    Your Response

    Cancel

    Related Experiences

    This was originally for an Accutane survivor thread/forum. I took Accutane as a senior in High School. I had acne, it was bad, not terrible, but bad. I disliked having acne, but...
    Anon010101 Anon010101 22-25, M 2 Responses Apr 12

    Your Response

    Cancel
    Yes yes, I am independent, I don't NEED to be taken care of, but its a lovely feeling to be with a man that WANTS to take care of me. I have never had it before in previous...
    suzieb1971 suzieb1971 41-45, F 1 Response Mar 24

    Your Response

    Cancel
    I'm depressed and i have no one to talk to. I have no real friends and all my family members are seriously ****** in the head (in my opinion). It all started when i was about 10. I...
    Canaduhh Canaduhh 13-15, F 3 Responses Mar 26

    Your Response

    Cancel
    I waver between being very thoughtful and not wanting anything to do with anything in a serious way :))) I take much of life serious, but myself is another story. I take that back...
    jeresey jeresey 56-60, F 2 Responses Apr 3

    Your Response

    Cancel
    Day 2: guns & roses 'paradise city' I picked this song bc a long time ago me and my mum would jam out to journey and guns & roses XD anyway i think its got good guitar parts in it...
    RavenHearts RavenHearts 16-17, F 1 Response Apr 7

    Your Response

    Cancel
    I had this friend, we were so close. Lets call him Fred. Also though on the edge of being together for quite some time. I got a new boyfriend, after a few months we were perfect...
    BlooRae BlooRae 16-17, F 4 days ago

    Your Response

    Cancel
    I went to Mexico this summer and I was walking around this beautiful church. There's had to be like 100 stands at least, of people selling there things around the church. I ended...
    Live5772 Live5772 18-21, F 1 Response Mar 29

    Your Response

    Cancel
    You Can Thank My Sister For That!! When we were young my sister had a thing for taking pictures of me. I don't mean nice ones either. She would hide in different places, under...
    maqeurious maqeurious 31-35, F Mar 30

    Your Response

    Cancel
    You Can Thank My Sister For That!! When we were young my sister had a thing for taking pictures of me. I don't mean nice ones either. She would hide in different places, under...
    maqeurious maqeurious 31-35, F Mar 30

    Your Response

    Cancel
    Medication abuses who you are as a person, especially depression meds. Sometimes, I wonder what I would be like if I hadnt started to take them in the first place, would I be...
    MajorasAngel97 MajorasAngel97 16-17, F 1 Response Apr 1

    Your Response

    Cancel
    I'm SO embarrassed. So what happened was that I won intern of the month. I am not one to be center of attention, so when they called my name, I literally said, "F--K." I didn't...
    BlueIce612 BlueIce612 16-17, F 3 Responses Apr 3

    Your Response

    Cancel
    I'm so lost, my therapist and psych say I won't feel better until I take them regularly, but my family and boyfriend make me feel Like a criminal just for doing what the doctors...
    elizabethmary21 elizabethmary21 22-25, F 2 Responses Apr 8

    Your Response

    Cancel
    Your Existing Situation Works well with others. Needs personal relationships which are understanding and relatively conflict-free. Your Stress Sources "Not a team player and is...
    DoubleyouX DoubleyouX 22-25 1 Response Apr 10

    Your Response

    Cancel
    I was attempting to stop taking them but it's 2am... Oh the struggle... To take them or to not take them? Such a predicament.
    LivviyLove LivviyLove 16-17, F Apr 11

    Your Response

    Cancel
    What do you all take and how much.? I'm trying to figure out if I am taking too much. Womens daily vitamin which includes biotin and d, but I also take an additional d and biotin...
    mrvitous26 mrvitous26 26-30, F a week ago

    Your Response

    Cancel

    Your Response

    Cancel
    They also take me way too seriously.
    sighimnotgoodwithnames sighimnotgoodwithnames 22-25, F 4 Responses Mar 20

    Your Response

    Cancel
    Call me old fashioned, but if you aren't going to take your relationship seriously, why are you In a relationship. It unnecessarily breaks hearts, and destroys the trust people...
    AlaiahMay AlaiahMay 18-21, F Mar 21

    Your Response

    Cancel
    My mum is always like "Go get a job and stop being lazy and make your own money" even though she knows nowhere will take people my age unless its volunteer work and they don't have...
    KaydieKay KaydieKay 13-15, F 1 Response Mar 22

    Your Response

    Cancel
    I've always wanted to go out and take a jog or walk like 5AM but my sleeping habit change. I sleep between 2-3am because of all the stress I've had between my irresponsible partner...
    chinab3280 chinab3280 31-35, F 1 Response Mar 22

    Your Response

    Cancel
    I take Zzz quil and in sore that it is making me sick in other ways. So I will deal with the lack if sleep and read more. FML
    Zeita75 Zeita75 36-40, F Mar 23

    Your Response

    Cancel
    When did we as people start to not take relationship serious anymore? I mean serious. Everyone wants to cheat or tell everyone their business and you wonder why I don't want a...
    lachee lachee 16-17, F 3 Responses Mar 23

    Your Response

    Cancel
    I'm almost 18, and my parents control every single aspect of my life. Yeah, I've made some bad choices, but they've never given me a chance to show them I am more mature since then...
    sothisiswhatitfeelslike sothisiswhatitfeelslike 16-17, F 2 Responses Mar 24

    Your Response

    Cancel
    How I wish I could. :( It's been almost a week the first time I joined on EP and since then, I started knowing numerous experiences of people (that captured my heart) coming from...
    MissPurple912 MissPurple912 18-21, F 6 Responses Mar 24

    Your Response

    Cancel
    I have sleep apnea as well and have had insomnia most if my life. I take Benadryl at nite to help me fall asleep and it helps me tremendously. I recommend taking 2 at nite and you...
    denaellis575 denaellis575 46-50, F 2 Responses Mar 26

    Your Response

    Cancel
    I can't take my life anymore... I've been through so much since I was a little girl and every time I try to be happy it gets screwed up. I lost the love of my life because he fell...
    xxersabooxx xxersabooxx 18-21, F 3 Responses Mar 26

    Your Response

    Cancel
    I think it would be a ton of fun to take a road trip and drive through all over the US. It may cost a bit of money, but I'd be willing to save up and do it! It sounds like FUN! :D
    Whoami30 Whoami30 26-30, M Mar 26

    Your Response

    Cancel
    I just want to take a long road trip with a friend or two, and just live out of the car for a while, it sounds fun.
    anovasiangel anovasiangel 13-15, F 1 Response Mar 26

    Your Response

    Cancel
    I hate my friends right now! They keep trying to take me picture!😡
    FantasyButterfly4 FantasyButterfly4 13-15, F 1 Response Mar 27

    Your Response

    Cancel
    My fiancé works long hrs- 12-14 hr days. Goes to the gym, comes home, spends an hour on the can, eats then games. Work and gaming come before me always... This means he hardly...
    painfultime painfultime 31-35 2 Responses Mar 27

    Your Response

    Cancel
    I am too inarticulate to ever be capable of telling someone just how much they are worth to me. I can say 'I love you', but my face won't shape the words the same way my mouth does...
    typedwriter typedwriter 26-30, F 1 Response Mar 27

    Your Response

    Cancel
    Hi, I have always had this feeling of wanting to help others the best way I can. I always plan that when I get older i will do lots of charities and volunteer at animal shelters...
    musicgirl102 musicgirl102 13-15, F 3 Responses Mar 27

    Your Response

    Cancel
    i will do anything im bi and i will take gift cards to
    blackattack05 blackattack05 13-15, M Mar 28

    Your Response

    Cancel
    I have an turquoise amulet that has been passed down through my family, I never take it off.
    cyraalana2000 cyraalana2000 13-15, F Mar 29

    Your Response

    Cancel
    My grandmother gave me a ring for my 12th birthday. My grandmas own mother gave it to her when she was 12, after she had foot surgery. It's a gold ring with a beautiful pink...
    LittleListener LittleListener 13-15, F 1 Response Mar 29

    Your Response

    Cancel
    My boyfriend bought me a bracelet with an anchor on it, since he's in the navy it makes sense. I never take it off, with him being stationed in Japan it gives me a sense of comfort...
    ncon08 ncon08 18-21, F Mar 30

    Your Response

    Cancel
    Yeah I take relationships seriously, love you Josh 😘😍❤️
    Mariaaa16 Mariaaa16 18-21, F 2 Responses Mar 30

    Your Response

    Cancel
    I can't take this anymore-That's what i've been saying fot the last ten years, yet i am still here... What's my problem? I can't do anything right, I'm studying the thing i hate...
    kokica kokica 22-25, F 2 Responses Mar 30

    Your Response

    Cancel