Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Take Tysabri

Personal Stories, Advice, and Support 38 People

    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

    Your Response

    Cancel

    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

    Your Response

    Cancel

    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

    Your Response

    Cancel

    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

    Your Response

    Cancel

    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

    Your Response

    Cancel

    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

    Your Response

    Cancel

    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

    Your Response

    Cancel

    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

    Your Response

    Cancel

    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

    Your Response

    Cancel

    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

    Your Response

    Cancel

    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

    Your Response

    Cancel

    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

    Your Response

    Cancel

    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

    Your Response

    Cancel

    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

    Your Response

    Cancel

    Related Experiences

    Just after sunset and hard to see their legs running to take off.
    LTEP69 LTEP69 51-55, M 1 hr ago

    Your Response

    Cancel
    Howard beale - " I don't have to tell you things are bad. Everybody knows things are bad. It's a depression. Everybody's out of work or scared of losing their job. The dollar buys...
    MK25 MK25 22-25, M Nov 30

    Your Response

    Cancel
    I work hard to get nowhere. Constantly get taken advantage of. But worst of all I'm stuck. Stuck in a house sharing a bedroom with a sibling that is bipolar and has borderline...
    Fulgurite Fulgurite 22-25, F Dec 16

    Your Response

    Cancel
    I really don't. Wake up every day, so tired and defeated that have to live another day, and that‘s even if I do sleep, which is extremely rare anymore. Have to force myself to...
    GhostOfGrey GhostOfGrey 31-35, F 3 Responses Nov 30

    Your Response

    Cancel
    I have a gold ring that I wear all the time. When I sleep, as I shower, even if I needed to wear another ring, I'd still wear this one too. I got this ring from my father, and he...
    CoolManMcGoodName CoolManMcGoodName 16-17, M Dec 1

    Your Response

    Cancel
    Though I’m careful not to overdo it nowadays. There’s an attraction once you start taking a supplement and feel minutely better to start taking loads for all the ‘aspects...
    morea morea 22-25, F 1 Response Dec 5

    Your Response

    Cancel
    I have nothing prescribed to me. Just a bunch of over-the-counter meds. I take benadryl for my sinuses and to help me sleep. Sometimes I cave and take benadryl when I absolutely...
    Rocksparkles Rocksparkles 22-25, F a week ago

    Your Response

    Cancel
    I like to take pictures of anything. Making something that is taken for granted more often than not, and making it the center of attention gives me joy. I see something beautiful...
    dreamingoptimist dreamingoptimist 22-25, F 1 Response Dec 12

    Your Response

    Cancel
    When I look around I see people who are hurting either from the financial challenges they face, health or social issues surrounding them. The world seem not to be more fair on some...
    Rirchu Rirchu 26-30, M Dec 15

    Your Response

    Cancel
    As I read story after story here on EP, I realize very few of us on here take the blame for our failed ........ Whatever. It's always someone else's fault, I didn't do anything...
    3grunning 3grunning 46-50, M 3 Responses 5 days ago

    Your Response

    Cancel
    It's been almost seven years since this act was committed. I was too ashamed to tell anyone and didn't know what to do in a situation like this. Now, after seeing this dirtbag and...
    anomalnonomous anomalnonomous 26-30, F 2 Responses 4 days ago

    Your Response

    Cancel
    Taking risks is normally something that I wouldn't do...but with all the events that occurred to me during this past year, I realize now....that its NECESSARY to take those risks...
    blackgirl71 blackgirl71 41-45, F 2 Responses 3 days ago

    Your Response

    Cancel
    This also might be adding to the anxiety because i forgot to take my anxiety pills this morning. I'm starting new pills and slowly weening off the old ones (both for anxiety, both...
    tjindigo tjindigo 18-21, F 3 days ago

    Your Response

    Cancel
    I used to take 20mg a day... But it didn't do much...
    catho catho 18-21, F 1 Response Nov 25

    Your Response

    Cancel
    I have been taking care of my grandfather for awhile now. He is in a wheelchair. My dad and aunt were supposed to be caring for him but neglected him instead. My grandfathers...
    edemylove edemylove 22-25, F Nov 26

    Your Response

    Cancel
    I DONT KNOW BUT I LOVE TAKING PICTURES I DONT REALLY HAVE A QUALITY CAMERA SO I HAVE TO BORROW TO MY COUSIN :) they are so lucky they can everything they want here let me share...
    pandafii pandafii 18-21, F 2 Responses Nov 26

    Your Response

    Cancel
    Day 33: The Dream Team 1989, the cult comedy classic starring Michael Keaton, Christopher Lloyd and Peter Boyle. A psychiatrist takes four mental patients on a field trip to...
    johnny048 johnny048 46-50, M Nov 26

    Your Response

    Cancel
    i will do whatever it takes, all the hardships, everything, and i will change this world, make it a better place for everyone, i will be the first Native American President, if i...
    AwesomePossum17 AwesomePossum17 22-25, M Nov 26

    Your Response

    Cancel
    This was taken 4 days ago in San Francisco. I love travel also !
    yingzilin yingzilin 22-25, F 14 Responses Nov 26

    Your Response

    Cancel
    I love to take pictures ! !
    yingzilin yingzilin 22-25, F Nov 27

    Your Response

    Cancel
    The fact that i like to take pictures of my self, or u can call it 'Selfies' doesn't means that i love the way i look like.
    GalitTweedy GalitTweedy 16-17, F 3 Responses Nov 28

    Your Response

    Cancel
    You found me wounded and grieving, fragile and bleeding. I looked into the windows of your heart as you held out your hand to me. My fingers wrapped around yours, my heart raced...
    mistletoe41 mistletoe41 41-45, F Nov 29

    Your Response

    Cancel
    I wish my every step will take me to my new destination..
    dezeena dezeena 22-25, F 6 Responses Nov 29

    Your Response

    Cancel
    I like to take pictures.. off peoples walls and decorate my own place. Is so much cheaper. And others usually have better taste too.
    randystone randystone 36-40 Nov 29

    Your Response

    Cancel
    I wear a silver ring that my aunt got for me 5 years ago. It gives me anxiety to take it off. I've almost lost it too many times.
    Annaelaine Annaelaine 13-15, F 1 Response Nov 30

    Your Response

    Cancel
    I'm a photographer and take photos during all my travels and never leave the house without a camera.
    713j 713j 41-45, M 1 Response Dec 1

    Your Response

    Cancel
    This was taken during our second snowfall at my grandma's house during sunset. :)
    arianemariexx arianemariexx 18-21, F 4 Responses Dec 1

    Your Response

    Cancel
    My favorite is to take pictures at local shows. If I can capture the excitement of the moment it's the best. I've seen some crazy sh!t go down at shows and it's great when I an...
    Ebbal Ebbal 16-17, T Dec 1

    Your Response

    Cancel
    That Moment You See Light Break From The Clouds On The Road And You Take A Lousy Pic With Your IPod At The Last Second
    XavierR02 XavierR02 13-15, M 2 Responses Dec 1

    Your Response

    Cancel
    I wear a gold chain every day. My ex boyfriend gave it to me for Christmas about 4 years ago. (This was after we broke up, but we are still important to each other.) It originally...
    KC94 KC94 18-21, F Dec 2

    Your Response

    Cancel
    I wear my highschool class ring everyday all day I never take it off when it comes off sometimes in the middle of the night (losing wieght needs resized) I freak out thinking I'll...
    ronwoody ronwoody 18-21, M 1 Response Dec 2

    Your Response

    Cancel
    A migraine leaves me feeling wiped out... like..... I drank too much last night and now I'm paying the price, only I don't drink. I don't get the rotating color thing, but I do...
    MyChemicalBreakup MyChemicalBreakup 13-15, F 1 Response Dec 2

    Your Response

    Cancel
    A braided bracelet of yarn that I've worn and never taken off since day 1, 6 years ago.
    LapRat LapRat 16-17, F Dec 2

    Your Response

    Cancel