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I Take Tysabri

Personal Stories, Advice, and Support 38 People

    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 3 Responses Nov 13, 2012

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    Related Experiences

    There are things in life that I wish for - a better life, more time with my close ones, getting fit etc. Yet my laid back attitude is working against me, with me doing nothing and...
    HappieStinger HappieStinger 41-45, M 3 Responses Apr 26

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    I try to not complain. I try to lift my chin and pitch in. But to be taken care of, to be protected and cherished. it would be so nice if I could be taken care of and not be taken...
    shyshewolf shyshewolf 70+, F 1 Response Apr 21

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    I've been trying to eat healthy for a while now. I really prefer a healthy diet of staple foods. I love to cook and prepare my own meals at home. It really is the best way to live...
    tkski tkski 41-45, M 1 Response Apr 23

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    I never take selfies, it just seems so wrong. I only take self-portraits. :DAnd yes, the hair is terrible, the skin is oily and the beard is distracting... Just shu...[Message...
    KimKarlsson KimKarlsson 16-17, M 1 Response Apr 5

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    i'm 20. and i just had one ex. yes i take relationships REALLY seriously. i don't know, maybe because of our culture but i know it's really myself. i really take relationships for...
    MrRadicals MrRadicals 18-21, M Apr 8

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    I didn't believe in God until I started having the strangest things happen to me. First they were subtle little things that could have been set up. Then they graduated to paranoia...
    SeasonsinHell SeasonsinHell 22-25, M 1 Response Apr 9

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    It's great to have lasting memories through print or electronic storage. You can take a look at anytime and reflect on what took place at that particular moment. Modern...
    Danielle1011 Danielle1011 51-55, F Apr 16

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    I wish I can take someone's pain away even if I have to feel it myself. I would most likely die of a heart attack though. I just want to be able to take away the people's pain even...
    MichaelEgitto MichaelEgitto 13-15, M Apr 22

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    I still get mine taken rectally and I am almost 15. Both my parents take it that way all the time and I get it at the pediatrician too. I don´t really like it because I get...
    shirashayna shirashayna 13-15, F Apr 24

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    I still get mine taken rectally and I am almost 15. Both my parents take it that way all the time and I get it at the pediatrician too. I don´t really like it because I get...
    shirashayna shirashayna 13-15, F 1 Response Apr 24

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    Control...Letting the Curves Take You...The answer to control is practicing surrender.Trying to maintain control in this life is a bit like trying to maintain control on a roller...
    anghel77 anghel77 36-40, F Apr 27

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    It has happened to me my entire life, ever since the first grade which i still remember for some reason,i was a more sensitive boy than others, and i got made fun of for it, i was...
    Otokonoko Otokonoko 16-17, M 5 days ago

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    My day is surrounded by brilliant sunshine today..as far as the eye can see the sky is a beautiful crystal azure blue. I hear the birds outside my window singing away, so carefree...
    sensualbeauty1 sensualbeauty1 46-50, F 4 Responses 2 days ago

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    The love in you're eyes, now turned to glass The tender in you're kiss, is now long past The charm in you're smile, now turned to hate The embrace of you're arms, is now not my...
    traceyannmay traceyannmay 22-25, F 3 Responses 1 day ago

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    I don't know. I want none abusive relationship for once. After growing up in an abusive home for eighteen years I end up in abusive relationships where I'm beaten, taken advantage...
    wolfofloki wolfofloki 26-30, M 2 Responses Apr 6

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    I'm a nice person, I had friends I've known for years ask me for money and a while later I bring it up that they owe me money and they go around and say I am antagonizing them...
    4NeonFun 4NeonFun 18-21, F 3 Responses Apr 8

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    yes i do. im on more then one and i tell my doc that i am numb not depressed and i would love to get off of them. in total i take 19 pills a day. (not all of them are...
    Ang012685 Ang012685 26-30, F 1 Response Apr 9

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    The urge to runaway is killing me. I dislike with a passion being in my home. All I hear around me is the constant verbal abuse. I can't take it anymore and I don't know what to do...
    Delicateflower98 Delicateflower98 16-17, F 1 Response Apr 9

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    everytime I lay things on the table for someone,and talk about what´s happening in my life I immediately feel the backlash. This is why I don´t talk about stuff, and have to come...
    DiamondArmada DiamondArmada 22-25, F Apr 10

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    I wish I could take all your nightmares away...all your bad memories and feelings...you don't deserve that....I wish I'd feel all your pain for you...switch places...so you could...
    anderlr anderlr 13-15, M Apr 11

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    I have to take at least one shower every day. People I work with go 2-3 days with out showering that's so nasty. They think if they spray Glade on them selves that will work. They...
    UCLABruinsFan13 UCLABruinsFan13 41-45, M Apr 12

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    I wish i could take these two and remove the fear and pains of there young live away..... My wife and i love them dearly. There great kids in my book. They know where to turn if...
    ImHungry2 ImHungry2 51-55, M Apr 13

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    Am A Real Virgin Who Takes Pride In Being A Virgin
    hope1022 hope1022 22-25, M Apr 13

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    What is "the yaoi test"? Is it just uke or seme personality quiz like google resulted? cuz i dont need to take it to proclaim seme
    JamieMostra JamieMostra 26-30, T Apr 14

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    So I'm having my exams in May and am therefore really stressed and cannot sleep at night. I got a box of Xanax and some sleeping pills (apo-Zolpin) but I really cannot take Xanax...
    EverMine EverMine 18-21, F 1 Response Apr 14

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    This was taken in home town. All these windmills are on mountain tops all along this whole area and the towns don't even have access to the electricity they provide, it all goes to...
    Angeleyes789 Angeleyes789 46-50, F 3 Responses Apr 15

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    Most of my ex girlfriends hate that I'd rather go out and take pictures then spend time with them, I hope to end up with a girl that enjoys photography as much as I do.
    deleted deleted 26-30 2 Responses Apr 16

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    Why- rascal flatts Why did you have to take your life Ethan?! Why? It's still not settling in my head Ethan. You don't realize how much people miss you. Especially your mom, dad...
    HisMsLane HisMsLane 16-17, F 1 Response Apr 16

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    I was born in the United States. I was privileged, I have more rights than most people let alone most women. I will choose my spouse, I will choose my job, I will choose to have...
    KateTheStraightedge KateTheStraightedge 16-17, F Apr 17