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I Take Tysabri

Personal Stories, Advice, and Support 38 People

    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

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    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

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    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

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    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

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    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

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    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

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    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

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    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

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    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

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    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

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    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

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    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

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    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

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    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

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    Related Experiences

    Your legs open wide for me, Your eyes beg me to take you - NOW. In one motion I move to you And thrust myself completely inside. I feel your legs wrap around me, Pulling me closer...
    hardbargain hardbargain 51-55, M 9 hrs ago

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    I can't take anything seriously these days that it's come to the point that I feel apathetic and numb to everything. My friends, my part-time job co-workers (though this makes...
    Unable2Breathe Unable2Breathe 22-25 1 Response Mar 3

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    Take me to a place where I have never been. Take me to a place where our eyes can truly meet, no matter what the world say about your serious look You will give me a broad smile...
    winterfall winterfall 36-40 4 days ago

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    She seems a million miles away When she walks by, you don't know what to say You gonna make a move, you better make it now Don't be afraid, 'cause love will show you how You take...
    TheScorpio1966 TheScorpio1966 46-50, M 6 days ago

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    I feel so frustrated sometimes. so incredibly angry and frustrated when people don't understand. they don't seem to get it. when i try to say that we don't talk as much, and he...
    n706 n706 18-21, F 1 Response Mar 5

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    So, I have a lot of issues I need to take care of. I need to drink more water and milk. Instead, I'm drinking soda 98% of the time. I probably eat more junk food than regular food...
    RhinosaurusRex RhinosaurusRex 18-21, F 7 Responses Mar 13

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    I've had my shoes taken off, usually when I've fainted before. Actually, every time I've fainted, my shoes have been removed. The first time in 4th grade, I fainted at choir...
    countrygirlrachel countrygirlrachel 18-21, F 1 Response Mar 13

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    yes i have when they put me in a mental hospital. i was detained. it made me feel like a criminal and not a sick person at all . it made me feel i did somethink wrong.and i was...
    furrycats furrycats 31-35 Mar 2

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    I have posed for photos taken by my ex boyfriend, and I have taken a lot of selfies. Digital photography is so much easier than the photography with film negatives and everything...
    Astrucbmt Astrucbmt 22-25, F 9 Responses Mar 2

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    I hate having my picture taken by a random stranger... so I'm on my way home on the bus this guy was with his girlfriend, she was falling asleep non the wiser of his stupid stalker...
    lilygeorge12 lilygeorge12 22-25, F 1 Response Mar 3

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    Wow, kinda cool to find this topic. Back in October 2014, I was asked by my boss and my boss' boss if I wanted to take a new position within the team. I didn't hardly hesitate at...
    AlwaysPersevere71 AlwaysPersevere71 41-45, M 1 Response Mar 5

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    This is why I never take selfies and don't like taking photos of myself. Here's the thing though, if I do take a selfie it is instantly deleted.
    Juliette19 Juliette19 18-21, F Mar 6

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    I am always taken advantage of because I am smart. People I have never even spoken to ask me for HW answers, essays, etc. Even people who bully me and are fricken rude to me do the...
    penaddict penaddict 18-21, F Mar 10

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    Haha, otherwise I would be blank black air... Silly to take pics of yourself...but really it's not what I see in the mirror, so I take a picture
    OrchidsNuBlu OrchidsNuBlu 36-40, F 5 Responses Mar 13

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    I do not see the point of them. I ask some one to take a photo of me if need to take a photo of myself
    sroonaka616 sroonaka616 18-21 1 Response Mar 13

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    I know being in a loving relationship has it's obvious advantages, as well as apparently to do with our emotional well being and giving us a longer life span - (unless it's unhappy...
    ladyPlum ladyPlum 26-30, F 2 Responses Mar 14

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    I don't dream often. but when I do----------------------I really do not dream much anymore- OK-that is that I rememebr anyway. I am too old to believe in fairy tale endings, prince...
    Elandra77 Elandra77 56-60 4 Responses Mar 17

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    I've finally been able to convince my husband that I really do want to be in a relationship like this, although I refrain from referring to my desired relationship as DD or TIH...
    taliahood taliahood 26-30, F 3 Responses Mar 19

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    My mother suffers from a lot of things. One of her legs is longer then the other so she had bad posture and her back hurts all the time. It got to the point to where it hurt so...
    WlCKED WlCKED 18-21, F Mar 22

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    I've always loved this-even as a kid. And this even PRE-dates me--this version--by a whole YEAR! To me there is no better vocal arrangement of it-or interpretation-(Artie Shaw...
    Elandra77 Elandra77 56-60 4 days ago

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    With everything. Life, homework, traveling, drawing, work, driving, and others things. Whether * do or don't want to, * can't, even if it's important, needs to get done, or...
    CrossCresentCreed CrossCresentCreed 18-21, F 1 Response 2 days ago

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    When grown man who look about 40-50 years old and they tell me I look beautiful I don't know how to take they're compliment. If I say thank you, they're going to think I'm trying...
    lorrena19 lorrena19 18-21, F Mar 1

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    Taken yesterday with my selfie Buddy hehe, little china in hongkong ..
    Spicyandsweet Spicyandsweet 26-30, F 1 Response Mar 1

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    I really like to take pics , give me camera and I will forget you and who is walking next to me , I totally forget myself with historical places , pyramids . citadels ,, etc and...
    as3adsamy as3adsamy 22-25, M Mar 2

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    How to take a compliment: Step 1 Say "thank you" Step 2 There is no step 2, that's it jackass. Haha I don't think you guys are jackasses I just saw this on twitter
    AshleyJea AshleyJea 22-25, F 4 Responses Mar 2

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    And someday I hope to take pictures with a significant other
    Princessjxyn Princessjxyn 13-15, F 2 Responses Mar 2

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    I became involved with someone who is in a 10 year relationship with the mother of his child. I know a lot of people frown upon "the other woman" and I take full responsibility for...
    plusisamust plusisamust 22-25, F 1 Response Mar 3

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    too many moments in life that never get 2nd... make it a first and never forgotten...I mean memories are the only thing we take when we're gone.. so bring a lifetime's worth
    LeeOmar88 LeeOmar88 26-30, M 4 Responses Mar 3

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    I love you little one. They we're threatened by your health, your light, your love, and your perfect candor. They couldn't relate so they took it away. But it wasn't your fault...
    pinkpearlite pinkpearlite 22-25, F Mar 3

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