Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Take Tysabri

Personal Stories, Advice, and Support 39 People

    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

    Your Response

    Cancel

    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

    Your Response

    Cancel

    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

    Your Response

    Cancel

    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

    Your Response

    Cancel

    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

    Your Response

    Cancel

    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

    Your Response

    Cancel

    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

    Your Response

    Cancel

    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

    Your Response

    Cancel

    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 31-35, F 1 Response Jul 18, 2013

    Your Response

    Cancel

    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

    Your Response

    Cancel

    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 4 Responses Nov 17, 2012

    Your Response

    Cancel

    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 3 Responses Nov 13, 2012

    Your Response

    Cancel

    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F Apr 11, 2011

    Your Response

    Cancel

    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

    Your Response

    Cancel

    Related Experiences

    I definitely need to take better care of myself.. I forget to eat or get too lazy to eat, so my weight fluctuates constantly. I forget to drink enough water and have lost...
    boklenHolley7 boklenHolley7 18-21, F 1 hr ago

    Your Response

    Cancel
    I was diagnosed with bipolar disorder. I don't believe I have it. I stopped taking medicine for it, a year ago. And let me tell you, I'm better off without the medicine. I am able...
    CreoleItalianwoman CreoleItalianwoman 31-35, F 3 Responses 3 hrs ago

    Your Response

    Cancel
    A typical Tokyo scene taken from my office.
    katsuobushi katsuobushi 36-40, M 1 Response 5 hrs ago

    Your Response

    Cancel
    I will take it from anybody.... I have taken so much, and I am at my limits. I have allowed my self to take it because I am tired of the back and forth crap that goes with it...
    SassyBabe39 SassyBabe39 41-45, F 10 hrs ago

    Your Response

    Cancel
    WATCH THE VIDEO AFTER YOU HAVE READ!i have bee sitting in my own temptations and pleasures talking to people who are only making me more gay and as i have noticed this i seem to...
    idkwhatiam idkwhatiam 13-15, M 2 Responses 11 hrs ago

    Your Response

    Cancel
    I want to apologize to the friends I am close with, and the few I am generally friends with...at times it does take me a while to respond to messages..... Not on purpose...my...
    SassyBabe39 SassyBabe39 41-45, F 11 hrs ago

    Your Response

    Cancel
    I'm a 15 year old guy and my problem may not seem that big but hear me out. I don't have a bad life when it comes to home and stuff like that, I have a nice big house, live in a...
    ArtistKS ArtistKS 13-15, M 22 hrs ago

    Your Response

    Cancel
    Is it just me. I don't really take a lot of selfies. But when I do, I try to line it up so it's framed nicely (You've seen the epic fails of those who didn't check the background...
    Longlegs2014 Longlegs2014 41-45, T 5 days ago

    Your Response

    Cancel
    Especially in person, it's a lot easier for me due to the help of body language. But through message or text, it kinda takes me awhile to figure it out but eventually, I can take a...
    Darkslinger Darkslinger 26-30, M 1 Response a week ago

    Your Response

    Cancel
    I don't even take particularly good ones. I just enjoy taking pictures. Whenever I go anywhere I make sure to take a lot of photos!
    abi96 abi96 18-21, F 3 Responses Jul 22

    Your Response

    Cancel
    I'm not sure how long I will be gone but I know I will be back. Hubs had a heart to heart with me today and said he was concerned about the amount of time I spend on EP. He knows...
    pinkstarburst pinkstarburst 41-45, F 16 Responses Jul 21

    Your Response

    Cancel
    Last year I took an AP Class at my high school, the thing is I'm not a smart kid at all and I later asked myself at the end of the year why did I even take the class. I have come...
    Karlsonkit Karlsonkit 13-15, M Jul 19

    Your Response

    Cancel
    The kinder I am, the more people take. I can't draw the line in the sand because all I want is to love and be loved.
    AlwaysNastasya AlwaysNastasya 22-25, F 1 Response Jul 15

    Your Response

    Cancel
    Formal engagement party will be in Paris.Yeah sorry guys! Blackforest is not available anymore.That's my real hand, taken a minute ago.I only curled my fingers because they don't...
    4BlackForest 4BlackForest 36-40, F 11 Responses Jul 15

    Your Response

    Cancel
    I recently started to experiment what works for face, in terms of keeping it clean; free of acne and dark spots. I bought a toothbrush (make sure you buy the ones with soft or...
    iamfantastick iamfantastick 18-21, F Jul 15

    Your Response

    Cancel
    After a very windy severe storm I went to take pictures of the creek down in the woods. :) Unfortunately it started raining again so I had to leave.
    ZER0RPHEUS ZER0RPHEUS 18-21, F Jul 14

    Your Response

    Cancel
    I take everything too seriously. It’s one of my many fatal flaws. Life for me is a walk in the park— well, the industrial park… And I’m Spongebob on the back of a red...
    Personalstories Personalstories 18-21, M Jul 14

    Your Response

    Cancel
    Sorry boys I'm taken. So no more role play, trading, or anything like that. I'm staying true to my man. I don't believe in cheating. So sorry boys.
    colt109 colt109 13-15, M 4 Responses Jul 14

    Your Response

    Cancel
    I was about three years old and I meet this guy at school . . .we use to sit beside eachother on the bus and I told my mom about him and some how she knew his parents so we started...
    Makayla246 Makayla246 13-15, F 1 Response Jul 14

    Your Response

    Cancel
    I find women smoking the sexist thing in the world. Love being used as a human ashtray by a smoking women having her flick her ash in my mouth and then making me eat her cigarette...
    spiderman666 spiderman666 22-25, M 1 Response Jul 14

    Your Response

    Cancel
    Once I was told that I have "darkness inside" but, actually, I feel depressed because I see darkness all around me, in the people who I cross into, so I think that mine is just a...
    hashsoul hashsoul 26-30, F Jul 13

    Your Response

    Cancel
    Helli guys :) I like to take pictures. If you wanna see pics of mature please follow @seetheworldsbeauty on Instagram
    ShawdowsStartsToSing ShawdowsStartsToSing 70+, F Jul 13

    Your Response

    Cancel
    I am happily taken by someone very special that I hope to spend my life with ^^
    IzumiSK12 IzumiSK12 13-15, M Jul 12

    Your Response

    Cancel
    I am going to take a shower alone. See you all later.
    mother1983 mother1983 31-35, F 4 Responses Jul 12

    Your Response

    Cancel
    I really like to take pictures of people. I enjoy being behind the camera and finding that special look or special place. It gives me great pleasure to take a picture and make it...
    malexander564 malexander564 51-55, M Jul 12

    Your Response

    Cancel
    The dry lands with olive trees surrounding the place I live, taken from a nearby hill.
    deleted deleted 26-30 1 Response Jul 12

    Your Response

    Cancel
    I have my first rectal temperature taken nearly about 2 years ago. My partner took and he taught me how. He is a Doctor and a not a good one, A VERY GOOD ONE! sad to say, he can't...
    CheetoCrunch CheetoCrunch 36-40, F 4 Responses Jul 12

    Your Response

    Cancel
    They wont let me stay to take pictures like this. Because housing cant house me fast. Moronically abusive thugs.
    Converted Converted 46-50, M 1 Response Jul 11

    Your Response

    Cancel
    I haven't felt much like taking photos lately. I used to really love to take them. Just to see the simple this in life through the lens of a camera always made me so happy. To...
    BrokenAngel38 BrokenAngel38 36-40, F 2 Responses Jul 11