Post

I Take Tysabri

Personal Stories, Advice, and Support 38 People

    Just Do It..............

    "I take Tysabri"  I was dx at 27............in 2004 i was  Married on an island at 25, : ) great times!!!having a great time parting my *** off with friends on my free time and just enjoying life with my hubby .My career was as an Rn, Bsn in a Neonatal...
    gemini76 gemini76 31-35, F 3 Responses May 24, 2008

    Your Response

    Cancel

    MS Research

    I work for a research firm just outside of Boston, MA – and we’re currently doing some really interesting work regarding MS medication. My team is currently recruiting MS patients to join an online bulletin board / discussion community to record their experiences with various...
    estaples estaples 26-30, F Jul 18, 2013

    Your Response

    Cancel

    On Tysabri, Feeling "fencey"

    Feeling Fence-y: I have had 7 doses of Tysabri, now. Two months ago, I started aspirating liquid when I tried to drink. After a few experiences, within a few days, of violently and abruptly (and oh! so gracelessly) choking on my coffees-with-milk added, I developed a cough...
    megbat megbat 31-35, F Dec 16, 2012

    Your Response

    Cancel

    Ms And The Menu Of Drugs

    Hello,  trip to her               My name is John and my wife has MS,diagnosed in 1997 with remitting / relapsing now has  progressive??? On a recent trip to her neurologist they suggested that she may be interested in Tysabri. She has had an implant a (Neuro...
    reelwood7 reelwood7 66-70 1 Response Feb 10, 2012

    Your Response

    Cancel

    Just Giving Up Rebif..

    I con't really even remember my first Dx date. First I tried all the herbal remedies, but the MRIs showed that the disease was progressing anyway --- Alas --   So it was on to Avonex... That took a while to get used to, in fact I'm not sure I ever did.  I took if for...
    Wiccad Wiccad 41-45, M 5 Responses Jul 24, 2008

    Your Response

    Cancel

    What May Kill Me Is Actually Keeping Me Alive

    Don't be afraid of Tysabri if you neurologist suggests it. I would be bed-ridden, blind and probably vegetative if I didn't switch to Tysabri. Been on it since I was 22. Don't feel like writing my main experience of my whole MS diagnosis yet, but I will gitter done soon! FMS...
    meganomalie meganomalie 22-25, F 1 Response Apr 11, 2011

    Your Response

    Cancel

    Avonex Patient Who Is Switching To Tysabri

    My name is Charlene and I was dx last year with Ms and and is currently taking Avonex to treat it well i had a flair up and my doctor says beacause of this is is swithing me to tysabri says it a better treatment just need some other advice on switching.
    bunne2 bunne2 41-45 1 Response Apr 7, 2012

    Your Response

    Cancel

    My Life With Ms

    Short version--Married in 1991, age 22...start of first symptom 3 days after return from honeymoon...new city, no friends or relatives...diagnosed after typical series of tests...Neurologist said no kids for 5 years, must have heard have 5 kids cuz that's what I did!...now ages...
    MSMom MSMom 41-45, F 4 Responses May 13, 2010

    Your Response

    Cancel

    Tysabri Is A Modern Miracle

    I am a 38 year old male from Melbourne Australia. I was diagnosed with MS almost 10 years ago and getting over the shock of my diagnosis I began using Betaferon as recommended by my Nuerologist. I went from being a very active sportsman, footballer slowly losing my coordination...
    Shaunmelbourne Shaunmelbourne 36-40 1 Response Feb 6, 2013

    Your Response

    Cancel

    I Need Advice 4 Months On Tysabri

    It has been my fourth time in early December taking Tysabri.  I felt like I was hit by a Mack Truck.  Normally, I walk pretty good a little bit wobbly.  But each time after taking Tysabri the first week I can not walk at all and I feel absolutely awful.  Two weeks later I am...
    buckleybets buckleybets 46-50 5 Responses Dec 15, 2011

    Your Response

    Cancel

    Pml

    Unfotunately the worst possible side effect hit me using tysabri PML. Paralyzed lft side of my body
    Jstuly1 Jstuly1 46-50 2 Responses Nov 13, 2012

    Your Response

    Cancel

    Help

    I have had about 55 treatments on Tysabri. Although I am doing very well I don't know when enough is enough. I had been on Beta Seron before the Tysabri, the side effects were terrible. My only other choice would probably be Copaxone but I know it is not as strong (so why shouldn...
    Rxpsycho1 Rxpsycho1 61-65 4 Responses Feb 3, 2011

    Your Response

    Cancel

    If Someone Could Answer My Questions..

    I was diganosed with MS back in april 2012 while I was pregnant. My left side of my face went numb. I have had numerous of MRIs and numerous attacks. The past 7 months, I think I've had a week where I walked normally and felt normal. My Dr. doesn't seem like he wants to help me...
    Christine2686 Christine2686 26-30 2 Responses Nov 17, 2012

    Your Response

    Cancel

    I Am Gonna Try Tysabri...

    I have taken most of the D.M.D'S do very little avail. I am now 40 years old and this blooming fatigue is never ending and unpredictable. I have been injecting for 15 years now and am a little fed up always having to inject myself daily.. ok maybe i'm a yap and should be more...
    finnboy77 finnboy77 36-40 1 Response Apr 11, 2012

    Your Response

    Cancel

    Related Experiences

    I have my hands full right now and I'm not looking to add on or take on anyone else at this time. I enjoy my life the way it is and I am happily taken.
    KawaiiBoy KawaiiBoy 18-21, M 5 hrs ago

    Your Response

    Cancel
    This was originally for an Accutane survivor thread/forum. I took Accutane as a senior in High School. I had acne, it was bad, not terrible, but bad. I disliked having acne, but...
    Anon010101 Anon010101 22-25, M 2 Responses Apr 12

    Your Response

    Cancel
    Yes yes, I am independent, I don't NEED to be taken care of, but its a lovely feeling to be with a man that WANTS to take care of me. I have never had it before in previous...
    suzieb1971 suzieb1971 41-45, F 1 Response Mar 24

    Your Response

    Cancel
    I'm depressed and i have no one to talk to. I have no real friends and all my family members are seriously ****** in the head (in my opinion). It all started when i was about 10. I...
    Canaduhh Canaduhh 13-15, F 3 Responses Mar 26

    Your Response

    Cancel
    I waver between being very thoughtful and not wanting anything to do with anything in a serious way :))) I take much of life serious, but myself is another story. I take that back...
    jeresey jeresey 56-60, F 2 Responses Apr 3

    Your Response

    Cancel
    Day 2: guns & roses 'paradise city' I picked this song bc a long time ago me and my mum would jam out to journey and guns & roses XD anyway i think its got good guitar parts in it...
    RavenHearts RavenHearts 16-17, F 1 Response Apr 7

    Your Response

    Cancel
    I had this friend, we were so close. Lets call him Fred. Also though on the edge of being together for quite some time. I got a new boyfriend, after a few months we were perfect...
    BlooRae BlooRae 16-17, F a week ago

    Your Response

    Cancel
    I HATE to have my photo taken when I was pregnant I was a photo queen I never missed the opertuninty to post my big belly and photos when you could see my son's foot almost...
    funsnowgal funsnowgal 22-25, F 2 days ago

    Your Response

    Cancel
    I went to Mexico this summer and I was walking around this beautiful church. There's had to be like 100 stands at least, of people selling there things around the church. I ended...
    Live5772 Live5772 18-21, F 1 Response Mar 29

    Your Response

    Cancel
    You Can Thank My Sister For That!! When we were young my sister had a thing for taking pictures of me. I don't mean nice ones either. She would hide in different places, under...
    maqeurious maqeurious 31-35, F Mar 30

    Your Response

    Cancel
    You Can Thank My Sister For That!! When we were young my sister had a thing for taking pictures of me. I don't mean nice ones either. She would hide in different places, under...
    maqeurious maqeurious 31-35, F Mar 30

    Your Response

    Cancel
    Medication abuses who you are as a person, especially depression meds. Sometimes, I wonder what I would be like if I hadnt started to take them in the first place, would I be...
    MajorasAngel97 MajorasAngel97 16-17, F 1 Response Apr 1

    Your Response

    Cancel
    I'm SO embarrassed. So what happened was that I won intern of the month. I am not one to be center of attention, so when they called my name, I literally said, "F--K." I didn't...
    BlueIce612 BlueIce612 16-17, F 3 Responses Apr 3

    Your Response

    Cancel
    I'm so lost, my therapist and psych say I won't feel better until I take them regularly, but my family and boyfriend make me feel Like a criminal just for doing what the doctors...
    elizabethmary21 elizabethmary21 22-25, F 2 Responses Apr 8

    Your Response

    Cancel
    Your Existing Situation Works well with others. Needs personal relationships which are understanding and relatively conflict-free. Your Stress Sources "Not a team player and is...
    DoubleyouX DoubleyouX 22-25 1 Response Apr 10

    Your Response

    Cancel
    I was attempting to stop taking them but it's 2am... Oh the struggle... To take them or to not take them? Such a predicament.
    LivviyLove LivviyLove 16-17, F Apr 11

    Your Response

    Cancel
    What do you all take and how much.? I'm trying to figure out if I am taking too much. Womens daily vitamin which includes biotin and d, but I also take an additional d and biotin...
    mrvitous26 mrvitous26 26-30, F Apr 12

    Your Response

    Cancel
    I have always been like this and I will always be like this. I take my relationships very seriously whether it's friends,family or my partner. I have often been hurt and...
    Susana1985 Susana1985 26-30, F 1 Response 1 day ago

    Your Response

    Cancel
    I take Zzz quil and in sore that it is making me sick in other ways. So I will deal with the lack if sleep and read more. FML
    Zeita75 Zeita75 36-40, F Mar 23

    Your Response

    Cancel
    When did we as people start to not take relationship serious anymore? I mean serious. Everyone wants to cheat or tell everyone their business and you wonder why I don't want a...
    lachee lachee 16-17, F 3 Responses Mar 23

    Your Response

    Cancel
    I'm almost 18, and my parents control every single aspect of my life. Yeah, I've made some bad choices, but they've never given me a chance to show them I am more mature since then...
    sothisiswhatitfeelslike sothisiswhatitfeelslike 16-17, F 2 Responses Mar 24

    Your Response

    Cancel
    How I wish I could. :( It's been almost a week the first time I joined on EP and since then, I started knowing numerous experiences of people (that captured my heart) coming from...
    MissPurple912 MissPurple912 18-21, F 6 Responses Mar 24

    Your Response

    Cancel
    I have sleep apnea as well and have had insomnia most if my life. I take Benadryl at nite to help me fall asleep and it helps me tremendously. I recommend taking 2 at nite and you...
    denaellis575 denaellis575 46-50, F 2 Responses Mar 26

    Your Response

    Cancel
    I can't take my life anymore... I've been through so much since I was a little girl and every time I try to be happy it gets screwed up. I lost the love of my life because he fell...
    xxersabooxx xxersabooxx 18-21, F 3 Responses Mar 26

    Your Response

    Cancel
    I think it would be a ton of fun to take a road trip and drive through all over the US. It may cost a bit of money, but I'd be willing to save up and do it! It sounds like FUN! :D
    Whoami30 Whoami30 26-30, M Mar 26

    Your Response

    Cancel
    I just want to take a long road trip with a friend or two, and just live out of the car for a while, it sounds fun.
    anovasiangel anovasiangel 13-15, F 1 Response Mar 26

    Your Response

    Cancel
    I hate my friends right now! They keep trying to take me picture!😡
    FantasyButterfly4 FantasyButterfly4 13-15, F 1 Response Mar 27

    Your Response

    Cancel
    My fiancé works long hrs- 12-14 hr days. Goes to the gym, comes home, spends an hour on the can, eats then games. Work and gaming come before me always... This means he hardly...
    painfultime painfultime 31-35 2 Responses Mar 27

    Your Response

    Cancel
    I am too inarticulate to ever be capable of telling someone just how much they are worth to me. I can say 'I love you', but my face won't shape the words the same way my mouth does...
    typedwriter typedwriter 26-30, F 1 Response Mar 27

    Your Response

    Cancel
    Hi, I have always had this feeling of wanting to help others the best way I can. I always plan that when I get older i will do lots of charities and volunteer at animal shelters...
    musicgirl102 musicgirl102 13-15, F 3 Responses Mar 27

    Your Response

    Cancel
    i will do anything im bi and i will take gift cards to
    blackattack05 blackattack05 13-15, M Mar 28

    Your Response

    Cancel
    I have an turquoise amulet that has been passed down through my family, I never take it off.
    cyraalana2000 cyraalana2000 13-15, F Mar 29

    Your Response

    Cancel
    My grandmother gave me a ring for my 12th birthday. My grandmas own mother gave it to her when she was 12, after she had foot surgery. It's a gold ring with a beautiful pink...
    LittleListener LittleListener 13-15, F 1 Response Mar 29

    Your Response

    Cancel
    My boyfriend bought me a bracelet with an anchor on it, since he's in the navy it makes sense. I never take it off, with him being stationed in Japan it gives me a sense of comfort...
    ncon08 ncon08 18-21, F Mar 30

    Your Response

    Cancel
    Yeah I take relationships seriously, love you Josh 😘😍❤️
    Mariaaa16 Mariaaa16 18-21, F 2 Responses Mar 30

    Your Response

    Cancel
    I can't take this anymore-That's what i've been saying fot the last ten years, yet i am still here... What's my problem? I can't do anything right, I'm studying the thing i hate...
    kokica kokica 22-25, F 2 Responses Mar 30

    Your Response

    Cancel
    I'm 21 years old and my mom treats me like I'm 16. In my culture a girl can't leave the house until she's married. I don't really get to do anything. I go to college and come home...
    cowboys11 cowboys11 18-21, F 1 Response Mar 30

    Your Response

    Cancel
    i wear these 3 rings.One is platinum that i have been wearing since the last 5 years? i guess and the second one is gold and it has been 3 years and this third one i got from...
    Angelina1992 Angelina1992 18-21, F 1 Response Mar 31

    Your Response

    Cancel