I Think I Have Narcolepsy

Personal Stories, Advice, and Support 24 People

    Write about your experienceI'm 13

    and would like advice from the fellows out there who have narcolepsy or who might have advice. I got mono at age 8, never fully recovered. My parents thought it was normal, I wasn't getting enough sleep. I always knew something was wrong, but dealt with it. With years of bearing...
    milla816 milla816
    13-15, F
    Dec 26, 2015

    I CAN'T LIVE LIKE THIS ANYMORE!

    PLEASE PLEASE HELP! I have not been diagnosed with Narcolepsy yet (I can't afford the sleep study yet, because I'm a broke grad student). However, I am a dietitian, which means I eat well and stay active. Thus, my blood work has come out great, and my B12 and iron (among other...
    jenmej jenmej
    26-30, F
    1 Response Dec 9, 2013

    Sleepie Tells All

    Please do read my story in the "I Have Narcolepsy" group. Under Sleepie Tells All... Thanks, Sleepie
    Sleepie Sleepie
    41-45, F
    May 9, 2012

    Living a Life With Narcolepsy

    for 3 yrs now i've been trying to figure out wat was wrong with me until one day i finally decided to look it up on the internet when i found out about narcolepsy i knew that was wat i have so i started to write a book about how i felt to reach out to people who felt the same way...
    sleepingangel sleepingangel
    18-21, F
    1 Response Jan 24, 2009

    Any Advice From Sufferers

    How to start this? Basically, I'm unsure as to how I've never thought of this before but I have had problems with sleeping from the age of 16 and am now 24. I used to suffer hypnagogic hallucations, sleepwalking and paralysis. I have'nt had these symptoms for a long time, however...
    jenwestx jenwestx
    22-25, F
    1 Response Jun 4, 2012

    Figureing Out If It Is Narcolepsy

    I guess the symptoms started years ago... High school time frame, But i never associated any of these symptoms all together as I've been through many things in the last five years that My health just seems to feel like its falling apart around me... Each day I feel weaker. I...
    stownsend08 stownsend08
    22-25, F
    2 Responses Apr 5, 2009

    Researching Adderall For Weight Loss Made Me Question My Reality.........

    I don't think there's an attractive woman out there, no matter how thin, or how beautiful, who, if she feels she needs to lose a bit of weight or looks in the mirror and thinks "Oh my God, I look disgusting!" will actually admit this to anyone but herself. Admittedly, we all are...
    LifeAwake LifeAwake
    31-35, F
    1 Response Dec 4, 2010

    Well Folks The Is Verdict In.

    Finally after countless years of denial, bad excuses, 2 Doctors and 2 sleep studies. I was diagnosed this week with Narcolepsy plus cataplexy. Even though i have had textbook symptoms for a long, long time it still came as a wee bit of a stock for lack of better words. On the day...
    joshx joshx
    41-45, T
    Aug 30, 2013

    Going through my old notes.

    ..still do feel that way...
    marianajohnson marianajohnson
    16-17, F
    Jul 21, 2015

    Scared to Take the Test

    Too say I have been tired is an understatement.  But I am, all the time.  I have been for years.  It doesn't matter how much sleep I get I am tired.  I finally went to the doc for it.  He did some blood tests and found anemia.  The problem was that...
    sleepymommy sleepymommy
    31-35, F
    1 Response Sep 25, 2009

    New

    Hey all. I am new and just wanted to introduce myself and share a little of my story. I am 39 and have been struggling with unusual sleep all my life. I started as a sleep walker at a very young age, reaccuring night mares and such. Which evenually subsided. In my very early 20...
    joshx joshx
    41-45, T
    1 Response Jul 26, 2013

    Developement

    I have yet to be diagnosed or anything, but starting alittle after this december, I have been showing symptoms of Narcolepsy. During class or any random time it will suddenly just be impossible to keep my eyes open and I just like pass out. Its not any bad and it might be...
    Galaxypower Galaxypower
    13-15, M
    2 Responses Feb 4, 2009

    If I get more than 6 hours a sleep every night

    and fall asleep randomly in specific classes with a quiet atmosphere, what exactly does that mean? My mom thinks it's because I stay up late, but I don't stay up late at all xD And the falling asleep is so random! I'll be super pumped and ready for the day, and soon as I have...
    Nixismachina Nixismachina
    16-17, F
    1 Response Jul 2, 2015
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