I Think I'm Going Blind

Personal Stories, Advice, and Support 11 People

    I Have a Teenager Who Is Going Blind

      Oct. 8, 2008 This is it. This is the day I have to start telling someone; anyone, that this is harder than I knew it was going to be.   My son has RP or Leber’s or whatever; they don’t know. Auto-somal recessive for sure. Those of you who don’t...
    RPMom RPMom
    36-40, F
    3 Responses Oct 8, 2008

    Vision Loss But Hopeful

    I turned 40 and started falling to pieces. Long story short, I started having vision problems and my eye doctor, out of all the docs that told me I was fine, suspected cancer and saved my life. The eye doc ordered a rare and special test from a lab at OHSU in Portland OR and he...
    dukea dukea
    41-45
    Feb 16, 2013

    Almost Yearly

    I get new glasses almost yearly and each year the prescription gets stronger. Maybe this is why I don't go to Starbucks, I can't read the freaking menu!
    mysplitpersonality mysplitpersonality
    36-40, F
    3 Responses Feb 17, 2008

    Losing My Vision

    My vision is getting worse and worse. I can now only be correct to 20/60 for distance and this is going to get worse, according to my doctor. I am also losing my peripheral vision - at first that was only happening in my right eye (which is now down to 50% sight) but now my it's...
    shell02 shell02
    31-35
    Jul 30, 2012

    Scared

    hi have just discovered i have  RP and have night blindness, and blind spots in my eyes, and christmas and all have just been told i have to hand in my license.  Am a single mother of three, and am scared and am not sure what to do, with no help i live to far away...
    sinders sinders
    31-35, F
    2 Responses Dec 26, 2009

    Shot In the Dark

    I have pigmentary glaucoma.  I won't bore you with medical jargon, but suffice it to say it is quite common in young adults who develop glaucoma.  Although it is incurable, it is treatable.  The problem is my insurance company won't pay for treatment until I "...
    JaydenM JaydenM
    26-30, F
    1 Response Jul 13, 2008
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