I Was Born With a Cleft Palate

Personal Stories, Advice, and Support 58 People

    I have a bilateral cleft lip palate

    which extended all the way to just below my eye on the left side of my face, and level to my nose on the right side of my face. The scars are prominent and I am constantly being stared at, ridiculed, and I hate it. Why me?
    jxania jxania
    18-21, F
    1 Response Dec 28, 2015

    It'll be a month from today

    until I have my operation and honestly in the past 2 weeks, I've been a bit of an emotional wreck. The medical name for the operation is Le Fort 1 Osteotomy. It's basically where they move my top jaw forward, if you look at the before and after photos, you will see how much...
    Gemz2411 Gemz2411
    22-25, F
    Aug 17, 2014

    After my mother was given thalidomide,

    she had two children born with birth defects; one with spina bifada and me with cleft palate. My sister's spina bifida helped me keep in perspective the physical and social challenges of our birth defects. I was lucky and Children's Hospital in Chicago repaired my palate in...
    Clefty Clefty
    61-65, F
    Mar 19, 2016

    I'm Izzy, 14 with a submucus cleft palate.

    I guess I got lucky, only having to have two operations. My first was at three, where they inserted grommets. After six months came my next, an actual cleft repair. Unfortunately, as mine was submucus, It wasn't detected until late-people blamed my parents, thought I was deaf...
    jacki675 jacki675
    16-17, F
    Oct 5, 2015

    We Can Change The World

    Im currently 14 years old, I have both a cleft lip and palate. The cleft palate is really big, I had three surgeries for my cleft palate. I had a total of 12 surgeries and it is still in progress. Yes, people have made fun of me, I ignore them and move on, truth hurts, but life...
    Alizain411 Alizain411
    1 Response Apr 17, 2012

    My Life With A Cleft Palate

      Well I was born prematurely 1972 and was born with a Cleft Palate and with Pierre Robins Syndrome (which is common with clefts) When I was born I was transferd to what was then the ENT and Plastic unit at Beaumont Hospital in Lancaster  (now houses and flats) was...
    WAClint WAClint
    36-40, M
    4 Responses Oct 10, 2009

    "Through all the infinite possibilities,

    did I ever even have a choice?"
    Gemz2411 Gemz2411
    22-25, F
    1 Response Jan 2, 2015

    Update about my operations: Okay

    so let me try and explain this picture. I'll be as brief as I can.Following my appointment yesterday with the nasendoscopy, we talked a bit more about the jaw surgery and what it will change.Once again, the jaw surgery is where they are going to move my top jaw forward which...
    Gemz2411 Gemz2411
    22-25, F
    1 Response Jul 28, 2014

    I Have It Too...

    I have a cleft palate. My parents didn't know that I have a cleft palate when I was born until they've noticed that the milk is coming out of my nostrils. My father didn't want me to undergo surgery because he's afraid that the surgery might be a failure and my cleft palate would...
    zazzily zazzily
    18-21, F
    3 Responses Jun 5, 2012

    Hi guys, I'm a 15 year old british teenager,

    born in London and with a cleft palate. When I was born, the doctors didnt realize I actually had a celft palate, and it wasnt until 2 weeks later when the nurse noticed I wasnt breathing or feeding properly, that I was diagnosed. I under went 2 operations, 3 if you count one...
    EllaTurney EllaTurney
    18-21, F
    1 Response Dec 9, 2013

    Hi my names richard but everyone calls me

    richie :) im from ireland 3rd year...ive never really took my cleft lip as a disabilry i always taught alot more people are worse off then me so i carried on as normal teenage i play soccer,hurling,rugby,football ....but in the last few years since i started secondary school i...
    richardmckelvey richardmckelvey
    18-21, M
    2 Responses Apr 6, 2014

    I Am Uniquely Different Individual

    My name is Chai. One ordinary day I went to a local Starbucks and ordered a Chai Tea. And the barista asked for my name. I said "Chai". She had a harsh about me. In other words, she didn't know what I wanted. I slowly repeated my order and told her that my name is Chai. This is a...
    chaicmoua chaicmoua
    41-45, M
    1 Response Dec 1, 2012

    It Doesn't Make Us Any Different, Just A Little More Special_x

    So, I was born with cleft lip and palate, I went through my fair share of operations and I'm here to tell the tale.  I didn't even realise anything was different about myself until I was 11 and a new girl at school asked what was wrong with my face, I couldn't explain it...
    aRayofSunshine aRayofSunshine
    22-25, F
    3 Responses Apr 2, 2010

    Hey everyone, I thought I would seek out others

    to talk to that also had a cleft palat like me. I was born with the bi lateral cleft palat which is no bone structure connecting the nose to the mouth and having an open palat in the roof of my mouth. From 4 month old to 21 years of age I had around 40 surgeries on my mouth...
    angelalynn angelalynn
    41-45, F
    1 Response Jan 12, 2014

    My Cleft Palate Story

    I am 19 years old and was born with a cleft palate. There isn't any known history of cleft palate in either side of my family but my mom did state that she got really sick with the flu while pregnant with me. My mom also told me that I was weened off of the bottle at 9 months...
    kiaboo kiaboo
    3 Responses Aug 7, 2012
    Gemz2411 Gemz2411
    22-25, F
    2 Responses Aug 1, 2014

    I do have a cleft palate,

    but I got it repaired. Now I only have a dent in my nose.
    AManOfFewWords AManOfFewWords
    16-17, M
    Sep 8, 2015

    Hi my names grant i am 23 I was born with a

    double cleft and double palate Iv had over 9 operations I left school when I was 15 because of bullying always getting in trouble for fighting ended up in prison at 15 for sticking up for myself now I am in total isolation from the world have been for 6 years can't socialise...
    davies689 davies689
    26-30, M
    3 Responses May 30, 2014

    I am 26 yrs old and I was born with a cleft

    palate and cleft lip on my left side. Like many here I experienced bullying, social isolation and discrimination in the job market. I remember a lot of ugly remarks that people have made but to me they are not worth mentioning because I choose to look at the positives in my life...
    giggles8722 giggles8722
    26-30, F
    1 Response Jul 9, 2014

    I am 19 years old and have had loads of

    operations related to my cleft lip and palette. Like a lot of the stories I have read, I was harshly teased too. I had a girl tell me when I was 14 that if she looked like me she would kill herself. I've had rumors made up about my appearance 'Her Mum threw her into a wall...
    Gemz2411 Gemz2411
    22-25, F
    4 Responses Jun 5, 2014

    I Was Born With A Cleft Palate

    I was born with a cleft palate and lips. I’m 30 years old; I never have a boyfriend and don’t think that anyone would marry someone like me. I only had one operation to correct my cleft which was done when I was one years old.  I have to speak slowly to make...
    hatikristal hatikristal
    3 Responses Nov 9, 2010

    A Life Of Me..

    My childhood was not a good like an ordinary child, it was a painful one..  having teased by my playmates and even the old ones really made me felt that im different..I am trying to prove my self as the years gone into my life, I thought I already prove my self when I finished...
    kyzza kyzza
    26-30, F
    1 Response May 5, 2011

    Born With A Soft Cleft Palate

    Hello everyone!!! For my part i was born with a soft cleft palate..though that didn't bother me until adolescence when some short-minded people made some painful remarks...though with time i started to ignore them.I have followed speech therapy for 6 months...then things started...
    arv2709 arv2709
    Aug 15, 2012
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