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I Was Born With Spina Bifida

Personal Stories, Support, News and Chat For Those Born with Spina Bifida 166 People

    Spina Bifida And I Just Found Out

    I'm 27 years old and just recently became aware of the fact that I have spina bifida. I wasn't raised with my birth parents and had no idea why I had a scar on my back. I didn't have any symptoms until I was in my late teens. I slowly started to lose strength, developed...
    jgomez122 jgomez122 26-30 6 Responses Apr 9, 2013

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    I Was Born With Spina Bifida Occulta

    I was born on Dec. 1, 1975 in Fort Worth,TX. The day I was born the doctors new something was wrong with me.  They had discovered some tell, tell signs which was the patch of hair on my lower back and some dimpling at my lower back. They sent me for further test to...
    Justmaintain2 Justmaintain2 31-35, F 2 Responses May 4, 2010

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    I Never Knew...

    I had no idea I had SB-occulta. I had a lot of trouble as a child with incontinence, bladder infections, nighttime accidents, kidney infections...I had no idea. It wasn't until I was much older that I was injured at work (lower back) that they "discovered" SB-occulta. I...
    itsjustme itsjustme 31-35, F 3 Responses Feb 24, 2007

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    My Experience With SB

    Hi I'm Samantha and I'm 20 years old and I was born with Spina Bifida Occulta. Technically though my symptoms began to show when I was about 3 and at that time there wasn't much knowledge on the condition. I grew up in the Caribbean as well so doctors didn't know much about it at...
    1beautifulmiracle 1beautifulmiracle 22-25, F 3 Responses Jun 15, 2013

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    I Was Born With Sb And I Get Bullied

    I was born with sb almost 18 years ago. I have been in a wheel chair since I was 8. Ive never let that stop me from anything, I pretty much do whatever every one else does. Ive got 1 more year of high school left and lately ive let the chair get to me. Ive always held my head up...
    jcarottop jcarottop 18-21 3 Responses Mar 24, 2013

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    Im 19 And Was Born With Sb Myelomeningocele...

    im 19 and a female and was born with spina bifida myelomeningocele.i also have a vp shunt that ive had since i was 2 weeks old with no replacements or anything,was birn with hydrocephalus of course and ive had 3 de tetherings and might be havigng another sometime soon but not...
    miranda94 miranda94 18-21, F Oct 3, 2013

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    Experience Project

    i was born with spina bifida and hydrocephalus with a shunt.
    gilliansweet67 gilliansweet67 16-17, F May 23, 2012

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    Experience Project

    i also have that condition it's frustrating to deal with.
    gilliansweet67 gilliansweet67 16-17, F May 23, 2012

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    My Life With Sb

    i was born i with sb i am now 31 yr old lots of pain in my back and legs
    cassie1982 cassie1982 31-35, F Sep 29, 2013

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    Living With Spina Bifida: A Poets Story.

    Roberts experiences …Living with Spina Bifida in his own words… I grew up with a birth defect known as Spina Bifida, a disability that affects my sense of balance, causing me to walk with a limp. Not only does it affect the function of the legs, but it also has an impact on...
    wheelierecord wheelierecord 41-45, M 1 Response Sep 19, 2010

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    Spina Bifida Occulta

    I was born with spina bifida occulta, a minor form of spina bifida that hasn't affected my spine much, but my urinary tract.  As a child, I got very frequent infections of the urinary tract and as an adult, I am more susceptible to them than most. One time, the infection...
    smoothiefueledrampage smoothiefueledrampage 18-21, F 5 Responses Feb 11, 2007

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    I Only Found Out A Few Years Ago

    I am 15 and I found out that I had Spina Bifida on the back of a school medical sheet when I was in primary 7. It doesn't effect me much, it just makes me a slower runner and not as good a jumper but my height helps with that. I was always the last in sprints on sports day, I...
    shelbym806 shelbym806 18-21, F 2 Responses Mar 27, 2012

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    Born With Spina Bifida

    Hi my name is Bev. I found out after my second son was born. I really never thought to much about it then. Just knew there where some things i could'nt do. I just turned 60 and i desided to check into it a little more. Well i learned some things about it that i hoped explain the...
    bevann bevann 56-60 Oct 11, 2012

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    I Was Born With Spina Bifida -1949

           I was born with spina bifida in 1949. Doctors operated to close up my spine when I was just 3 hours old. I developed water on the brain and severe swelling, but had a "spontaneous arrest" as they called it, some weeks later. I surprisingly started to walk at 11...
    rjs024 rjs024 61-65, M 3 Responses Dec 17, 2012

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    I May Have Spina Bifida (myelomeningocele) (level L3) But Please Do Not Call Me Disabled!

    Hello, My name is Ryan. I am 26 years old. I was born with Spina Bifida Myelomeningocele L3. I have been told that my type of SB is the most severe. Every time I hear that or think about it, it kind of makes me laugh. The reason I say that is because if you know me, NOTHING about...
    rtucker8510 rtucker8510 26-30, M 6 Responses Jun 11, 2011

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    Ava Our Angel

    This is a sstory about my grandaughter, Ava Marie Chadd. So beautiful, and is in heaven watching over her mother and father. y grandaughter was to be born on my dad's birthday on June 21. My daughter didnt think she could get pregant so when she found out she was so excited...
    donnawalker donnawalker 46-50, F Aug 8, 2012

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    Heredity Sucks

    I have Spina Bifida Occulta, which I foud out about in my late twenties, while I was trying to figure out chronic back pain.  Not a huge deal, I'm pretty used to feeling like my back is made of broken glass.  You live with the things you can't change. My wife is...
    michael77 michael77 26-30, M 4 Responses Apr 18, 2007

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    I Was Born With Spina Bifida

    I'm 22 years old and I was born with spina bifida and have a shunt. Ever since I was born I've been in and out of hospitals up until 10years when I had my last shunt replacement. When I was younger I didn't think I would have a normal life like everyone else. I didnt think I...
    seleneortiz seleneortiz 22-25, F Mar 6, 2013

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    My Son Has Spina Bifida

    hi all i'm new here. my son has been diagnosed with SB myelomeningocele. He had the op to close the opening 4 days after birth and now he is about to turn 5 month on the 21st November. on his fourth month birthday he had the VP shunt placed. He has very weak joints although he...
    anmethuse anmethuse 36-40 2 Responses Nov 17, 2010

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    Daughter Born With Spina Bifida Occulta

    My story: I had an alright pregnancy, besides going into preterm labor but they stopped it. I couldnt wait to hold my baby girl. She decided to make her arival 2 weekd early. I had a pretty good labor..then, a few minutes after she was born, the dr told me that she has a "lump...
    xxmeliaxx xxmeliaxx 26-30 3 Responses Jul 14, 2013

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    Spinabifida And Me

    hi all. i was born with spina bifida and had to stay in hospital for 9 months after i was born and had loads of operations in my first few years, ive got crutches for short distances and use a wheelchair for longer distance. i get picked on a lot, name calling and stuff. i...
    shelly2010 shelly2010 18-21, F 3 Responses Jul 8, 2010

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    Spina Bifida

    Hi! I am a 23 year old female who has suffered from back pain my whole life. My pain was mostly lower back until I had a car accident. Only then did I start having neck and upper back pain. I was recently diagnosed with Spina Bifida Occulta in my cervical spine (apparently very...
    Principessa Principessa 18-21, F 3 Responses Apr 9, 2007

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    Disability Becomes An Ability

    Recently i found out just how sick i was when i was born and i thought i would be upset because i have always wanted to know what i was like when i was very sick. i realise how hard my parents fought for me with the support of both their families i always thought of myself as a...
    Mandymoo Mandymoo 16-17, F 3 Responses May 17, 2007

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    San Diego Womens Wheelchair Basketball

    Looking for athletes living near San Diego, CA who would like to play on a women's wheelchair basketball team. Visit www.sdasf.org for more information or call the office at 619-336-1806.
    gruje gruje 31-35 Jul 7, 2012

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    My Life With Sb

    I don't even know how to begin to start something like this because I've never tried. I have always seen myself and been treated "just like everyone else". I've never used my SB as an excuse for anything and my family has always taken whatever steps were necessary to make sure...
    CrusaderGuy CrusaderGuy 31-35, M 1 Response Dec 21, 2012

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    I have lived with Spina Bifidafor the past 22

    years, for the majority of that time I have seen my disability as a burden on my life because I wasn't 'normal' like everyone else. My mother who has probably struggled with my disability just as much if not more than I have has always said to me after I have broken down and...
    lukecampbell22 lukecampbell22 22-25, M 2 Responses Apr 2, 2014

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    Not A Label

      My name is Patrick.I was born in 1962 with an L4,L5 myelomeningocele.My parents We're told that I had a 50% chance of surviving the SB repair surgery and that I would Never walk.Well,at age 3 my two-year old sister was atop a sliding board and she told Me to join her...
    62Patrick 62Patrick 51-55, M 1 Response May 8, 2013

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    Born With Spina Bifida Occulta

    Hello everyone. Growing up, I was limited to the activities because of my mobility. No one ever knew that I had SBO until I was 16. I was diagnosed after I went for a spinal X-ray because of a freak fall. The doctor told me that I was born with cartilage missing from my spine...
    Darkdragonwolf76 Darkdragonwolf76 36-40, M 1 Response Mar 11, 2013

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    I Also Was Born With Spina Bifida

    when i was born my mom dident get to hold me because my back was open and then the doctor told my mom that i was diagnost with spina bifida and i now i also walk funny and i get made fun of because of the way i walk  and the way i look and people say i look different than other...
    sheldon2011 sheldon2011 13-15 May 5, 2012

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    I Have Spina Bifida

    Hey there, so i'm 28 and living in Australia. I have spina bifida and use a wheelchair full time
    mattywheels25 mattywheels25 26-30, M 1 Response Oct 7, 2013

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    Yesterday I Got An Xray Done and Found I Have Spina Bifida

    several problems.few years ago while i was playing i got pulled by two friends and landed on my coccyx.a year or two i feel pain sometimes while sitting.but thats occasional.beside,some years(child hood) ago my leg was paralysed once or twice while moving .Some days before, after...
    Tatai Tatai 18-21, M 3 Responses Apr 18, 2007

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    My Life Story

    My name is michael i am 21 born with Spina Bifida. When i was born doctors told my mother it was best to abort me so she wouldnt have to deal with the stress of having a disabled child. She was a good mother but things did get tough for her in the end and that is when i ended up...
    Mhaddad21892 Mhaddad21892 22-25, M 1 Response Aug 22, 2013

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    Proving the Doctors Wrong

    I was born with myelomeningocele on January 2, 1976. My parents were told that I would never walk or talk, and that I would be deaf, blind and mentally retarded. Well, I can't walk, but that's about all I cannot do! I have been in a relationship with...
    traceywhite traceywhite 31-35, F 1 Response Jan 24, 2009

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    In The Dark Stars Will Guide You

    My name is Sonya Flynn, i was born with a mild form of spinabifida and it was said I would never walk. Well I can tell you now my dears I can and walk! All thanks to a dangerous operation when I was 11 months old. It took hours, I had a iron bar against my spine to keep it...
    Dreamspheres Dreamspheres 22-25, F 2 Responses Dec 18, 2011

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    I Grew Up In and Out of Hospitals

    WELL HI IM JOHANNA. IM 20 YRS OLD FROM MIAMI FL. I WAS BORN WITH SB. I HAVE A SHUNT. ITS NEVER BEEN CHANGED. THE NERVE BAG WAS REALLY LOW SO I DIDNT END UP IN A WHEELCHAIR. I STRUGGLED WALKING WHEN I WAS YOUNG. I HAD FEET SURGERIES. AN ANKLE TRANSPLANT, I DONT KNOW HOW...
    joheepoetry joheepoetry 22-25, F 11 Responses Feb 15, 2007

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    Born With Spina Bifida

    I was born with SB almost 49 years ago, on November 20, 1961.  I have myelomeningocele and hydrocephalus, although I don't have a shunt.  I use a wheelchari and leg braces. There was a neurosurgeon at the hospital in Marietta, GA where I was born and he was able to...
    SquarePeg61 SquarePeg61 46-50, M 1 Response Jun 21, 2010

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    Amputated Wings

    if my mother weren't a brave, hard-headed and good-hearted woman, I wouldn't be alive. When she was around seven months along, the doctors diagnosed me with myelomeningocele, the most serious form of spina bifida. I had a 'bubble' of spinal fluid on my back that was the size of...
    wordlesschorus wordlesschorus 18-21, F 1 Response Apr 25, 2011

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    I was born with L5/S1 Myelomeningocele

    and Hydrocephalus, single right side shunt, only needed 1 replacement. up until 2009 I lead a Very active life to help keep the effects of SB to a minimum but things Finally caught up to me in 2010, and my "I almost Died" story happened. Since then physical activity has been...
    NvBikeBoy NvBikeBoy 31-35, M Jan 22, 2014

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    deleted deleted 26-30 2 Responses Dec 19, 2014

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    Spina Bifida a birth defect of the spine

    that occurs when the baby's spine fails to close during the first month of pregnancy.
    deleted deleted 26-30 1 Response Dec 6, 2014

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    Granddaughter Just Born With Spina Bifida

    The family is beside themselves, as is Mom and Dad... she will have to have surgery for her tethered spine at 12 weeks the Dr. said. I need to find out all I can to help in the right ways and know what to expect. Thank you.
    JCMee JCMee 61-65 Dec 8, 2012

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    I Have Sb

    I am 19 years old, and i am walking. when i was 3 and 4 years old i had surgery so i could walk down in Ann Arbor. i still have issues with my spine and i have doctors telling me to go to Physical Therapy But even with PT i am still in pain most of the time. as i got older, i...
    Kelseakay Kelseakay 18-21, F 7 Responses Feb 18, 2011

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    Spina Bifida & Me Part 1(either My Ps3 Has A Word Limit Or Ep Does)

    Hi there and hello dear readers. I've been part of this group for awhile now sitting back racking my brain on what I could bring to the story section. It's tough because I have no exciting stories about it. No anecdotes that'll inspire and uplift. So my story goes like this... If...
    Sixwheeledone Sixwheeledone 31-35, M Sep 22, 2012

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    Hello

    my name is xiomara torres i was also born with Spina Bifida. i am 25 years old. i am in a wheelchair. the doctors told my parents that i would not survive more that 24 hours to live. they also told my parents that if i did survive i would be in a vegitative state,blind,def,have...
    xiomara xiomara 22-25, F 2 Responses May 19, 2008

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    Spina Bifida & Me Part 2

    Apologies to you dear readers. I know its been awhile since part 1. Truth be told I've reread part 1 & don't really know how to follow it up but I'll try. I left off saying that I feel like an abled bodied person trapped in a disabled persons body. I've always been ok feeling...
    Sixwheeledone Sixwheeledone 31-35, M 1 Response Nov 8, 2012

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    I Don'T Know Anyone Who Has Spina Bifida. I'M 23 Years Old And I Would Love To Share My Story And Get To Know People Who Knows What I Go Trough Daily.

    Heyyyy! I was born with myelomeningocele I guess it's a minor spina bifida. I try to live a "normal" life and not talk about it with anyone because I think some people will treat me different or that they will feel bad for me and if there's something I don't like it's when people...
    Taiana Taiana 22-25 5 Responses Nov 24, 2013

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