I Was Born With Spina Bifida

Personal Stories, Support, News and Chat For Those Born with Spina Bifida 167 People

    I Was Born With Spina Bifida

    I'm 22 years old and I was born with spina bifida and have a shunt. Ever since I was born I've been in and out of hospitals up until 10years when I had my last shunt replacement. When I was younger I didn't think I would have a normal life like everyone else. I didnt think I...
    seleneortiz seleneortiz
    26-30, F
    Mar 6, 2013

    I Have Spina Bifida

    Hey there, so i'm 28 and living in Australia. I have spina bifida and use a wheelchair full time
    mattywheels25 mattywheels25
    31-35, M
    1 Response Oct 7, 2013

    Amputated Wings

    if my mother weren't a brave, hard-headed and good-hearted woman, I wouldn't be alive. When she was around seven months along, the doctors diagnosed me with myelomeningocele, the most serious form of spina bifida. I had a 'bubble' of spinal fluid on my back that was the size of...
    wordlesschorus wordlesschorus
    18-21, F
    1 Response Apr 25, 2011

    I Was Born With Sb And I Get Bullied

    I was born with sb almost 18 years ago. I have been in a wheel chair since I was 8. Ive never let that stop me from anything, I pretty much do whatever every one else does. Ive got 1 more year of high school left and lately ive let the chair get to me. Ive always held my head up...
    jcarottop jcarottop
    3 Responses Mar 24, 2013

    I Never Knew...

    I had no idea I had SB-occulta. I had a lot of trouble as a child with incontinence, bladder infections, nighttime accidents, kidney infections...I had no idea. It wasn't until I was much older that I was injured at work (lower back) that they "discovered" SB-occulta. I...
    itsjustme itsjustme
    31-35, F
    3 Responses Feb 24, 2007

    Spina Bifida & Me Part 1(either My Ps3 Has A Word Limit Or Ep Does)

    Hi there and hello dear readers. I've been part of this group for awhile now sitting back racking my brain on what I could bring to the story section. It's tough because I have no exciting stories about it. No anecdotes that'll inspire and uplift. So my story goes like this... If...
    deleted deleted
    Sep 22, 2012

    I Was Born With Spina Bifida -1949

           I was born with spina bifida in 1949. Doctors operated to close up my spine when I was just 3 hours old. I developed water on the brain and severe swelling, but had a "spontaneous arrest" as they called it, some weeks later. I surprisingly started to walk at 11...
    rjs024 rjs024
    61-65, M
    3 Responses Dec 17, 2012

    Born With Spina Bifida

    I was born with SB almost 49 years ago, on November 20, 1961.  I have myelomeningocele and hydrocephalus, although I don't have a shunt.  I use a wheelchari and leg braces. There was a neurosurgeon at the hospital in Marietta, GA where I was born and he was able to...
    SquarePeg61 SquarePeg61
    46-50, M
    1 Response Jun 21, 2010

    Experience Project

    i was born with spina bifida and hydrocephalus with a shunt.
    gilliansweet67 gilliansweet67
    18-21, F
    May 23, 2012

    Living With Spina Bifida Occulta

    I have read just about every ones story's about their Spina Bifida. It is so amazing to see how we are alike in so many ways and how we can learn from one another. I lived a pretty good life until I reached my 30's. I have just now started having major problems. Severe back...
    Justmaintain2 Justmaintain2
    31-35, F
    3 Responses May 4, 2010

    Granddaughter Just Born With Spina Bifida

    The family is beside themselves, as is Mom and Dad... she will have to have surgery for her tethered spine at 12 weeks the Dr. said. I need to find out all I can to help in the right ways and know what to expect. Thank you.
    JCMee JCMee
    Dec 8, 2012

    I am 30yrs old and was born with spina bifida

    occulta. I've worked since I was 18... had a child at 23... and now I'm being told I am 100% disabled. I'm in shock... frustrated... stressed and depressed.
    StormiP85 StormiP85
    31-35, F
    4 Responses Feb 12, 2016

    Im 19 And Was Born With Sb Myelomeningocele...

    im 19 and a female and was born with spina bifida myelomeningocele.i also have a vp shunt that ive had since i was 2 weeks old with no replacements or anything,was birn with hydrocephalus of course and ive had 3 de tetherings and might be havigng another sometime soon but not...
    miranda94 miranda94
    22-25, F
    Oct 3, 2013

    Daughter Born With Spina Bifida Occulta

    My story: I had an alright pregnancy, besides going into preterm labor but they stopped it. I couldnt wait to hold my baby girl. She decided to make her arival 2 weekd early. I had a pretty good labor..then, a few minutes after she was born, the dr told me that she has a "lump...
    xxmeliaxx xxmeliaxx
    3 Responses Jul 14, 2013


    well my name is Racheal and im 23yo i was born with spina bifida myelomeningocele and hydrocephalus  i also have lymphedema because of all of the surgeries i have had on my right side. i cath four times a day and i have to wear adult pull-ups because i dont have control of...
    Hazeleyez23 Hazeleyez23
    7 Responses Sep 15, 2008

    I Have Sb

    I am 19 years old, and i am walking. when i was 3 and 4 years old i had surgery so i could walk down in Ann Arbor. i still have issues with my spine and i have doctors telling me to go to Physical Therapy But even with PT i am still in pain most of the time. as i got older, i...
    Kelseakay Kelseakay
    18-21, F
    7 Responses Feb 18, 2011

    Disability Becomes An Ability

    Recently i found out just how sick i was when i was born and i thought i would be upset because i have always wanted to know what i was like when i was very sick. i realise how hard my parents fought for me with the support of both their families i always thought of myself as a...
    Mandymoo Mandymoo
    18-21, F
    3 Responses May 17, 2007

    Spina Bifida Occulta

    I was born with spina bifida occulta, a minor form of spina bifida that hasn't affected my spine much, but my urinary tract.  As a child, I got very frequent infections of the urinary tract and as an adult, I am more susceptible to them than most. One time, the infection...
    smoothiefueledrampage smoothiefueledrampage
    18-21, F
    5 Responses Feb 11, 2007

    I Also Was Born With Spina Bifida

    when i was born my mom dident get to hold me because my back was open and then the doctor told my mom that i was diagnost with spina bifida and i now i also walk funny and i get made fun of because of the way i walk  and the way i look and people say i look different than other...
    sheldon2011 sheldon2011
    May 5, 2012

    looking to meet a Female with the same condition

    as me, would like to share some stories with.
    limp2malou limp2malou
    26-30, M
    Nov 18, 2015

    Living With Spina Bifida: A Poets Story.

    Roberts experiences …Living with Spina Bifida in his own words… I grew up with a birth defect known as Spina Bifida, a disability that affects my sense of balance, causing me to walk with a limp. Not only does it affect the function of the legs, but it also has an impact on...
    wheelierecord wheelierecord
    41-45, M
    1 Response Sep 19, 2010

    Ava Our Angel

    This is a sstory about my grandaughter, Ava Marie Chadd. So beautiful, and is in heaven watching over her mother and father. y grandaughter was to be born on my dad's birthday on June 21. My daughter didnt think she could get pregant so when she found out she was so excited...
    donnawalker donnawalker
    46-50, F
    Aug 8, 2012

    Not A Label

      My name is Patrick.I was born in 1962 with an L4,L5 myelomeningocele.My parents We're told that I had a 50% chance of surviving the SB repair surgery and that I would Never walk.Well,at age 3 my two-year old sister was atop a sliding board and she told Me to join her...
    62Patrick 62Patrick
    51-55, M
    1 Response May 8, 2013

    I Was Born With Spina Bifida Occulta

    I was born on Dec. 1, 1975 in Fort Worth,TX. The day I was born the doctors new something was wrong with me.  They had discovered some tell, tell signs which was the patch of hair on my lower back and some dimpling at my lower back. They sent me for further test to...
    Justmaintain2 Justmaintain2
    31-35, F
    2 Responses May 4, 2010

    Born With Spina Bifida Occulta

    Hello everyone. Growing up, I was limited to the activities because of my mobility. No one ever knew that I had SBO until I was 16. I was diagnosed after I went for a spinal X-ray because of a freak fall. The doctor told me that I was born with cartilage missing from my spine...
    Darkdragonwolf76 Darkdragonwolf76
    41-45, M
    1 Response Mar 11, 2013

    I Don'T Know Anyone Who Has Spina Bifida. I'M 23 Years Old And I Would Love To Share My Story And Get To Know People Who Knows What I Go Trough Daily.

    Heyyyy! I was born with myelomeningocele I guess it's a minor spina bifida. I try to live a "normal" life and not talk about it with anyone because I think some people will treat me different or that they will feel bad for me and if there's something I don't like it's when people...
    Taiana Taiana
    5 Responses Nov 24, 2013

    Spina Bifida a birth defect of the spine

    that occurs when the baby's spine fails to close during the first month of pregnancy.
    deleted deleted
    1 Response Dec 6, 2014

    My Experience With SB

    Hi I'm Samantha and I'm 20 years old and I was born with Spina Bifida Occulta. Technically though my symptoms began to show when I was about 3 and at that time there wasn't much knowledge on the condition. I grew up in the Caribbean as well so doctors didn't know much about it at...
    1beautifulmiracle 1beautifulmiracle
    22-25, F
    3 Responses Jun 15, 2013

    In The Dark Stars Will Guide You

    My name is Sonya Flynn, i was born with a mild form of spinabifida and it was said I would never walk. Well I can tell you now my dears I can and walk! All thanks to a dangerous operation when I was 11 months old. It took hours, I had a iron bar against my spine to keep it...
    Dreamspheres Dreamspheres
    22-25, F
    2 Responses Dec 18, 2011

    San Diego Womens Wheelchair Basketball

    Looking for athletes living near San Diego, CA who would like to play on a women's wheelchair basketball team. Visit www.sdasf.org for more information or call the office at 619-336-1806.
    gruje gruje
    Jul 7, 2012

    I have lived with Spina Bifidafor the past 22

    years, for the majority of that time I have seen my disability as a burden on my life because I wasn't 'normal' like everyone else. My mother who has probably struggled with my disability just as much if not more than I have has always said to me after I have broken down and...
    lukecampbell22 lukecampbell22
    22-25, M
    2 Responses Apr 2, 2014

    I Only Found Out A Few Years Ago

    I am 15 and I found out that I had Spina Bifida on the back of a school medical sheet when I was in primary 7. It doesn't effect me much, it just makes me a slower runner and not as good a jumper but my height helps with that. I was always the last in sprints on sports day, I...
    shelbym806 shelbym806
    18-21, F
    2 Responses Mar 27, 2012

    My Life Story

    My name is michael i am 21 born with Spina Bifida. When i was born doctors told my mother it was best to abort me so she wouldnt have to deal with the stress of having a disabled child. She was a good mother but things did get tough for her in the end and that is when i ended up...
    Mhaddad21892 Mhaddad21892
    22-25, M
    1 Response Aug 22, 2013

    Spinabifida And Me

    hi all. i was born with spina bifida and had to stay in hospital for 9 months after i was born and had loads of operations in my first few years, ive got crutches for short distances and use a wheelchair for longer distance. i get picked on a lot, name calling and stuff. i...
    shelly2010 shelly2010
    18-21, F
    3 Responses Jul 8, 2010

    Short And Sweet

    28 yr old female who lives in NJ and has Spina Bifida
    DuecesRWild85 DuecesRWild85
    31-35, F
    1 Response Nov 19, 2013

    Heredity Sucks

    I have Spina Bifida Occulta, which I foud out about in my late twenties, while I was trying to figure out chronic back pain.  Not a huge deal, I'm pretty used to feeling like my back is made of broken glass.  You live with the things you can't change. My wife is...
    michael77 michael77
    26-30, M
    4 Responses Apr 18, 2007

    I May Have Spina Bifida (myelomeningocele) (level L3) But Please Do Not Call Me Disabled!

    Hello, My name is Ryan. I am 26 years old. I was born with Spina Bifida Myelomeningocele L3. I have been told that my type of SB is the most severe. Every time I hear that or think about it, it kind of makes me laugh. The reason I say that is because if you know me, NOTHING about...
    rtucker8510 rtucker8510
    26-30, M
    6 Responses Jun 11, 2011

    Born With Spina Bifida

    Hi my name is Bev. I found out after my second son was born. I really never thought to much about it then. Just knew there where some things i could'nt do. I just turned 60 and i desided to check into it a little more. Well i learned some things about it that i hoped explain the...
    bevann bevann
    Oct 11, 2012

    I Grew Up In and Out of Hospitals

    joheepoetry joheepoetry
    22-25, F
    11 Responses Feb 15, 2007

    Yesterday I Got An Xray Done and Found I Have Spina Bifida

    several problems.few years ago while i was playing i got pulled by two friends and landed on my coccyx.a year or two i feel pain sometimes while sitting.but thats occasional.beside,some years(child hood) ago my leg was paralysed once or twice while moving .Some days before, after...
    Tatai Tatai
    22-25, M
    3 Responses Apr 18, 2007

    Proving the Doctors Wrong

    I was born with myelomeningocele on January 2, 1976. My parents were told that I would never walk or talk, and that I would be deaf, blind and mentally retarded. Well, I can't walk, but that's about all I cannot do! I have been in a relationship with...
    traceywhite traceywhite
    31-35, F
    1 Response Jan 24, 2009

    I was born with L5/S1 Myelomeningocele

    and Hydrocephalus, single right side shunt, only needed 1 replacement. up until 2009 I lead a Very active life to help keep the effects of SB to a minimum but things Finally caught up to me in 2010, and my "I almost Died" story happened. Since then physical activity has been...
    NvBikeBoy NvBikeBoy
    36-40, M
    Jan 22, 2014

    My Life With Sb

    I don't even know how to begin to start something like this because I've never tried. I have always seen myself and been treated "just like everyone else". I've never used my SB as an excuse for anything and my family has always taken whatever steps were necessary to make sure...
    CrusaderGuy CrusaderGuy
    31-35, M
    1 Response Dec 21, 2012

    my name is natalie. i'm 29 years old with spina

    bifida myelomeningocele. i could walk until about 13 years old, and then had a cyst in my back that pressed on my spinal cord and caused me to deteriorate. (hydromyelia) i used a wheelchair until 20 years old, when it happened again. i am now wheelchair bound. have had to deal...
    sunchick116 sunchick116
    31-35, F
    1 Response Jan 25, 2015

    My Life With Sb

    i was born i with sb i am now 31 yr old lots of pain in my back and legs
    cassie1982 cassie1982
    31-35, F
    Sep 29, 2013

    Spina Bifida And I Just Found Out

    I'm 27 years old and just recently became aware of the fact that I have spina bifida. I wasn't raised with my birth parents and had no idea why I had a scar on my back. I didn't have any symptoms until I was in my late teens. I slowly started to lose strength, developed...
    jgomez122 jgomez122
    5 Responses Apr 9, 2013
    deleted deleted
    1 Response Dec 19, 2014

    Experience Project

    i also have that condition it's frustrating to deal with.
    gilliansweet67 gilliansweet67
    18-21, F
    May 23, 2012


    my name is xiomara torres i was also born with Spina Bifida. i am 25 years old. i am in a wheelchair. the doctors told my parents that i would not survive more that 24 hours to live. they also told my parents that if i did survive i would be in a vegitative state,blind,def,have...
    xiomara xiomara
    22-25, F
    1 Response May 19, 2008

    Spina Bifida & Me Part 2

    Apologies to you dear readers. I know its been awhile since part 1. Truth be told I've reread part 1 & don't really know how to follow it up but I'll try. I left off saying that I feel like an abled bodied person trapped in a disabled persons body. I've always been ok feeling...
    deleted deleted
    1 Response Nov 8, 2012
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