I Was Born With Spina Bifida

WELL HI IM JOHANNA. IM 20 YRS OLD FROM MIAMI FL. I WAS BORN WITH SB. I HAVE A SHUNT. ITS NEVER BEEN CHANGED. THE NERVE BAG WAS REALLY LOW SO I DIDNT END UP IN A WHEELCHAIR. I STRUGGLED WALKING WHEN I WAS YOUNG. I HAD FEET...

I was born with spina bifida occulta, a minor form of spina bifida that hasn't affected my spine much, but my urinary tract.  As a child, I got very frequent infections of the urinary tract and as an adult, I am more susceptible to...

My name is Patrick.I was born in 1962 with an L4,L5 myelomeningocele.My parents
We're told that I had a 50% chance of surviving the SB repair surgery and that I would
Never walk.Well,at age 3 my two-year old sister was atop a...

I don't even know how to begin to start something like this because I've never tried. I have always seen myself and been treated "just like everyone else". I've never used my SB as an excuse for anything and my family has always taken...

when i was born my mom dident get to hold me because my back was open and then the doctor told my mom that i was diagnost with spina bifida and i now i also walk funny and i get made fun of because of the way i walk  and the way i look...

my name is xiomara torres i was also born with Spina Bifida. i am 25 years old. i am in a wheelchair. the doctors told my parents that i would not survive more that 24 hours to live. they also told my parents that if i did survive i...

Hi my name is Bev. I found out after my second son was born. I really never thought to much about it then. Just knew there where some things i could'nt do. I just turned 60 and i desided to check into it a little more. Well i learned...

Roberts experiences …Living with Spina Bifida in his own words…

I grew up with a birth defect known as Spina Bifida, a disability that affects my sense of balance, causing me to walk with a limp. Not only does it affect the...

Apologies to you dear readers. I know its been awhile since part 1. Truth be told I've reread part 1 & don't really know how to follow it up but I'll try. I left off saying that I feel like an abled bodied person trapped in a disabled...

I was born with spina bifida in 1949. Doctors operated to close up my spine when I was just 3 hours old. I developed water on the brain and severe swelling, but I had a "spontaneous arrest" as they called it, some weeks later. I...

well my name is Racheal and im 23yo
i was born with spina bifida myelomeningocele and hydrocephalus  i also have lymphedema because of all of the surgeries i have had on my right side. i cath four times a day and i have to wear...

Recently i found out just how sick i was when i was born and i thought i would be upset because i have always wanted to know what i was like when i was very sick. i realise how hard my parents fought for me with the support of both...

I was born with SB almost 49 years ago, on November 20, 1961.  I have myelomeningocele and hydrocephalus, although I don't have a shunt.  I use a wheelchari and leg braces.

There was a neurosurgeon at the hospital in...

The family is beside themselves, as is Mom and Dad... she will have to have surgery for her tethered spine at 12 weeks the Dr. said. I need to find out all I can to help in the right ways and know what to expect. Thank you.

I'm 27 years old and just recently became aware of the fact that I have spina bifida. I wasn't raised with my birth parents and had no idea why I had a scar on my back. I didn't have any symptoms until I was in my late teens. I slowly...

I'm 22 years old and I was born with spina bifida and have a shunt. Ever since I was born I've been in and out of hospitals up until 10years when I had my last shunt replacement. When I was younger I didn't think I would have a normal...

hi all. i was born with spina bifida and had to stay in hospital for 9 months after i was born and had loads of operations in my first few years, ive got crutches for short distances and use a wheelchair for longer distance. i get...

My name is Sonya Flynn, i was born with a mild form of spinabifida and it was said I would never walk. Well I can tell you now my dears I can and walk! All thanks to a dangerous operation when I was 11 months old. It took hours, I had a...

I was born with sb almost 18 years ago. I have been in a wheel chair since I was 8. Ive never let that stop me from anything, I pretty much do whatever every one else does. Ive got 1 more year of high school left and lately ive let the...

Hello everyone. Growing up, I was limited to the activities because of my mobility. No one ever knew that I had SBO until I was 16. I was diagnosed after I went for a spinal X-ray because of a freak fall. The doctor told me that I was...