Directory of Rare & Orphan Support Groups Starting with the letter 'd'

This is a directory of our anonymous support groups for rare or orphan diseases. Find new friends who understand and can provide support, chat, help and information on these life challenges.

Health >> d
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Dercole Syndrome Patient Support & Stories Daentl Towsend Siegel Syndrome Patient Support & Stories Dahlberg Borer Newcomer Syndrome Patient Support & Stories Daish Hardman Lamont Syndrome Patient Support & Stories Dancing Eyes-dancing Feet Syndrome Patient Support & Stories Dandy Walker Facial Hemangioma Patient Support & Stories Dandy Walker Malformation Postaxial Polydactyly Patient Support & Stories Dandy Walker Syndrome Patient Support & Stories Dandy Walker Syndrome Recessive Form Patient Support & Stories Dandy Walker Variant Patient Support & Stories Dandy-Walker Malformation With Mental Retardation, Basal Ganglia Disease, And Seizures Patient Support & Stories Dandy-walker Malformation With Mental Retardation, Macrocephaly, Myopia, And Brachytelephalangy Patient Support & Stories Daneman Davy Mancer Syndrome Patient Support & Stories Danubian Endemic Familial Nephropathy Patient Support & Stories Darier's Disease Patient Support & Stories Davenport Donlan Syndrome Patient Support & Stories Davis Lafer Syndrome Patient Support & Stories De Barsy Syndrome Patient Support & Stories De Hauwere Leroy Adriaenssens Syndrome Patient Support & Stories De Quervains' Disease Patient Support & Stories De Sanctis-Cacchione Syndrome Patient Support & Stories Deafness Conductive Ptosis Skeletal Anomalies Patient Support & Stories Deafness Conductive Stapedial Ear Malformation Facial Palsy Patient Support & Stories Deafness Craniofacial Syndrome Patient Support & Stories Deafness Enamel Hypoplasia Nail Defects Patient Support & Stories Deafness Epiphyseal Dysplasia Short Stature Patient Support & Stories Deafness Goiter Stippled Epiphyses Patient Support & Stories Deafness Hyperuricemia Neurologic Ataxia Patient Support & Stories Deafness Hypogonadism Syndrome Patient Support & Stories Deafness Hypospadias Metacarpal And Metatarsal Syndrome Patient Support & Stories Deafness Mesenteric Diverticula Of Small Bowel Neuropathy Patient Support & Stories Deafness Mixed With Perilymphatic Gusher, X-linked Patient Support & Stories Deafness Nephritis Ano Rectal Malformation Patient Support & Stories Deafness Neurosensory Pituitary Dwarfism Patient Support & Stories Deafness Nonsyndromic, Connexin 26 Linked Patient Support & Stories Deafness Oligodontia Syndrome Patient Support & Stories Deafness Onychodystrophy Dominant Form Patient Support & Stories Deafness Peripheral Neuropathy Arterial Disease Patient Support & Stories Deafness Progressive Cataract Autosomal Dominant Patient Support & Stories Deafness Skeletal Dysplasia Lip Granuloma Patient Support & Stories Deafness Vitiligo Achalasia Patient Support & Stories Deafness White Hair Contractures Papillomas Patient Support & Stories Deafness X-linked, DFN3 Patient Support & Stories Deafness, Autosomal Dominant Nonsyndromic Sensorineural 17 Patient Support & Stories Deafness, Autosomal Dominant Nonsyndromic Sensorineural 22 Patient Support & Stories Deafness, Autosomal Dominant Nonsyndromic Sensorineural 23 Patient Support & Stories Deafness, Autosomal Dominant Nonsyndromic Sensorineural 24 Patient Support & Stories Deafness, Autosomal Dominant Nonsyndromic Sensorineural 3 Patient Support & Stories Deafness, Autosomal Dominant Nonsyndromic Sensorineural 53 Patient Support & Stories Deafness, Autosomal Recessive 51 Patient Support & Stories Deafness, Autosomal Recessive 55 Patient Support & Stories Deafness, Congenital Onychodystrophy, Recessive Form Patient Support & Stories Deafness, Isolated, Due To Mitochondrial Transmission Patient Support & Stories Deafness, Neurosensory Nonsyndromic Recessive, DFN Patient Support & Stories Deafness, Neurosensory, Autosomal Recessive 47 Patient Support & Stories Deafness, X-linked, DFN Patient Support & Stories Deal Barratt Dillon Syndrome Patient Support & Stories Defect In Synthesis Of Adenosylcobalamin Patient Support & Stories Defective Apolipoprotein B-100 Patient Support & Stories Degenerative Motor System Disease Patient Support & Stories Degenerative Optic Myopathy Patient Support & Stories Degos Disease Patient Support & Stories Degos 'en Cocarde' Erythrokeratoderma Patient Support & Stories Dehydratase Deficiency Patient Support & Stories Delayed Membranous Cranial Ossification Patient Support & Stories Delayed Speech Facial Asymetry Strabismus Ear Lobe Creases Patient Support & Stories Deletion 6q16 Q21 Patient Support & Stories Delleman Oorthuys Syndrome Patient Support & Stories Delta-1-pyrroline-5-carboxylate Dehydrogenase Deficiency Patient Support & Stories Delta-sarcoglycanopathy Patient Support & Stories Dementia, Familial British Patient Support & Stories Dementia, Familial Danish Patient Support & Stories Demodicidosis Patient Support & Stories Demyelinating Diseases Patient Support & Stories Dengue Fever Patient Support & Stories Dennis Fairhurst Moore Syndrome Patient Support & Stories Dens In Dente And Palatal Invaginations Patient Support & Stories Dent Disease 1 Patient Support & Stories Dentatorubral Pallidoluysian Atrophy Patient Support & Stories Dentin Dysplasia Sclerotic Bones Patient Support & Stories Dentin Dysplasia, Coronal Patient Support & Stories Dentin Dysplasia, Type 1 Patient Support & Stories Dentinogenesis Imperfecta Patient Support & Stories Dentinogenesis Imperfecta, Shields Type 3 Patient Support & Stories Depersonalization Disorder Patient Support & Stories Der Kaloustian Mcintosh Silver Syndrome Patient Support & Stories Dermatitis Herpetiformis, Familial Patient Support & Stories Dermatocardioskeletal Syndrome Boronne Type Patient Support & Stories Dermatofibroma Patient Support & Stories Dermatofibrosarcoma Protuberans Patient Support & Stories Dermatoleukodystrophy Patient Support & Stories Dermatomyositis Patient Support & Stories Dermatoosteolysis Kirghizian Type Patient Support & Stories Dermatopathia Pigmentosa Reticularis Patient Support & Stories Dermochondrocorneal Dystrophy Of François Patient Support & Stories Dermoids Of Cornea Patient Support & Stories Dermoodontodysplasia Patient Support & Stories Desbuquois Syndrome Patient Support & Stories Desmin Related Myopathy Patient Support & Stories Desmoid Disease, Hereditary Patient Support & Stories Desmoid Tumor Patient Support & Stories Desmoplastic Cerebral Astrocytoma Of Infancy Patient Support & Stories Desmoplastic Infantile Ganglioma Patient Support & Stories Desmoplastic Small Round Cell Tumor Patient Support & Stories Developmental Delay Hypotonia Extremities Hypertrophy Patient Support & Stories Developmental Dysphasia Familial Patient Support & Stories Devic Disease Patient Support & Stories Devriendt Legius Fryns Syndrome Patient Support & Stories Devriendt Syndrome Patient Support & Stories Devriendt Vandenberghe Fryns Syndrome Patient Support & Stories Dexamethasone Sensitive Hypertension Patient Support & Stories Dextrocardia Patient Support & Stories Dextrocardia With Situs Inversus Patient Support & Stories Dextrocardia-bronchiectasis-sinusitis Patient Support & Stories D-glycericacidemia Patient Support & Stories Di Guglielmo's Syndrome Patient Support & Stories Diabetes Hypogonadism Deafness Mental Retardation Patient Support & Stories Diabetes Insipidus Primary Central Patient Support & Stories Diabetes Insipidus, Diabetes Mellitus, Optic Atrophy Patient Support & Stories Diabetes Insipidus, Nephrogenic Type 1 Patient Support & Stories Diabetes Insipidus, Nephrogenic Type 2 Patient Support & Stories Diabetes Insipidus, Nephrogenic Type 3 Patient Support & Stories Diabetes Insipidus, Nephrogenic With Mental Retardation And Intracerebral Calcification Patient Support & Stories Diabetes Insipidus, Nephrogenic, Dominant Type Patient Support & Stories Diabetes Insipidus, Nephrogenic, Recessive Type Patient Support & Stories Diabetes Mellitus, Transient Neonatal Patient Support & Stories Diabetes Persistent Mullerian Ducts Patient Support & Stories Diabetic Mastopathy Patient Support & Stories Diamond Blackfan Anemia Patient Support & Stories Dianzani Autoimmune Lymphoproliferative Syndrome Patient Support & Stories Diaphragmatic Agenesia Patient Support & Stories Diaphragmatic Agenesis Radial Aplasia Omphalocele Patient Support & Stories Diaphragmatic Defect Limb Deficiency Skull Defect Patient Support & Stories Diaphragmatic Hernia Exomphalos Corpus Callosum Agenesis Patient Support & Stories Diaphragmatic Hernia Upper Limb Defects Patient Support & Stories Diaphyseal Medullary Stenosis With Malignant Fibrous Histiocytoma Patient Support & Stories Diarrhea Chronic With Villous Atrophy Patient Support & Stories Diarrhea Polyendocrinopathy Infections X-linked Patient Support & Stories Diastematomyelia Patient Support & Stories Diastrophic Dysplasia Patient Support & Stories Dibasic Aminoaciduria 1 Patient Support & Stories Dibasic Aminoaciduria 2 Patient Support & Stories Dicarboxylicaminoaciduria Patient Support & Stories Die Smulders Droog Van Dijk Syndrome Patient Support & Stories Die Smulders Vles Fryns Syndrome Patient Support & Stories Diencephalic Syndrome Patient Support & Stories Dieterich's Disease Patient Support & Stories Diethylstilbestrol Antenatal Infection Patient Support & Stories Diffuse Idiopathic Skeletal Hyperostosis Patient Support & Stories Diffuse Neonatal Hemangiomatosis Patient Support & Stories Diffuse Palmoplantar Keratoderma, Bothnian Type Patient Support & Stories Diffuse Panbronchiolitis Patient Support & Stories Diffuse Systemic Sclerosis Patient Support & Stories DiGeorge Syndrome Patient Support & Stories Digestive Duplication Patient Support & Stories Digitorenocerebral Syndrome Patient Support & Stories Dihydropyrimidine Dehydrogenase Deficiency Patient Support & Stories Dilated Cardiomyopathy Patient Support & Stories Dimauro Disease Patient Support & Stories Dincsoy Salih Patel Syndrome Patient Support & Stories Dinno Shearer Weisskopf Syndrome Patient Support & Stories Diomedi Bernardi Placidi Syndrome Patient Support & Stories Dionisi Vici Sabetta Gambarara Syndrome Patient Support & Stories Diphallia Patient Support & Stories Diphallus Rachischisis Imperforate Anus Patient Support & Stories Diphosphoglycerate Mutase Deficiency Of Erythrocyte Patient Support & Stories Diphtheria Patient Support & Stories Diprosopia Patient Support & Stories Dislocation Of The Hip Dysmorphism Patient Support & Stories Dissecting Cellulitis Of The Scalp Patient Support & Stories Disseminated Infection With Mycobacterium Avium Complex Patient Support & Stories Dissociative Hysteria Patient Support & Stories Distal Arthrogryposis Moore Weaver Type Patient Support & Stories Distal Myopathy Patient Support & Stories Distal Myopathy Markesbery-Griggs Type Patient Support & Stories Distal Myopathy With Vocal Cord Weakness Patient Support & Stories Distal Myopathy, Nonaka Type Patient Support & Stories Distal Primary Acidosis, Familial Patient Support & Stories Distichiasis Heart Congenital Anomalies Patient Support & Stories Distomatosis Patient Support & Stories Dk Phocomelia Syndrome Patient Support & Stories D-minus Hemolytic Uremic Syndrome (D-HUS) Patient Support & Stories Dobrow Syndrome Patient Support & Stories Dominant Cleft Palate Patient Support & Stories Dominant Ichthyosis Vulgaris Patient Support & Stories Donnai Barrow Syndrome Patient Support & Stories Donovanosis Patient Support & Stories Dopamine Beta Hydroxylase Deficiency Patient Support & Stories Dosage-sensitive Sex Reversal Patient Support & Stories Double Cortex Syndrome Patient Support & Stories Double Discordia Patient Support & Stories Double Fingernail Of Fifth Finger Patient Support & Stories Double Nails On The Fifth Toe Patient Support & Stories Double Outlet Left Ventricle Patient Support & Stories Double Outlet Right Ventricle Patient Support & Stories Double Tachycardia Induced By Catecholamines Patient Support & Stories Double Uterus-hemivagina-renal Agenesis Patient Support & Stories Dowling-Degos Disease Patient Support & Stories Doxorubicin Induced Cardiomyopathy Patient Support & Stories Doyne Honeycomb Retinal Dystrophy Patient Support & Stories D-plus Hemolytic Uremic Syndrome (D+HUS) Patient Support & Stories Drachtman Weinblatt Sitarz Syndrome Patient Support & Stories Dracunculiasis Patient Support & Stories Duane Anomaly Mental Retardation Patient Support & Stories Duane Retraction Syndrome 1 Patient Support & Stories Duane Retraction Syndrome 2 Patient Support & Stories Duane-radial Ray Syndrome Patient Support & Stories Dubin-Johnson Syndrome Patient Support & Stories Dubowitz Syndrome Patient Support & Stories Duchenne Muscular Dystrophy Patient Support & Stories Duhring Brocq Disease Patient Support & Stories Duhring's Disease Patient Support & Stories Duker Weiss Siber Syndrome Patient Support & Stories Duodenal Atresia Patient Support & Stories Duodenal Atresia Tetralogy Of Fallot Patient Support & Stories Duodenal Ulcer Due To Antral G-cell Hyperfunction Patient Support & Stories Duodenojejunal Atresia With Volvulus, Absent Dorsal Mesentery And Absent Superior Mesenteric Artery Patient Support & Stories Duplication Of Leg Mirror Foot Patient Support & Stories Duplication Of The Thumb Unilateral Biphalangeal Patient Support & Stories Duplication Of Urethra Patient Support & Stories Dupont Sellier Chochillon Syndrome Patient Support & Stories Dupuytren Subungual Exostosis Patient Support & Stories Dupuytren's Contracture Patient Support & Stories Dwarfism Patient Support & Stories Dwarfism Bluish Sclerae Patient Support & Stories Dwarfism Deafness Retinitis Pigmentosa Patient Support & Stories Dwarfism Lethal Type Advanced Bone Age Patient Support & Stories Dwarfism Short Limb Absent Fibulas Very Short Digits Patient Support & Stories Dwarfism Stiff Joint Ocular Abnormalities Patient Support & Stories Dwarfism Syndesmodysplasic Patient Support & Stories Dwarfism Tall Vertebrae Patient Support & Stories Dwarfism Thin Bones Multiple Fractures Patient Support & Stories Dyggve-Melchior-Clausen Syndrome Patient Support & Stories Dykes Markes Harper Syndrome Patient Support & Stories Dysautonomia Like Disorder Patient Support & Stories Dyschondrosteosis Nephritis Patient Support & Stories Dyschromatosis Symmetrica Hereditaria 1 Patient Support & Stories Dyschromatosis Universalis Hereditaria Patient Support & Stories Dysequilibrium Syndrome Patient Support & Stories Dyserythropoietic Anemia, Congenital Patient Support & Stories Dyserythropoietic Anemia, Congenital Type 1 Patient Support & Stories Dyserythropoietic Anemia, Congenital Type 2 Patient Support & Stories Dyserythropoietic Anemia, Congenital Type 3 Patient Support & Stories Dysesthetic Vulvodynia Patient Support & Stories Dysferlinopathy Patient Support & Stories Dysfibrinogenemia, Familial Patient Support & Stories Dysgerminoma Patient Support & Stories Dysgnathia Complex Patient Support & Stories Dysharmonic Skeletal Maturation Muscular Fiber Disproportion Patient Support & Stories Dyskeratosis Congenita Patient Support & Stories Dyskeratosis Congenita Of Zinsser Cole Engman Patient Support & Stories Dyskeratosis Follicularis Patient Support & Stories Dyskinesia, Drug Induced Patient Support & Stories Dysmorphism Abnormal Vocalization Mental Retardation Patient Support & Stories Dysmorphism Cleft Palate Loose Skin Patient Support & Stories Dysmyelination Patient Support & Stories Dysosteosclerosis Patient Support & Stories Dysostosis Patient Support & Stories Dysostosis Acral With Facial And Genital Abnormalities Patient Support & Stories Dysostosis Peripheral Patient Support & Stories Dysostosis Stanescu Type Patient Support & Stories Dysphasic Dementia, Hereditary Patient Support & Stories Dysphonia, Chronic Spasmodic Patient Support & Stories Dysplasia Epiphysealis Hemimelica Patient Support & Stories Dysplastic Cortical Hyperostosis Patient Support & Stories Dysplastic Nevus Syndrome Patient Support & Stories Dysprothrombinemia Patient Support & Stories Dysraphism Cleft Lip Palate Limb Reduction Defects Patient Support & Stories Dyssegmental Dysplasia Patient Support & Stories Dyssegmental Dysplasia Glaucoma Patient Support & Stories Dyssegmental Dysplasia, Rolland-Desbuquois Type Patient Support & Stories Dystelephalangy Patient Support & Stories Dystonia 12 Patient Support & Stories Dystonia 15, Myoclonic Patient Support & Stories Dystonia 6, Torsion Patient Support & Stories Dystonia Musculorum Deformans 4 Patient Support & Stories Dystonia Musculorum Deformans Type 1 Patient Support & Stories Dystonia Musculorum Deformans Type 2 Patient Support & Stories Dystonia, Dopa-responsive Patient Support & Stories Dystrophia Myotonica 1 Patient Support & Stories Dystrophia Myotonica 2 Patient Support & Stories Dystrophic Epidermolysis Bullosa Patient Support & Stories Dystrophinopath Patient Support & Stories
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