Does anyone have Cryoglobulinemia? If so I would like to connect and share experiences and support.
The Alliance for Cryoglobulinemia is a network for the rare disease community Cryoglobulinemia. We can be found on facebook but because it is private please go to the information page for the alliance and ask to be added. We can also be found on Rare Connect, Utube and Pinterest. We have many members who are willing to share their experiences. 90% of our patients have hep-c and should consider getting tested for cryo of they are having unusual symptoms.