I have not but I am sending love and hugs to your son and your family.
I'm sorry, I've never been in that situation myself. I knew someone who had a small, harmless one removed, they didn't know why it even showed up. He was/is in his 20s. It's a rough decision, my heart goes out to you.
my stepfather suffered from epilepsy. I think it was at the mayo clinic that he'd had a portion of greyness removed. he's driving legally now.
I'm am so sorry. I'm sure you'd rather have an answer but all I can say is, be optimistic. My friend has had a brain tumor since he was 8. Hes a very entertaining funny guy. He doesnt look down upon it. He enjoys every day like it was his last.
I'm very sorry you and him are going through this. I have HEARD of people who have had them removed. Sometimes it works out. Other times it doesn't. But ask yourself this...is the risk worth the possible reward?