There was a story about a woman named Ginger. Google Ginger's Gene. She had a tough time but was determined. She was diagnosed relatively late in her early-40s. For the story she was mid-50s. Her life as parts of her body aged more rapidly than an 85 year old are shocking, but she manages to have a life despite her troubles. She suffers from osteoporosis, sores on her heels that do not heel, finally an amputation, broken bones. But she keeps going.