What is your knowledge of Sarcoidosis?

Asked By: Zebzz 51-55, M 1 year ago

No offense intended but google, wikipedia answers are not what I'm looking for.

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8 Answers to "What is your knowledge of Sarcoidosis?"

Posted by fightn4me Apr 23rd, 2012 at 9:42AM

I looked it up:
Sarcoidosis is a disease in which inflammation occurs in the lymph nodes, lungs, liver, eyes, skin, or other tissues.

A friend of mine has it and she told me that it is an autoimmunce (inflammation) disease that has affected her kidneys.

TRY: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001140/

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Reply by Zebzz Apr 23rd, 2012 at 10:00AM

Your friend is not wrong....Thanks for your answer :-)
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Posted by jinxibell Apr 23rd, 2012 at 5:53PM

I was diagnosed with it in 1993. Sadly, it's still pretty much a mystery as to all of it's symptoms/conditions, because they seem to vary with the individual.

Mine is mostly neurological. It creates tumors/lesions in my spinal cord and on my brain. When this happens, I lose feeling in areas of my body, dexterity in my hands, and my skin is overly sensitive. The last time, I lost feeling from the ribs down on the left side of my body. Doctors gave me six months to walk, due to five tumors in my thoracic spine. Their prognosis never happened. After three years of weekly MRI's and never ending spinal taps, the tumors 'dissipated' (their word, not mine). The disease went into remission.

Now, it's back again. It's effecting my left side, much the way it did the last time. This time, I refuse to be a guinea pig. No MRI's. No spinal taps. No steroids. I'm just going to deal with it on a 'day to day' basis and cope.

The last time (or the first time I heard that I have this disease), I was scared, because I didn't understand and it was so new to me. This time, I'm not scared and even find myself joking about how effects me. I can do this, because I know others suffer worse symptoms than me. I count myself lucky in comparison.

If you have any questions, you're more than welcome to contact me. I'll answer what I can or give you links that can help answer your questions.

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Posted by samhr Apr 23rd, 2012 at 10:06AM

I've had it for decades. Feel free to email

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Reply by Zebzz Apr 23rd, 2012 at 10:15AM

Thanks for you reply, will do :-)
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Posted by cosmicpete Apr 23rd, 2012 at 9:46AM

I was diagnosed with Sarcoidosis about 18 months ago...ask away!!!

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Reply by Zebzz Apr 23rd, 2012 at 9:59AM

Sent you a PM :-)
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Posted by FoggyKoala Apr 23rd, 2012 at 9:39AM

It is called sarkoidoosi, in my language, that is something i can say with 100 % certainty.

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Posted by widders Apr 24th, 2012 at 11:22AM

I do not have experience of it but I do hasve natural products that are great for the immune system and have helped with neurological conditions such as ms, parkinsons reducing the symptoms and allowing people to reducr medication. If interested in knowing more pm me.

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Posted by elyay2001 Apr 23rd, 2012 at 9:41AM

Only that is is a popular thing to have on House.

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Posted by QueenIzabella Apr 23rd, 2012 at 9:37AM

Zero, zip, nada.

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Reply by Zebzz Apr 23rd, 2012 at 10:20AM

I'm sorry to say you are probably not going to get BA.
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Reply by QueenIzabella Apr 23rd, 2012 at 12:15PM

It's simply the truth, I have no knowledge of this, & I didn't "google" it, per your own request.
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