At First, I Didn't Know What Cancer Truly Meant...

I was ten when I was first diagnosed with Ewing Sarcoma. At the time I was getting root canals done on my two front teeth, so I couldn't comment much when my mom and dad walked in to tell me the news that a tumor that was likely cancer was found in my left leg. My first reaction was "is that what was causing all this pain?". I had felt slightly relieved (believe it or not) to finally know what had been bringing me so much trouble over the past month. I got the idea of cancer slightly confused with asthma. It was a mix of "ok, so I need a breathy thing and I'll lose my long hair which sucks but at least I'll live." HA! I quickly learned it wasn't so simple, and there was no "breathy thing" required.

 

Luckily my prognosis was rather well. I had a 75% chance of living and I would need surgery and chemotherapy. No radation for this girl! It took almost two years, but after some struggle and a serious wake-up call I have been cancer free for eight years now! I lost part of my left leg in a surgery called the Winklemens procedure, a spin-off of the Van Nes rotation. The difference between the two? I don't get to keep my hip joint, so my knee is used in place of it, where normally it would of been discarded and your tiba attached to the left-over femur bone. My cancer was too high to spare my hip joint, it was left in the 'margin of safety' they had. Otherwise it's the same typical Rotationplasty surgery, backwards foot and all. The Winklemens doesn't offer quite as much mobility, and they did kind of mess it up a bit because they forgot to remove the growth plate which caused their calculations to be off. Annoyingly this left me with my  heel which acts like a "knee" longer then my other knee, which causes trouble when trying to sit in vehicals, among other small things. If you don't know what a Van Nes is there is this webpage for the curious: http://www.amputee-coalition.org/inmotion/mar_apr_05/rotationplasty.html. Unfortunately I haven't really found any information my specific surgery but Van Nes is basically what is except for the difference I listed. I also have to be a bit more careful with what I do, because a knee doesn't go side to side like a hip does so I could really mess up my surgery. Other then that life is good and there has been no sign of my cancer coming back. I was the first girl to have this surgery done in the province I live in, and the third person to get it done there as well.

KibblesNBits KibblesNBits
26-30, F
Feb 23, 2010