How GBS Changed My Life
Posted September 14th, 2010 at 3:13PM
I have done therapy 3 times a week for 4 months until my insurance limited out. I was just recently fired from my job because after 10 years and being an assitant manager they could not accommodate my disability. You can look at all the bad because there is a lot of bad and sometimes its hard not to get depressed. My Bible says all things work for the good to those that love the Lord. My wife, kids, parents, friends, church family, and customers from work have been so kind to me and all I can say is thank you and I will never be able to repay your kindness.
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hi iam new to this site and your story is one of the worst.i have never heard of anyone going blind with gbs but i have heard of people having to get their eyelids sewn shut due to the paralysis and being unable to bl
ink.has your vision returned at all or is it permanent?i still havepain 18 years later and it can be togh some days but what can you do it was just another hurdle in our life -
The doctors did talk about sewing my eyelid shut or putting brass weights in my eyelid. I was taking therapy and my therapist would shock the nerve next to my eye and after 12 sessions it started to take effect. My eyes are almost healed up although I still can't wear contacts. I was never blind I just could not see the big E on the chart clearly.(might as well been blind) I'm doing alot better. The worst is the leg pain. My lower back, hips, knees, and ankles hurt all the time. I also have not regained my stamina yet.
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well im glad to hear it was not as bad as i was thinkingand that your vision was not lost.i see you were only diagnosed earlier this year,my recovery took almost two years until i was strong enough to return to work.thank god for family and friends.i had 3 small children at the time and was unable to care or provide for them.my mom took care of me,bathed me etc. my friends helped care for my kids.i feel your pain literally i still have pains to this day.recovery is very slow but it will come.
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I have been recovering from gbs for the last two years ,I am still off work but fortunetly I have good wage loss insurance and the canadian medical coverage that pays all medical cost,as well the support of all my family ,I am only 53 years young but while I have been sick I have been blessed with two more grandchildren ,and now My spouse and I have six wonderfull grandchildren.Don't dispere you can beat this,stay active and eat right and you we be back to yourself real soon.
just another survivor
Dan -
April 2011, I decided to go back to work. The week before I was to start my new job my right foot went numb and my toes became paralyzed. My wife tried to get me to go back to the doctor but I refused. About 3-4 days later my left foot became numb and paralyzed. My right hand and the right side of my face also became numb. Saturday night I decided to go ER. I was admitted to the hospital and was diagnoised with GBS again. It wasn't as bad this time because we caught it earlier but I had to have 2 treatment of IVIG. I was suppose to get 3 but it makes me deathly sick and I told the doctor another treatment would kill me. I lost 20 pounds in 4 days. I had severe vomitting and migraines. I am still unemployed but God has taken really good care of us. I don't get away from the house to often because of weakness and taken medicine so long my stomach is upset alot but I get to spend alot of time with my family. Today my leg and foot are numb and my toes feel like they could fall off so I didn't go to church but my stamina has gotten way better. God is a healer and healing sometimes just takes time.
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