Stricken With Gbs While Out Of The Country

My husband and i were visiting family in Italy in Aug 2011 when i got a "stomach flu" which ran its course-after a wk I had trouble walking and suddenly fell-i was taken to the local er where blood wk and a cat scan was done-ct scan showed some bulging at the disks but docs were puzzled-At that point i had b ack pain-so they thought it might be sciatica-I was told to go home and rest-i was given pain meds-the pain was a 9 on a scale of 1-10-i had to have the meds increased-I was seen by other docs but none had an answer(i told all of them about my stomach flu) I was laid up in Italy for about a month-hoping the "sciatica" would clear up-Coming back on the plane was awful-I up-graded to bus.class-had to use a wheel chair-Once home-went to a neurologist and he immediately sent me to the er and I was admitted- was diagnosed with GBS(numerous mri's- blood wk- spinal tap} Given IVIG -Lots of ot and pt-after 3 wks sent home with ot and pt services at home and then out-patient-I have improved but still have difficulty-have foot drop in both feet-use AFO b race on one foot climbing steps is very difficult and balance is an issue-i use a cane-it's very frustrating-I was a very active and independent person-I am grateful that the GBS was not worse-others have and are still suffering more than me-I pray for all of them-I hope that more can be done for people with this problem-it is rare but so debilitating