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I Am a Paraplegic

Colostomy For Sci

By: Martha1982
Written on November 3rd, 2011
Just a brief note, that I had this operation , see http://www.craighospital.org/sci/METS/colostomies.asp, and that it made a very big difference for me. It was the best thing I could have done.

If anyone wants more info, write/comment/ call me.

By: Martha1982
Age: 26-30 , Female
1,692 people have read this story

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11 responses
  • Martha1982
    Martha1982

    Has anyone any experience with something called a 'double barrelled colostomy"?

    Apr 1
    1 like
  • Martha1982
    Martha1982

    Just a brief note for those also interested. I had the stoma moved for other reasons ( ie, to wear braces) and it was re-done as an 'outee' and made much easier to work with.

    If you are going to use this full time and forever and you are having issues with leakage, try to talk to your Dr. about making the stoma easier to place into the bag.

    Mar 27
    1 like
  • wileJEEcoyote
    wileJEEcoyote

    FYI: Martha, the link in your story is now broken. I got a FileNotFound screen from it.

    Jan 21
    1 like
  • Martha1982
    Martha1982

    Just switched to http://www.convatec.com/en/cvtus-sfnostmsus/cvt-portallev1/0/detail/0/1593/1935/sur-fit-natura-ostomy-system.html and find it is far better than the system I got in the hospital.

    Apr 26, 2012
    1 like
  • ShadyHellCat
    ShadyHellCat

    I had the same thing done and it makes a HUGE difference!!!

    Apr 20, 2012
    1 like
    • Martha1982
      Martha1982

      Shadyhellcat and others: Yes, after some time I am still very happy with this operation and recommend it.

      Apr 21, 2012
      1 like
  • yerac27
    yerac27

    I hope all works out for you for the better. Although not in your position, I can imagine that which you wish you could experience and have missed out on.

    Nov 15, 2011
    1 like
  • GMan74
    GMan74

    Its just part of the changes that happen when you lose sensation below the belt line. Not better or worse. Just different. Only a few people love the contents of a bag or a toilet, I'm not one of them. Same deal either way - either you're clean or you're not. You sound like you're clean. All good at that point.

    Nov 10, 2011
    1 like
  • guidence508
    guidence508

    Martha,

    Hi. Thanks for sharing. Yes the exit hole can be placed anywhere. The last part of th large intestine dries things up so there is less risk of blockage. Daily and predictable maintenance is suppose to be easier. For one person eating marshmallows helped temporarily slow paristolic (sp?) Motion.

    Dating and traveling with friends was difficult for another. She feared guy would not date her though a woman might be far more willing to date a guy in the position

    .

    Without getting personal nor descriptive what do you think? ?

    Nov 10, 2011
    1 like
    • Martha1982
      Martha1982

      I think it is better than the way it was before....glad to go into more detail if it interests anyone or can help anyone with decisions.

      Nov 10, 2011
      1 like
  • setumismo
    setumismo

    woow, i hope advances in medicine allow to cure people with movility problems by making transplants etc, it will increase the qualitie of life so much. : D

    Nov 4, 2011
    1 like