Loneliness

This morning work up not feeling great. Everyday can be draining. Raising a child on the spectrum I do not have any regrets. I have accepted his condition. It is those around you who feel they understand. They can only imagine, but not truly understand the challenges that we have to face, unless they are living it 24 hours a day, 7 days a week with all the chores, routine and sudden outbursts.

I get more frustrated by the what is best and what is right! But how much do they understand, yes, the other children and family members get caught up in the child's new surroundings, once we finally get that diagnosis, but for the big bad world.

All they see is a child that has these uncontrollable unexplained behaviour and then as my son is verbal, the verbal abusive that they can't believe. " CHILD NEEDS A SLAP" you know exactly what people are thinking.

Before the diagnosis, it was why, why, why, but now with the diagnosis and not labelling him for all kind of things, you have to contend with family, friends and society pointing fingers at you.

They don't come to the assessments, appointments, meetings, read through loads of reports, attend tribunals or tribunal appeals, but still they have so much to say.

Loneliness and isolation has been by accident, but it is clearer that when you are unable to go out like you use to, incase your child can't handle certain things in regards to their sensories, others think you are making an excuse.

No one really understands the world of living with autism, unless they are fully committed and take on all the other trimmings that that parent/carer do in making the child have the best education they can have, a controlled environment that we can slowly intergrate them with others and a place they are accepted and not expected to fit in. I

I love my son, it's the people that make it hard. Life still goes on, but what future is there for my son, if society are so still in denial about the condition, because the government just don't want to understand. I wonder how many undiagnosed autistic adults work for the government?
DelVene DelVene
41-45
4 Responses Sep 19, 2012

I feel the same I am single and totally isolated from the world I haven't been alone four years my SoN is four now anywhere I go to conduct bussiness we are asked to leave society needs to accept autism and embrace it because life has to go on

The isolation was gradual for me but I did know what was happening prior to the diagnosis. Now that I have answers, I'm hardly going back to explain to non-essential people what's going on. I feel that would be a betrayl to my child plus I'm weary about how this information will be used; if they weren't supportive then how could they be now?

Seen the way, girls and women are not given the same support. Admire your strength!

you walk a hard line

and there are no answers butit the same for any parent dealing with a special need child and so many thunk that at age 18 the illness just goes away as youn ever hear alot about adults with the illness inthe general poputalion

if youwere near i would take youa nd we could all do things with each other as i Deal with cp

old school is a hot bath with 1 cup epson salts in the bath water help bring some acting out down

Thank you RickiBrat2.. I am in support of all disabilities and special needs.. xx

Many years ago I heard a great teacher reply to a parent as follows: Lady said to teacher I do not understand how my friend Pam deals with her little boy each day he is so misbehaved because of his Autism... Teachers reply was I will tell you: God only gives a special child to a special person, one that can handle it. This has remained in my mind for years. You were chose by God you are special.

Ahhhh, thank you for encouraging words! God is truly with me and my family! Maybe that is why my family don't like me for being strong and have a great team of mothers with children with special needs. Makes a big difference.