I'm Begging For This Leg To Be AmputatedI have lived for 12 years with CRPS (also known as RSD Reflex Sympathetic Dystrophy) in my Right Leg. I have had evaluation after evaluation by Physical Therapist that there is nothing that can be done to make this leg "work" again.
Most of my Physicians have said NO to an amputation using the excuses of I have something else we need to try; it will make the disease worse; You have to see 5 other Physicians, and if they all agree then we will amputate the leg, but if one says No, we won't do it.; and on and on. Well, I am now working with a Pain Management Physician at the University of Michigan, and he agrees there is nothing left of the leg to save, and being honest with me, it is at least an attempt to get back to not having to focus on this leg 24-7. We don't know if the disease will "jump" to another limb, we don't know how bad the phantom pain will be (from the CRPS/RSD), nor do we know if I will be able to stand a prosthesis. I am not expecting that I will be able to have it on 24-7, but to even have an hour of freedom from a wheelchair!
I have joined this group, to LEARN about what I am going to be facing if we go through with the amputation, I want to know before how to get thru this uphill battle, and beat it so I can walk again, so I can wear 2 shoes again, and I can go back to being a nurse and helping other people that have or are facing what I (we) have faced.