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I Am An Anesthesia Awareness Survivor

Awake During A Lumbarectomy At 18yrs Old

By: helpless18
Written on March 27th, 2012
Age: 31-35
1,644 people have read this story

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6 responses
  • nagann

    Hi, My name is Arlene, and I am an awareness survivor and a doctoral researcher on awareness. I have a blog I recently started at www.anesthesiaawareness.net. I am trying to do two things; reach survivors to talk about treatment and find a final participant for my study. If you (or anyone) is interested, please contact me through my website or at arlene@anesthesiaawareness.net. I am very sorry you had this experience, and I hope to be able to help professionals know what to do to help people like you who have been awake during surgery. I have been working on this research for a couple of years now, and I recently made a promise to one of the participants that I would finish it before the end of this year. I am hoping someone will read my posts and respond. I like your request to respond with authenticity, support, and respect. These are key elements for recovery - and they need to happen FAST and consistently by the medical providers AND families/friends involved! I really think some important information is emerging as I give voice to survivors talking about their recovery experiences with mental health professionals.

    Aug 7, 2012
    1 like
  • Pebbles1982

    I am so sorry to hear about your expirence. It saddens me every time I read another survivors story. Like you, I too now have PTSD. I hope this group helps you. My awareness happened during an arthroscopic surgery, and like you, I've had two have two other procedures on that knee for the same reason l had the first surgery. Igotta agree and also add Ask for a sedative. With my surgery last month, i got a damned good anesthesiologist who listened, and then discussed options with me. I only wish everyones surgical expriences could be like that one. I wish no one had to go through anesthesia awareness!

    Mar 29, 2012
    1 like
  • Boobiesmcgee

    "great bedside manner"... Well, actually, you got better than expected. They usually pretend nothing happened and shrug it off when you try to tell them. This is their way of trying to belittle the experience for you and try to make you think it was no big deal. Their number one priority at that point is trying not to get sued.

    Mar 28, 2012
    1 like
    • Pebbles1982

      I got that too after my awareness. And forget trying to talk to a lawyer..

      Mar 29, 2012
      1 like
    • Boobiesmcgee

      Yeah. I don't really know if legal action is necessary in these situations. I mean, I think the best way to deal is to talk about it, but I think it would be a lot easier if the doctors would acknowledge the seriousness of your experience and try to exercise some understanding.

      Apr 11, 2012
      1 like
    • Pebbles1982

      The first surgery I had after the Awareness, the anesthesiologist tried to pretend it hadn't happened, which p*ssed me off, and I yelled "Don't you DARE try to act like it didn't happen, cause I know d*mned well it did!"

      Aug 31, 2012
      1 like