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I Am Dealing With Living With Spina Bifida

Running Was A Way Of Life

By: peachfuzz68
Written on February 12th, 2012
Age: 41-45 , Female
1,148 people have read this story

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90 responses
  • DallasCowboysFan

    I am glad you are still fighting. I was a distance runner too and I can identify with your reference to running. Although, I never ran 22 miles at a time..

    I hope things get better for you.

    Good luck

    Mar 4
    1 like
  • midessexmale

    You will do it, be patient bodies don't mend overnight. At this moment in time you have to do assess what you can still do and try to excel in those. You write well, how about writing a book, you have had children, so how about fairy stories. Can you paint, how about some water colours. You obviously have, in the past, been very determined and competative, but things have worn you down. Try to recapture that old spirit and apply it to new things . Go for it Peachfuzz, and I will be rooting for you here in the UK

    Sep 4, 2012
    1 like
    • peachfuzz68

      Blessings to you for your kindness!

      Sep 5, 2012
      1 like
  • canoethenhike

    I do hope for you to live the life of a runner again. You sound quite positive about your life now, and i know you have some difficult moments with it. Hopefully all goes well and gets better

    Apr 8, 2012
    1 like
  • fishsweeper

    Hi - I'm responding to a post that you sent me. My name is JC, and I've been an athlete all of my ife. Ive done everything to fun-runs to a full-on Iron Man (came in 12th!). You know, life just isn't fair. I contracted ARDS (acute respiratory distress syndrome), and now I pant when I walk my dog through the moutains. Over 30% of my ung tissue is permanantly damaged, and no matter what I do to compenseate with aeorbics does't help with my ability to even WALK uphill quicky. I figure that sometimes bad stuff happens to good people. I was so focused on my physical attributes that I neglected the mental ones... so I went to Pepperdine and eventually got an MBA. I dont how long it's going to take for you to recover, or if you ever will, but there's a life out there beyond what we can do physically. It took me a REALLY long time to come to grips with this. You're probably go through all the stages of mourning, just like I did... But you'll eventualy learn that there's more than one facet to you. You're a good, intelligent person, and that will eventually prevail. - JC

    Apr 7, 2012
    1 like
    • peachfuzz68

      thank you my friend, yes i did mourn it was heart breaking for i would of ran professionally. I had a coach, who told me i was the best he ever saw, considering my height. i'm 5'3 he was going to pay me to run and win for his team. a chance of a lifetime that i had to decline.

      Apr 8, 2012
      1 like
  • prettierinpink

    Wow! I admire your courage and determination! I will be your number one fan, cheering for you...you can do it! A lot of people love you and care for you, with God on your side, you are definitely gonna be a champion! Hugs! :)

    Apr 6, 2012
    1 like
  • peachfuzz68

    Sadly, my friends i was denied help, my back is to messed up, doctors won't touch me. I will be braced and chaired on the 20th. I love all you comments of love. Bless you my friends.

    Apr 5, 2012
    1 like
  • khlesas

    oh bitter sweet story! but its good to know there is a beaming light for you that being the surgery..goodluck

    Apr 5, 2012
    1 like
  • notsomeyetme

    great motivation to now about people like you

    Apr 3, 2012
    1 like
  • RedHotFlamingO

    your honesty is humbling me, your courage is inspiring. God bless you, Peachfuzz!

    Mar 31, 2012
    1 like
  • 1day2talk

    peachfuzz i read your storty ,i'll be praying for you!sometimes i swell crooked and people think thats what i have one of the bestthings that like that was i had a skirt on and ayoung lady who had what you have saw me and thought i had the same and she see never wore dresses or skirt because she couldn't have them hem straight and felt funny. i said we look just as good as everyone else. and she got all excited and said she was buying a new dress tommorrow. that was a good feeling. i use to love track my self. some days i take works for acouple hours and i fall alot. down the stairs alot sometimes i swear god puts a pillow under me.i'm going to read your other stuff.god bless you.and take care

    Mar 30, 2012
    1 like
    • peachfuzz68

      blessings to you my friends!

      Apr 1, 2012
      1 like
  • fox2222

    My deepest wishes are with you, THINK AND IT WILL BE. The body I believe has a DNA It can rebuild, but takes a little help still in 2012.

    You can make it happen.

    Luv xxxxxx

    Mar 30, 2012
    1 like
    • peachfuzz68

      blessings to you my friend, my big day is in the morning, i meet the lady who will save my life!

      Apr 1, 2012
      1 like
  • fuddnuttzz

    Peachfuzz, you are an inspiration to all. You will run again. And I would consider it an honor to call you a friend. If you don't mind being friends with an ole-over-the-hill Leatherneck who has one foot in the grave and the other on a banana peel.....lol.

    Take care and God Bless sweetheart.

    Mar 29, 2012
    1 like
    • peachfuzz68

      I love you my friend.

      Apr 1, 2012
      1 like
  • fuddnuttzz

    Peachfuzz, you are an inspiration to all. You will run again. And I would consider it an honor to call you a friend. If you don't mind being friends with an ole-over-the-hill Leatherneck who has one foot in the grave and the other on a banana peel.....lol.

    Take care and God Bless sweetheart.

    Mar 29, 2012
    1 like
  • shiokosho

    Hi. Sorry to hear about your Crohn's. I've been dealing with that myself for about 20 years. I've been in remission for quite a while now, but I've had to go off my meds as I can no longer afford them. Hope I stay healthy. If you can get hold of a copy, I think you would really enjoy the book "Duel in the Sun" by John Brant. It's about marathon runner **** Beardsley and his struggle to overcome a devastating accident and addiction to Demerol. Thank you for sharing your strength and determination.

    Mar 29, 2012
    1 like
  • dukealbany

    in my dreams, most nights. i run....i outrun baddies. i run just for thr pleasure that it gives me....when i was young did it without thinking,,,then like you got into school sports....if heaven is real i will see you on the track!...running for sheer pleasure

    x

    Mar 28, 2012
    1 like
    • peachfuzz68

      it is real my friend, i'd love to see you in glory!

      Mar 28, 2012
      1 like
    • peachfuzz68

      we will run together my friend.

      Mar 28, 2012
      1 like
    • dukealbany

      ALL my dreams include running..i too was a sprinter..100/200...now i cant walk the distance.......but every night i can run! ill be there waiting for you peachy...hope to show you roundx

      Mar 28, 2012
      1 like
  • abundantdesires88

    ****! I admire your strength and your way of taking the next target!

    Mar 28, 2012
    1 like
    • peachfuzz68

      Thank you my friend!

      Mar 28, 2012
      1 like
  • NudistCowboy

    Hey Just read your story. Wish you the best in your fight against all youre going through.

    Mar 27, 2012
    1 like
    • peachfuzz68

      blessings to you my friend!

      Mar 27, 2012
      1 like
  • peachfuzz68

    yes my friend i'm with you.

    Mar 22, 2012
    1 like
  • stillgoingstrong

    there must be some way to make you run again ., lets find it . this way or that way .

    Mar 22, 2012
    1 like
    • peachfuzz68

      With the love of god and my friends i will be better athlete than i was before!

      Mar 27, 2012
      1 like
    • stillgoingstrong

      you dont need love , you need some thing that will kill you if you dont make it . some thing that pushes you to be the best .

      Mar 28, 2012
      1 like
  • peachfuzz68

    Thank you my friend, i will press on and fight even if i'm stuck forever in this chair.

    Mar 21, 2012
    1 like
  • blaquefaces

    "Every life has a purpose sometimes it's just hard to know exactly what that purpose is". First off THANK GOD you are still alive. It seems like your pass time sport may have been running but you seem to have the spirit of a fighter... so know matter whether or not you run again, keep fighting.



    By the way, I think you should turn your experiences into a novel... CHA CHINGGGG!!!

    Mar 21, 2012
    1 like
  • Myalee

    Big hug to you and wishing you the best once you see your doctor about your condition.

    Mar 15, 2012
    1 like
  • peachfuzz68

    My heart goes out to you my friends, it is a hard road but if we love each other through life's journey we will be made strong by gods love. I reach out to you for i know you're pain, i hold you close to my heart. Blessings to you all.

    Mar 15, 2012
    1 like
  • madmoe68

    Ur awesome and, an inspiration to me ! I'm lucky enough to walk but, my legs go numb & sometimes I trip & fall. Its like they arn't there sometimes. I have 2 disks hermiated oldest is lower back other is upper now. The upper is startine to affect my arms & thumbs. Havent been honest about it to my family yet they know but, not how bad its gotten. Surgery will only leave me in a chair or with limited mobility. To be honest after 22 years of this & the people who refuse to belive my pain I'd rather be in a chair at least most will understand what I'm going threw. the majority needs to see a reason for suffering. M.R.I.'s arn't enough I guess. I'm tuff tuffer than most but, I do it alone because I tuff it out people think I'm full of it. Big change is comming soon for me because I'm a realist & know very well my numbers up now. Disability & surgery is in my neer future & I'm not the kinda guy to do it without kicking & screaming. Ur story helps me thank you very much for shareing. As you I once was great to many eyes now I'm a looser and, only a winner in my own for I know what it feels like to be both now. Pain has become a close friend of mine but, even thow I keep going I feel things getting real bad I fell the other day thankfully nobody seen & the bruse is nothing that pain is easy for me. Just how I lost my legs & the long time it took to get back on them hit home its real & soon may be dangerios. What if I loose the legs on my chopper or driving my classic car? What if I can't fix or build things anymore? what the hell will I do? Wish I could open up about this to my family but, they hav'nt been so nice to me in the last 20 years about it. Even my wife seems only concerned about my ability to earn momney rather than help or listen to my troubles. Got a bad feeling I will be found on the ground and, it all will come to an end, I will be found a week looser with no worth in life. Well at least my son will still support me I almost told him he makes me feel like I can

    Mar 15, 2012
    1 like
    • peachfuzz68

      My friend, i'm here for you! the truth is reality, to me i'm thankful to be alive. As long as i'm still breathing i can still love.. its hard to take, devistating to be more exact. But we must press on, we will one day walk again my friend!

      Mar 15, 2012
      1 like
  • hnrbrl2009

    I am dealing with the same thing. When I was born the doctor told my parents that I would Possibly not live to be 5 years old. I went through 3 major surgeries at 6 months old. When my fifth birthday came my parents where so happy because that's also when I started to walk. In middle school I was cheerleader and then In high school I played softball and was on dance team. I'm now 19 and I still have the pain of living with this from day to day but I have learnt to deal with it. And I am so happy that God has used his power to help me live this long and I know he will let me live for many more to come.

    Mar 13, 2012
    2 likes
    • peachfuzz68

      Stay positive my friend, its the only way.

      Mar 13, 2012
      1 like
    • hnrbrl2009

      I am..it's all u can do

      Mar 14, 2012
      1 like
    • peachfuzz68

      Understand my dear friend, i'm with you in heart.

      Mar 17, 2012
      1 like
    • hnrbrl2009

      Thank you.. Im praying for you

      Mar 17, 2012
      1 like
    1 More Reply
  • peachfuzz68

    Your love makes me cry in joy my friend...

    Mar 12, 2012
    2 likes
    • peachfuzz68

      You have a piece of my heart my friend.

      Mar 13, 2012
      1 like
    • peachfuzz68

      I love you my friend

      Mar 15, 2012
      1 like
  • j5a4m3e2s11

    To me the most important thing is to stay positive and it will help you to physically run, again. You are still running the race of life and that is so great, also. God bless you and positive vibes are sent your way, as well as prayers.

    Mar 11, 2012
    1 like
    • peachfuzz68

      Thank you my friend, blessings to you and yours!

      Mar 11, 2012
      1 like
  • skrc4u

    Time that has snatched your growth will reward for your patience and you will soon recover from darkness of life.Nothing live forever anywhere.The Good is at your door try to step one and some one will receive you warmly.Wish you best of health.

    Mar 7, 2012
    1 like
    • peachfuzz68

      Thank you so much my friend, blessings to you,

      Mar 11, 2012
      1 like
  • missygirly

    I used to run in High School. I am so sorry about what happened to you, i will keep you in my prayers. I f there is anything you want to talk about i am willing to listen and respond if i can offer anything to encourage you to press on. I pray that God will bless you and keep you close to His heart.

    Mar 6, 2012
    1 like
    • peachfuzz68

      Thank you my dear friend, i will press on!

      Mar 6, 2012
      1 like
  • cherrycheek

    and my ms symptoms slowed me way down. It is very tough so I love you and cheer you on !

    Mar 6, 2012
    1 like
    • peachfuzz68

      I love you the same for you know how this affects your life when your not able to do the things you love. I also love those who stand with us in our fight to rise abouve our ailments.

      Mar 6, 2012
      1 like

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