Want Out Of It

Had it most of my life with it having a significant impact on me. They started out small, but only increased in severity as I got older. It could happen so many times in public that 911 was called or I was dismissed as intoxicated. I was nothing but sick of it, feeling like an outcast. I had surgery and it worked for a while, but they only returned worse than before. I have tried something else recently having heard good reviews of it. I had a VNS put into my system last week and it seems to be promising. I have had one seizure since, but it was less severve than they have been for the past several years.
asert12345678 asert12345678
31-35, M
3 Responses Jan 12, 2013

I am so sorry to hear that. I was diagnosed with epilepsy not even a year ago. It has put me through hell and back! Seizures at least 4 day a week. I am on medication but it doesn't seem to be doing much. I still get them so I know how you feel. If you ever need to talk please feel free to msg me.

hope your VNS works out for you and gets better. my seizures are not type that a VNS is even an option. what i have read about them they help many people but i think they have to be calibrated to your system. let us know how things work out.

I am very sorry. I was diagnosed when I was 7 and it changed my life completely too. Two years ago, I lost my job. I have not had health insurance since and I need to see a neurologist because I am having weird symptoms. No one in my family can understand. My therapy is to say positive statements each day and I will continue to work on getting health care coverage in the meantime.

I understand the social isolation as well. It may be helpful to speak to someone about it. If not a friend, try a counselor. You will not be judged and it is a safe place to express your feelings. There are many new drugs and treatments now so I am hopeful for you and I that there will be something out there for us.