Six Years Of Psoriasis

I started getting spots of psoriasis on my scalp and my forehead when I was 12 years old, but my parents and I did not know what it was. A few months later, my pediatrician said that it was indeed psoriasis and that they can treat it unless it gets worse. At 12, I really did not understand what psoriasis was, and I did not really care, because I just thought it was like dry skin. I started caring real quick a few months later when my legs and scalp were covered in it. Junior High is already an awkward time, and having psoriasis only made it worse. From that point on, I had regular dermatologist appointments and I was constantly being put on different topical medications. By the time high school started, about 70% of my body was covered, and I started to lose hair around my hairline because my skin was so thick. I can't remember anything in my life more embarrassing than having my skin that bad and people wondering what was wrong. After a few more years I went through good periods in which I hardly had any, to my worst point about two years ago when my body was 85% covered. Finally a dermatologist suggested photo therapy, which didn't last long because it burned my skin really bad. I was at a complete loss as to what to do. Because I was not 18, biologics were out of the question and I had already been on every topical out there. But just a few weeks ago I was finally able to start Humira and I have not been happier. My skin has cleared drastically and I was not expecting such quick results. I'm not going to lie, I am afraid of the potential side effects. I already feel fatigued often and I just try and push through that, the headaches however, have been a whole other battle. This has been a battle I have been fighting for 1/3 of my life, and I hope for everyone who has psoriasis, that we will get relief soon with a cure. (Here's to hoping!)

aldi09 aldi09
18-21, F
4 Responses Feb 17, 2010

my name is Joseph Guidotti and im sure that you have tried just about everything any anything that the doctors suggested. if this is the case< i urge you to try Seacret products. Have you heard of the dead sea? im sure you have. if not google it and read any one of the storys and you will hear about its healing ability. the company seacret has bottled up those healing powers in the form of Deadsea mud soap < body butter and salt and oil scrub as well as a shampoo and conditioner 443 986 0570 please this isnt about money for me. its about paying it forward please call me i may be able to help but you wont know unless you call. i live in Maryland but i can network anywhere.

It really is silent suffering. I tried explaining it to my college roommate how awful it is and she kept telling me that I can't let it control my life. It is true...psoriasis shouldn't control our lives...but it is SO hard not to let it. By the end of the converstation I was almost in tears because I was so frustrated with her lack of understanding. <br />
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I am very lucky that I am on my father's insurance and that he works at the U of M hospital where they have one of the world's leading doctors on psoriasis. I have participated in two of their research studies for it...and they are making good progress!

Humira saved my life. I had limited success many years ago with UVA, but nothing else (UVB, Dovonex A's, steroids, coal tar, etc etc). Then I started Humira 2mo ago, after 40 years of trying almost everything else (non-biologic) for very very very painful plaque psoriasis. My skin hurt sooooo bad, and bled day/night. Humira's been a godsend! Less itching in about 2 weeks, and I finally can wear short-sleeved shirts and have some energy for starting walking this summer (in Mich, which is mostly winter). I finally got a full night's sleep due to less itching. Hurray for Humira!!! Hope it keeps working longterm... Love it. It increased to hundreds of spots, head to tonails, over the years. I kept trying dermatologists until I found one who really knew the field... I was getting suicidal from the skin pain. Hurray for Humira (and my insurance that covers it...)

Have you had any children since you've been on Humira? Are there any issues with that? I am 30 years old and while I do not have any children yet, I do plan to have children in the next 5 years and I am concerned about how taking this medication now could effect my future ability to have healthy children.

Every now and then my sisters will make me feel gross about it too. I have 4 sisters and 1 brother and NONE of them have every had psoriasis. My parents and grandparents never had it either, so its a new thing to my family. Everytime they make a nasty comment about it, I tell them I'd like to see them handle it for a week. That shuts them up. <br />
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Luckily I don't have psoriatic arthritis, and I am hoping I don't get it! I am actually taking part in a study with the University of Michigan about it. They are trying to figure out what makes people more prone to getting it, what those factors are, and genetics. It will be interesting to see what they find!