Sick And TiredThere comes a time when I would love to wake up and just lay in bed and have a huge stretch,(which I used to do every morning) however if I do it now my whole body goes into spasm and I shall be in bed for the rest of the day. To be able to shower everyday without having to take 3 hours to recover from the shower. Walk out with friend without having to spend the next day in bed as CF has kicked in big time. To be able to cook a lovely meal and have friends over and eat, drink and chat till the early hours. Now I am usually in bed by 8.30pm with my book and some comfort food and there I will stay for up to 13 hours sleeping included in that time of course. To be able to go on tours with my adult children and not feel like I am their great granny instead of Mum. Even to write a letter to my best friend as we still use snail mail instead of having to type it, as my hands cramp when I hold a pen too long. The list goes on, out to dinner without feeling like I have been hit by a Mack truck for the next few days. Spend just 1 day pain free would mean the world to me at the moment even just 1 hour. I am in a prison without bars and freedom that I can not enjoy. Pills can only get you so far and even now I rattle when I walk with that amount I am on. OH to be free for a day.
Misseyme 56-60, F 0 Jun 14, 2012